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Looking for people to talk to who have had a colostomy bag or have gone through treatment and surger
My grandmother was recently diagnosed and is scheduled to start radiation to reduce the size of the tumor next week. After 5 weeks they would like to operate and depending on how the surgery goes, she may need a colostomy bag afterwards. She would like to talk to anyone who has gone through treatment, has had this type of…
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Healing
OK. Garden party is off! I'm unable to make this photo post work, so I'm going to start over. When (and IF) I do figure it out, I've decided to post it either in the Expressions section or on a personal member page. Hatshepsut
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FRIDAY RIDDLE
RIDDLE: What gets whiter the dirtier that it gets?
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Confused, Questions posted for Sharpie102
I hope I'm not overstepping any boundries (well, that would be normal for me I guess - LOL) but this was added to the bottom of another thread and I thought it was important enough that it should be it's own thread. Sharpie102 wrote: I just found this site, and I apologize in advance for the lack of my English language…
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people having or just had surgery
Hi- I just posted to "limliess" hoping to see her post soon following her liver resection at MD Anderson and then realized there are sooo many of you who have either just had surgery, are having it this week, or are having it within the next couple of weeks. There have been so many of you lately who have posted about…
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Hans update #3
WHEW!!! Hans is about 80% recovered. He has been sleeping often, and taking things very, very slow, but he says he definately feels improvement in the brain function...I am smiling for the first time since this nightmare began!!! Thank you, thank you, thank you all for your thoughts and prayers...I feel so blessed to know…
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CT scan results
My 3 month CTscan came back clean! This makes it 10 months I've been NED. Love, love, love it! I asked my oncologist to wait until the end of August for another scan and he said the magic words "Yes, we could probably go to a 4-6 month CT scan rotation". Now I get to enjoy my summer without a scan in between. And last but…
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What is your favorite flower?
Now that Spring is finally here (Upstate NY) and some flowers re trying to bloom, what is your favorite flower?
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May 22, 2008 Approved - sunitinib malate (SUTENT)...any info or experiences to this new drug???
Hello, anyone out there familiar with Sunitinib Malate (SUTENT)...im reading a pamplet that relates to mixing this drug with FOLFOX instead of the Avastin plus FOLFOX treatment. This was presented by my mom's oncologist as a "new" drug for clinical trials...approved last May when my parents talked to him today...so…
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Surgery tomorrow
Well tomorrow at 11:45am the "beast" will be surgically removed. As some of you know, I was Dx'd back in October last year. After a series of chemo and radiation my day has come. Wish me luck. The bad news is that the liver had originally shown 1 spot. The pre surgery MRI now shows 3. This will require a second surgery on…
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cocktail change ups
Well- Mom has made it through her small bowel obstruction and things are now 'moving'. She met with her surgeon last Friday- Mom has had such a rough go with the chemo and 2 of the oncs said she didn't have to finish. Her surgeon said 'you need to finish'. The surgeon said that the tumor that was removed had some cells…
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OK, I'll take a mulligan
New CT scan today, they removed the tube from my diaphragm. I'm breathing ok. Hopefully I'm done with all these abscesses and infections. I did get some kind of bad news. The CT scan showed something in both lungs, very small. The nodule in my right lung is 6-7 mm. The doctors re-evaluated all of my previous CTs and PETs.…
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Calling all Stage IV's
Hi everyone I have been reading the semi-colon roll call and have noticed quite a few of you with Stage IV diagnosis that are either NED or living well with the disease. I would love to hear from any of you. Any secrets to your success- diet ,juicing , attitude-attitue-attitude. Just would like to befriend some folks that…
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Another surgery date!
Hello! Well, it looks like the wait may finally be over. It's hard to believe, but i have another surgery date planned for May the first. I would recap, but i don't even remember where i'm at. I was scheduled in February for the ileostomy takedown, and it got aborted while i was on the table because of stricture. Two…
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kristasplace answer to your ?
