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Anal Cancer

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Single Mom - how much help will i need?
Hi, I'm in my mid-30s and have an 8 year old and a 2 year old. I've been diagnosed with anal cancer and will be getting 28-30 radiation treatments. i'll do 2 IV treatments of mitomycin (Day 1 and Day 28/30) and will take capecitabine chemo pills everyday during radiation. I'm trying to plan out support for my kids (and cat…
Gas
I am 3 1/2 years from treatment. I am doing well. I have however been dealing with a great deal of gas that can be very embarrassing. I seems to be getting worse. Has anyone else dealt with this problem?
vaginal burning
Hi everyone: I had intense vaginal burning months after my radiation treatments ended. i went to 4 different doctors, and none of them knew what to do. have you experienced it?
My Mental Health
I had problems with bowel movements, kind of a constipation, but not really. It felt like every now and then a rock was preventing my bowel movements. I tried everything from changing my diet to drinking more water to taking diatery supplements, and nothing worked. About two months prior to my diagnosis of anal cancer, I…
Endometrial carcinosarcoma cancer
I am in need of financial help so I can get my treatments. This is my 2nd time for cancer. I had Breast cancer in 2020. Having insurance isn't enough. Drs Office wants $2,000 down with $600 monthly payment till I have met my deductible, which is $6000. added to the $80 copay every time I walk into their office. My…
Dry Mouth
Has anyone had a problem with a dry mouth well after chemo ended? I'm 4 months out from treatment and lately my mouth is sooooo dry I can't stand it. I thought it was from the menopause, but when I asked my gyn, he said he never heard of that before. I didn't have any mouth problems from the 5-FU while in treatment, but…
Anal cancer awareness day
I do not like that any of us were given this diagnosis. But today is ACA day. So get out there and advocate if that's your thing, be proud of yourselves for making it through the treatment! Keep fighting everyone. 💙💜💚💙💜💚
My Anal Cancer Experience
Hello fellow anal cancer patients! When I was first diagnosed I visited this forum many times. Although I never posted anything, I gained much knowledge and felt a great deal of support. Now I want to relate my experience with the hope that someone else who is facing the same thing will benefit as I did. (As a point of…
Fibrotic tissue in anal canal
I am 3 months post chemo/radiation treatment of stage III anal cancer. At my recent post treatment appt my colorectal surgeon did a digital exam and said I had fibrotic tissue in my anal cavity. I have a colonoscopy and examination of my rectum scheduled for June. I have had extremely narrow stools and take MiraLax daily,…
hurt after bm
It's been two years since my last treatment for anal cancer. I had a very hard bm about 3 weeks ago, since then I hurt after every bm. Maybe hemroid? Anyone else go through this? I see my surgeon on Friday.
POST RADIATION PROBLEMS HIP AND PELVIC BONE DAMAGE
Is anyone dealing with this? I was diagnosed in April 2011 and had my treatments (chemo and radiation) through May and June. I was stage III so I had pretty intense radiation, including pinpoint to specific lymph nodes that were affected. I have extreme low back pain, spasms (he says probably related to muscles trying to…
Med side effects
I am a female about to start chemo + radiation. The chemo meds are Mitomycin and Florouracil (5FU). My treatment plan is 30 rounds of radiation, with the addition of 5 days of 24 hour chemo the first and last weeks. What were your experiences?? Am I likely to have hair loss? My Oncologist has said hair thinning, but I have…
10 years and grateful
Hi, I used to be on this board every day. It was a lifeline. I wsa very frightened and hurting. Anal Cancer put me through a lot too. But I am happy to say even though my cancer was late stage, we beat it back with the protocol treatment, chemo and radiation, simultaneously. For me it was brutal. I am alergic to Sulfa and…
Ileostomy, anyone?
This is my first time finding this forum, it would have been very helpful when I was scared out of my mind when I was first diagnosed! I just completed treatment 1/24/23 and am so ready for my burns to finish healing and start feeling more like myself. Going through the posts, it seems like a lot of people got through anal…
Strata xrt
