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ANYBODY DECIDED NOT TO DO BRCA TESTING
Hello, Everyone, I was just wondering if there is anybody out there that has decided not to do the BRCA testing after already being diagnosed with breast cancer. I was diagnosed 9 years ago (47 years old) with stage 1 IDC, had lumpectomy, 4 rounds of chemo and radiation. the BRCA test was not recommended by my dr's when I…
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Pink Bus for Friday!
I have been having trouble with some worrisome issues: bloating, nausea and vomiting, vomiting without nausea (really weird), constipation and excruciating left-sided pain (ribs) at night. Primary wants a CT of abdomen and pelvis on Friday. I asked about PET, but he said onc would probably order it but he still likes a…
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Pink Bus, please?
I am new to the Pink Bus, but I think I would like one for tomorrow. I go to see the oncologist tomorrow (Thur) at 3pm (MST). I found a lump and bump on my neck and above my collarbone on the same side as my breast cancer. I have my heart set on it being nothing but I'm very anxious today and having a hard time focusing on…
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Game - Last word/First word
We haven't played this game in a while. For the 'newbies' who haven't played it before, the object is to put 2 words together that relate to each other BUT the next person to play has to use the previously last word as the new first word. Example : red hot could become hot dog which could become dog tired amd so on. I'll…
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Revised plan: 2nd pancreatic biopsy on Wednesday
My onc thought I should listen to the gi surgeon and have the second endoscopic us of the pancreas. GI wants to do it in the hospital and have the pathologist in the room and keep getting samples until the pathologist feels like they got a good one. BTW, my pancreatic enzymes and blood glucose remain high since late July.…
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Ever wonder why we come here?
Hi sisters, I sure missed you all. I can't believe where this adventure called life has taken me. I have been keeping tabs on everyone, though sometimes words fail me. I want to reach out to my sisters in the trenches and hopefully make you feel just a touch better. I often wondered why I come here and can't stay away,…
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Today is Aysemari's Birthday!
Happy Birthday! Hope you have a fantastic day - and a happy, healthy year! much love, Jenny
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Today is Deb18's Birthday!
Happy Birthday! Hope your day is filled with everything & everyone you love most and wishing you a happy, healthy year! Jenny
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Yesterday, met with genetiv counselors and tried to get blood
This is the 3rd time they have been unable in the last 5 months, have had TPA 2x. There was not time to do TPA yesterday, so I will go to the local clinic Monday am for a finger prick for INR, then am scheduled for a week from Monday to have the TPA. and the blood drawn for the Genetic study. However, the 2 nurses working…
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Today is cavediver's Birthday!
Best wishes for a great day - and a wonderful, healthy year! much love, Jenny
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Happy * Happy * Belated Birthday to Andi44 (Sept 8)
Happy Belated Birthday!!!! Hope you had a wonderful day - filled with lots of familly & friends - doing what you love most! (so sorry I was late - computer issues!!!) much love, Jenny
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Having a bit of a rough ride lately
Well Saturday night was just no fun at all. I threw up about 10 X even after zofran and phenergan. Started having terrible left-sided pain. Went back to ER (hate, hate, hate). At first, there was suspicion of gallbladder disease. Yay!!! Unfortunately, nothing is ever that simple with me. Gallbladder is ok, but my pancreas…
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Oncologist no longer with my Medicare HMO
I haven't posted in quite a while, but still read all your posts. All was well with me, except for the chronic nerve pain from lymph node surgery until I got a letter from my oncologist in June stating what a privilege and honor it was....blah,blah,blah, however...upshoot he joined Texas Oncology in Houston and they do not…
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I had dreaded EUP
And I did just fine. The anesthesiologist said she was going to give me propofol as it usually has less nausea associated with it. All my crazy mind could think of was “Wasn't propofol what killed Michael Jackson?” Lol, Danny said I woke up from procedure mumbling about Michael Jackson. Anyway, there is a mass on my…
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Blindsided..
So..wow. Things were going really well (I thought). Had a lumpectomy in December after 13 rounds of chemo, and my lymph nodes were clear. Did my 29 radiation treatments finishing in April. Sailed through my 3 month check up with the surgeon. And then I saw my medical oncologist two weeks ago. He noticed something "strange"…
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I spoke today with my trusted oncologist of 27 years
He had a totally different opinion from my local onc. He said forget trying to biopsy the lungs because they are not hypermetabolic (Yay Doris). He wants to wait on the pancreatic biopsy and, if it is negative, he wants another liver biopsy to make certain we are treating the cancer with the best drugs available. I also…
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Happy Birthday shout out to Maggie May - September 3rd
Happy Birthday to you - dear Sister in PINK .. Enjoy your very special day. Vicki Sam
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Today is JuJuBezz's Birthday!!!
Hope your day is wonderful - filled with love all around! And your year is happy & healthful! much love, Jenny
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Excited! I am having lunch Sunday with Suzanne
Double Whammy, in Sacramento! I am really fortunate for this oportunity!
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My blog
Hello Community, October 11th will mark 2 years since my stage 2B breast cancer diagnosis. In the last year I've spent a lot of time thinking about what kind of survivor I want to be and putting my professional experience as a researcher/writer and yoga teacher to work developing strategies to prevent a reoccurrence and…
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Tumors Markers Blood Test
Dr's office just called. My results on my Tumors Markers Blood Test are 18. "Normal" range on cancer patients is 30-38. The lower the number the better! Doing Kathi M's Naked Happy Dance!!!! Thanks to everyone here for your support! Hugs & God Bless! LoVonna
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Port a Cath
Hi all! I'm going in to have a port a cath put in on Friday before I start chemo because my veins are pretty shot, and I was wondering if anyone could give me an idea on what to expect with the procedure/recovery/pain etc.. Kat
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Good news, bad news
The good news is that the PET scan did not show any problems with my pancreas. Also, my bones remain in remission. However, it did find a small area of hypermetabolism in the left liver and my CEA and liver enzymes remain elevated. Also, it says there are "unfavorable changes" from my May scan in the lungs with several new…
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Please help - Any stage 4 survivors?
Hi ladies and gentlemen. I hope all of you are doing well. I have not been here in a long time. If you recall I was dealing with my aunt and her leukemia. Then a close friend was dx with stage 4. I want to reach out to all of you for help. My friend is 38 with two children. She has been dx for the third time (first…
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Last Tamoxifen PILL ONE year ago....
How I waited to take that last pill...after 5 yrs Denise
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PET scan Tuesday; EUP on Wednesday
Well Kindreds, I definitely need you guys! I have a PET scheduled 8 AM Tuesday morning. First, pray that my blood sugar is OK, because, since they put in a stent in my pancreas, I have been having a little hyperglycemia. Then, I need you at that pesky PET. Wednesday, I have an Endoscopic US of the pancreas. In this fun…
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Question about cancer coming back
Hi all, my mama, 75, is a breast cancer survivor. She has been cancer free for close to 15 years now. She was so fortunate that her breast cancer was caught before it had spread to the lymph nodes. I forget the staging levels but I remember hers being a stage 1 or not even a stage 1 (if that is possible) She had it removed…
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Half good half bad
Good Im still holding stable . Bad my eyes are acting up . Now I need eye drops dam dry eyes.
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Summer 3 word story
SItting by the
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New to all of this
I was just diagnosed last week with breast cancer in both breasts. i guess I am still in shock and cant believe this is happening to me. I chose to have both breasts removed and I am not having them reconstructed. A little nervous about the lymph nodes issue. My doctor told me after both breasts are removed, I will be…