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hi all i am new to the website
here is my story: i have had breast cancer for 14 yrs, first started 14 yrs ago then left, then came back 5 yrs ago, then stopped but came back again last august. i am doing okay i was in the hospital in august 26 for five weeks i was filling fluid around my lung they had to put tube down my throat for about two weeks even…
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Time to Uncover?
Any personal stories about when you decided to stop wearing wig or hat after hair started growing back after chemo? I probably have about an inch in most places and would love to be brave and uncover.
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Her-2/neu 2+ Borderline
Rec'd my path report yesterday. Its not complete yet, as I still need a SNB on 1/25, and.......here is my question: As the Her-2/neu is 2+, another lab test called a FISH will be done. I am hoping that the positive Her-2/neu was an error, and this will be discovered when they do the FISH. I am also Estrogen/Progesterone…
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Hair Thickness?
I finished chemo Jan of 2004 and my hair has grown back. It's even longer than before chemo! I lost all of my hair and was completely bald. But one thing I've noticed is that my hair has grown in much thinner than it was previously. My biggest complaint is that its so thin I can see my scalp. Has anyone else noticed this?…
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Arimidex
No change in the ca tumors, but alot of bone and joint pain. How is everyone dealing with it, and what is the prognosis?
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Sorrow and Financial Ruin
I had a bilateral mastec. with tram flap reconstruct on 2-4 and I had to close my business. I am a stock broker for 15 years and I cannot do that work any longer. I need stability in my life, a salary, not commssion. I am so ashamed to see the financial ruin and feel so helpless. I have had to draw from all our financial…
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Thinning hair on Femera
I have been on Femera for 6 months after 4 years of Tamoxifin. I am experiencing joint pain and now thinning hair. Does anyone know if hair returns to normal once the Femera protocol is finished. Thanks you so much, Luckyj
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new here and may need info
hi guys, i am new here and may need some information for my aunt. two weeks ago she had a baseline mammogram in which a small lump (nodule was discovered). off to ultrasound she went. the ultrasound report says that there is 1 cm nodule in the right axillary tail, that doesn't look clear cut suspicious but has some…
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breast cancer
to know about treatment after mastactomy surjury
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Are these really side effects???
I am currently in the adjustment phase, 4 months after finishing a 15 month treatment plan. I had AC, taxol and herceptin. Some symptoms that I've had are a few little sores on my face which pop up suddenly and then resolve quickly, an involuntary chin tremor I'm not even aware of when it's happening and the last thing…
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After Affects & Disability
Hi All - I am looking for anyone who has dealt with disabling after affects of treatment and successfully obtaining disability, either through social security or private companies, benefits. My issues are severe joint pain/dysfunction, fatigue and "chemobrain". Please, I am desperate. All income has been lost and all I get…
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Question
My friend has just been diagnosed with Breast Cancer for the 3rd time, this time it is showing up in her lungs. I'm looking to correspond with someone who has had similar. Thanks
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number of lymphnodes removed
Typically, how many lymphnodes are removed during a mastectomy, when there is no cancer in the lymph nodes and the sentinel node procedure was done? not sure if I asked that correctly, but here it goes. Thanks, Sue
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Hi all again
I hope everyone has had a good christmas and a happy new year. I have a question.Has anyone ever had a bone on the middle of the spine to swell and ach like a tooth ache? I thought I pulled something in my back because it feels better now just tender.I went to the normal dr, today and he wants a bone scan done.He says it…
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removal of port
Hello everyone, I was wondering if there is much pain involoved with this procedure. I have had my port for a year and half and it has bothered me every day and can't wait to get it out. Has anyone else had trouble with their port? They have not been able to get blood returned for the past 6 months and I have finished my…
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Celebrating treatment end
Hello, My onc recommends going on a trip or having some sort of celebration when I'm finished with treatments (5 more taxol followed by 6 weeks radiation) to kick off the start of a new phase in my life. What have you done to celebrate this? Any pointers or ideas? I live in the Seattle area if it makes a difference.…
