Please remember that these discussion boards are a public forum, which means open to the public (i.e. non-CSN members) and the content can be found via internet search engines. Members are strongly advised not to share personal identifiers such as real names, email address, telephone number, street address, etc. This information can be used to identify you and link you to the content you provide. Other areas of CSN are restricted to members only and cannot be found by search engines.

Prostate Cancer

Some tips from CSN
Welcome to the CSN! Below are some tips to help you get started following and posting on the boards. You can follow your preferred discussion board to get notifications of new topics and comments. To follow a board, navigate to your preferred board and then select the bell at the top, followed by your notification…
Nanoknife my journey
Hello everyone! I had my Nanoknife procedure performed on August 29, 2023 and I am reporting back my experience. To make it easy to follow I will use sequential numbers below. For detailed background check previous postings. On another note, using this site is not an easy task for me. Procedure time about one hour under…
Decipher testing
Is this considered standard of care when a biopsy is taken?
Will I need diapers post-prostatectomy?
Hi, I will be having the robotic prostatectomy just before Thanksgiving. I understand that I’ll have a Foley catheter in place until the one-week post-op appointment, but will I have zero bladder control immediately following catheter removal and need to be prepared to walk out of the urologist’s office in a diaper? Will I…
Interested in speaking to people have had the prostectomy and post op Hormone therapy and radiation
I'm 54 years old. Diagnosed at 52. Had the prostectomy in July 2022. Only to find out ther was still cancer present. 0.22 PSA, followed up treatment with hormone therapy and radiation. Radiation ended in January 2023. My last hormone injection was February of 2024. Looking to connect with people have had the same path.
Never Ending Urine Tests
I've never seen this posted before and have a concern I can't figure out. I had a RALP six years ago. My PSA was very low, but I didn't care I just wanted the cancer out of me. The surgery went fine but I am probably incontinent for the rest of my time above ground. Every six months I go in for another urine sample and…
What if radiotherapy fails
Just about everything I've been reading indicates modern radiation treatments properly administered are statistically superior to Radical Prostatectomys concerning quality of life issues. Sounds like they're equally effective. I've now been advised by two different radiologists that 5 weeks IMRT is a good first course of…
Treatment Decision
Am 63 and have been dealing with a rising PSA that started at 5.5 over the last couple of years. In 22 I had a Biopsy done with no Cancer cells found. PSA continued to rise and hit 10.5 this year. Biopsy found Cancer cells in 20% of the right side samples. Gleason score came back as 4+4. Options are Surgery without Nerve…
Appointment wait time
My name is Retha and i have a question. My husband recently had an MRI and was told he had 2 lesions with PI RADs of 4 on each and that they needed to be biopsied. That was on the 7th of October, its now the 1rst of November and we haven't heard from anyone about an appointment for the biopsies, is this normal .
6 months post salvage surgery
most of you know my story for those of you that don’t was first diagnosed at age 57 glarson score 7 PSA 8.1 decided to do radiation not a good thing. The cancer was of Cribiform and apparently Cribform is radiation resistant don’t let anybody tell you different, .. 1 year ago PSA creeping up three straight test to 1.7 from…
Advice
I'm a 65 year old recently diagnosed. My PSA was 5.34 in April and my urologist recommended an MRI. MRI in June showed showed prostate volume 38cc. T2 hypointense lesion involving the the left posteromedial mid gland peripheral zone measures 0.3cm and demonstrates focal restricted diffusion and low ADC with early focal…
On_A_Journey's journey
PART ONE Hello all, I joined this forum recently, asked some questions and made some comments, but until now I’ve only given a brief description of what brought me here. I will treat this thread as my own personal blog by telling my story and providing any updates as they happen. I am 59 and from Australia. I have a strong…
8 months post radiation and Cyberknife and 3 months post 12 months firmagon
Husband just recently finished treatment for prostate cancer with me. Gleason score was 8. Starting PSA was 2.8 before treatment. 3 months past Cyber PSA was .044. 6 months past Cyber PSA is .064. Does this indicate a concerning rise? And is there a need to worry? Messaged urologist and he said to come back and test in 6…
increase in PSA post seeding
Had seeding done 8 years ago here in Atlanta (no radiation-PSA 3.75) Cancer confirmed with biopsy. Post seeding PSA was.5. Has gradually risen until last test 3 weeks ago showed 1.47 (Oct 2024) (Mar of 2024 was 1.14). I will be 87 in Dec-should I be concerned?
ADT Side Effects & Different ADT Drugs
