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2bhealed and Scotty
Miss you two! Hope all us well!!!
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Pepe
How are you doing? I havent see you in awhile.
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From Tara Whitehill's Family
To: Tara’s Friends This is Tara’s sister, Julie. I am so sorry to tell you that Tara died yesterday, August 29. As many of you know, she walked her journey with strength, grace and humor. She spent her last days as she had hoped – peacefully and surrounded by loved ones. She asked that I let you all know and that I express…
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Gift ideas for mom
My mom completed chemo/rad a few weeks ago and will be having surgery in mid to late October. I will not be able to be there for her surgery/post surgery and wanted to send her something! I was hoping that some could share what they found helpful or useful during this time. She will be in the hospital for about a week…
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My Ian
My bravest strongest man Ian passed away on the 27th August to this terrible disease, he was taken from me far too young, I hometown him when I was 17 and he was 18, we met 38 years ago today. I have had the best of life with him and he loved me very very much, we had 2 lovely daughters and 3 grandchilren. I'm so so angry,…
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Qwik Update
It's been crazy how this round of chemo knocked the stuffing right out of me. I knew it would be rough but had no idea I would be so incapacitated and sufferingf from so many ailments I lost count. I thought getting started after all of this time that things would be not as difficult...especially later on in the cycle.…
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Test - soft tissue?
Just found this site and it looks like a great place for support, and finding out what others have been through. Here’s the thumbnail sketch of my situation. I’m a 57 year old male, and my name is Ron. May of 2010… Abdominal pain took me to the emergency room where Stage 3 colon cancer was diagnosed. During discovery a…
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Great news
Got great news today. Got results of first PET scan after finishing up chemo. Looks like the cancer is gone and they are taking port out tomorrow. Hopefully it will stay away. Been a busy year+. Everything is going great except some lingering nueropathy. Hopefully that will go away in time.
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Kathleen808...how are you, **** and the girls doing?
Dear Kathleen, I was watching a show filmed in Hawaii and it brought to mind that I haven't seen you post much recently. How are you, **** and the girls doing? Well I hope. To quote a friend..."Aloha" Marie who loves kitties
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Bone scan tomorrow
Onc and specialist decided to do a bone scan. For the last year continuous consistent lower back pain. now, as a young athlete I contracted osteomyelitis ( infiction in the Bone marrow) it nearly cost me my life but I made it. this is many years ago , I wonder if that can cause me more difficulties now later on. Why is it…
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Biopsy results
My brother had a biopsy on the liver yesterday to confirm mestastic rectal cancer. Can anyone give me a ballpark figure on how long it takes to get the results? Thanks!
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*sigh*
*sigh* Had our appointment with the surgeons and are not happy with the outcome... They (remark: the university of cologne!) were ill-prepared and had no idea why we were there, at first they had no records and no plan. What they told after reading up the stuff in the computer did not please us either so we will go for a…
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pain in right side.
I just found out that my wife is having pain in her right side. It is simaler to the pain she had a year ago when she found out she had colon cancer that had spread to her liver. It has been going on for about a week now. It is on her right side under her ribcage. I asked her why didn't she tell me sooner, she said she…
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Lung mets
Today I got the results of my last ct scan. I ave five suspect lung nodes. We have been watching these spots since I was diagnosed in April 2011. They had shown no change until now, 6 months after follow. The largest is 5mm. The rest are a few millimeters each. My onc is recommending folfiri with avistan starting in a few…
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Stage 3 rectal, NED now for 4 years...and Laz's question :)
hello Everyone :) I read Laz's post about whether NED people say on or leave this Board and for me, it's a little of both: I read often and post rarely. Thought I'd share some good news as well. I was dx in the spring of 2009 with Stage 3 rectal cancer and had a resection, an ilestomy put in place for a year, an…
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Anyone else have trouble posting messages from an iPad?
when I try to type if I backspace the message will freeze and then I must go to preview message to get it to unlock ... Also sometimes if I backspace the font type will change to very small. Don't remember this being a problem before the site was upgraded ... Just curious. Cynthia trying to type on an iPad way too late at…
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Talked with Surgeon today
Didn't like too much what he had to say, it seems I'm predisposed to the tumors in the intestine and with them only be able to go up a few inches they have no idea what else will be there. He suggested the genetic test (which my onc is already having done) and if come out genetically deposed should have all the intestines…
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If all the NED's left!
