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FAPmom47
Hi Jackie! Just wanting an update on your doc appointment? Did you find out anything? You know they are the ones who should feel like idiots, not you. It's their responsibility to show you the methods of how things work. Don't feel bad, i had clueless people too. I was lucky though because my system is sort of basic. I…
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Still got it!
I had the drain removed tuesday. Currently no signs of infection or abscess. I played golf today, the first time since my diagnosis. That's a little more than a year. I shot 3 over par from the pro tees. Not bad considering I still have the hole between my ribs from the drain. I know that little tid bit wasn't cancer…
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Hello
Hi I just wanted to introduce myself...my name is Ray and I am 50 years old, I was diagnosed with colon cancer on March 13 and have had a partial colon resection.I have had a life port inserted and have a pet scan today. I have not yet started chemo due to waiting on the pet scan as the Doc is concerned that I may be in…
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Are Stents useful?? Did you undergo this type of procedure? If so, how useful is it???
Hello, just relaying a message from my mom. Oncologist called today to discuss more information in regards to my mom's chemo treatments starting next Monday. The discussion regarding metal stents were brought up a few days ago, but the doctors state that although my mom has alot of discomfort during bowel movement, she…
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Tired of being SICK
Well its 130am Friday morning, feeling really sick and cant sleep. I am sure there are a few of you out there that can relate. As you know I was in the hospital last week and was off my chemo for a week, saw my ONC on wednesday this week and he said to contiue it, well I dont know what it is but its kicking my butt. Its…
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How would I know?
So, I went in for my bloodwork today, and since I had never been told what my CEA was at diagnosis, I asked if they could give me that number. It was exactly the same as it has been at subsequent checks (assuming I get the same answer when I call tomorrow!). That's fine, except I wonder how I'm supposed to know if anything…
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Oncologist says No chemo
Hi, My husband had laprascopic liver resection two weeks ago, he is doing good. They removed the spot that was about 1 cent. The surgeon said it was colon cancer, but was removed with clean margins.. and thats a good thing. We saw the oncologist today, and she said she will see him once a month, and every 3 mos. he will…
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Nothing to do with illness, something just amazing.
A 47 year old homely looking woman got an opportunity to sing on Britains got Talent. She sang, I Dreamed a Dream from Les Miserable. The crowd was laughing and making fun of her before she sang and everyone seemed to think she was a loser...until she started to sing. She even melted Simons heart. If you want to see/hear…
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I have found an ostomy nurse
The only bad thing is it is a 2 hour drive one way, but I know it will be worth it. Since I have seen my oncologist and the surgeon that did the surgery and they did not help Many Hugs and Prayers Jackie
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CT Results
Had CT Scan on 14 April 09 and received call from Onc Office. I am still dancing with NED!!!!
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Changed from Folfox to folfiri -- Anyone?
Hey everyone, Sorry I haven't posted in a while it has been a hectic couple of months since Jerry started chemo. Anyway he's a stage 3b and was suppose to get 12 treatments 6 months folfox and then weekly (24) Erbitux well the update is his labs started to get a little kick from the oxi and on treatment 5 and 6 of folfox…
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How to post photos and other items.
Hatshepsut tried to post a slide show of some sort. I thought she has a great idea that can be a comforting diversion from the grind of cancer. Posting some photos you took, or other expressions you create that has healing properties for them. Preferably, things that you do or did. On all of our "About Me" pages, it has…
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Long day at Winston-Salem set up surgery
I have been putting on my wafer wrong for 3 years, NO one around here, including the Home Health Nurse knew a thing. I met my first Ostomy nurse today. I have the wrong kind of wafer and cutting it the wrong size. Way to small. I felt like an idiot today. I have psoriasis real bad and I thought it was broke out from the…
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limliess- how are you after surgery?
