Interested in speaking to people have had the prostectomy and post op Hormone therapy and radiation

phooverjr

I'm 54 years old. Diagnosed at 52. Had the prostectomy in July 2022. Only to find out ther was still cancer present. 0.22 PSA, followed up treatment with hormone therapy and radiation. Radiation ended in January 2023. My last hormone injection was February of 2024. Looking to connect with people have had the same path.

ThomASH_082562

My heart sank reading your note…what was your Gleason score before your prostectomy? I hope the best for your treatment?

Old Salt

What is your current PSA? Did the radiation + ADT knock the PSA down to zero?

PS: your situation, unfortunate as it is, is by no means uncommon.

Josephg

@phooverjr

As Old Salt stated, your case is not uncommon at all. In fact, there are many of us here who have experienced PCa recurrence.

I had a radical prostatectomy, and my first PSA test was 0.05. My PSA grew to 0.11 in a year, and I underwent hormone (Lupron and Casodex) treatments for 6 months, along with IMRT radiation treatments for 38 sessions and a total of 68 Grays on the prostate bed. At the end of the treatments, my PSA was undetectable.

After 30 months of undetectable PSA (every 3 months), my PSA started rising again, and over the next 3 years, it rose to 0.98, at which time I had a PET scan, and PCa was found in my left pubis bone. I underwent hormone (Lupron and Zytiga and Prednisone) treatments for 2 years, along with SBRT radiation treatments for 3 sessions and 30 Grays on the pubis bone. At the end of the treatments, my PSA was undetectable.

At 22 months after the 2 year hormone treatments ended, my 3 month PSA tests have remained undetectable so far, the most recent test result being last Wednesday. There is no question in my mind that PCa will eventually rear its ugly head again in some part of my body, and I will consult with my Oncologist regarding the best and most effective available treatments at that time.

As you can see, for many of us, PCa is in fact a journey, and not a one-and-done occurrence. Managing quality of life along this journey become a primary guiding factor as the years go by. I wish you the best of outcomes on your PCa journey.

Wheel

joseph,

Would be interested in you incontinence and ED side effects after your prostatectomy. How long in each for your seeing improvement and how much then on to your first radiation treatment and HT and what new side effects or worsening of existing side effects especially concerning rectal issues or urinary issues, and lastly on to your next royof radiation and further side effects. Thanks