Grandulosa Cell Tumor Cancer.

Avajay
Avajay Member Posts: 1 Member
edited March 2023 in Ovarian Cancer #1

On New Years I found that I had ovarian cancer for the 2nd time. In 2017 I was diagnosed as high risk Stage I GCTC patient. My left ovary, fallopian tubes, and lymph nodes were removed. Now I have multiple tumers a few, in my adrenal gland, nested between my kidney and my ureter and impacting my pancreas that are not a good idea for surgery.

Unfortunately GCTC is reallly rare. Only 5% of the women in the world that get ovarian cancer get this kind. Because of this current information about my condition is seriously lacking. Just wondering if ther are any other Grandulosa Cell Tumor Cancer sufferers out there?

Comments

  • cjcasti
    cjcasti Member Posts: 2 Member
    #2

    Hello, I myself have this rare cancer. My oncologist is trying to find a better treatment for me to give me more years then it recurring every 2 years.

  • jcolley
    jcolley Member Posts: 3 Member
    #3

    I was diagnosed with this cancer last year and received 6 treataments and surgery. The markers were all atypical. CA125 was normal. My scan was clear in December. So you had a clear scan and it returned after two years? How many a times did that happen?

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