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Long term metastatic cancer survivors and Hope
All, In doing research on EC metastasizing to the liver I found this article titled “Living on the Edge” - A growing population of patients have emerged: long-term metastatic cancer survivors. available at http://www.curetoday.com/index.cfm/fuseaction/article.show/id/2/article_id/1463 (cut and paste the link in your…
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Topic of Cancer by Christopher Hitchens Sept. Vanity Fair
Author Christopher Hitchens was diagnosed with EC in June. He wrote an article about his journey so far. He will be writing more and spreading the word. You can google it & read it on line. Kathy
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Experience with nutrition via port?
Hi All - My Dad's oncologist recommended nutrition via his port. Does anyone have experience with this? I've seen postings related to feeding tubes but not this approach. Background: He's 85, diagnosed July 09, stage IV with mets to the liver. Recently underwent SIR-spheres but is not "bouncing back" like he should be.…
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Human Papillomavirse
When my husband was Dz with Larynx sqamous Cell cancer. He was in a study group , They seam to think that this cancer was passed from MOther to child. My husband never smoked or drank. His mother died of Ovarian cancer when he was 9. My father also died of Esophageal cancermy father was a smoker and dranker. Dad's mother…
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Has anyone had this problem????
I wrote somewhere else on the board but can't find it, so will repeat here. I've been in the hospital a few days now because I couldn't eat even liquids for several days. I had the Ivor Lewis 3 months ago and have had this issue over & over. It's not dumping, diahrrea or reflux. Even dehydration doesn't explain it since…
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What's next?
Well I'm back. After being diagnosed last Jan. with stage 4b cancer. I was all but told that I was not long for this world. I have made my peace with God and asked for his strength to follow this path. As of Aug. 9th after my last PET scan. I'm told that all tumors are gone and nothing showed up on the last 2 scans. My…
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encountering trouble again.....
My ivor Lewis was mid-May and until the last 2 weeks, I've had multiple complications digestively. The last 8 days have been smooth - able to eat, hydrate & maintain the same low weight the whole time. Today, I couldn't eat at all and felt full. Bowels haven't moved in 3 days but til then had been quite frequent and…
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Question about chemo drug
Wondering if anyone has had the drug called, Irinotecan (CPT-11). Brand name: Camptosar? Hubby is going back into treatment with above drug and 5-fu, cisplatin. He had the 5-fu and cisplatin the first round. The Irinotecan is new to him. Thanks for any info.
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esophagas cancer metatosis to colon
My husband was diagnosed with esophagas cancer in Janurary, he went through 6 weeks of chemo and radiation. April 19th he had a 12hour surgery, went in to respitory failer, and was in a coma for 8 days. He is home and doing better, except that when he eats about 20 minutes later he is in pain down towards his lower…
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Update on Hubby - stage IVb
It's been awhile since I have posted and I wanted to let everyone know I still read the new posts. Our roller coaster has begun My husband has had 7 Radiation treatments and 2 Chemo's. They also put in his port on Monday. They insisted he needed a stent because of the size of tumor and this was done on 7/13/10 and so far…
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Weird Dreams - mystery solved
I found out what was causing my husband to start having strange experiences. Last evening I noticed that when he would keep drifting off, he would use his hands and be reaching for something. But it wasn't until I went to bed later that he started talking and hands moving. I asked what he said and one time it was a job…
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an update on Ed
Well we have had a horrible week again, the doctors cannot seem to find the cause of ed's high blood pressure problem for a week, they have changed med's, increased/decreased decadrone, adding new b/p med's. It has been a week from hell!!!!!!! He is very very weak, I believe some of this is from post radiation to his…
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I just wanted to touch base and let
All of you know that not a day goes by where I dont think of you all. The last couple months have been wicked for me. I just cant get over the fact that I lost my father from something that the DR's failed to look into knowing what type of patient he was. If he was at presby I know for sure it would of been done on the…
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what to do when someone keeps saying they won't get cancer?
