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I have found an ostomy nurse
The only bad thing is it is a 2 hour drive one way, but I know it will be worth it. Since I have seen my oncologist and the surgeon that did the surgery and they did not help Many Hugs and Prayers Jackie
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CT Results
Had CT Scan on 14 April 09 and received call from Onc Office. I am still dancing with NED!!!!
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Changed from Folfox to folfiri -- Anyone?
Hey everyone, Sorry I haven't posted in a while it has been a hectic couple of months since Jerry started chemo. Anyway he's a stage 3b and was suppose to get 12 treatments 6 months folfox and then weekly (24) Erbitux well the update is his labs started to get a little kick from the oxi and on treatment 5 and 6 of folfox…
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How to post photos and other items.
Hatshepsut tried to post a slide show of some sort. I thought she has a great idea that can be a comforting diversion from the grind of cancer. Posting some photos you took, or other expressions you create that has healing properties for them. Preferably, things that you do or did. On all of our "About Me" pages, it has…
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Long day at Winston-Salem set up surgery
I have been putting on my wafer wrong for 3 years, NO one around here, including the Home Health Nurse knew a thing. I met my first Ostomy nurse today. I have the wrong kind of wafer and cutting it the wrong size. Way to small. I felt like an idiot today. I have psoriasis real bad and I thought it was broke out from the…
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limliess- how are you after surgery?
Limliess- Hoping to hear from you as soon as you're able to post. I've been thinking about you and praying for you during your resection at MD Anderson. I hope that you're recovering well. Take care and God bless- post when you can. Blessings, Lisa
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XELODA
I had resection surgery on Feb. 9th and the surgen removed 20" of my upper intestine. The surgery went well and I was home in 5 days. Now my doctor has started me on XELODA (CAPECITABINE) 10 500mg pills a day. He said I will be on these for six months 14 days on 7 days off. Has anyone had any history with this chemo…
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Looking for people to talk to who have had a colostomy bag or have gone through treatment and surger
My grandmother was recently diagnosed and is scheduled to start radiation to reduce the size of the tumor next week. After 5 weeks they would like to operate and depending on how the surgery goes, she may need a colostomy bag afterwards. She would like to talk to anyone who has gone through treatment, has had this type of…
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Healing
OK. Garden party is off! I'm unable to make this photo post work, so I'm going to start over. When (and IF) I do figure it out, I've decided to post it either in the Expressions section or on a personal member page. Hatshepsut
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FRIDAY RIDDLE
RIDDLE: What gets whiter the dirtier that it gets?
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Confused, Questions posted for Sharpie102
I hope I'm not overstepping any boundries (well, that would be normal for me I guess - LOL) but this was added to the bottom of another thread and I thought it was important enough that it should be it's own thread. Sharpie102 wrote: I just found this site, and I apologize in advance for the lack of my English language…
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people having or just had surgery
Hi- I just posted to "limliess" hoping to see her post soon following her liver resection at MD Anderson and then realized there are sooo many of you who have either just had surgery, are having it this week, or are having it within the next couple of weeks. There have been so many of you lately who have posted about…
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Hans update #3
WHEW!!! Hans is about 80% recovered. He has been sleeping often, and taking things very, very slow, but he says he definately feels improvement in the brain function...I am smiling for the first time since this nightmare began!!! Thank you, thank you, thank you all for your thoughts and prayers...I feel so blessed to know…
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CT scan results
My 3 month CTscan came back clean! This makes it 10 months I've been NED. Love, love, love it! I asked my oncologist to wait until the end of August for another scan and he said the magic words "Yes, we could probably go to a 4-6 month CT scan rotation". Now I get to enjoy my summer without a scan in between. And last but…
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What is your favorite flower?
Now that Spring is finally here (Upstate NY) and some flowers re trying to bloom, what is your favorite flower?
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May 22, 2008 Approved - sunitinib malate (SUTENT)...any info or experiences to this new drug???
