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Some tips from CSN
Welcome to the CSN! Below are some tips to help you get started following and posting on the boards. You can follow your preferred discussion board to get notifications of new topics and comments. To follow a board, navigate to your preferred board and then select the bell at the top, followed by your notification…
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Overwhelmed with my proposed treatment plan
Hi everyone, I had an appointment yesterday with a radiation oncologist to go over the treatment plan for my prostate cancer. I’m very grateful my spouse was with me—it was a lot to take in. I have a Gleason 9 diagnosis, and while the cancer is still contained within the prostate, the recommended treatment is androgen…
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Time of first PSA after treatment
I was under the impression they would wait 3 months to do a PSA. But, I just got a text from my urologist to get it done at 30 days That Sound right to everyone?? Have a Great day 🚜🐝🚜
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Inability to ejaculate
I finished treatment a year ago (radiation). My orgasms now are very weak and, of course, I don't ejaculate anymore. I did at first but it's gradually gone away. This has made me damaged goods. All I hear is "did you ****?" or "are you ever going to ****?" or "why can't you ****?" I dread having sex but (not bragging) I'm…
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Overactive bladder from ADT and IMRT
Just finished the last of 40 IMRT sessions last week and have been on Orgovyx and Zytiga for about 3 months. Feeling OK with the exception of an overactive bladder including urinary urgency and frequency. I need to pee about every 1-1/2 hours. Very annoying especially during the night. Not getting adequate sleep. I…
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Advice
I'm a 65 year old recently diagnosed. My PSA was 5.34 in April and my urologist recommended an MRI. MRI in June showed showed prostate volume 38cc. T2 hypointense lesion involving the the left posteromedial mid gland peripheral zone measures 0.3cm and demonstrates focal restricted diffusion and low ADC with early focal…
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Thanks all
I want to thank those who tried to help me. I gave my best effort to try to deal with the side effects of treatment from this disease but learned today that ADT damaged my testicles and they are no longer working so I will never recover testosterone. I also learned ADT gave me osteoporosis and heart problems. This is not…
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Diagnosed at 46 in the UK, curious what US doctors advise on diet & exercise after a prostate cancer
Hi everyone, I'm Mark, writing from the UK. I was diagnosed with prostate cancer (2021) at age 46, and since then I've been digging into the kinds of lifestyle advice people are given especially around diet and exercise after they’re diagnosed. Over here, the focus from medical teams tends to be almost entirely on…
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Pluvicto
I just finished first of six Pluvicto treatments. Out of isolation and haven't noticed any real bad side effects (yet). I recently finished a clinical study with Xtandi and a part inhibitor. PSA was 115 at beginning, went down ton3.2 then trended upwards. Doctor immediately got me on Pluvicto so we'll see how it goes. I…
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New to Reluctant Brotherhood
Thanks to this great forum as I am learning lots about things I wish I never had to learn. 65-yr old living with my wife on Cape Cod. I am recently diagnosed with 7 of 15 cores malignant, (6 cores 3+3 and one 4+3 at target lesion found on MRI, plus two cores list “High-grade PIN”), in left mid core “Perineural invasion is…
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My Update since HIFU treatment August 2024
Last year, I met with numerous specialists to explore all treatment options for my prostate cancer diagnosis. I consulted with experts in radical prostatectomy, radiation, TULSA, and HIFU, and I wanted to share a brief update on how I navigated these decisions and where I am today. 🧑⚕️ Consultation Highlights Dr.…
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Searching for Treatment Feedback / Supplements
Hello I am age 51 (in great shape aside from this) recently diagnosed PCA and biopsy showed combination of 3+4 and 4+3 Gleason so definitely intermediate risk. PET scan on 4/19/24 showed cancer is on left side of prostate only has not spread. No symptons aside from PSA level 4.3 and get up pee 1 or twice at night. I am…
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My case high PSA post prostatectomy
Hi I’m 48 years old. Diagnosed with prostate cancer in Oct 2024. Had surgery in Dec 2024. PSA score pre surgery (radical prostatectomy) was 19. Had lymph node involvement. Gleason 3+4. 10 out of 21 nodes that were removed were positive for cancer. Odd thing was the cancer seemed to be near the wall of the prostate and so…
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Post AMS 800 recovery pain
I had the AMS 800 implanted on January 14 and it is now January 31. My perineum incision healed well but my incision across my lower stomach, though it looks good on the surface, gives me shooting pains if I do anything other than lay on my back all day long. Is this to be expected? My surgeon said I should walk but that…
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biopsy results
Hi everyone...I would like to share the results of my biopsy which I did on April 14th 20025 Biopsy URONAV MRI fusion ultrasound transrectal and I have cancer. If anybody needs details how biopsy goes… you can ask me Diagnosis K Prostate (ROI 1), core biopsy: Prostatic acinar adenocarcinoma, Grade Group 2, Gleason score…
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Fatigue on hot days
