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Verzenio

Kesne1104
Kesne1104 CSN Member Posts: 1
edited July 2024 in Breast Cancer #1

Has anyone had experiene talking Verzenio?

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Comments

  • Godsgirl16
    Godsgirl16 CSN Member Posts: 3
    edited July 2019 #2
    Im starting it in 2 weeks and

    Im starting it in 2 weeks and would really like feedback also.  Do you lose your hair? Im worried about the diarrhea

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  • Darla's Mom
    Darla's Mom CSN Member Posts: 12 Member
    #3
    Godsgirl16 said:

    Im starting it in 2 weeks and

    Im starting it in 2 weeks and would really like feedback also.  Do you lose your hair? Im worried about the diarrhea

    How is it going?

    hi Godsgirl16 - Looking for your experience with Verzenio.

    I am hoping you are well and are able to tolerate the verzenio The diarrhea makes me very nervous

    I am looking at a stage 2 trail for Letrozole and Verzenio for endometrail cancer.

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  • AlisonK
    AlisonK CSN Member Posts: 2 Member
    #4

    I'm 3 weeks in with Verzenio. Thankfully diarrhea hasn't been much of an issue. However, my eyes are aching, burning and watering. Has anyone else had this side effect? I'm worried because I start a new job next week after 6 months off work and I'm afraid it will impact my performance, besides being so uncomfortable.

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  • monicam27
    monicam27 CSN Member Posts: 1 Member
    #5

    Was on verzenio 150mg twice a day. Couldn't keep it down so went to 100mg once a day at night with Zofran. A week later I was in the hospital with my liver enzymes in the 500s. So now I'm completely off of it just letrozole 2.5

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  • Judithm
    Judithm CSN Member Posts: 1 Member
    #6

    started 2 weeks ago. 100 2x day. take 1/2 Imodium most mornings. Also on tamoxifen 1x/day. Next blood work in 2 days. Hopefully counts will be stable.

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  • angelofdeath02
    angelofdeath02 CSN Member Posts: 5 Member
    #7
    https://csn.cancer.org/discussion/319813/verzenio

    I currently take Verenzio. My oncologist says if it’s not making you sick than it’s not working. The diarrhea is the worst he says to take an anti diarrhea pill to help if not you will be using the restroom ALL the time.

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  • kayaker20
    kayaker20 CSN Member Posts: 1
    #8

    I have been on Verenzio 100 mg for about two months. The diarrhea is the worst, I take Immodium when needed. I wear pad for safety. Other than that I am tolerating it.

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  • RocDocVic
    RocDocVic CSN Member Posts: 162 Member
    #9

    I'm on Herceptin and Perjeta which cause diarreah. My Oncologist finally prescribed Lomotil for it since it works much better than Immodium AD. I can take up to 4 pills a day of the Lomotil. Usually 1 pill takes care of it. I can also take Immodium AD with it if needed as a backstop. But I usually don't need to. It's a godsend drug for me.

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