Carotid body tumors need help finding specialist!

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sommers2005
sommers2005 CSN Member Posts: 1 *
in Head and Neck Cancer #1

My husband is 40 years old and doctors just found 2 carotid body tumors on a ct scan, one on right side of neck and one on the left. Surgeon that requested ct scan told us today to do our research and get him to a specialist in these tumors as he is not and doesn’t know anyone around here that is. We are south of Buffalo ny in a small town and we need help please! At the mercy of those around us trying to navigate a rare condition is very scary to say the least and with children at home, two very young, we could use any help or recommendations possible

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  • wbcgaruss
    wbcgaruss CSN Member Posts: 2,565 Member
    #2

    Hello, sommers2005, sorry you find yourself here and your husband with such a condition.

    I would think it an unusual circumstance to have a carotid tumor on both sides at the same time.

    I would absolutely recommend that you call a major hospital or teaching hospital near you. They can direct you from there. I did a search in that respect with the words "major hospitals and teaching hospitals buffalo new york" Below is the link for the search there is a lot to look at such as best hospitals or best 10 hospitals in the area…Link Below…

    https://duckduckgo.com/?t=ffab&q=major+hospitals+and+teaching+hospitals+buffalo+new+york&ia=web

    I also searched "buffalo new york carotid artery specialist" and got loads of results. Results such as….

    For carotid artery specialists in Buffalo, New York, you can consider visiting Buffalo Endovascular and Vascular Surgical Associates (BEVSA), where they offer personalized vascular care and diagnostic tests for carotid artery disease. Additionally, UBMD Vascular Surgery provides a range of treatments tailored to individual patient needs.

    Also, things such as this...

    Best Carotid Artery Disease Doctors in Buffalo, NY

    We found 507 doctors in Buffalo

    Link for this search below…

    https://www.healthgrades.com/find-a-doctor/new-york/best-doctors-for-carotid-artery-disease-in-buffalo

    I hope this helps if I can do anything else let me know.

    Our motto here is NEGU (Never Ever Give Up)

    Wishing You The Best

    Take Care, God Bless

    Russ

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