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problems-reconstruction
I had a TRAM flap done 2 months after my mastectomy, while still in the hospital the vesssels were swollen and didn't work so they removed it. A month later we were to try again with the hip tissue and vessel from the leg, when I woke up I had a implant. So he said the vessels in the breast didn't look good yet to connect…
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lymphedema concerns
Has any of your doctors okayed the activity of bowling? I returned to bowling, but traded my 12 pound ball for an 8 pound ball. However, I am nervous about getting lymphedema. My doctor seems to think anything goes, but sometimes I wonder. Thanks for reading what seems a trivial post. Sue
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Had my neuro consult
Just a quick update. I saw the neurologist yesterday. After an evaluation he believes everything is OK but because of family history (mom and grandparents) of strokes and TIA's, he ordered a brain scan and sonos of coratid and cranial arteries. If it all comes back fine he may just suggest taking a baby asprin daily. I had…
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TRAM vs. DIEP
I was diagnosed at age 36 with DCIS with small invasive margins (5mm) in March, 2000. I underwent lumpectomy and radiation. My oncologist has recommended preventative bilateral mastectomies as I have family history bc. I want to do reconstruction at the same time. I am considering subcutaneous mastectomies to keep my own…
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Nipple Survey
Hi, I am taking a nipple survey.... I am in the middle of my reconstruction and am at the point where I have to make a decision about getting nipples or not. Please share your experience, whether you got them or not and If anyone got new nipples... can you please tell me if you like them or not and if you had tattoos done…
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Hey..just checking in
Hey guys..I have been so terribly horribly busy with the new job. The training was grueling, but, the actual job is not possible to do, the goals are too unrealistic. January, this month, is my first month on the job out of training and our goal was to have 350k in loans and I will have close to 1.5 million so I can do it,…
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What is going on with the swelling!
OK I finished a 12 week round of tazotere 2 weeks ago. I had some swelling in my left (surgery/no nodes) that I figured was the start of lymphadema so I got my oncologist to set me up with a physical therapist. Cool - No, that all happened over the last 2 days. Now, today I come home from work and my ankles are HUGE! What…
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Shoulder/Back Pain
Hi, I sometimes experience a pain that takes my breath away behind my shoulder blade on my mastectomy side. It feels like a muscle cramp, but it last for a long time. I have to twist and turn to get rid of the pain, it feels like someone has a hold of the muscle and is squeezing it. Tonight I have a pain in what feels like…
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PAIN AFTER MASECTOMY QUESTION
My dad had a mas.2 years ago they didnt remove any muscle just tissue now has been having pain it takes his breath away has huge lump of scar tissue has anyone had this problem and if so is there a cream he can put on it? Kodi
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No New Cancer
I'm pleased to report that my wire biopsy came back benign!!!! I have calcifications in my left breast (had mastectomy on right side) and had a stereotatic then a wire. I've read what has been posted about wires. The doctor quoted mine as a biopsy from Hell! Apparently the area she had to get to and the location of the…
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anemia and arimindex
I have beem on arimindex for about two years following mast Recently blood tests show me to be anemic and i was put on iron while they do additional tests. Am curious..has anybody else had this happen? Dr. doesnot think it is related to arimiex...any thoughts what it could be? Thanks for any input.
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Hair Thinning
Is anyone experiencing hair thinning as a result of taking Arimidex? I know that being thrown into Menopause prematurely is also contributing to this issue, but my Oncologist reports that some of his other patients on this protocol are experiencing this same side effect. The thinning is occurring primarily at the hairlines…
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Pain-shoulder, back, arm, TramFlap
Hello all! I have a question about any experiences with pain, seemingly in the muscle and perhaps related to a vertebrae out of place. The pain in the scapula (on mastectomy/Tram side) started when I was pregnant. Since the birth, I've had shooting pains in the Tram, in the armpit on the same side (where a one cm. tumour…
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lymphedema
I am 2 1/2 yrs out from diagnosis and right before Thanksgiving I started having problems with my arm swelling. The drs thought it might just be from an infection but after 2 rounds of antibiotics the swelling hasn't changed. I am suprised that lymphedema is just now occuring. Has anyone else experienced this type of delay…