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Some tips from CSN
Welcome to the CSN! Below are some tips to help you get started following and posting on the boards. You can follow your preferred discussion board to get notifications of new topics and comments. To follow a board, navigate to your preferred board and then select the bell at the top, followed by your notification…
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Iliostomy ahead
Aloha, I'm coming to the end of my treatment plan with Robotic LAR (lower anterior resection) in 2 weeks. They told me they'll be setting up an iliostomy bag. I'm sure they'll tell me all about it after surgery. I understand what it is. I'd like more info on: care tips, can I leave it off for any time, what are good food…
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Perineural invasion
Hello, I just want to know if someone had a perineural invasion in their report. My dad had it and they got it out but if you look it up there is not a lot of it in the www and if it is most of the time a bad prognosis. But then I am thinking if it has a bad prognosis because it is hard to operate to get out? My dad is…
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Stories of Beating Stage 4 Cancer???
Hello all. I’m wondering if any of you would be able to share any documented accounts of someone beating stage 4 cancer (either no evidence of disease or long term remission) Preferably colon cancer but any cancer story would be appreciated. I would like to know what that person did to beat it and maybe I can do the same…
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Insight on Permanent colostomy
Hello, I was looking to see if some folks here could provide me some information on living life with a permanent Colostomy. I was diagnosed back in 2020 with Rectal Cancer. Since having treatment and an Ileostomy + reversal I have struggled with rectal incontinence. Not having a rectum and the area where my tumor was…
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Do you tell people?
I’ve never been one to share a lot about my personal life with friends or family. I’m the one that asks questions and get others to talk about themselves. I have only known for a week that I have stage 3 colon cancer. I’ve told my husband, my mother, my mother-in-law, and a good friend. I’m guessing that at some point I…
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LONG TERM THRIVER HERE!
Hi everyone! Most of you are not going to know me as I haven't been active on these boards for about 12+ years. For some reason I felt compelled to come on here today and check in and see if there were any names I remember from back in the days of our Colonpaloozas and such. I was dx'ed Stage 3 adenocarcinoma of the…
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Stage 2 T3B questions.
Diagnosed with stage 2 T3B last week and has not entered my lymphs. Will start the chemo pill with radiation in a week for 33 sessions then full chemo only every 2 weeks for 8 weeks. The Cancer Center said the outlook is very good for shrinking and killing the 5cm tumor near my rectum. Received a call from a surgeon the…
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colon cancer met to sacrum
Hi I had a resection 2.5 years ago after dr. found a 5cm tumor with no lymph node involvement. everything was going ok until 5 months ago when i started having a nagging sacral/coccyx pain. I thought i just pulled a muscle or strained it. my doctor just told me it might be mets?! I am getting an MRI soon. I just can't find…
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PTSD?
hello I’m new here today and the reason for me joining was wanting to know how people have dealt with their PTSD when it comes to your scans and bloodwork coming back normal for the last year and a half after stage three colon cancer six months of chemo every time I get a bump or don’t feel right I have my mind just goes…
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Clinical Trials
Wondering what the experience of others has been with finding clinical trials. My wife was diagnosed with Stage III CRC and has resection and 12 rounds of chemo. She was clear for 2 1/2 years then cancer showed up in some lymph nodes. 12 more rounds of treatment and she again had clear scans, but a positive DTDNA test.…
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HAS ANYONE TRIED POLY MVA
Has anyone tried poly mva?
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Poly-MVA-----Any experience with this?
Hello All... I am generally not a person that would investigate alternative supplements. I shared with my acupuncturist that my tumors had increased in size and number and she became very concerned. She paused for a moment and decided to tell me about a product by the name of Poly-MVA. She has been researching it and is…
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Living with stage IV CRC
Very interested in hearing from those who are living with stage 4 CRC as a "chronic condition". My wife is currently in this situation - receiving FOLFOX and Avastin on an ongoing basis, tweaking the Oxaliplatin concentration and sometimes backing it of entirely when the side effects become too severe. She is currently NED…
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HiPEC procedure
Hello, i am trying to help a friend in regards of more informations regarding the hipec procedure. Her husband had colon cancer and they are fighting together for over 2 years with this illness. Can you please provide me with more info about, people who had recent procedure of hipec? God bless all!
