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Colorectal Cancer

"It's Official Now" - We're Published and on the World Wide Web Today
"You Like Him - You Love Him - You Want Some More of Him!" The big day has finally arrived!!! That's right! Today, we are officially published in a major magazine publication. It's been a long time coming and I never thought I'd ever see any of my work in print. So, this is truly a day that I feel blessed and fortunate to…
Pain in the neck
i'm very new to this site but I was wondering if anyone has had pain in the back of their neck. I was dx'd with stage IV colon cancer in April 2013. My first 2 chemo treatments turned out very scary because I had an allergic reaction to the Oxiliplatin. I have since just been on Xpills until until 2 weeks ago when I…
Home again from hospital
Man, it's been a tiring few days. Went to the ER Wednesday because around 2am noticed I wasn't producing any urine. I have been on a catheter since April. My left kidney doesn't work since April . I walked around thinking that would open things up. At 3 am I finally woke mywife up and we headed off to ER. I was really…
PET Scan results
I've been riding around on the roller coaster for 6 1/2 years now. I've had many ups and downs, and some fun riding along. I've been chugging up a big hill for about 6 months with my rising CEA, and it appears I'm near the top and about to head back down into treatment mode again. I saw my onc today to get the results of…
Chemo/rad- my experience and advice
I recently finished chemo & radiation for stage IIIB rectal cancer. The forum has been incredibly helpful for me so I’d like to share my experience and what I learned in hopes it may help someone, particularly the newly diagnosed. I love to do research so bear with me if this is lengthy but I know there are others like me…
Chemo Drugs
My brother has 5 lung nodules and 1 liver mass that is 3 cm. He had an anterior resection in 2011 and had chemo/rad before and chemo after surgery. He had finished his chemo August 2012 and his scans had been clear up until a couple of months ago. His CEA levels went up and his CT scan and MRI showed lung noudules and…
Trying new things for the pain
So I'm def on a roll in my quest to rid my life of pain pills. I've managed to cut out a whopping two of the six I was formerly taking. Go me! I seem to be a bit stuck, as once I take out the next half, the pain comes back with a vengeance, so I've decided a give a few, more alternative things a try. I went yesterday to an…
second opinion.
I finaly talked my wife into getting a second opinion. We will be sending her records to Roswell cancer institute in Buffalo NY. They are considered the best cancer hospital outside of NYC. I am not real pleased with the road she is on with her current oncologist. Hope to hear from them soon with a appt.
Second opinions and liver mets
I hear on this forum again and again about how important it is to get a second (third, even fourth) opinion, if the first surgeon's opinion was a "no" to resection of liver mets. You've got me convinced. I am now researching about good liver surgeons who are known to have taken up "unresectable" cases. I need your help,…
How many continuous dose of Folfox?
Interested to know how long anyone has been continuously treated with Folfox regime (less the Oxally) before they had to stop or change? I am currently up to 30 but don't know if that is a lot or only just starting? cheers Roddy
uploading an avatar
I have changed my avatar twice in the past with no problems. Now I can't seem to do it. I wnet through the motions and I get a prompt that says it was reisized and upload complete. But still no avatar. I tried this several times. Aany suggestions.
RFA or REsection for recurrent liver met ?
Hi, posted this on colon club yesterday but did not get any response. I hope I do get some suggestion or someone can care to enlighten me and put things into perspective. After my surgery for the liver and colon mCRC last September I was NED till now and suddenly the cancer markers shot up this month from 3 to 15 (CEA) And…
Joint aches ... is this common after chemo?
I was just wondering if anyone else suffers from horrible joint aches and bone pain after chemo. I thought it was the nulasta shot that was doing it. I do think it contributed. But, I am still suffering daily from this continued pain after treatments have ended. I also continue to have weak muscles and everything seems…
Surgery on the 8th.
Finally the day is set to remove my rectal cancer at the Cedars Sinai in Los Angeles. Will be a bit complicated, because they also have to remove a part of my tail bone and do a flap from my stomach to have a better closure. So there will be the main dsurgeon, a plastic surgeon and a spine surgeon. I will end up with a…
Surgery or more chemo?
My last scan in August showed mets in my lungs, both sides. I have been doing some research on the laser assisted lung resection initially offered in Germany by Dr. Rolle. it has pretty good ling term remission stsatisitcs if all mers, regardless of size and amount, can be removed. it is now also offered here at my…