I received a lots of different responses to my previous posts about NED's staying or leaving on the board. Both approaches are absolutely acceptable. Everybody has the right to leave cancer behind them. But one realization hit me this morning. What would this forum look like if all the veterans and NED's left it? This…
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Mammograms with port
Has anyone got a mammogram while still having the port in? I need to do that but wasn't sure how the port affected it. Thanks. Cynthia
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Gimme sleep!
My history: Stage IV in Nov of 2010. Colon resection, Liver resection.. 7 months of chemo, Oxaliplatin, Avastin and Xeloda. Seems like I've been really tired alot more than I remember, wondering if the chemo does something like long term fatigue, etc? So far the tests have come back clear, but I feel like something must be…
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Questions
My brother will begin chemo soon. He has his liver biopsy on Friday. I was told he'd have chemo for 6 months and then they'd do tests to see what's next. What kind of tests do they do? CT, MRI, PET? I explained to him that I think he has to look at this like a chronic condition. he will need to get his chemo, do tests, if…
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MY ULTIMATE WISH!
I want all of us stay around here long enough, so we can give newcomers a hard time, when they complain that the new revolutionary pill that cures all cancers in 24 hours, doesn't come in bubble gum flavor. This is what I want to write to one of them in 20 years: Dear Johnny, If I catch you again complaining about the…
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I WAS SO STUPID!
Today I started my third and last Folfox before surgery. My oncologist brought up the idea that since I didn't have much side effects the first two times, let's raise the dose of Folfox a little. And now I'm sick as hell: my nose is running like crazy, my eyes burn and wet, I'm very hyper, my stomach hurts and I have that…
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For Craig - Sundance - my update and experience with Irinotecan + Zaltrap
Hi Craig, I was the first one on Zaltrap in Minnesota, right after it was approved. I haven't been around CSN, but am very active everywhere else. I heard about your troubles and thought I'd pop in to share my experiences with you in case they may help. I've still not had any organ involvement, but I have been chasing…
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CEA falls from 150 to 109 in 48 hours without any treatment
So we got a serum cea done last Tuesday and it was 150. The doc recommend a pet scan and we shall get one asap. That being said the repeat cea test done after 48 hours shows a value of 109. I m confused by this and wanted to check for possible explanations!!
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You Are All Angels
Hi Everyone, Today I met a daughter and father (Pancreatic Cancer Stage 4) who were dealing with his disease four weeks into the process. His daughter was just so worried, caring, and a little lost. I tried to give her a little advice based on my experiences with mom and also directed her to this Network. I did not want…
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Folfiri and irrinotecan
My regime has been this for some six Months. irrinotecan each Monday and chemo fortnightly plus take car home 48 hrs. Does anyone not bake cad home? My CEA seems to patters 4.4-5 after just irrinotecan and following week 2.5-3 afteis chemo week. Eg 2 hr surgery infusion and take home cad. I asked onc cld I not take home…
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Craig and Joe!
You guys have been quiet for a while. We know you are going through a tough time and we are with you every moment. When you guys are up to it drop us a line, ok? Laz
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No Zaltrap
Well just came from oncologist and no Zaltrap for George for now. YEAH George's CEA went down now 5.9 so just on Irinotecan and he doesnt have bad side affects on this. I posted the cat again because she has her eyes open here but you cant see them. We worry sometimes have to check her pulse she is pretty lazy, but we love…
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My sister-in-law UPDATE she has Passed Away
My husband's sister went into the hospital on Saturday, we just got the call she has less then 24 hours According to the nurses, hospice has been called to the hospital and all life saving machines have been taken out. She is coherent and on oxygen, but asleep at the moment, my husband hopes to talk with her before she…