a couple of weeks ago I talk about a new ointment my r. oncologist suggest that a pharmacy rep had recently left him. It is a wound dressing for radiation dermatitis. when I had first mentioned it, it was I was gearing up for the really bad time. The biggest help I found was it reduced the pain when pee hit the open sores.…
Port removal
I go in for my port removal iny dr office , he said its an easy procedure alot easier coming out then going in. Have any of you had it removed in the dr office?
zetapup checking in for the first time
Dear fellow cancer fighters, so glad to find this discussion board about anal cancer. In this post, I am going to give you a capsule version of my experience. I'll be chiming in to other threads and posting on expanded remarks in the coming weeks. Take care everyone !!! Zetapup I am a 60 year old woman with no prior…
neck and shoulder pain
Has anyone had unexplained neck and shoulder pain after treatment?
Clear scans other than the typical residual inflammation.
I have been so busy trying to reclaim some sense of my life that I haven't had time to post for a while. Dec 12 scans looked good for now, no mets! The tiny nodule in my lung remains unchanged and unremarkable. There are no other areas of activity lighting up. I have a greatly diminished activity in the area of known mass.…
FISTULA - warning, it's gross
OK, I'm about to try and tackle the fact that the fistula is worsening, and I haven't even started treatment yet. I was only getting gas through the hole from the anus to the vagina, and now I'm getting poo. Really, unbelievably gross. And dangerous for infection both inside the fistula and also migrating into the bladder.…
Pain for hours after bm
Hello, I'm 3 years and 4 months out from treatment. Had my CT scan last month and all clear. For the past week I've been in pain in the anal area for hours after bm. I was doing so well for a while. Not sure why I hurt so bad. I see my colon Dr. on wed. for 6 months check-up. Anyone else have this problem?
Anyone with pelvic pain after radiation for anal cancer?
HPV 16 18
Hi have high grade anal dysplasia .. AIN 3… due to HPV 16 19 I do t have anal cancer but thought I would join here to see if anyone can just give me insight if anyone has /was treated for these kinds of lesions and what was your treatment. I had 2 HRA for biopsy but surgeon didn’t really “treat “ the area just cut out the…
4-1/2 years out from tx. hard bm just a little blood first day. Now very sore butt.
Has anyone ever just walked away mid-treatment?
Somewhat of a rant (sorry) but frustrated (try to condense this): Stage 1 anal cancer. Doctors came up with my generic treatment before my scans were even done saying the "5 weeks of radiation and two weeks of chemo" are standard now for this (stages 1,2 and maybe more it seems). I don't see how one cookie-cutter treatment…
Neck and Thoracic Pain
I'm 6 years in remission from anal cancer. Now I have weakened thoracic (can't stand up for more than 15 min) and neck pain causing headaches. Anyone else?
Newbie from the UK. Diagnosed with AIN iii this afternoon
Hi all Following an appointment this afternoon, I am now awaiting a CAT Scan appointment before referral to St Thomas’ in London. I am a 38 year old pre-menopausal female with AIN ii/iii stage perianal lesions and a recently excised AIN ii/iii polyp. I first noticed the lesions Jan 25th , having been to my GP for treatment…
Dumb question but WHY do side effects vary so much person to person?
First post (sorry, might be long): A had to have a hemorrhoid operation about 3 months back. The Colon surgeon found what the thought was a "wart" near the hemorrhoid and removed it during the operation, and sent it in to be biopsied. Came back positive for Cancer, allegedly a stage 1, but did reach the sphincter muscle…
The Waiting
A "newbie" also. Approximately 2 yrs ago, after having my gallbladder removed, it became visibly obvious that I had a rectal prolapse. Since that time I have had many ups and downs with this condition and about 3 months ago decided to have it evaulated for treatment by a colorectal surgeon. Prior to my appointment, I had…
How did I get here???
Hello all! I am a 53 yr old mother of 3 recently diagnosed with stage 2A SCC of the anal canal. My days since have been full of phone calls to insurance copanies and cancer treatment centers, doctor's visits, diagnostic testing, and an occasional breakdown. How I got from I think I broke a hemorrhoid to I have a tumor aka…

Anal Cancer

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