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Some tips from CSN
Welcome to the CSN! Below are some tips to help you get started following and posting on the boards. You can follow your preferred discussion board to get notifications of new topics and comments. To follow a board, navigate to your preferred board and then select the bell at the top, followed by your notification…
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Our friend, NewHere, has passed away.
Anyone who has followed NewHere, these many years, will know that his fight was long and hard, but he gave it his all and then some. What a blessing it was to be a part of his world, albeit online. He was a strength and motivation for me, as I continue to survive. I survive to honour NewHere, and all who have gone the way…
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Best to You All in the Future
I just heard the news and it was kind of sad hearing that this site is closing down, however I hardly ever visited anymore after the format change. I remember the long nights staying up because of the steroids and always finding someone on. This site helped me immensely going through a journey I knew nothing about. Being…
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Hello and Goodbye
I have been following since 2019. My husband was diagnosed with Stage 4 Colerectal Cancer. Just want to say thanks to all contributors over the years. You gave me hope. I didn't post as was not sure if my husband was also looking online. Just want to say to those of you recently diagnosed that although it is tough, stay…
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Thank you CSN
I don't know the CSN team in person but what you did by keeping this site active all these years was wonderful. It gave hope and strength to people during their dark times. Heartfelt thanks and gratitude from a stage 3 crc survivor. The same goes for users who have helped others. Thank you all! 🙏
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Good bye CSN
Hello guys, After I got the mail today, I thought it was time to say goodbye to this page. Now we have enough time to say goodbye. I also realized how many fighters lost their battle since my dads diagnosis and dad. Still glad that some fighters won and are still here for others. Prayers to the current fighters. about me:…
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Our dear CSN member, Danker, has passed away.
For those of you who have been here many years, I wanted to let you know that dear, sweet friend, Danker, passed away in January. AND, he passed away at a grand age, and not from Cancer. I have kept in touch with him, all these years, and when his recent birthday card was returned, I knew that he had gone to be with his…
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For all the old timers, sad news.
Our dear friend, Easyflip, has passed away. Richard fought the good fight, and won. 12 years NED - Stage IV CRC. Sadly, he was diagnosed with Stage IV Esophageal Cancer a few months ago, and again, the fight was on. He was a fighter until the end. And a man to be reckoned with. A good man! He has not been active on the…
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PTSD?
hello I’m new here today and the reason for me joining was wanting to know how people have dealt with their PTSD when it comes to your scans and bloodwork coming back normal for the last year and a half after stage three colon cancer six months of chemo every time I get a bump or don’t feel right I have my mind just goes…
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Synchronous Signet Ring Cell Carcinoma
Hello all, I see there doesn't appear to be any current post regarding SRCC so I thought I would start a new thread. I was diagnosed with Synchronous Signet Ring Cell Carcinoma in January '25 stage III. At that time the MDC at University of Colorado settled on chemo and radiation. FOL FOX and radiation for the rectal…
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Still have neuropathy from Folfox/Oxy chemo
Hi, I am new to the forum, I was diagnosed Nov 2015 with a tumor in the rectum. Had 28 traditions, 6 weeks of 24/7 chemo, surg resection of tumor with temp illiostomy (for 12 weeks) then take down, then 12 sessions of Folfox/Oxy plus others that I don't remember currently. I had many of challenges others have experienced…
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Stories of Beating Stage 4 Cancer???
Hello all. I’m wondering if any of you would be able to share any documented accounts of someone beating stage 4 cancer (either no evidence of disease or long term remission) Preferably colon cancer but any cancer story would be appreciated. I would like to know what that person did to beat it and maybe I can do the same…
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Greenish fluid oozing after APR and it has been now six months
Ca Rectum cT3N1M0, MDAC MSS CEA-6.49 CA19.9-12.86 Recieved SCRT has completed 4 folfox Recd HDR brachy Completed 5# MORE FOLFOX Then after 6 months in september 2025, there was reoccurrence and went for APR in september and since then the problem is that there has been greenish fluid continuously coming from the perianal…
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Stage lllB T4pn1
Hello! I was diagnosed with Stage 3b CC- 1 lymph node affected, 1.9 cm tumor removed with all clean margins. I have completed 6 cycles of Folfox and I can no longer deal w/the side effects. Up until yesterday docs have reduced dosage and removed 3 medications leaving me with only 5 FU. To me this doesn’t make a bit of…
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In need of ostomy supplies
In need of urostomy supplies if anyone has any that i can get for free send me a email n it would be very appreciated
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Cancer and vision loss
I was recently determined to have with colorectal cancer. I even have abnormalities in vision. I went for an eye check yesterday and the specialist prompted me to take the Lasik eye surgery procedure from any nearby facility in Toronto like the Goldberg centre(https://www.goldbergcentre.com/lasik/ ). But I don't know…
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Stage 3 B/C Colon Cancer
Has anyone here been diagnosed with Stage 3 colon cancer (T4aN1M0 or T4aN2M0) and had a positive outcome? I’d love to hear some success stories or words of hope.
