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Having anxiety about.... everything
so I made my first trip to MD Anderson this past Monday and I’m going this Monday for blood a ct and mri cuz they wanna make Sure my doctors here didn’t miss anything. I know I’ll be having surgery to remove the mass from my coLon. But I’m having tons of anxiety that they will find more stuff than they did at home. And…
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Vectibix rash
Hello my husband started Vectibix this week. His oncologist started him on antibiotics 1 week before. He will be on them the whole time while on Vectibix. So far i just see so dry skin. Just wondering when might the rash start or would it have already. He has so many other side effects and is so weak I'm hoping this will…
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Stage 3c in Jan. now mets to peritoneum - much discomfort
I am a 49 year old female diagnosed with stage 3c colon cancer in January of this year. Emergency surgery for colon resection and removal of tumor. 6 months Folfox. MRI in October and subsequent laparoscopy show mets to peritoneum. Scheduled to start new chemo (Folfiri and maybe others) this coming Monday. Here is my…
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Happy Thanksgiving All
Wishing a very Happy Thanksgiving to all of the members on this board. Some might not be of this country, but we can all be thankful that we are still posting and helping others with our experiences and encouragement. This board has a way of bringing people together to share a story, give a kind word or calm the fears of a…
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Adjuvant Chemo Therapy
Everyone: I decided to extract this topic from another large thread (118+ comments) to make it easier to access. There is nothing special about my adjuvant chemo therapy. The main reason I am semi documenting it is because there are a few others on the list who will begin theirs in the near future and my comments may help…
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Perhaps a quicker method to determine if chemo is actually working:
www.pharmabiz.com/NewsDetails.aspx?aid=77553&sid=2
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Observation
I have been on this forum for a short time (6 months), but I have been on another, similar forum (chronic, spinal pain) for several years. My time on such forums has been absolutely beneficial and I thank those who make this possible. But what I really want to do is share an observation I have experienced on this forum.…
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metastatic rectal cancer to sacro
Hi. I'm new here and looking from people who underwent or undergo with metastatic rectal cancer to sacro. Mine has 8cm of size. My dr said I shoud start witho chemo. My cea is 295ng. Do you think it's gonna work? Ill start folfox soon. God bless you.
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Reaction to capecitabine
Hi all, Firstly, i wish you all the very best with yr journey. I was diagnosed with stage 3 sigmoid cancer a few months ago. Surgery-the Dr's say, they are sure they got it all. Had 11 lymph nodes removed-1 showed positive for cancer. Have been on oxaliplatin & capecitabine, but didnt even make it through the 1st cycle.…
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just spent $4350 on ctc test, anyone else done this
if they don't find any ctc's its only $1200 and my odds of survival go through the roof. google genotics and ctc and cancer if your interested in these tests. if they find and culture ctc's they will test against all chemos and biologicals. i get the results just before christmas. here is hoping!!!!!!!!!! anyone else do…
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I'm back everyone
I'm still alive! Since my last visit here back in July, I had my partial colectomy surgery in August. Staged at 3b. Syncopsis: A tumor was found in my sigmoid colon during colonoscopy in July. Currently I'm half way into my adjuvant chemo. Just had my 4th treatment on this past Friday out of 8 that my oncologist…
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My high CEA journey.
Here's a post I made earlier in the year summarizing events I've gone through up till that point: CEA has been a constant bane to me since my initial diagnosis in 2012. Preoperative CEA was 13.9. The lowest it dropped to was 3.11 when the clinic I went to used a lab that did the Siemans/Bayer assay test that had 0-3 as…
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Is it normal for the oxaliplatin to be an issue so soon?
my husband has had only had 3 treatments with it and he is on day 11 from disconnect and still having numbness and tingling in his hands and problems with cold. He keeps saying he isn't going to tell them because he thinks it's too soon to cut it down. It did seem most people get to at least treatment 8-10 before it stays…
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life expectancy?
What have others discussed with their doctor about life expectancy and colon cancer? Did your doctor share survival odds or stats? Would you like to know what the odds are but need some help?
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Opting for Cap/Ox/Avastin adjuvant chemo. Any experience?
