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UPDATE on scan - Read for lab info
Dear Friends, I apologize for posting and then deleting the post. We had not talked to our daughter yet and I did not want any news to get out on social media. She is away at college and we spoke to her yesterday evening. ****'s pet scan on Friday showed growth in lung mets (largest is now 2.2cm), enlarged lymph nodes (we…
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Need Help & Reassurance - or just someone to listen to me ramble on
So, my husband is on a new chemo, it makes him very sick. He throws up while he is at home on his pump and for a few days after he is off, then the diareah starts. He doesn't feel like eating but he forces himself, then he either throws it up or he has diareah and loses it all that way. And i know this is going to sound…
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Stool
I know it's a pretty gross topic, but I thought this would be a good place to ask. Anyway, I should first say that I'm not especially concerned about this. The only reason why I'm asking is because my mom had colon cancer at 42, and now she has it again (you may have seen my thread). I read that "pencil stools" are a sign…
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Results of second liver resection :( and next colectomy Tuesday
So went to see liver surgeon for 3 month check up, liver is doing great in it's recovery from the surgery, however in 3 months since surgery3 new tumors have showed up on it, apparently from the new primary tumor in my colon spreading out it's little cells. Also because of being off chemo since April, the tumors in lungs…
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Never Mind SUGERY just CANCELLED via voicemail UPDATE surgery back on
Discovered a voicemail left on my phone (it had died and was plugged in) left by Dr. lee canceling my surgery in view of latest CT scan, so sorry, knew you had been trying to get it. Oh REALLY, so I can just live with this stomach pain and bleeding out my arse for how long? Until I die? Son of a B, I am pissed and sobbing.…
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Xeloda?
I am probably going to start 6 months of Xeloda following VATS lung surgery for a colon Mats nodule. The side effects appear to be diarrhea and cracking and peeling of hands and feet..The info says this can be controlled. I am asking for advice from any of you who may have had experience with this stuff. I have had GERD…
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Getting Married On the 15th!
2 and a half years ago I met a young woman in Santa Monica. I was wounded from a bad marriage and a bitter divorce and afraid of commitment. Over time we grew closer together, appreciated each other's values and qualities that are about the fundamentals: love, keep yourself attractive by always looking good, do admirable…
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Personalized testing on tumor for effectiveness of chemo & other therapies
I am stage IIIB rectal cancer, 5 lymph nodes involved. i recently finished chemo/rad and am going to have surgery to remove the tumor in the beginning of Nov. I am seriously considering having my tumor tested for chemo effectiveness by Rational Therapeutics (Dr. Nagourney) in Long Beach, CA and would appreciate input if…
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Generic Xeloda approved by FDA
www.fda.gov/NewsEvents/Newsroom/PressAnnouncements/ucm368515.htm I suppose if everything is the same but at a much cheaper price.....who knows?
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going home to sydney after almost a year, in remission, its my 47th birthday as well
everyday is special, but birthdays after our oncologists useby date are xtra special! so clear scans, cea 14 base 5, ca199 19 base 47, crp 0.1, frinogin and all blood normal except white bloods 3.1 when they should be 4, but they are up from 2.0 3 weeks ago. stopping 500mg xeloda and eating raw liver worked. thanks tans. i…
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Can I say NED
I had my first post treatment scan on Tuesday and got the results today. NO EVIDENCE OF DISEASE! I couldn't stop smiling all afternoon. Will get my port removed Friday 20th. Next week. Brief history: Found out I had Stage 3B Colorectal Cancer, 1 lymph node, Nov 2012 Surgery Nov 2012. FOLFOX Jan - June 2013 5FU & Radiation…
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UPDATE ON MOM
Hi! Everyone. I hope everyone is doing well, if not, close to it. Sorry if I have not been updating on my mom's current condition. She is doing well as of the past 2 months, CT scans were clear and gained 8 lbs overall for the past month. She complained of her numbness and tingling so her oncologist decided to stop her…
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Okay folks...
How much does everyone pay attention or buy into the statistics in regards to CRC? I see them, worry about them and quite frankly can bring on some pretty bad anxiety for me. I'm just a caretaker. Thoughts???
