Keeping cool in the summer on Oxaliplatin

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bibliophile
bibliophile CSN Member Posts: 40 Member
in Colorectal Cancer #1

Last time I did Oxali was in the fall to winter so with the cold sensitivity I had to worry about keeping warm, but that was manageable. This time I am having the toughest time because it is 90 degrees out every day, but you can't stand too close to the air conditioning or drink or eat anything cold. How do you all stay cool enough in this hot weather? I feel like I am always overheating!

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  • beaumontdave
    beaumontdave CSN Member Posts: 1,302 Member
    #2

    Being on Folfox during warm days kicked my b*tt too, I had to stop a lot, even let my wife finish a job while I rested and gulped water with no ice. I was doing chemo from Dec. to May in SoCal, and could work fine in cool weather, though touching cold water was exactly like receiving an electrical shock. Still I muddled through to May, and the worst nerve stuff left quickly after completing the 12 rounds. I was just lucky to suffer less than most folks. However now, at 67, 18 years past, I find I'm dodging heat more from plain old age, than I ever used to, for whatever that's worth, lol…………………….Dave

  • bibliophile
    bibliophile CSN Member Posts: 40 Member
    #3
    https://csn.cancer.org/discussion/comment/1723561#Comment_1723561

    Thanks, yeah, I think I am just going to have to do less outside than I like, but since I love the outdoors and pretty much live outside year round (N. Illinois) that's going to be tough. And this summer has been especially brutal with the heat, both objectively and with the chemo. It does help to know that it's not just me, though. 😊

  • scottiedavis19
    scottiedavis19 CSN Member Posts: 1 Member
    #4

    I am a couple of rounds in of Folfox and have the heat in Texas makes it rough to drink lukewarm water but I have honestly pushed it the days after the pump just to stay hydrated. I did ask my doctor and they added a saline bag for off weeks and that has kept me hydrated. I am convinced that walk/run every evening is helping so much on all side effects. The first half mile is rough but if I get past that, it is the best I feel all day. Everyone is different but it has been the best thing for my physical and mental battle during chemo. I feel like if I push it on drinking water or fluids it actually gets better after initial shock. Just my experience, 48 yr old stage 4 rectal

  • bibliophile
    bibliophile CSN Member Posts: 40 Member
    #5
    https://csn.cancer.org/discussion/comment/1723662#Comment_1723662

    I totally agree that I felt better when I could keep exercising, and I do try to push lots of fluids, even if there is nothing worse than lukewarm water, IMO. I think it is the irinotecan in the FOLFIRINOX that is kicking my butt this go-round. The Capeox wasn't nearly as tough. Guess we just have to keep chugging along. 😊 All good advice, though. Thanks! 48F, stage 4 colon

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