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Kidney Cancer

Seeking long term Survivors of Stage IV Wilms
I have read a lot of success stories about Wilms Tumor where the tumor was diagnosed at early staging (I or II), but what about successs stories of Stage IV Wilms? I've met some Stage V survivors, but have learned that each tumor is staged separately in Wilms V and oncologists consider Stage IV to have worse outcomes. My 4…
New here...and qite scared..
I am a 36yr old male, in early Nov 2010 I had an abdominal CT done that showed a 13mm mass on my right kidney, there is also a 4mm mass in the same kidney, after a follow up ultrasound the radiology report stated “TREAT AS RENAL CELL CARCINOMA UNTIL PROVEN OTHERWISE”, upon seeing my urologist (I have Kaiser Permanente…
HLRCC or type 2 papillary??
Hi, I’m new and looking to see if there is anyone else with HLRCC or type 2 papillary kidney cancer on this forum. It’s rare and difficult to find research, information, or others to connect with for advice so I thought I’d give this a try. I had surgery 3.5 years ago to remove tumor, kidney, adrenal gland, and part of…
Weight loss from recovery ?
Hi, another question on how much weight might I lose during recovery from cancerous kidney removal ? I am 5' 11" only 140, (I lost 35 lbs this year due to a previous fissure surgery ) and am concermed about losing weight during my recovery. I am not underweight but am very close. Thanks again all, really appreciate all of…
2 weeks ... feeling dizzy
Just curious, been two weeks as of today since my surgery and I've been feeling extremely dizzy at times when I stand up.wonder if this is normal.other than that I'm feeling good. Have my follow up tomorrow I can ask the doc but has any one else felt this way after there surgery?
Buckle up, it’s gonna be a bumpy ride…
Had a CT scan a week ago to check out my appendix after a colonoscopy, and the radiologist found that I have a “complex multi septate cystic mass with thickened septations and mural nodularity measuring 9 cm x 6.5 cm exophytic to the mid left kidney.” It’s def Bosniak III, potentially IV. My family has a propensity towards…
My husband was diagnosed with Wilms Cancer, it usually occurs in children, does anyone else have Wil
My husband of 38yrs old was diagnosed w/ Wilms cancer, it is usually found in kids and not in adults... does anyone else have this? He will be starting Chemotherapy next week, hopefully...
Radical Nephrectomy in Oct 2024 - Unsure of Next Steps
Hello, first off, let me start out by saying that I am grateful for this community and the courage you all display. I am hoping for some guidance on my cancer journey to better help me advocate for myself. In October 2024, I went to the emergency room after a month of seeing small traces of urine in my blood. I was…
SWOLLEN FEET AND ANKLES
Quite uncomfortable. Had the robotic kidney removal and a 7.1 cm cancerous tumor last Wed. YAY! Seem to have somewhat control over urination now when I am up. Still have to roll out of bed 3 or4 times a night. That is a pain. Am on the best "good for your kidney diet" I could put together. Water is my main drink and about…
Lower Heart Rate Than Before Surgery
Did anybody experience a lower heart rate after surgery than before it? I am one week post robotic partial nephrectomy and my heart rate is about 15 beats slower than before across the board so my resting heart rate was at low 70 now it’s in the low 60. My sleeping heart rate is a low 50s dipping into the high 40s (was in…
Partial robotic nephrectomy in two days
Hi everyone, In two days, I’m scheduled for a partial robotic nephrectomy to remove a 3cm mass that my doctors are confident is cancer. I’ve come to terms with the diagnosis, and until recently, I felt relatively at peace about the surgery. But over the past few days, my anxiety has really crept in—especially about…
robotic partial nephrectomy in my future
ct scan says i have a 3.4 mass on right kidney probably RCC. No biopsy was done. kidney function is good. they found it by accident looking for kidney stone in the ER. That pain was stupid nasty! The dr. says it's a piece of cake to take it out. I'd love to hear from you guys what i can really expect. How long will i be in…
2 cm Kidney Mass
Hi everyone. The VA found a 2 cm mass on my husband's right kidney during an US. His CT is scheduled for the end of the month. He is 33, very athletic-he is a competitive strongman-among other things. They only found it because he had protein in is urine. We have 5 kids. So, I am a mess. I am just trying to find some…
Diagnosis: Kidney Cancer (ccRCC)
Hi everyone, My name is Halil, I am 51 years old and I live in Belgium. I’m joining this community to share my journey with kidney cancer and find support. I’ve had a long road with two kidney cancers, and I’d love to connect with others who’ve been through similar experiences. Here’s my story: • January 26, 2010 – First…
Kidney Cancer (ccRCC)
Hi everyone, My name is Halil, I am 51 years old and I live in Belgium. I’m joining this community to share my journey with kidney cancer and find support. I’ve had a long road with two kidney cancers, and I’d love to connect with others who’ve been through similar experiences. Here’s my story: • January 26, 2010 – First…