Xeloda Pill and other Medication Disposal
Hi, I have 42 Xelodas which will expire on Dec 10 that I have no use for. Does anyone know how to safely dispose of this stuff aside from driving it to the nearest drop off which isn't so near? Maybe the hospital would dispose of them for me? One day when I'm home I'll remember to call them to ask. I have so many bottles…
Scan Tomorrow Morning
I'm having my scan tomorrow morning and asking for you to please pray, send good vibes, send out wishes for a normal scan. Like always, I'm so nervous. It just seems I'm always anxious when anything medical comes up. My doctor's appointment is next Wednesday. You are all always in my thoughts and prayers. Hugs! Kim
Judy (wawaju04976)
How are you feeling? Noticed you've been quiet lately. Are you feeling any better? Chelsea
scan result not good...
My wife and I just received the results of her scan. She has had 11 rounds of folfox, which wasn't working. They then gave her 10 rounds of folfiri. The dr. just told us it was not working. In fact the tumors on her liver have actually gotten bigger. He also said seven lymph nodes look like cancer. She did not have her…
Needing Advice
Im new on here i was diagnosed with breast cancer in 2010 had 16 rounds of chemotherphy im in remission been 3yrs. But im needing advice im having problems with my colon they dont know yet if my cancer has spread to my colon . But if you dont mind i was wanting to hear from you of what symptoms you experienced.Their not…
Shocked about Stage IV diagnosis
Hi everyone. My mom is 66 yrs old, not overweight, with controlled hypertension and was just diagnosed with colon cancer with mets to the liver- 4 spots in scattered areas so can't be resected. Then only symptom she had was some blood in the stool and feelings of not completely emptying when using the bathroom. Based on…
Bi-annual scan results.......
I got an "all clear" on the abdominal and chest CT's today. All other tests have been clear also. I am 1.5 years NED. Yeah! I am making my new-normal. My best to everyone. This fight never ends.
Not the results I was wanting
Well my friends it has been a very long emotional day for me. The scans show that the tumors in all areas, rectum, liver and lungs have grown and liver and lungs have got several new tumors. The chemo was having now effect so sadly after over four years of almost non stop treatment I'm going to contact hospice tomorrow. It…
Is Surgery Worth It?
What experienced members seem to be saying here that life extending surgery, even if it's partially successful, is worth it and the best way to go. Does this come from the traditional prestige and the physicality of surgery or it is really the best way of extending lif? What about the recovery and the side effects of…
Bad night, bad day!
As you all know I'm waiting for my full resection surgery in about two week. Everything was going well, I stopped Xeloda last Monday. I was fasting like 16 hours for a liver ultrasound which really weakend me. I was eating good after that, but suddenly my stool turned very pail then became a watery diarrhea all night long…
"I Need a Show of Hands" - Upcoming Coping Magazine Article - "The Legend of Big Billy" *** Last Ca
Thank you, Marie for opening a post about this subject. I'm finally on my feet on after another tough cycle and had wanted to open this post for awhile now. We'll tie it in to the one you opened, but I wanted folks to hear it from me. This is a big day for me and I want to enjoy some of it this time:) First, it should be…
Chemo / Rad after Surgery
Hello Friends, I am about to start my Radiation treatment nearly after 2 months of my Rectal surgery. I will have to go through 28 Treatment fractions & will be on Xeloda throughout the treatment, then more Chemo (Capox - 8 cycles) Would like to know from friends who had undergone this treatment, about the side effects &…
Pain relief
I'm sure at some point on this forum during my latest tumor growing in my colon I wrote about the emense amount of pain I was having. Here I am a week and a day post surgery and I can remember having the pain, but not about how bad it was. I am happy to say the surgery took the pain away, only get an occasional "stitch"…
Second opinions
People are often told that they aren't candidates for surgery; 2 months ago we reached a critical point, tumour causing blindness and more, our surgeon didn't want to even try, second opinion said just radiate for palliation, our original surgeon decided to try after pressure, alas he failed and caused severe memory loss…
Irrinotecan and 5fu pump
Is there anyone who like me has had both these treatments. Eg hour and half infusion at clinic at then a take home cad for 48 hours. What I am wondering has anyone stopped taking home the 5fu pump and if so any adverse effects ?

Colorectal Cancer

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