Limliess- Hoping to hear from you as soon as you're able to post. I've been thinking about you and praying for you during your resection at MD Anderson. I hope that you're recovering well. Take care and God bless- post when you can. Blessings, Lisa
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XELODA
I had resection surgery on Feb. 9th and the surgen removed 20" of my upper intestine. The surgery went well and I was home in 5 days. Now my doctor has started me on XELODA (CAPECITABINE) 10 500mg pills a day. He said I will be on these for six months 14 days on 7 days off. Has anyone had any history with this chemo…
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Looking for people to talk to who have had a colostomy bag or have gone through treatment and surger
My grandmother was recently diagnosed and is scheduled to start radiation to reduce the size of the tumor next week. After 5 weeks they would like to operate and depending on how the surgery goes, she may need a colostomy bag afterwards. She would like to talk to anyone who has gone through treatment, has had this type of…
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Healing
OK. Garden party is off! I'm unable to make this photo post work, so I'm going to start over. When (and IF) I do figure it out, I've decided to post it either in the Expressions section or on a personal member page. Hatshepsut
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FRIDAY RIDDLE
RIDDLE: What gets whiter the dirtier that it gets?
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Confused, Questions posted for Sharpie102
I hope I'm not overstepping any boundries (well, that would be normal for me I guess - LOL) but this was added to the bottom of another thread and I thought it was important enough that it should be it's own thread. Sharpie102 wrote: I just found this site, and I apologize in advance for the lack of my English language…
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people having or just had surgery
Hi- I just posted to "limliess" hoping to see her post soon following her liver resection at MD Anderson and then realized there are sooo many of you who have either just had surgery, are having it this week, or are having it within the next couple of weeks. There have been so many of you lately who have posted about…
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Hans update #3
WHEW!!! Hans is about 80% recovered. He has been sleeping often, and taking things very, very slow, but he says he definately feels improvement in the brain function...I am smiling for the first time since this nightmare began!!! Thank you, thank you, thank you all for your thoughts and prayers...I feel so blessed to know…
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CT scan results
My 3 month CTscan came back clean! This makes it 10 months I've been NED. Love, love, love it! I asked my oncologist to wait until the end of August for another scan and he said the magic words "Yes, we could probably go to a 4-6 month CT scan rotation". Now I get to enjoy my summer without a scan in between. And last but…
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What is your favorite flower?
Now that Spring is finally here (Upstate NY) and some flowers re trying to bloom, what is your favorite flower?
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May 22, 2008 Approved - sunitinib malate (SUTENT)...any info or experiences to this new drug???
Hello, anyone out there familiar with Sunitinib Malate (SUTENT)...im reading a pamplet that relates to mixing this drug with FOLFOX instead of the Avastin plus FOLFOX treatment. This was presented by my mom's oncologist as a "new" drug for clinical trials...approved last May when my parents talked to him today...so…
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Surgery tomorrow
Well tomorrow at 11:45am the "beast" will be surgically removed. As some of you know, I was Dx'd back in October last year. After a series of chemo and radiation my day has come. Wish me luck. The bad news is that the liver had originally shown 1 spot. The pre surgery MRI now shows 3. This will require a second surgery on…
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cocktail change ups
Well- Mom has made it through her small bowel obstruction and things are now 'moving'. She met with her surgeon last Friday- Mom has had such a rough go with the chemo and 2 of the oncs said she didn't have to finish. Her surgeon said 'you need to finish'. The surgeon said that the tumor that was removed had some cells…
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OK, I'll take a mulligan
New CT scan today, they removed the tube from my diaphragm. I'm breathing ok. Hopefully I'm done with all these abscesses and infections. I did get some kind of bad news. The CT scan showed something in both lungs, very small. The nodule in my right lung is 6-7 mm. The doctors re-evaluated all of my previous CTs and PETs.…
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Calling all Stage IV's
Hi everyone I have been reading the semi-colon roll call and have noticed quite a few of you with Stage IV diagnosis that are either NED or living well with the disease. I would love to hear from any of you. Any secrets to your success- diet ,juicing , attitude-attitue-attitude. Just would like to befriend some folks that…
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Another surgery date!
Hello! Well, it looks like the wait may finally be over. It's hard to believe, but i have another surgery date planned for May the first. I would recap, but i don't even remember where i'm at. I was scheduled in February for the ileostomy takedown, and it got aborted while i was on the table because of stricture. Two…
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kristasplace answer to your ?
Yes they for some reason messed up and left it in there, 3 years ago. I was DX with rectal cancer so I don't understand why they left it. I have had a perm. ileostomy since 2006. So now they want it out, but I am going to a different Dr. to do it, so it can be done right. Many Hugs and Prayers Jackie