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Some tips from CSN
Welcome to the CSN! Below are some tips to help you get started following and posting on the boards. You can follow your preferred discussion board to get notifications of new topics and comments. To follow a board, navigate to your preferred board and then select the bell at the top, followed by your notification…
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Upcoming Prostatectomy
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My Latest MRI and Back Story
Figured I'd share the journey… Just had my first MRI while on Active Surveillance. My history is had rising PSA in Fall 2021 (from 4 in 2020 to over 5 in 2021), had an MRI then which identified a PIRADS 4 lesion, had a biopsy with 12 samples on a grid and 3 in the lesion. The 12 on a grid were normal, the lesion samples…
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Pluvicto
Does anybody have experience to share about Pluvicto?
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Eligard and cardiac side effects
farmhand Member Posts: 1 *7:18PM #20 I had my first 6 month injection in October and fortunately have had very few side effects so far. But I have been inordinately worried about the potential cardiac effects of Eligard. So much so that I have been contemplating not continuing on this treatment. I have been diagnosed with…
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ANYONE TAKING 4 MONTH ELIGARD INJECTION?
HELLO EVERYONE & THANKS FOR ADVICE I'm going on 2 years of FIRMAGON injections--pSA is down to 0.26. MY urologist (PA) wants me to start taking ELIGARD 4 month shots for the last year. I only have to take 3 shots vs. 12 more FIRMAGON. IF ANYONE IS TAKING THE 4 MONTH SHot of ELIGARD, I WOULD appreciate your input.---THANK…
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Will I need diapers post-prostatectomy?
Hi, I will be having the robotic prostatectomy just before Thanksgiving. I understand that I’ll have a Foley catheter in place until the one-week post-op appointment, but will I have zero bladder control immediately following catheter removal and need to be prepared to walk out of the urologist’s office in a diaper? Will I…
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In-bore MRI Biopsy vs Fusion Biopsy
I need a prostate biopsy for a Pi-Rads 4 lesion. UT Southwestern can schedule an in-bore MRI biopsy only in 2 months; a fusion biopsy can be done sooner. Is it worth waiting?
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Pain when urinating
I am 10 months post cyberknife treatment and continue to get what I think are side effects of the radiation treatment. The latest one is pain while urinating. It seems to be worse earlier in the day. I have restarted taking Flo max, which seems to help and Tylenol appears to take the edge off it. Does anyone else have this…
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post-prostatectomy impotence
I'm looking for a discussion group with frank, forthright focus on sexual function and capacity after prostatectomy. I've found info very hard to find on how to manage & improve impotence. Partner and I are frustrated with our ability to achieve orgasm but we find that the impotence itself is a drain, and that Viagra and…
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Should an Endocrinologist be part of our team?
The Endocrine system is incredibly complex. ADT affects one, but that cascades to other hormone levels. If one's adrenaline or insulin were too high, we'd address it right away. And yet those hormone levels ARE affected by ADT and are responsible for many of our side effects. I'm not criticizing ADT. It has saved many…
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update ... RU newly diagnosed and confused
Just finished my SBRX MSK Precise (5 doses of radiation) yesterday. Been on orgovyx since Nov 1st, so far no side effects. Blood test for PSA, testosterone, etc done also, awaiting results. Next schedule visit and PSA test is May (three months after ADT is finished). A quick note … for anyone undergoing radiation and is…
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Question
Will a povidone iodine suppository used a hour or so before a transrectal biopsy, along with the antibiotics they require already, help with mitigating the risk of infection? Would it affect the tests? The radiation center doing the biopsy doesn't mention this option. I read about it somewhere. My GP thought it made sense.
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Advice needed
First off, I'm shocked to be here. My heart goes out to each and every one of you. I'm here for support to my husband and to gather information. A little history: My husband is 52. He had a physical a month ago that showed a PSA of 4.1. The doctor sent him to a local urologist. The only symptom I've noticed is going to the…
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New and kind of wondering how worried I should be
Sat here trying to figure out how to start this. Figured I would just throw it all out there. It will probably be too long, I tend to give more details than necessary, just like this sentence. I am 58. Have my health care through the VA. Moved this past summer, out away from any large city, so now have a clinic for primary…
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Post-Radical Prostatectomy Pathology Results
I'm 4 weeks out from a radical prostatectomy and just received my post-surgery pathology report and it's indicating that cancer's a bit more advanced than pre-op biopsy/pathology/scans/etc. indicated. What I'm wondering is if anyone has experienced a similar situation and if further treatment was required. I'm having to…
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Cialis?