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rectal cancer survivors
I am 38 y/o mom of two diagnosed with stage 3 rectal cancer. I went through chemo and radiation. Just had a colonoscopy today. Surgeon says he sees no cancer only scar tissue. That I have had a "good clinical response" to the treatment. The tumor 5-6cm tumor is gone. He is still talking about surgery to remove rectum and…
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Work - Blacklisted
I'm was diagnosed in June 2024. Completed first round of Chemo. I'm a Private Equity Lawyer (20 yrs) - M&A and Securities. Now, I can't find a position at any law firm. I don't offer why I took such a long hiatus from practicing, but also can't lie when pressed. My career has been a huge part of my life and now I am…
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Question
so my question is.. there anyone that beat stage 4 colon cancer that went to the abdominal lining?
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Passing
Have had the hardest couple of months, my father unfortunately lost his battle on September 2024. He was a strong man, who fought till the end. My heart is aching and broken. Currently battling with sadness, grief, anger, and guilt . I miss him everyday! Rip daddy!
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Father starting chemo soon, any advice?
My father is 67 and recently diagnosed with colon cancer after finding a partial obstruction due to a tumor. He already had the resection but 4 lymph nodes showed some cancer so now he will be getting a port next week and starting folfox soon every other week for 6 months. Any advice on what to do to keep side effects to a…
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Chemo treatment experience /help
Hi - I am currently diagnosed with colon cancer. I have just had my surgery and now moving on to Chemo treatment. I had a choice of CAPEOX or FOLFOX. I am wondering if anyone can share their experience? I understand that for FOLFOX, a port needs to be implanted for the infusion. For CAPEOX, a port is not needed. But I am…
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Cea rise and covid just last week
CEA now 5.9 normal has been 3.5 to 4.0. My wife just tested positive for covid 2 days ago and yesterday all ok . Also had some stomach issues . Do we have update that recent covid infection cause a uptick in CEA Levels …Thanks for anyones update knowledge
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Port removal
the doctor surprised me at my last visit. In April of last year I had a tumor removed from my colon and a met just on the outside of the same area. 12 treatments later including 5fu pump Two positive lymph nodes after surgery of removing both I have not had a positive test. Two CT scans and tumor markers have all been…
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Xifaxan experience
Hello again everyone! Quick background... 10cm stage 3 found two years ago. 8 rounds of chemo, 25 sessions of radiation, surgery (with bag) and then reversal surgery. I'm a year past the last surgery and was NED (yay!) at my last oncology appointment I had been complaining to my oncologist about my bowel functioning for…
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Life after TME surgery?
Hi, I am 58. I was diagnosed with rectal cancer. A colonoscopy removed a small polyp using electric cauterization, but was not thought to be worrisome until the lab came back. Lab came back as cancerous to the edge. Originally, due to a follow up sigmoidoscopy, where ink was used to identify the spot, but caused swelling…
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APR and recovery
I am moving into the next phase of treatment for reoccurrence which is APR surgery. I am interested in hearing about recovery times and side effects and the quality of life after recovery. My surgery will be around March 1, 2025. I will have a permanent c-bag afterwards. I am/was a very active and healthy 67 yo (more like…
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Questions for a friend recently diagnosed
I have been on this site for over three years (Lymphoma Board) and am thankful for the good and caring folks here and all the support we give each other. I am writing here for a friend who was recently diagnosed with stage 2 colon cancer. Evidently the tumor is outside the rectum near the anus and not attached to any…
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Hello
Hi all. Just popping in to say hello. 12 years NED. I never adapted to the new format so I don't come on much. It used to he user friendly. It's really hard to follow on my phone. I have a lot of post cancer issues, deal with a lot of pain from the botched surgery but I bet a lot of us can sat that. I just keep on trucking…
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18 years out after Stage 4 Dx
Hello all, This disease is so unfair and unpredictable but I did want to throw a chance of hope out there. It is now 18 years out from the initial diagnosis. Stage 4, mets to liver and lungs. Took long time but I'm still here and doing fine. I know the long term people who I first followed meant a lot. I have no magic…
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FOLFOX -- Symptoms seem to get worse
Hello! I hope everyone is doing wonderful today. My Dad is having a really difficult time with his chemo treatments. As time goes on, it seems that each treatment effects him worse than the one before. Luckily, he only has four more to go. What has your experience been? Any encouragement is appreciated. Hugs and Prayers to…
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Caregiver support needed
My name is Christy and my husband is Javier. Javier was diagnosed with adenosquamous carcinoma of the colon . The tumor grew outside his colon and was the size of a melon when it was removed. It was Stage IV. It is rare and aggressive. 3 weeks after surgery,the cancer has returned. We underwent radiation to the tumor on…