The Cancer Survivors Network (CSN) is a peer support community for cancer patients, survivors, caregivers, families, and friends! CSN is a safe place to connect with others who share your interests and experiences.

Breast Cancer

Does anyone know if I can get Herceptin without the other chemotherapy drugs?
Hi Everyone, I live in British Columbia, Canada. I am grateful to have found this support system. I was diagnosed with breast cancer in my left breast in August 2011. I had an Oncoplastic lumpectomy, and Sentinel Node Biopsy on Dec. 6, 2012. The surgeon was amazing, as he lifted my breast, and removed and replaced the…
Ductal Cancer
For Stage 1 Ductal Cancer of the Breast, has anyone had a lumpectomy versus mastectomy?
Have to delay chemo because of high liver enzyme count .. NOT HAPPY
Hi, I was supposed to start Chemo Monday. They have since found that my liver enzymes are high, so now i will be delayed with Chemo. I mighy have to do a liver biopsy. In the meant time, i will be doing my Cat scan for pelvis and abdomen and chest, and also bone scan tomorrow. Maybe that will show more of what is going on…
Turquoise Terrorist back to torment you all
Hi there friends. Just thought I would drop in and update you on my fave subject.... ME! Some of you will remember back in 2008 my first dx with st2, well my onco (Dr. Charisma-Bypass) and I didn't exactly get on like a house on fire. My new onco (Prof. Mincing ****) is even bloody WORSE! He gets me so confused that I…
Lynch Syndrome
Hi all, Has anyone here had genetic testing for Lynch Syndrome? Its basically a test for colon cancer, but it can predispose you to other cancers also, so sometimes the genetic counselors recommend it to other cancer dx as well. The genetic counselor recommended it when I went for the BRCA test and said that because Lynch…
Long term side effects from C/T chemo?
Hi everyone. I don't really post much here, but have some questions. Have any of you experienced any long term side effects from cytoxan/taxotere? I completed four rounds of chemo just over two years ago followed by radiation. I recently had a follow up with my medical onc and she says that I now have an irregular…
anyone here survived breast cancer that has spread to liver?
Hi, I was recently diagnosed with breast cancer stage 2, IDC and Her2. but now i have high enzyme counts from liver. They want to do liver biopsy. The doctor seems to think it isn't cancer, only because my other numbers are ok. But just in case they do find cancer in my liver, then i want to know if anyone here has…
Advice on Radiation
I'm meeting with a radiation oncologist on Monday. I've got one bone met on the left sacrum that needs to be radiated. Had a mastectomy without reconstruction last month and am still doing Herceptin, Zometa and Letrozole. my Breast surgeon and oncologist are in disagreement over radiation to the chest wall. Breast surgeon…
Bone Mets only
Hello. I was wondering if there are any women out there who have or are experiencing metastisis STRICTLY to the bones and nowhere else? I'm told that my bc is not curable but treatable. Seeing as I'm ER+ and Her2- my bc is considered a "slow" or "indolent" disease. Many calcifications were noted in my left breast in 2008…
tamoxifen
Hello I have been on tamoxifen since March of 2015 . I have had a dry hacking non phelgm cough that has going on since then . I dont know where this came from and it is starting to become very worrysome . I have read about it and there are people I have seen go several years to no avail and try home remedies to ease their…
Why do i have to have chemo first, then surgery?
It seems like most people i read and hear about, had their surgery first, and then chemo. My Onconologist is having me do Chemo for 16 weeks, once every three weeks, so a total of 6 sessions. then she said i rest for a month, then i get to have surgery. Since i have implants, and test came up with IDC, but also Her2, I…
Radiation with tomoxifen
Was wondering if anyone has taken tomoxifen whlie on radiation? mary
Tomoxifen
Hi, I am now just doing herceptin alone every third week and just started on tomoxifen . i still have muscle aches like I did when I was getting all four chemo meds. But today I have a sore throat and don't know if I'm getting sick or if tomoxifen or herceptin would cause sore throat. I read they could but didn't know if…
Radiation side effects
hope everyone is doing well. I am getting ready to begin my radiation every day for six weeks. Does anyone have any advice or seide effects I need to know. I am told there will be tightening and discomfort and dry skin at the radiation side. I already have a lot of discomfort due to having bilateral and removal of lymph…
fareston anyone been on this
