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Prostate Cancer

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Stopping two of the three adt drugs.
In 2018 had cyber knife treatment for prostrate. PSA was 8.2. Everything fine until last summer when my PSA went from .4 to 3 in a short period. PET scan showed no prostate activity but one spot on lung. Was put on Relugolix by my urologist and also abiraterone and prednisone by another cancer lung doctor. PSA is 0.0. Had…
The little stuff (hints and tips): life after surgery
How about sharing practical tips for post surgery life. Look forward to reading everyone’s tips. Here is what is working for me 8 weeks out dealing with incontinence. Doing my Kegels and pretty happy with my progress but I occasionally leak or have a small squirt of urine when I cough, sneeze, laugh, stand up, bend down,…
How effective have Orgavyx been for your prostate cancer after radiation treatment
Good Day Im over 60 just starting to take orgavyx for my prostate cancer. Looking at long term effects of orgavyx and how effective it has been with your final prostate care treatment. Im also getting ready for radiation treatment
Advice
I'm a 65 year old recently diagnosed. My PSA was 5.34 in April and my urologist recommended an MRI. MRI in June showed showed prostate volume 38cc. T2 hypointense lesion involving the the left posteromedial mid gland peripheral zone measures 0.3cm and demonstrates focal restricted diffusion and low ADC with early focal…
The next "Step" after robotic prostatectomy
Good Day. I'm 64, and had a robotic Prostatectomy in Oct 2022. The Dr was confident all cancer was encased in the gland, but the 3 month PSA check was .29. Next PSA check 3 months later was up to .65 so a PETScan was scheduled. A tiny hotspot was on the Prostate bed, and Dr. is recommending radiation treatment. I am…
Orgovyx stomach pain side effect
For those of you taking ADT med ORGOVYX.. I began taking Orgovyx about 2 1/2 weeks ago as a replacement for FIRMAGON which I initially took for 2 months with only minor side effects. Now on Orgovyx I have developed upper stomach cramping in upper abdomen just under rib cage. I have some history with diverticulitis but it…
question about diet
so I just had an old friend of mine who got his first PSA test at 61 and he got bad news. psa was 13 gleason score 9 4+5 good news still contained prostate so he elected to have surgery and of course, the first PSA test was above the minimum so they did radiation and now he's on hormone treatments, but he has a question…
18 month post surgery update
I just wanted to share about good post Radical Prostatectomy surgical results. We often hear about the unfortunate post side effects and not enough when everything just goes well. I am doing terrific. I see my Doctor next month on a follow up. My PSA has been unmeasurable. I turn 73 this year. I have no incontinence and…
Signs of Life
Nearly 16 weeks since RARP and last night out of nowhere there was “a sign of life” as far as the ED is concerned. How or why I don’t know but suddenly had the closest thing to an erection since before surgery and there was pretty good sensation with it. Taking this as a good sign. Incontinence is greatly improving and…
Zytiga (Abiraterone) with Prednisone vs. Nubeqa (Darolutimide)
Just thought I'd share that yesterday I had another 3 month checkup with PSA remaining undetectable. 😀 After Pelvic IMRT and having been on Orgovyx (Relugolix) along with Zytiga (Abiraterone) / Prednisone for about a year it's been working as well as can be expected. 😀 I am however experiencing many of the typical symptoms…
Lupron shots
3 good quarterly PSA test since radiation treatment spring of 24 (after cancer returned following 12/7/23 radical Prostectomy) Urology aptt on 2/8/26 have been given two 6 month lupron shots. He’ll probably recommend a 3rd I don’t like what the shots have done to my body less muscle more fat Comments/recommendation's??
biopsy results
Hi everyone...I would like to share the results of my biopsy which I did on April 14th 20025 Biopsy URONAV MRI fusion ultrasound transrectal and I have cancer. If anybody needs details how biopsy goes… you can ask me Diagnosis K Prostate (ROI 1), core biopsy: Prostatic acinar adenocarcinoma, Grade Group 2, Gleason score…
Post RALP PSA
So, on a whim, I got a PSA test ahead of yearly scheduled due in Feb. Normally at labcorp, my results were < 0.1. I did this one out of pocket at Quest and got 0.09. So, its still < 0.1 and I'm not sure if Quest normally reports value or < #? Guess my question would be how long to wait for a retest? I'm thinking a month…
Catheter tips
i recently was asked by someone regarding my catheter experience and thought it might be helpful to share some more specifics with everyone looking forward to it. I had my catheter in for 11 days because of a holiday weekend at the end before my appointment to get it out. I went for Cystogram the same morning I had my…
On_A_Journey's journey
PART ONE Hello all, I joined this forum recently, asked some questions and made some comments, but until now I’ve only given a brief description of what brought me here. I will treat this thread as my own personal blog by telling my story and providing any updates as they happen. I am 59 and from Australia. I have a strong…