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Lung mets update and interesting new trial on the horizon.
I met with a thoracic surgeon today. My case went to the tumor board this morning. It was decided that I have too many (5) lung mets and they are all too small (most only a few millimetres). The decision is that my best bet is chemo, folfiri and avastin then see how things go. Surgery or sbrt may be an option later.…
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Need more blood
Ive gone two weeks without having to get a blood transfusion. My rectum bleeding had come stop since getting high duty radiation. I guess my body can't produce blood quick enough. So the plan is to get three units tomorrow. I also had a shot To boost my hemo today. Pray all this helps. Three months into my fifth year of…
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only option clinical trlas
Help, First time posting but everything is getting overwhelming. My husband was diagnosed 30 months ago with Stage IV Colon Cancer with mets to the lymph nodes, liver and bone. After seeking several second opinions all come back the same - He was not a candidate for surgery. He underwent 14 months of folfox treatment. He…
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Surgery went well.
Well I made it through. I had my Liver surgery on the 27th and came home 8 day later. Im really sore and tired and haveing a hard time eating, Everything makes me sick. My neighbors our wounderful they bring meals over for us . They did remove some lymph no I have to wait to find out the results when I go back on the 20th.…
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Craig's article in Coping magazine
I have been in touch with Craig's wife, Kim. The magazine for Sept/Oct is not out yet...perhaps next month. As Craig mentioned in his post, he can receive free copies and share them with us. I have offered to start the list of those interested. If you want a copy, please use the CSN Email function here to send me your name…
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Anyone hear from Janie1?
Has anyone heard from Janie1?
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Colon cancer hospitals
Hello...I have stage 4 colon cancer. Its inoperable because of the blood vessels around it. This was found in 2010. I have been on chemo for 2 years and radiation in August 2013. They did not work and the mets just got bigger and is too close to my pancreas. Today my oncologist told me he can not help me anymore and wants…
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Hello
Hello guys sorry I haven't post anything for a long time . but I do look and read your pposts I just want to drop in and let you guys know that my husband Jorge is still doing well and is still cancer free on November 8 th it will be 2 years that he had his liver surgery . i all so wanted to tell you guys I miss you all…
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Good, no GREAT news
Hello All, i know I don't post here much anymore but I am always checking in
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A Speech
Well you know you have arrived at a pinnacle point when you are asked to give a speech to cancer survivors that just finished treatment and their wellness program. I finished this program myself almost a year ago and was so honored. I spoke to this group of great people last week. It was an honor. I was so glad I could…
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Braelee
How are you? I think you had your liver resection a couple a weeks ago.
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Pain, discomfort, not enjoying much at the moment
My liver is still swollen. Pain when I breath. Been on avastin for the last three treatments. No sureif avistan is going to work like it did before. Major headache today, tired...and of course now very worried! Judy
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Dear Craig,
There is no day going by that I don't think about you and I'm sure we can multiply that by a few dozen on this forum. We know you are going through tough days and that is the reason we don't want to bother you. However when you feel up to it please drop us a line, especially since by now you should have had your piece…
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Neurapathy after chemo
I had my last chemo session over a month ago and the neurapathy in my hands and feet are the worst they have ever been. Is this normal? If so, how long will it last? Cynthia
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Folfiri appears to be working
As some of you may remember, I started to have ascites build-up due to my peritoneal tumors. They took off 1.7L about 2 months ago and then 3L one month ago. Well, I went in yesterday after another month and there was too little fluid to try and remove. This very likely means the folfiri is controlling the peritoneal…
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Stage IV NED since Sept 2011
Hi Everyone, I want to post encouragement for Stage IV patients. I had a scan yesterday and everything still looks like NED. I was diagnosed Stage IV on December 22, 2010 with a lung met (Merry Christmas). That was removed first by VATS, then 6 treatments of Folflox that was followed by 28 days chemo/radiation for the…
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Do NED patients tend to leave the forum?
For those of you who have been here for a long time, I'm just wondering if people who get well tend to leave the forum? Also who would be the person who is not around anymore (either passed or got better and left), that left the greatest impression on you? Laz