Choices with AML

Evieart

I was diagnosed in 12/23 with AML I am 102 days out from my stem cell transplant at UVA. I am about to go on maintenance chemo for 1 to 2 years to help avoid a relapse. Wondering if there is anyone that has been down this road and would love to hear how they are doing with it. My schedule will be every 8 weeks 5 days of low dose intravenous chemo along with 14 days of chemo pills. I am finding it hard to find others with my same leukemia and realizing that this cancer presents itself unique in each person that has it. I so would love to find someone to talk to that has been or is going through AML.
Thank you for your time and may Goddess bless and heal you beyond your wildest dreams.

ezstyle2025

leukemia AML ON 06/15/2022. I GOT MY STEM CELL TRANSPLANT AT UVA ON 02/23/2023. AFTER 2 YEAR I'M FEELING GREAT WITH ONLY ONE THING I LOOSE ME ENERGY SO FAST BUT THE LAST 2 YEARS ITS HAS BEEN VERY HARD. NOT MORE MEDICATION.

Olesmoke

I have leukemia, had a stem cell trans plant 2/1/23, the 5 weeks in the hospital was pretty rough, I lost 30 lbs. I'm still on low dose chemo, did 7 days a week chemo in the beginning, still taking 16 pills per day, also low on energy. Was on nuclear submarines and having a hard time getting some help from VA, have been denied twice

ezstyle2025

https://csn.cancer.org/discussion/328341/choices-with-aml

Im out the for 2 years. Feeling weak, my Trasplant was at UVA

nana_marti

My AML was diagnosed in august 2023. Went in remission from chemo only. Have been on maintenance IV azacitidine for 7 days and venetoclax for 14 days. I do this every 3 months. I don’t have an end date at this point. Is this similar to your treatment?