Yes they for some reason messed up and left it in there, 3 years ago. I was DX with rectal cancer so I don't understand why they left it. I have had a perm. ileostomy since 2006. So now they want it out, but I am going to a different Dr. to do it, so it can be done right. Many Hugs and Prayers Jackie
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aluckylady and emrose...thinking of you :)
Hello lucky lady and emrose. I just wanted to check in with you and let you know I, and I'm sure others, are thinking of you and hoping all is well with you and yours. Hoping your first chemo went well for you, lucky lady. And emrose, I hope your husband is faring a little better with his chemo and your pregnancy is going…
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CEA question
I know this is a topic that has been here many times before, but I am having a little CEA stress right now and would like some help. Brief history: dx'd Stage iv 10/07 with surgery for what was thought to be ovarian cancer (mets to ovaries), no CEA done; before I began treatment for cc, had 2nd emergency surgery 4 weeks…
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Anyone else have the B-Raf mutation?
I got the news a few days ago that I'm positive for the B-Raf mutation...not a very good prognostic factor. I was just wondering if anyone else has tested positive for this? I guess it's pretty rare. Thanks in advance. Hugs and prayers, Elizabeth
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Chimo,side effects!!!!! Were is JerseyGUY.
Hello.Everyone! Hubby started chimo treatment last week,side effects are here as all we know,diarrhea,3-4 times...and daily vomiting,,,:(. He is week,doesnt feel like he wants to eat,food hearts his tummy,,Im very concernd,and worried,as we have to continue him on chimo for 2months,, Has anyone experince these side…
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I will be setting up surgery
I have been putting it off thinking it would go away,but it has not yet. So on the 16th I will set up my 4th surgeryand find out about. Which will have to be done also. I thank all of you for your support and I enjoy talking with people who know what I am going through. Many Hugs and Prayers for All Jackie
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Getting things moving
Apparently, to all my friends and family, I've become the local poo expert. It's true I have done extensive research and have developed my own method for getting things moving and keeping them going. This weekend, shortly after easter dinner I was approached by a friend of a friend who was having constipation problems. She…
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mom's having leg "heaviness" as well as pelvic discomfort...what should i do?
Hello...i wanted to ask some of you guys if the heaviness feeling around behind the pelvis and leg heaviness just something u experienced? my mom was diagnosed with colorectal cancer wit liver mets about a month ago...just wondering what type of "treatments" there are, whether over-the-counter or anything your…
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How do you manage the side effects associated with Erbitux?
I just had an RFA procedure peformed to treat a 1cm spot on the right lobe of my liver. Consequently, I will be starting on Erbitux and Irinotecan the week after next. Does anyone have any feedback on what I can present to my doctor in our efforts to be proactive in mitigating some of the negative side effects? Any best…
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Just out of the Hospital
Hello Everyone, First of all Happy Easter! Hope everyone is enjoying a wonderful day with friends and family. I just got out of the hospital yesterday. Started having a Fever late Tuesday night early Wednesday morning. By noon it was up to 102.8, called my ONC and they said to get to the ER right away. So I did, felt like…
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How to peel a potato the easy way
OK, so this email isn't about cancer exactly, but it is a neat way to easily peel potatoes without a peeler and that means you'll have more time to spend with friends and family and less in the kitchen. If you make potato salad, you are going to want to watch this one. Mary Ann from Gilligan's Island is in the video.…
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Happy Hoppy Day!! :)
From me to all of you... I hope you all are having a wonderful holiday weekend!! Take a peek... Huggggggs, Cheryl
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Surpassing Expectations...
If you need a little pick-me-up today, this is a moving clip. I think there are a lot of messages in this, but the message I take away from this is one about beating the odds and about the true definition of beauty. As far as an application to our cancer community, I think we all (families and survivors) confront skeptical…
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Need a few tips from yall......mom's having 1st chemo treatment
Hello again...i am a son of a colorectal cancer patient w/ multiple liver mets and my mom and the family have dealt with it for the last 3 weeks now...my mom's doing fine in terms of her spirit, she can actually joke around again, totally unlike the mood from the first week or so. She is having the "normal" symptoms like…
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"maintenance" chemo
Hi folks....who has had ( or is having) "maintenance chemo"? Would you share your experiences? I am stage IV and my onc says I have 'systemic" advanced disease...yikes that sounds nasty, huh? Does this mean we stay on chemo forever????????
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My Dad's Battle with Colon Cancer Has Finally Come to and End
Hello: I joined this board back in 2004-2005 and have found great comfort in coming to this board and reading the messages posted by others and posting my questions. I was not great at contributing to conversations but really got a lot from them. I wanted to thank everyone for their care and support. My dad is not expected…