📌 1. Summary Explainer – “Survivorship at 60: A Record They Never Measured”
Who I Am: Joseph Perusic, diagnosed with Wilms tumor in 1965. Treated at Texas Children’s Hospital. No long-term survivorship follow-up provided. Now 60 years post-treatment and documenting systemic neglect, long-term complications, and unacknowledged survivorship.
What I’ve Experienced:
- Multiple medical complications traced to late effects of treatment (vascular obstructions, renal impairment, subdural hematoma, stroke)
- Decades without coordinated follow-up care or survivor monitoring
- Denial of identity as a survivor by major institutions
- Emotional and financial burden from unacknowledged medical history
Why It Matters: Survivors like me are the evidence that the cure had consequences. My archive documents not only my medical timeline, but the system’s failure to prepare for us. This isn’t just personal—it’s a warning, a map, a call for action and recognition.
Discussion Boards
- All Discussion Boards
- 6 CSN Information
- 6 Welcome to CSN
- 122.4K Cancer specific
- 2.8K Anal Cancer
- 454 Bladder Cancer
- 310 Bone Cancers
- 1.6K Brain Cancer
- 28.5K Breast Cancer
- 406 Childhood Cancers
- 27.9K Colorectal Cancer
- 4.6K Esophageal Cancer
- 1.2K Gynecological Cancers (other than ovarian and uterine)
- 13K Head and Neck Cancer
- 6.4K Kidney Cancer
- 679 Leukemia
- 799 Liver Cancer
- 4.2K Lung Cancer
- 5.1K Lymphoma (Hodgkin and Non-Hodgkin)
- 240 Multiple Myeloma
- 7.2K Ovarian Cancer
- 68 Pancreatic Cancer
- 493 Peritoneal Cancer
- 5.6K Prostate Cancer
- 1.2K Rare and Other Cancers
- 544 Sarcoma
- 742 Skin Cancer
- 659 Stomach Cancer
- 192 Testicular Cancer
- 1.5K Thyroid Cancer
- 5.9K Uterine/Endometrial Cancer
- 6.4K Lifestyle Discussion Boards