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My husband has stage four appendix cancer. Going home on hospice, but have a question about TPN.
has anyone gone home on hospice and then successfully gotten their loved one on TPN. He has a partial small bowel obstruction. He is getting a venting G-tube and a tube to drain ascites. He has lost 40 pounds since November. Nobody mentioned TPN into us at all. basically they’re sending him home just to die
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Stage 3b Colon Cancer with FOLFOX Treatment 12 vs. 6
I have completed 3 FOLFOX treatments with most of the expected side effects. Mouth sores, nose sores and bleeding, rash on neck and arms, diarrhea, and overall tired and weakness. My goal at this time is to make it through 6 treatments and then discuss with doctor about quitting chemotherapy. Has anyone discussed this with…
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Stage IV rectal cancer
I was diagnosed officially in Aug 2024. But my PCP felt the mass during a digital exam she preformed and due to pain 4 days after my 50th birthday. I have had 12 rounds of chemo and 28 rounds of radiation. I also had surgery in Nov 2025 due to pain and other unpleasant symptoms. It’s daunting having stage iv. The tumor was…
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Second round of Chemo and I already have neurpathy
I didn't know about icing during my first round of chemo (including Oxaliplatin) during 2023. And I did develop neuropathy. I'm getting ready to start a second round of chem. I was wondering if trying icing this time will help at all? Maybe keeping the neuropathy from getting worse?
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Survivorship After Resection: Learning What Works?
Hello everyone 🤍 I’m really grateful to be here. I’m a 51-year-old mom of two (one in middle school, one in high school), and a colorectal cancer survivor. I was diagnosed with stage IIIA rectal cancer in late 2020. After four rounds of FOLFOX and 30 rounds of radiation, I was declared NED and chose a watch-and-wait…
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Newly diagnosed and looking for support!
Hello everyone, I have been lurking for a few days and have finally decided to post. My name is Kirstin.. I am 47, diagnosed with stage 3b (T3N1M0) CRC on 1/19/23. The week prior, I had been experiencing sudden bloody diarrhea and unusual colicky pain (which was minimized by my PCP and GI for over a week until I insisted…
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"Invisible" tumor causing pleural effusion
Hi everyone, I am new to this forum. I am the caregiver to my dear 64 year old mom who has stage IV colorectal cancer. In July 2016 she suffered pleural effusion. Adenocarcinoma cells were found in the fluid but there was no visible tumor in her lungs even under PET scan. She then underwent pleurodesis and then 6 rounds of…
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Anal Cancer - no one to talk to - does anyone survive this disease and come out with reasonable norm
I am a 43 year old female. I watched the Farrah Fawcett documentary regarding her experience with anal cancer and had never heard of it prior to that. I was shocked when only 3 weeks later I was diagnosed with the same thing - especially because I am the picture of health, other than this disease. I was diagnosed with…
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pain in hips after radiation
five year cancer surviver!!!! But i believe radiation in my hip area has caused me to have pain in my hips ,i cant hardly put on my socks or sit indian style i get charlie horses in that area when in my exersize class.doctors say they dont think it was radiation that caused that but i disagree has anyone else had this…
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Recurrence after almost 10 years NED - came back with a vengeance!
Hi, Well been a while since I have been on this board. My husband was diagnosed with stage II colon cancer back in Sept 2009. Had surgery and was NED ever since. Well during just a routine annual Xray guess its back in full force. They found liver mets and mets in the periitneal and also he has some ascites. He was felling…
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Seeking Opinions on UCLA & USC surgeons for Colorectal LAR Surgery
Hello Everyone, I'm preparing for Lower Anterior Resection surgery in the Los Angeles area. I'm interested to know if anyone has opinions about surgeons. I hear the the colorectal surgeons at UCLA and USC are quite good. If you have any personal experience with UCLA or USC surgeons, especially if you've had surgery…
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Any survivors of signent ring cell colorectal cancer
Hi my name is cheri my husband is 26 was diagnosed with signent ring cell colorectal cancer stage 4 in june 2012. He had surgery then to remove a foot of his colon when he was diagnosed along with several lymphnoids, the margins were clear so he started radiation in july along with chemo pills. One eek after starting that…
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Poly-MVA-----Any experience with this?
Hello All... I am generally not a person that would investigate alternative supplements. I shared with my acupuncturist that my tumors had increased in size and number and she became very concerned. She paused for a moment and decided to tell me about a product by the name of Poly-MVA. She has been researching it and is…
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Stage IV Signet Ring Cell Colon Cancer
I was diagnosed with Stage IV signet ring cell colon cancer (in the sigmoid colon) in Oct 2017. Tumor was quite large and had exploded which is what caused it to be found but the surgeon was confident she got all of it plus the other 2 tumors that were on the peritoneal (sp) wall. My official staging is T4aN2aM1c with…