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Hey Joe (joemetz)!
Joe, as you know with cancer the worst thing is uncertainty. We haven't heard from you for a while. Please check in. Hope things are all right. Laz
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thanks to renw for the blog
let me say this. my thanks go not only to renw, but to everyone on this forum. your entries here, together with all the tears, laughs, aches, and joys they induce, always make me aware of that magical feeling called love. there is so much love here. but i want to say a special personal thank you to renw. i've started…
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Pet, CT, MRI ???
Wondering how these are typically used. If I'm remembering correctly, my husband's last pet scan was in March - before surgery and only showed the rectal tumor. Tumor was removed in April. His CEA has been good since surgery. Though it's been going up slightly, it's been under 1.0 since surgery (.5 in June, .6 in July and…
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Stage IV to NED
All, It's been a while since I have reported on this forum so I thought I'd take a minute and give an update. My 4th surgery (liver resection) was on April 19th. Since the surgery my CEA has come in under one (<1). Treatment 10 of 12 of Folfiri/Erbitux will be this Thursday. Erbitux Achne and extreme fatigue are…
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Tuesday is Surgery day!
Keep me in your prayers, Going on Tuesday for my 2nd Liver resection. I just hate that I'm going to be over an hour away from home.
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Exercise and tumors
I have mets to lungs. It seems if I exercise couple of days before bloods taken my CEA slowly rises. Is there any chance the blood pumping around the body could cause the tumors to grow? I know they say exercise is good but I don't want to be 'feeding' tumors? I just don't know whether to go for it or do little. Sorry I…
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Surgery again / updated
Damn... Husband had CT on monday and on first feedback from the radiologist all looked clear... liver, lung, bones... all fine... but there was a indifferent strukture somewhere (and I cannot remember if she said omentum or peritoneum or some other stuff inside) but she said it did not look suspect so I stopped thinking…
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Ketogenic Diet & Targeting Cancer's Metabolism
I know we had the sugar debate over and over, but the letter I just received re my latest blood results deserve a mention: Dear Mr. renw in theses results you see Thymidinkinase going down. This means that the cell dividing is going down. Also the LDH(LDH4+5) is going down, this means, that the damage in the mitochondrias…
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Delayed
Ugh... Well I accompainied my wife to her 8th treatment for FolFox this morning. We got settled in and things weren't moving along as "normal." The doc comes in and says they are going to delay the treatment for one week. Her platelets have kind of nose dived on us. Not too terribly low that bleeding will be a problem.…
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ct scan revealed 2.5cm met in liver. what to expect now?
My mom was diagnosed with stage 3C colon cancer in May 2013, had a surgery shortly after (full resection of the colon), and started chemo. She just completed her 6th chemo session and had the first CT scan. The scan revealed a growth of about 2.5cm in her liver, exactly in the area that bordered the colon wall. I just…
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Update Clinical Trial TRC 105
Been away for awhile..you know, life stuff! So sorry, Craig, to learn of your recurrance, and that the chemo is making you so sick. Keeping you in my thoughts! Robert still talks about your gift! Robert starts his 16th cycle tomorrow on his trial. To date, he has had 29% shrinkage in the tumors they are tracking, and no…
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Rectal cancer metastasized to lung
Had non-hodgkins lymphoma 13 years ago. Got rectal cancer in 2011. It was stage IIa. They did chemo and radiation, removed the tumor and put in an ostomy bag. Then they reversed the ostomy and did more chemo. All looked good for almost a year. CEA levels went up so the doctor did a CT scan. The scan showed nodules in both…
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CT Scan tomorrow....results...update
My husband has his first scan since surgery tomorrow. Hasn't had chemo since march...positive thoughts and prayers are always appreciated. Been a tough year and I'm thankful to all of you for your support and sharing of knowledge!
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Radiation after resection surgery anyone?
Although there is no pathological evidence my cancer has invaded my prominent lymph nodes (needle aspiration negative, but of course that is no guarantee since it couldn't sample all the tissue), my surgeon wants to do adjuvant radiation before resection since the bowel function is poor, if radiation follows surgery. Has…
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Phillieg
Phil I havent seen you post in a while. Are you ok or just taking a break.
