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Last Chemo Treatment Last Thursday (Sept 26)
I started my battle on Halloween 2011. That was over 700 days ago (nearly two years). Four surgeries, twenty-two radiation treatments, eleven treatments of FOLFOX and Oxaliplatin, twelve treatments of FOLFIRI and Erbitux, and countless scans later I finally have a legitimate shot at a FULL REMISSION! Praise and Glory be to…
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HOW DO YOU STAY POSITIVE AND HOPEFUL?
We all know that the cancer journey is a roller coaster ride. You have highs and lows, successes and defeats. In the middle of all this is hard to stay positive and hopeful and we all have to build a new reality. I'm wondering if you have any "technique", ritual, activity or a mental process to get you and keep you in a…
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Louiswift
You doing alright?
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Wandering minds would like to know
I was just diagnosed with stomach cancer (gone now....so they say) and stage 4 metastatic colon cancer (which has not reached any organs yet) in April this year (2013). I was just wondering if anyone would care to share when they were diagnosed with me. I have my ups and downs, but find myself anxiety ridden with what is…
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At the starting line Again.
Got my 3rd port in yesterday , And I start Chemo on Tuesday. So not ready for this again.
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Seeking closure and some answers
Hi everyone, My apologies for the long post. I am hoping that some of you can help me understand what happened to my mom or at least shed some light. My 67-year-old mother passed away unexpecedly after only 5 months of being diagnosed with colorectal cancer with metastasis to the liver and 3 months of chemo…
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Craig, Joe, kennyt, Beebee,
You guys are quiet. What going on? Show us some love...don't want to go under the knife before I hear from you and about you. Laz
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IRE instead of RFA
I got my recurrent liver met treated with a new procedure called IRE instead of RFA Seems they got the entire met and follow up mri shall be after a month In IRE they use alternating current instead of radio frequency as in rfa they don't offer this procedure in USa for liver mets or solid tumours as yet. I got it done in…
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The Lone Ranger
Tracon has closed the study trial on the TRC 105. Robert was the only one left out of 28 subjects, and the only one who has had a response (i.e. shrinkage). They are "rolling" him over to a continuation of the trial, since he is responding, where he will be the only participant. Treatment will remain the same. Last scan…
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Is there anything I hate more than getting a scan?-UPDATED
No. Can’t think of much of anything I hate more… with the possible exception of waiting for scan results. But I can’t complain too much about the PET I had this morning, considering that the only reason that I get to have regular PET scans involves me throwing a kinda embarrassing tantrum, complete with words like "lawyer"…
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Is there a test...
...they can perform on cancer cells once they are removed to tell if Folfox is effective? I'm asking this, because I barely had any shrinkage after radiation, Xeloda and 3 rounds of Folfox. Thanks, Laz
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Good news from Germany / still NED / update
Hi friends, Thorsten had his surgery on Sep 17th after there was a suspect area found on his latest CT. The plan was diagnostic laparascopy and PIPAC (->ask google) if neccessary. Well.. the result... they had to remove several "Verwachsungen" (scar tissue? don't know the english word...Kathi please help) and took some…
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I have a kind of complicated question.
My wife was scheduled to have a treatment this past monday. But because the tumor on her liver grew from 5.1 to 5.8, and a couple smaller ones also grew a little. They rescheduled her for this coming monday to try a different treatment. In the mean time I contacted Roswell cancer institute for a second opinion. I called my…
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Update on Jason....
Hey everyone! Sorry I've been slacking on my updates on Jason, but I've been having some issues myself. NOTHING like what he & most of you all are going through, but pretty sucky for me. I have a torn rotator cuff in BOTH shoulders, no it couldn't possibly have been just one, had to be both. lol So, even typing gets…
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At the starting line Again.
Got my 3rd port in yesterday , And I start Chemo on Tuesday. So not ready for this again.
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Tedd - How are you feeling?