I'm new here, this is my story
Hello everyone! I have had right flank pain for many years, like 15 or so. every scan and diag test has been normal. I also have a painful inflammatory disease in my bladder called interstitial cystitis for 22 years. In the past few years I have had a few UTIs and more severe right flank pain which has led me to have more…
post radical nephrectomy developed a flank bulge
My husband had a radical nephrectomy from Stage 1 kidney cancer this past August. He almost immediately started developing a huge bulge - NOT a hernia. After a CT scan in October it was determined he has a denervation, flank bulge due to the nerves not regenerating from the flank incision. The muscle wall has thinned out…
I Have A Kidney Lesion
hello every-1. about 6 years ago this feb. i was diagnosed wit prostate cancer. due to a cyst seen on my right kidney i had an MRI on yesterday. i need to some help and guidance and my nerves calmed. would some1 please help me Indeterminate 2.7 cm lesion in the right lower pole of the kidney with peripheral rim enhancement…
Anyone Stage 4 and still working?
My husband has been on Short Term Disability for 4 months. We were hoping he would go back next week but we changed our minds. He is just not well enough. His main problem is fatigue. I just worry about the "what ifs" he can't go back. I don't want to be a Debbie Downer but I want to be realistic and plan for our future.…
Keytruda
keytruda and renal cancer, has anyone started on kektruda after surgery and if so how are you reacting to it?
Sharing my father's story
My name is Kiana Jones, and I am writing to share the story of my father, Mr. Sammie Jones, who passed away on November 21, 2024, due to kidney cancer. By sharing his story, I hope to advocate for families who have experienced similar situations. My dad was 68 years old when he passed away. He would have turned 69 on…
8 years
Hello again! I had my scans yesterday and everything (kidney-wise) came back clear. Just click on my icon to view my history. They did see a little blip in my small intestine and will follow up with GI. I'm glad to see "Bay", "Donna", "Jazzgirl", "Lobbyist" and others still providing wisdom and support. Sorry, I've been…
Newbie here looking to input with my new diagnosis of PRCC Grade 3
Hello, I am newly diagnosed with PRCC grade 3 after a partial Nephrectomy. Im looking for some advice from others that have battled this fight. My main concern is the fight it took to actually get to the point on finding this cancer. My original complaint to doctors was my body was just off. I was working out twice a day…
Possible Malignancy Remaining Kidbey
Hi - I had a full Nephrectomy in Feb 2019. It was stage 3 RCC. Surveillance scans annually. I just had one done and there is a 2.0cm solid lesion on my remaining kidney. Radiology noted it as concerning for malignancy. I don’t have my follow up with Urology for 3 weeks yet. I’m formulating questions to ask and I think…
Still confused about Creatinine and GFR
This is a quote from the National Kidney Foundation website in answer to a question from somebody whose creatinine level was 1.58: "A creatinine level of 1.58 may be normal after removal of one kidney, especially if you are over 50 years of age. Removing one kidney always results in a decrease in total kidney function and…
Ned 7 th year!
An update about our journey. Its been seven years since surgery. Did CT scan and results came clear. Ned since 7 years.Thank you all for positive vibes here.
Symptoms after radical nephrectomy
Hi All, I'm new here, so still learning the ropes. I am 36 years old and had my left kidney and adrenal gland removed in October. The margins were clear and I understand that I am very fortunate in that regard. I have had follow up appointments with the urologist, and my first follow up CT is in two weeks, but I was not…
Concerned about a 2 cm kidney mass
Hello everyone, I came across this site searching for information on the web (as Im sure everyone does) regarding the topic of Kidney cancer and I am quite impressed with the posts! I'm 48 and recently had an ultrasound done with respect to some abdominal pain. Although the abdominal pain is gone and all was fine, there…
Pain and swelling after cryoablation on left kidney
I had a cryoablation on my left kidney on March 24, 2023. A day or two after the procedure I developed a swollen bulge on my left side which was very painful to touch. I also had numbness in that area. The doctor gave me some pain medicine and ordered a CT scan. CT didn't show any bleeding or anything that would be causing…
HELP
i came here seeking help, but i feel like i'm not getting it. i've seen other people share their test results and get great feedback, yet when i tried to do the same, i was denied help. then, i tried explaining my situation and asking for guidance, but i still didn't get the support i needed. it feels unfair, man!

Kidney Cancer

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