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abject misery
So I'm waiting on appointment with surgeon which is the 28th. Until then, in misery with much pain as things pass through the colon tumor, WHAT? You can't hear my cries of agony?? Trust me, they are there. Winter MarieSometimes Life just ain't easy
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Sundanceh/ Big Billy
I wonder why I always think "Bad @ss Billy" instead of Big Billy? Wondering Craig what is going on after your PET scan (I think) from Friday? Any word yet? Have you gotten away from that toxic workplace yet? Did your get your SSDI started yet? Well that and a lot more questions that I hope you'll be filling us in soonest.…
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LET'S PULL TOGETHER FOR CRAIG!
Dear Friends, Reading Craig's last post made me concerned for him more than eve. I don't know what to write to him, so I turn to you all. I believe in the power of collective human spirit and that's why I ask you all to pray, meditate for the well being of Craig and his loved ones As much as you can. Thank you, Laz
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good MRI, the war beneath the waves
The CT in March showed shrinkage (repeat old news). The July MRI, including a high resolution liver scan and diffusion weighted scan for peritoneal mets is clean, consistent with the March CT. Relief. This past year wife has had several small, brief CEA surges and some climb in liver function values. The first CEA surge…
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My husband's scan results - good news!
We had a great appointment yesterday. Started out with his port not being accessible to draw blood. After about an hour of the nurses trying 85 different things, they determined he would need some treatment they call Drain-o to open it up. The flushing was working, but no blood could be drawn. They said that would take…
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If cancer is sneaky, so is chemo.
I'm just finishing my second Folfox and since during the first one I was pretty low energy and lethargic and my friend kennyt reported pretty serious numbness in the fingers after his second treatment, I freaked out a little bit. This time I have nothing so far. No horsey voice like last time, not much cold sensitivity,…
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Experience with Dr. Emily Bergsland UCSF anyone?
Has anyone on this discussion board consulted with this oncologist at UCSF? She was recommended to me by Josef Lenz. She is traveling quite a bit and I may have trouble connecting with her, so I am also wondering if there are other oncologists at ucsf any of you would recommend. Still staging my rectal cancer, but it looks…
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Wonderful news yesterday!....
Hey everyone, just wanted to update you all on Jason. He got his first CT Scan done after starting the new chemo in June (let me backtrack a bit.....he had a CT Scan done back in June which showed that the football size tumor on/in/around his colon had shrunk by 50%, which was great, BUT the "one" liver met had not only…
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Anvirzel or oleandrin
Has anyone taken or heard anything about the drug Anvirzel, which is produced from the oleander plant? I have read about it on the web, but want to know if anyone has any personal experience with this drug.
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Mom in hospital
I haven't and won't be on this board for while, my Mom had a heart stent put in and then fell and hit her head the night of, her brain is bleeding. This is day 6. She is on a respirator and the problem is tha she can get her blodd thinners for her heart beacuse it will cause her brain to bleed more. Today she actually…
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Checking In Before Things Get Under Way…
Like a trained circus animal under Barnum & Bailey’s Big Tent, I jumped through every hoop of burning fire they put in my way… Jump higher, they said…..”hold your breath…” Under the Delusion of Control, they gave me rope…they put me behind the wheel and pretended that for awhile, I was actually driving the bus… Ahhh……The…
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Just a bit of good news ...
As I am finishing up my second to last Folfiri treatment and two full years of surgeries, treatments, scans, and all the rest that comes with this monster ... I am taking just a moment to enjoy my bit of good news. I HAD A CLEAN CT SCAN!!! I know this is probably just temporary .. but it will feel good for a bit and I am…
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Slight anal bleeding.
The way most of us found out that we have colorectal cancer is that we had blood in our stool. So did I. However 2-3 weeks into the radiation and Xeloda it stopped and so did my pain. I finished radiation about a month ago and I am on my second Folfox. I still don't see blood in my stool, but when I wipe the tissue paper…
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1 Year After Chemo
Well today 1 year ago I was disconnected from the 6 months of chemo. I got the port out a few weeks later I cannot believe a whole year has gone by. I did have a small scare in Jan with a poly (pre-c) found and removed, but this is part of the way it will go for me. Most important it was not cancer. I have learned that I…
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Grateful for discussion board
I was diagnosed with rectal cancer in June following the discovery of a mass during routine colonoscopy. Tumor removed at UCSF with pathology of cancer. No obvious invasion, but two prominent lymph nodes identified by CT scan and endoscopic ultrasound. Tumor Board at UCSF advised high probability of invasion and thus…