Hi folks. First time posting, but have read several of the comments and replies over the past few weeks. July 10 I had a Robotic Laparoscopic Prostatectomy plus the removal of two lymph nodes. Surgery went as planned although my prostate was like double the normal size, so I had to wear a catheter an extra week. Upon…
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Physical Therapy after Surgery
Hi Folks. I have seen a few posts mentioning physical therapy (PT) after surgery to help with incontinence. I am 5 months post op and I still need to wear shields to help with those annoying leaks that happen from time to time (last night I had a rather aggressive sneezing attack which was not fun). I do the Kegal…
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side affects etc.
I am a 66 year old who was treated for prostrate cancer, went through Brakey Therapy was clear for 6 years and then my PSA went up and it was discovered that my cancer metastasized in my tailbone. I went through Radiation now for the last year I am on 1000 mg of Zytiga, 10 mg of prednisone and Lupron shots every 3 months.…
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Latest on IRE Nanoknife Focal experience
Thought I'd start a new post and update my Pca journey. Condensed history: First diagnosed November 2023 with 4+3=7 tumor within gland. Confirmed by 2 biopsies, bone scan, and PSMA PET scan. No metastasis. After local urologist suggested surgery or radiation I got a second opinion from Fox Chase Cancer Center in…
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How low a PSA? What is the new "normal"?
My PSA is 0.2 after having radiation treatment now just over 2 years ago. Interested also in this metric. Most of my usual body functions are fully changed from "normal" in one way or another after the 27 days of radiation. Almost everything. I am interested in chat with similar men and situations. I am 79. Any men that…
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ADT Side Effects & Different ADT Drugs
My brother-in-law has recurrent prostate cancer (he was originally diagnosed with stage 4a) and his oncologist wants him back on ADT drug he took for 2 years. Thing is the side effects were horrendous. From what I've read (NCI, ACS, etc.), side effects can vary some between the various ADT drugs. His oncologist said they…
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Decision Process re: radiation Type
Having just received a diagnosis of prostate cancer, my urologist indicated that radiation is his recommended approach and I'm scheduled to meet with radiation oncologist shortly. I'm stage 2, with evidence of Cribriform pattern 4 so active surveillance is not an option. Recognizing that everyone is different and…
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Lurker finally posting....
I've known for the last 45 days that I have prostate cancer that requires treatment (65 yo in very good health). And I am committed to whatever treatment I select. I have been reading posts here for the last 30 days and I have found those posts to be very informative. Very useful. Plenty of YouTube vids to boot. But I am…
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New Guy Reporting In
Greetings, Gentlemen. New guy reporting aboard here, although I’ve been watching this forum for last couple months to learn as much as I can from the collective experience of all participants. I’m 73, retired Navy, and in pretty good shape/health. PSA for nearly 20 years was 0.4 to 0.5. But it started climbing 5 years ago,…
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Proton Radiation Therapy for prostate cancer and other cancers
I am done with a 28 treatment proton therapy plan at the University of Florida Proton Therapy Institute Center in Jacksonville. Initial PSA 5.5 Gleason 6 and T1c score. First let me say that Proton Therapy for my low grade prostate cancer was the best solution for me. I am relatively young, still play volleyball, swim and…
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I would greatly appreciate your opinion.
I am 70 years old with good health. My prostate biopsy indicates Gleason 3+3 well-defined in 5/12 (40%, 50%, 20%, 60%, 15%) all on the left side. In 2/12 perineural permeation present. Rectal examination indicated hard movable parts and the biopsy showed well-defined edges. Diagnosed since 2020 with BPH Grade II by annual…
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4+3 with possible Seminal Vesicle Involvement
Hi - 55you with Gleason 4+3 with a primary lesion on the left, and other positives on the right. MRI indicates abutting the capsule, but clear Seminal Vesicles. Pet CT shows "No other abnormal uptake to suggest tracer avid metastatic disease" BUT "Suggestion of bilateral foci of uptake in proximal seminal vesicles not well…
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Prostate cancer age related
so I’m 77 years old and was just recently diagnosed with prostate cancer with a score of eight and PSA of 6.6. I had a bone scan and a PET scan and it showed that the cancer has not spread outside of the prostate so that’s the good news. Surgery has been recommended but everything I read and seem to witness on these chats…
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MRI PI-RADS 3
Rapidly rising PSA (1.9 to 7.6 in 6 months - but might be due to just having Covid. Urologist wants retest in a month). MRI shows 8 mm lesion (mild decreased T2 signal, DWI=3, but without rapid contrast wash). Is this probably cancer? Should I get a biopsy? (I also have BPH).
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Just had biopsy
I’m new here. I have had prostate issues for about 15-20 years. Usually bph and prostititis. Mathis year my psa went from 4 to 6 and my isopsa is 14. I had a biopsy the other day and this is all That was in the drs notes.”The seminal vesicals were normal in size, shape, and configuration. The capsular margin was intact. A…