Hi Tedd. Haven't noticed any recent posts. How have things been going? Last thing I remember was that you were hoping to be discharged from hospital. The chemo seemed to be working. Hope all is well. Chelsea
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"It's Official Now" - We're Published and on the World Wide Web Today
"You Like Him - You Love Him - You Want Some More of Him!" The big day has finally arrived!!! That's right! Today, we are officially published in a major magazine publication. It's been a long time coming and I never thought I'd ever see any of my work in print. So, this is truly a day that I feel blessed and fortunate to…
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Pain in the neck
i'm very new to this site but I was wondering if anyone has had pain in the back of their neck. I was dx'd with stage IV colon cancer in April 2013. My first 2 chemo treatments turned out very scary because I had an allergic reaction to the Oxiliplatin. I have since just been on Xpills until until 2 weeks ago when I…
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Home again from hospital
Man, it's been a tiring few days. Went to the ER Wednesday because around 2am noticed I wasn't producing any urine. I have been on a catheter since April. My left kidney doesn't work since April . I walked around thinking that would open things up. At 3 am I finally woke mywife up and we headed off to ER. I was really…
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PET Scan results
I've been riding around on the roller coaster for 6 1/2 years now. I've had many ups and downs, and some fun riding along. I've been chugging up a big hill for about 6 months with my rising CEA, and it appears I'm near the top and about to head back down into treatment mode again. I saw my onc today to get the results of…
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Chemo/rad- my experience and advice
I recently finished chemo & radiation for stage IIIB rectal cancer. The forum has been incredibly helpful for me so I’d like to share my experience and what I learned in hopes it may help someone, particularly the newly diagnosed. I love to do research so bear with me if this is lengthy but I know there are others like me…
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Chemo Drugs
My brother has 5 lung nodules and 1 liver mass that is 3 cm. He had an anterior resection in 2011 and had chemo/rad before and chemo after surgery. He had finished his chemo August 2012 and his scans had been clear up until a couple of months ago. His CEA levels went up and his CT scan and MRI showed lung noudules and…
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Trying new things for the pain
So I'm def on a roll in my quest to rid my life of pain pills. I've managed to cut out a whopping two of the six I was formerly taking. Go me! I seem to be a bit stuck, as once I take out the next half, the pain comes back with a vengeance, so I've decided a give a few, more alternative things a try. I went yesterday to an…
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second opinion.
I finaly talked my wife into getting a second opinion. We will be sending her records to Roswell cancer institute in Buffalo NY. They are considered the best cancer hospital outside of NYC. I am not real pleased with the road she is on with her current oncologist. Hope to hear from them soon with a appt.
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Second opinions and liver mets
I hear on this forum again and again about how important it is to get a second (third, even fourth) opinion, if the first surgeon's opinion was a "no" to resection of liver mets. You've got me convinced. I am now researching about good liver surgeons who are known to have taken up "unresectable" cases. I need your help,…
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How many continuous dose of Folfox?
Interested to know how long anyone has been continuously treated with Folfox regime (less the Oxally) before they had to stop or change? I am currently up to 30 but don't know if that is a lot or only just starting? cheers Roddy
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uploading an avatar
I have changed my avatar twice in the past with no problems. Now I can't seem to do it. I wnet through the motions and I get a prompt that says it was reisized and upload complete. But still no avatar. I tried this several times. Aany suggestions.
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RFA or REsection for recurrent liver met ?
Hi, posted this on colon club yesterday but did not get any response. I hope I do get some suggestion or someone can care to enlighten me and put things into perspective. After my surgery for the liver and colon mCRC last September I was NED till now and suddenly the cancer markers shot up this month from 3 to 15 (CEA) And…
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Joint aches ... is this common after chemo?
I was just wondering if anyone else suffers from horrible joint aches and bone pain after chemo. I thought it was the nulasta shot that was doing it. I do think it contributed. But, I am still suffering daily from this continued pain after treatments have ended. I also continue to have weak muscles and everything seems…
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Surgery on the 8th.
Finally the day is set to remove my rectal cancer at the Cedars Sinai in Los Angeles. Will be a bit complicated, because they also have to remove a part of my tail bone and do a flap from my stomach to have a better closure. So there will be the main dsurgeon, a plastic surgeon and a spine surgeon. I will end up with a…