Hi, I have been on Aromasin with horrific side affects . The poster child for everyone on the list. Then switched to Femera. Bone pain beyond belief. The oncologist talked about Tamoxifen. However, would have had to come off other medications to go on it. The new decision is Fareston the oncologist swears there will be no…
Is this what your Relay for Life is like?
My oncologist's office decided to form a team for Relay for Life this year -- all the doctors, nurses, and administrative staff participated, and they raised over 12 thousand dollars! The event was yesterday on the football field at a local middle school -- I baked cookies for them, and my partner Trace and I went out…
Metastisis to bones
Hello. I was wondering if any of you have had a metastisis to the bones, in particular, the spine, ribs, and/or pelvis? I had a very tiny invasive lobular cancer, .02 cent. but had one positive sentinel node measuring .9 cent. I was treated with a lumpectomy and 33 rounds of radiation to the breast and axillary nodes.…
Got results today from my oncologist......GOOD news!!!!
Went to my oncologist today for results.... she said we will do an MRI to determine exactly what it IS, but for certain is that it is NOT cancer!!!! DANCING!!! (She thinks it may be an untreated shoulder injury, and this lump is a sort of pillow my body created to shield the injury)..... Hugs to all, Kathi
Femara, Arimidex or Aromasin- oh my- which one?
Hi looking for thoughts on these- I am two weeks out from my hysterectomy, ER +, 46 yrs- have been on tamoxifen for 7 months and now will be switching to one of these AIs- Any recommendations appreciated ! Ty, Susan
waiting for chemo as my tumor is growing!!!!!
Hi I first had ultrasound april 17. Since this time i have been diagnosed with IDC and hers 2. I start chemo june 1. I still have a bone scan and ct and port placement this coming week.. My timor was2.5 cm. I feel like it is growing before my eyes. How fast can it grow? i am so nervous that it in my other organs. It is…
Happy Birthday Shout out to RE (Rena) .. May 16th
Sending you Birthday Greetings, and LOVE... Enjoy your very special day my Friend. Vicki Sam
Has anyone out there refused chemo?
I am new to this "nightmare" and I have been told I need chemo. I really really don't want chemo. I'm worried it will empty our savings account and I'm not sure I can handle feeling sick for that long. I also can't picture myself without hair. I get the impression nobody ever refuses chemo treatment. I would appreciate any…
Breast Cancer Society charged with fraud!
Just heard on TV that The Breast Cancer Society has been charged with fraud by all 50 states and the federal government. Seems they only spent about 1% of the monies raised on what they were supposed to.
Tamoxifen -Leg pain
I've been on tamoxifen for one year and for the last 3 months my knees have been hurting. What can I do to ease the pain?
Carol (CAMUL) .. How are You doing ??
We are thinking about you ... Please check in when possible. Gentle hugs, Vicki Sam
Chemo before or After Surgery
Hi everyone, I am newly diagnosed DCIS and invasive (DCI). I'm a triple negative grade 3 cancer - thus, very agressive but fortunately, still small (1.9cm). SOoooooo I'm anxious to get this angry little blob out of me but have conflicting opinions. One surgeon says do chemo first and the other says it makes no difference…
how did you choose your surgeon?
I am in the early stages of this whole nightmare. I was diagnosed 5/5/15 and am 55 y.o.. going in for a sentinal lymph node biopsy in the am. The person doing this is a general surgeon that i was sent to when the ultra sound was suspicious and he ordered a ultra sound biopsy and tests came back IDC grade 3 on 5/5/15. Then…
O.T. heading camping friday-anyone else with plans for the long weekend?
I am taking my 3 grandkids camping (ages 10,8 1) HOPE to have good weather... Denise
WELCOME ALL NEW TO THE csN nETWORK
TO ALL WHO READ THIS: WELCOME ALL NEWBIES HOPEFULLY YOU CAN FIND PEACE OF MIND HERE WE ARE ALL HERE TO HELP YOU THROUGH THIS TUNNEL OF TERROR AND GET YOU THROUGH ALL OF THIS. WELCOME AND LOOKFORWARD TO TALK WITH YOU ALL. KELLY
5 days post BMX w/o reconstruction-- numbness
BRCA-2 with tumor on one side, had BMX with SLNB on one side just five days ago. Two nodes removed. No reconstruction. I have been doing well with recovery-- stripping my own drains, doing small tasks around my house, and taking it easy too. Tapered off the pain meds pretty quickly. However, I was unprepared for how…

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The Cancer Survivors Network (CSN) is a peer support community for cancer patients, survivors, caregivers, families, and friends! CSN is a safe place to connect with others who share your interests and experiences.

Breast Cancer

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