Hello, anyone out there familiar with Sunitinib Malate (SUTENT)...im reading a pamplet that relates to mixing this drug with FOLFOX instead of the Avastin plus FOLFOX treatment. This was presented by my mom's oncologist as a "new" drug for clinical trials...approved last May when my parents talked to him today...so…
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Surgery tomorrow
Well tomorrow at 11:45am the "beast" will be surgically removed. As some of you know, I was Dx'd back in October last year. After a series of chemo and radiation my day has come. Wish me luck. The bad news is that the liver had originally shown 1 spot. The pre surgery MRI now shows 3. This will require a second surgery on…
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cocktail change ups
Well- Mom has made it through her small bowel obstruction and things are now 'moving'. She met with her surgeon last Friday- Mom has had such a rough go with the chemo and 2 of the oncs said she didn't have to finish. Her surgeon said 'you need to finish'. The surgeon said that the tumor that was removed had some cells…
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OK, I'll take a mulligan
New CT scan today, they removed the tube from my diaphragm. I'm breathing ok. Hopefully I'm done with all these abscesses and infections. I did get some kind of bad news. The CT scan showed something in both lungs, very small. The nodule in my right lung is 6-7 mm. The doctors re-evaluated all of my previous CTs and PETs.…
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Calling all Stage IV's
Hi everyone I have been reading the semi-colon roll call and have noticed quite a few of you with Stage IV diagnosis that are either NED or living well with the disease. I would love to hear from any of you. Any secrets to your success- diet ,juicing , attitude-attitue-attitude. Just would like to befriend some folks that…
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Another surgery date!
Hello! Well, it looks like the wait may finally be over. It's hard to believe, but i have another surgery date planned for May the first. I would recap, but i don't even remember where i'm at. I was scheduled in February for the ileostomy takedown, and it got aborted while i was on the table because of stricture. Two…
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kristasplace answer to your ?
Yes they for some reason messed up and left it in there, 3 years ago. I was DX with rectal cancer so I don't understand why they left it. I have had a perm. ileostomy since 2006. So now they want it out, but I am going to a different Dr. to do it, so it can be done right. Many Hugs and Prayers Jackie
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aluckylady and emrose...thinking of you :)
Hello lucky lady and emrose. I just wanted to check in with you and let you know I, and I'm sure others, are thinking of you and hoping all is well with you and yours. Hoping your first chemo went well for you, lucky lady. And emrose, I hope your husband is faring a little better with his chemo and your pregnancy is going…
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CEA question
I know this is a topic that has been here many times before, but I am having a little CEA stress right now and would like some help. Brief history: dx'd Stage iv 10/07 with surgery for what was thought to be ovarian cancer (mets to ovaries), no CEA done; before I began treatment for cc, had 2nd emergency surgery 4 weeks…
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Anyone else have the B-Raf mutation?
I got the news a few days ago that I'm positive for the B-Raf mutation...not a very good prognostic factor. I was just wondering if anyone else has tested positive for this? I guess it's pretty rare. Thanks in advance. Hugs and prayers, Elizabeth
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Chimo,side effects!!!!! Were is JerseyGUY.
Hello.Everyone! Hubby started chimo treatment last week,side effects are here as all we know,diarrhea,3-4 times...and daily vomiting,,,:(. He is week,doesnt feel like he wants to eat,food hearts his tummy,,Im very concernd,and worried,as we have to continue him on chimo for 2months,, Has anyone experince these side…
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I will be setting up surgery
I have been putting it off thinking it would go away,but it has not yet. So on the 16th I will set up my 4th surgeryand find out about. Which will have to be done also. I thank all of you for your support and I enjoy talking with people who know what I am going through. Many Hugs and Prayers for All Jackie
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Getting things moving
Apparently, to all my friends and family, I've become the local poo expert. It's true I have done extensive research and have developed my own method for getting things moving and keeping them going. This weekend, shortly after easter dinner I was approached by a friend of a friend who was having constipation problems. She…
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mom's having leg "heaviness" as well as pelvic discomfort...what should i do?
Hello...i wanted to ask some of you guys if the heaviness feeling around behind the pelvis and leg heaviness just something u experienced? my mom was diagnosed with colorectal cancer wit liver mets about a month ago...just wondering what type of "treatments" there are, whether over-the-counter or anything your…
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How do you manage the side effects associated with Erbitux?
I just had an RFA procedure peformed to treat a 1cm spot on the right lobe of my liver. Consequently, I will be starting on Erbitux and Irinotecan the week after next. Does anyone have any feedback on what I can present to my doctor in our efforts to be proactive in mitigating some of the negative side effects? Any best…