Hi, Just wondering if anyone on the board has ever encountered someone saying what you consider a really stupid remark to you regarding cancer? This person was visiting us before my surgery and said it and she continues to say it. Just had her here for a week and I keep shaking my head. She does not believe people should…
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Added costs of living with EC and other forms
Hi Everyone, Can anybody relate to the financial implications of seeking cancer treatment? For example, in my early process I have many things on my mind like work. Will I need short-term or long-term disability from my employer which only pays 67% of my pay. What will happen to my bills such as the mortgage? I know that I…
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Ivor Lewis
I keep seeing this surgery slammed over & over and it's getting to me. I did have this surgery three months ago and have had many complications but these were due to causes unrelated to the type of surgery I had. I have a problem believing that the finest medical center in the modern world - Mayo Clinic- would consistently…
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Support for the journey
I can't help but notice that nearly all of this board's members seem to have a loving partner! What a wonderful and critical asset this must be during such trying times. Having a husband or wife to oversee hydration, weight, diet, meds, etc and advocate with the medical system when the ill partner is too weak to do so is a…
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Looking for gentleman going to Mass General in Boston
I cannot seem to find your post that I was reading the other day, I am too from Boston, Ma. My husband was diagnosed last october with stage four with mets to liver, stomach and now brain. I hope you post under this posting so we can talk and see if we could help each other. thanks Linda
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update on Ed
Well it has been a week since Ed got out of the hosptal and his decadrone was increased, he is doing better since the med change. We are having a party Saturday at our house for our 25th wedding anniversary and having some friends/family over. It has been one struggling 10 months since he was first diagnosed. I have come…
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New Diagnosis
Hello everybody, I am a brand new CSN member. I was diagnosed last Tuesday with EC stage 4 which has spread to the liver. Never in a million years did I expect to contract cancer and am terrified. I am going to Mass General and have just had a PT Scan. Any words of wisdom would be helpful. Thanks. Paul
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slydog11 and others
Written for you today august 10, 2010. FOR YOU. I read your stories and laughed and I cried. I understand the way you feel. I wish I could take you in my arms I wish I had the power to heal. It breaks my heart when things go bad I rejoice with you when things go well. I have nothing that I can give to you. Only experiences…
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My EC Story
I spent an hour writing my story earlier today but it refused to complete "submit", so I'll try again. I've just recently found this site & realize only now how important the details are. Here's my story. For over a year I had difficulty swallowing pills at times. At times, painful heart-attack like spasms occurred. I…
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Weird Dreams Stage IVb w/mets in the Spine and lymph nodes
Can anyone tell me if they experienced weird dreams that seem to continue (3 days) every time my husband tries to sleep. He said it is always the same dream (like he goes out a door and cannot return) like he is in another world!!! I asked his Chemo nurse today, if she has heard of anyone else having these type dreams. NO…
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Post surgerical follow up -- what now?
Following radiation and chemo I had laproscopic surgery in March to remove tumor and a CT scan in June showed everything OK. I was told that there is no protocol of regular CT or PET scans for follow up, just to react if there are any symptoms (unlike rectal cancer, for example, where there are annual CT scans and…
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Scans show no cancer at all...
We went up to the U. of Chicago for the results of my husband's CT...he's still cancer free..I'm sure some of you heard the sigh of relief. I took with us pictures of us in Alaska and my husband with the grand kids in Maine...just go back from there a few weeks ago...and thanked her for the year....she said to thank the…
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Sever reflux what to do?
My BIL started having severe reflux this morning and it scared my sister. She thought he was going to aspirate, but finally it has subsided. I need to know if others are having this problem and what are some solutions. He refused to eat breakfast and doesn't even want any liquid for right now. She was going to try to get…
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Scan results tomorrow
My husband will find out his scan results tomorrow...it's been a year already. Please remember him in your prayers. orion
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need help
I am a caregiver for my brother who has esophageal cancer, after 6weeks of radiation and 3 months of chemo the cancer has spread to lymph nodes. He was referred to the Mayo in Minn. with the hopes of surgery. This ordeal has started in Feb. and in July we were sent home with pallative care info. He did have a stent put in…
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staging question
I asked about this in another post but can't recall which one. Another member had the identical staging as mine but mine was Stage III and his only Stage IIB. I'm wondering how this can be?? I was T2 N1 M0. Is this Stage III or IIB???????
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affects of chemo and rad.
Have had 3 chemo sessions and 15 trips to the micro-wave. The tumor was about size of ping pong ball. Now no appetite---8 ounces fills me---eating or drinking gives me hiccups and makes my nose run. So trying to eat and drink small amounts all day long and of course have hiccups all day long. Have not had any vomiting,…