My brother-in-law has recurrent prostate cancer (he was originally diagnosed with stage 4a) and his oncologist wants him back on ADT drug he took for 2 years. Thing is the side effects were horrendous. From what I've read (NCI, ACS, etc.), side effects can vary some between the various ADT drugs. His oncologist said they…
1st post Prostatectomy PSA after sixty days
I just received my first PSA 2 months after my prostatectomy. It was .04. Is it normal so soon after the prostatectomy for it to be at that level and will it continue to fall more. What were others 1st PSA and subsequent one. Thanks Wheel
Fenbendazole
has anyone hears of this or tried it to fight cancer ,i have read it has helped many cancer patients
Very old man
My 93 year old uncle received this biopsy fractures of acinar adenomacancer, grade 7, gleason prognostic group 3, interesting 20 mm what (if possible) should be done
Husband just diagnosed with prostate cancer
Good afternoon, we just received the results from the biopsy, and I'm concerned for my husband. Gleason Score 7 (4+3) grade group 3, cores with cancer 8 (out of 12), prostate biopsies Adenocarcinoma, perineural invasion seen. PIRAD 5, PSA 9.5. Prostate measures 4.0 x 4.9 x 4.0 cm with volume of 41 cc. Large right…
Cialis?
Hi folks. First time posting, but have read several of the comments and replies over the past few weeks. July 10 I had a Robotic Laparoscopic Prostatectomy plus the removal of two lymph nodes. Surgery went as planned although my prostate was like double the normal size, so I had to wear a catheter an extra week. Upon…
Biopsy Scheduling Wait Time?
57 y.o. male: My MRI showed a Pi-Rad Lesion 3 and my urologist scheduled me for a biopsy. It is not scheduled until Nov 1. My concern is how long the wait time. My PSA rose to 6.78 in early July, was referred to urologist and had MRI on 8/27. Now two months wait until biopsy on Nov. 1st. Is this normal? I tried to get…
Pads
Do pads get definitely noticeably wet in the beginning or could you be unsure if you are leaking much?
What proceedure did you choose or are considering
Like everyone else at my point in this journey, I'm trying to learn as much as I can about the various proceedures available to treat my prostate cancer. I want the "trifecta", and more. No incontinence, sexual capability intact, good stream and of course the cancer gone. I know this may be unrealistic but I'm pretty sure…
Incontinent 3 Weeks Post RARP Cath Removal
Hi Guys, Just turned 65 and had a RARP on Sept 25th. All went well, Final Pathology indicated negative margins and a total of 1-5% Gleason 3+4. (Despite an MRI guided Pirads 4, Gleason 4+3 in March) Anyway nerves were spared and outcome good. My question, of course, is the incontinence. Sitting and lying down are fine and…
Considering postponing my remaining prostate radiation treatments
Hello! This is my first post. I was diagnosed with prostate cancer and had a slight urinary problem ( not an infection) before I started my first treatment. My treatment plan calls for 44 days of radiation therapy. After only two treatments, I began to experience some pretty bad burning every time I urinate ( 8 on a scale…
Just had MRI NorthWestern
Hello: First post. July 2nd during physical GP detected abnormality during DRE. I have been taking finasteride for many years. PSA has always been low and stable (understand that it would be higher but for the rx). Free psa% 18.1. PHI 21+. MRI results below. Any thoughts would be appreciated. Biopsy scheduled for end…
What's Joe Tippen protocol
I'm 54 living in Omaha NE, in good health. My routine blood test brought out a PSA 7.3. Ending up to be a prostate cancer Gleason 7. I'm yet to decide what to do. My urologist is suggesting a surgical removal of prostate. I'm just doing my homework. Anyone can instruct me about "joe tippen protocol "? Thanks
DaVinci Recovery Question
I had a successful prostatectomy via the DaVinci robotic assisted method (7 hours) in July of this year. My first PSA test post surgery was a non-detect and I'll test again next week. The incontinence has all but disappeared with the exception of occasional spotting but I'm wearing a pad so there hasn't been any issues. My…
Pathology Report Question
Good afternoon, My father had robotic surgery to remove the prostate following a PIRAD 5 Prostate MRI (No lymph involvement) and a postitive biopsy showing Gleason 3+3 and Gleason 3+4. Surgery on 9/23/24, deceived the unfortunate news last week that there were positive margins. Conversation with the surgeon was a 2 minute…
Incontinence
Hi Everyone, I hope all is well, or at least doing better. In 2 days I will be 4 weeks post-op, and all seems to be going good. In fact, the incontinence is less then what I believed it would be. My question is, for those that are 3, 6, 12+ months post-op, does it get less, stop, more, or is it a mixed bag (with/without…
Pain around penis, testicles, anus, like prostatitis pain after prostate surgery Is this normal?
I had prostate surgery around 2 years ago. So far my PSA is still undetectable. However I now have pain that comes and goes, like a burning sensation / spasms sometimes around my penis, testicles, anus. ……Like pain from prostatitis (but no prostate now so that's not possible) They did a test for an urinary tract infection…

Prostate Cancer

Discussion List

Discussion Boards