Met with Oncologist today. Since I don't want a port, he said we can do Xeloda at a higher dose, along with Oxyplatin and Avastin. Has anyone else chosen this route? I would be interested in your experience. I would be 7 days on, 7 days off with Xeloda. 4 pills am and4 pills pm. They would inject the Oxy and Avastin every…
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Waiting game can't eat
Good morning ....I am real new and will be getting my colonoscopy hopefully asap next week. Was in ER this weekend stomache bloating blood in stool and have a weired throbbing in or near rectum. I can't eat or drink due to the anxiety that what's ahead. Headaches and not wanting to get out of bed is over taking me . with…
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Ok this may be a weird question.
So this tumor that is almost a blockage is 20 cm up. I have been having burning to pee and they tested my urine and claim I don’t have a infection. But would the tumor affect that or do you think it is totally unrelated? I’m bout to start the monthly
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Five years today - 'You have Cancer'
Five years ago today, I heard those fateful words 'You have Cancer'. Five years ago today, my life changed for the better and for the worst. My trip started in the ER, with a jerk of a Doctor. It was my GP/PCP who started the ball rolling, and I ended up with a GI who did my very first colonoscopy, discovering the Cancer.…
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My Brother was just diagnosed with stage 4 colon cancer
Hi Everyone! My name is Jenn and I am here just to get some advice, input and encouragement. My "little" brother was just diagnosed with stage 4 colon cancer. He is 34 yrs old. On this upcoming Tues he will begin his chemotherapy. He was hoping to do a clinical trial of immunotherapy but his resulsts came back his tumor is…
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CEA dropped
they only take it monthly for him now, it never gets high but is a good indicator for him. So it went from 14.2 to 8.2 after only two chemo treatments, I think this is good news right?
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Muscle/Joint aches and pains
I finished 12 treatments of folfox August 2. Have pretty constant numbness and tingling in my hands and feet. Taking B complex and magnesium/calcium. Have accepted this will take a while to resolve itself. However I seem to have muscle and joint aches and pains like I've not had before and they only started in the past…
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12th and final treatment of Folfox 5FU completed today
Just wanted to share with those that feel like their treatments will never end or the end seems so far away. 6 months ago, that is how I felt, but today I have completed my 12th and final treatment of Folfox 5FU. My oncologist and I had great communication throughout the entire process. We reduced the Oxy for #s 10 & 11,…
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Plateles level
Hi, my plateles level dropped to 115000, I wonder what is the critical level for not giving chemo. thanks for feedbacks.
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Chemo break to recoup
Hello everyone - I have had 27 avastin + folfir chemo treatments - started last year. Have CRC with multiple liver mets - told inoperable. In the past 3 mos or so, have needed 4 blood transfusions and had my last chemo delayed to build up immune system. Have been on WBC shots since second chemo to help keep up neutrophil…
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What are the chances PET scan is wrong?
My husband had his first PET scan this week and we didn't get the results we were hoping for. 3 lesions showed on his liver that weren't in previous ct or MRI in September. 3 showed with intense uptake SUV of 6, 4.4, and 3.6. The oncologist wants a needle biopsy of the one that had the most uptake. But the scan report says…
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New Book About Coping With Cancer
<Content Removed by CSN Support Team> My professional credentials include a master’s degree in counseling psychology and a career working in mental health. But the more important credentials were earned by surviving two lung surgeries, two courses of chemotherapy, one alternative chemotherapy, radiation, over 40 CT scans,…
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CEA Levels
Hi all, Concerned about the latest CEA rising trend in quarterly blood test results. Here is a little history: - Colon Cancer diagnosed in summer of 2014 - Surgery (Total Colectomy) late summer 2014 - 6 months of Chemo Oxy and 5FU following surgery, ending early the following year - Started quarterly blood tests to monitor…
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No chemo since August due to gallbladder problems
Hi everyone! I haven't been on this site much lately, been busy with my family and trying to organize my home and life. I finally have a little energy for things like that since I havent been on chemo for awhile I was hopsitalized August 30th with choleocystitis, or inflamed gallbladder. I had a biliary tuble placed to…
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Skin Cancer Energized by Rectal Cancer?
Everyone: I mentioned before that I am a prostate cancer survivor (2009) and now am dealing with stage 2 rectal cancer. However, I did not mention that I have had skin cancer (basal and squamous) on my head and face since 2012. Treatment for those lesions has included freezing, burning and excising. In addition to the…
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Thinking of you JanJan
Its been a while since your last post, so you've got to know we worry. Here's a little something to brighten your day Tru