Depressed, years post RALP
Seventy-five years old, relatively healthy, not overweight, light exercise every day of the "work week". Married 54 years to the same girl. Had RALP about 4 years ago. Cancer has been "virtually undetectable" since. As best I can now recall, my surgeon/urologist told me both pre and post surgery that I would have ED for a…
Tadalafil
Couple of pudgies but nothing I could use in last 2 years I’ve never taken over 10 mg of the Tadalafil. Should I try 20, just to see what happens or just live with it?
Radiation Concerns
New guy here. Had brachytherapy in 2019 and psa stayed low at 1.2 ish until about 2 years ago and started to creep. Now at 4.1 with a 24 month doubling time. New urologist now since old guy retired and the recommendation is to do external beam radiation on the prostate and full pelvic region as a salvage as they call it. I…
Inability to ejaculate
I finished treatment a year ago (radiation). My orgasms now are very weak and, of course, I don't ejaculate anymore. I did at first but it's gradually gone away. This has made me damaged goods. All I hear is "did you ****?" or "are you ever going to ****?" or "why can't you ****?" I dread having sex but (not bragging) I'm…
SBRT with ADT or no ADT
Hello, I have been diagnosed with localized prostate cancer this past summer . PSA 7.2 Gleason 3+4 .decipher 0.49 My Father died of Prostate cancer 2007 at 72 . I am 66 . I have decided on SBRT rather than Radical Prostatectomy . The oncologist suggested ADT ( Androgen Deprevity Treatmant ) or I can decline at this time .…
Nearing the end of 18 months of ADT
New Year Update It’s been a while since I’ve updated the group. In February I’ll receive my final Lupron shot (one-month dose), and March 22 will be my last day taking 1000 mg of Zytiga. UCSF will then taper me off prednisone over four weeks. I’m also scheduled for my final CT urogram in March, along with a baseline DEXA…
21 months post salvage surgery update
just got my 21 month PSA test … cancer undetectable below .003. I feel very blessed I’ve come to the conclusion that I will have some incontinence. I go through one pad a day to me. It’s not a big deal. That’s a little sacrifice hopefully I’ll stay this way. Don’t think salvage Surgery is not an option. I’m living proof…
New to Reluctant Brotherhood
Thanks to this great forum as I am learning lots about things I wish I never had to learn. 65-yr old living with my wife on Cape Cod. I am recently diagnosed with 7 of 15 cores malignant, (6 cores 3+3 and one 4+3 at target lesion found on MRI, plus two cores list “High-grade PIN”), in left mid core “Perineural invasion is…
Pads
Do pads get definitely noticeably wet in the beginning or could you be unsure if you are leaking much?
hernia post RALP
I understand inguinal hernias are a common side effect of RALP. Anybody have experience with this? I found a couple of threads >5 years old, but looking for personal experiences. Looks like I have that problem, totally unexpectedly, 18 months post surgery.
For men in their 50s or 60s who chose brachytherapy or external beam
I'm 56 but one of my lesions is near a nerve and I don't think surgery is going to both preserve sexual function and get all the cancer, so I am leaning towards radiation. Yes yes, I know I might die sooner. For those in their 50s and 60s who chose radiation, did you choose brachytherapy or external beam, and why? How…
What do you wish you'd asked? + ED after more than 3 years
Hi all, I'm 56. Was diagnosed last year Gleason 3+3 and chose active surveillance. That has progressed this year to Gleason 3+4 in 2 cores with some cribriform patterning. Decipher is 46 with intermediate risk. I have to choose a treatment and hate all options. I find that doctors don't give you the whole picture and I am…
PSA Anxiety
After ADT, and pelvic IMRT earlier this year another PSA test is coming up at the end of the week. Last two were .04 which is great but I've been really stressing these last few weeks about this upcoming test. I guess the worry of recurrence just goes with the territory. Does this worrying diminish somewhat for those of…
Pluvicto (lutetium 177 vipivotide tetraxetan)
Is anyone here been on or is on this radiopharmaceutical treatment for advanced metastatic prostate cancer? Starting this treatment at UCSD Hillcrest on 1/9. Looking for some insight as to what I'm looking at. Thanks Mtop.
PROSTATE CANCER AND LOW HEMATOCRIT
12-24-2025 I’m the new guy here after accidentally finding this site and I would like to share my experience with prostate cancer( PC ) . I am 79 in very good physical condition (I still play a mean racketball game for 1 hr ) and without problems with blood pressure ,chole- sterol , diabetes . However , I was diagnosed…

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The Cancer Survivors Network (CSN) is a peer support community for cancer patients, survivors, caregivers, families, and friends! CSN is a safe place to connect with others who share your interests and experiences.

Prostate Cancer

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