ok. So, I’m 22 days post treatment and have been doing my normal farm chores for past week. Today it’s in the 80’s here and I’ve had to rest about half dozen times Eating normal without issues. Still at 205 lbs. Walked a mile in park yesterday with our min pin. Plan on starting back on the Bowflex next Monday just a heat…
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Elligard- Hormone Therapy
I am 7 days post RT, but had an Elligard injection 5 say’s ago. Have been taking Elligard since December. Since start I have horrible painful itching. Narrowed it down to reaction to Elligard. Am thinking of stopping Elligard. I haven’t had the last visit to oncologist or urologist to discuss this yet. Anyone else with…
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Weight Loss
So. I finished my treatments on 4/8/25. At that time I weighed 206 (from initial weight of 222). I’m 6’2” Since finishing the treatments and working my way back to my pre treatment meal schedule, I’ve lost another 5lbs. I’m at 201 today I still drink around 80 ozs of fluid per day I am out on our 9 acres working every day…
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Questions about IMRT and Urinary Urgency
I'm currently into my 14th of 40 IMRTs today. In the last few days I've been struggling to hold my bladder while on the machine. Had two incidences of having to stop the treatment for me to get off and pee. I barely made it to the restroom both times. They're very understanding and after I drink some more water and wait a…
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8 months post radiation and Cyberknife and 3 months post 12 months firmagon
Husband just recently finished treatment for prostate cancer with me. Gleason score was 8. Starting PSA was 2.8 before treatment. 3 months past Cyber PSA was .044. 6 months past Cyber PSA is .064. Does this indicate a concerning rise? And is there a need to worry? Messaged urologist and he said to come back and test in 6…
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Latest Check-up Results
I had my 3 month checkup today, and the good news is that my PSA is still undetectable, but my Testosterone has only risen to 26. But, by far, the most important test result is that my PSA is still undetectable. Life is good. My Related History and Data: Post-Robotic Prostate Removal Surgery Pathology Report A. Lymph…
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Options when adjunct or salvage radiation can't be used?
I am almost 5 months out from radical prostatectomy. 1st PSA at 3 months was 0.39 (quite high) and 0.40 at 4 months. This suggests a doubling time of about 27 months, although that can change over time. I was Gleason 3+4 (40% 4) with cribiform pattern. The margins were positive at both sides and the base. He only took out…
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Milestones Reached
ok. I’m 11 days post last treatment (#35). I’ve reached a couple of milestones 1 - zero diarrhea. BM’s are solid (making timber😎) 2 - I can stand up and pee 🎉🎉🎉. That’s because I can now trust a fart 😜🤣😜 3 - I can eat “normal” food without my wife hearing my stomach growl in the next room 🤓 4 - Haven’t had to take a nap in…
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Impending surgury
Ok this is the story. Diagnosed in Jan. after annual physical showed psa 28.1. 58 years old first psa, not sure why I just never asked and DR never requested. Biopsy first of Feb 5/14 cores all 3+3=6 all bottom left side. % of cores, 100,98,95,90,35. Psma pet end of feb. No metastases, DR wants to do sergery and remove…
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Looking for Honest post-surgery ED expectations / feedback
Hi members- I'm new and this is my 1st post…I had DaVinci assist radical prostatectomy…I am 14 months out and still no firm erections even though I check off all the boxes on someone who should be up and running by now (healthy, not overweight, 57 at time of surgery, doc said both nerves were spared, non-smoker, not a big…
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Hope for erections after prostate surgery-3yrs 2mos later!!
Here's some good news! After 3yrs 2 months right out of nowhere in the middle of the night I was awakened by the first ever nighttime Erection since my surgery. Now , I have been getting okay erections for the last 2 years, but I haven't had a spontaneous erection in my sleep since my surgery. It actually amazed me and I…
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Post Radiation Proctitis
I am hoping for some good feedback for those of you who had challenges recovering from RT. I had a very easy treatment with a Proton 28 fraction schedule. Typical improvement of limited symptoms until my second month, then I started to have some diarrhea once a week or so. Condition has not improved and maybe gotten a…
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Post week 2
just a note for anyone in or through treatment I’m on day 3 of 2nd post week. Feeling better every day. No nap yesterday. Just worked through the fatigue. Doing same today. Disappointed that I have to wait 90 days for first PSA. But, is what it is As I said before, 20 yrs in navy so I have no boundaries. Feel free to ask…
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Post Week Updates
post Week 1 completed For recap, during the weekend between treatment 34 & 35 I had some alcohol on Friday and ate baby back rib meal. I ate whatever my wife cooked for meals Saturday and Sunday I went back to my chicken and rice diet Monday morning 🚜😎🚜 I was fine Friday and Saturday. However, starting Sunday morning at…
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Dr. Onik's Immunotherapy
I have prostate cancer with extracapsular extension and am considering Dr. Onik's immunotherapy treatment. Does anyone have any experience with his immunotherapy?
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Treatment options - IRE / Nanoknife Experiences
Hello All, I was recently diagnosed with Prostate cancer. I'm 44 years old and otherwise in great shape. Gleason 3 + 4 in 8 of 32 cores. It's all located on one side of the gland. My urologist and Oncologist both recommend removal. Pretty standard of care and well documented. I'm not opposed to this treatment as a last…