Anyone had anything similar? worrying times
I have been worrying myself silly since my last transvaginal scan a month ago,
Just to give you a description of my history.
May 2013 I suddenly started to bleed very heavily, losing clots and my periods were lasting anything from 10days to 20 days.
I went to my GP who put me on medication to ease the bleeding (which didn't work) while I was refererred for an abdominal and transvaginal scan. This took until the end of June and from that scan they noted thickening of the endometrial lining and some areas of 'concern'. I was then referred to a gynecologist - that was the August I was told I was going to have a hysteroscopy to see what was going on. That happened in the September and they found a large polyp, too large to remove then so I was booked in for 2 weeks later to have it removed under GA. When it was removed I was also fitted with a mirena coil to lessen/stop future bleeding.
The next month I kept on bleeding and eventually the mirena coil was dispelled by my body and fell out! I then had watery discharge and was told I had an infection. After a few weeks on antibiotics I was finally feeling ok.
Unitl May 2014 my periods started to become very heavy again, but I had just moved house and put it down to stress, by December last year things had not only become worse with the bleeding but I had also started to have breakthrough bleeding and also a blood tinged discharge when I wiped myself after a wee. I went to my new doctors surgery and after she read through my notes she referred for another scan. That was a month ago.
So during the transvaginal scan the radiographer was reading various measurments out to her colleague who was sat next to her on the computer. She informed me that my lining was thickened again but the ovaries were normal size. She then became queit and was concentrating on a particular area on my womb. I asked her what she could see and she replied with that she wasnt actually sure what it was.. She then asked her colleague what she thought it was - her colleage looked at the screen and said well I don't think its a polyp but I don't know what it is.
I asked why they thought it wasnt another polyp and was told that they couldnt see any 'stalk' and that it definately wasn't a fibroid. The radiographer read out the measurements to her colleague and I heard her say 7 by 17.. I'm guessing that was mm.
I was told to clean myself up and that they would write to my GP suggesting referrring to a Gynecologist . I asked her again did she think it was serious and she said that they were not experts and to wait until I see the Gynecologist. She said the GP will contact me within 10 days.
2 days later a GP from my surgery called my to say they have my scan results and that I will need to see a Gynecologist but because they were not the GP that referred me I would have to wait until the end of the week until the GP that referred me was back in the surgery.
Friday am I received a call from the GP secretary asking me to go in and collect some forms. I did so and the forms were for me to contact the hospital to get an appointment. I did this via the online system and the earliest appointment was for a month ahead.
So update now...
So I went to see a consultant a week ago Monday and she still didn't confirm what was seen on the transvaginal scan.. She did however examine me internally and was shocked at how much I was bleeding, pressed and prodded then told me not to worry about the mess and clean up and come and join her in the other room.
This was when she looked me in the eye and said you are not a routine case I'm putting you down as urgent.
The plan she has could be in two stages she informed me.
So under GA she will perform a hysteroscopy,biopsy and poss polypectomy - if she thinks things look questionable 'in there' she will wait until cytology comes back and most likely go for hysterectomy.
If it looks ok and just removal of whatever it was they seen, then endometrial ablasion and again wait on cytology.
When I enquired as to what time scale she wants this done by she said by the end of March.
As I already suffer from hypertension she sent me over to pre op - In pre -op my BP was through the roof, which I expected becausr I was stressed, but pre op refused to put me forward for booking of the op because my BP was too high. Then they said they would make me wait for 3 seperate weekly BP readings from my GP before they would give me the go ahead. Cue my BP shooting up even more! I said to them my consultant has just said she wants to see me in 4 weeks max and now your delaying it? they wouldnt budge.. So knowing my BP gets a classic case of 'white coat syndrome' I spoke to my GP on the Tue and he agreed if we do a week of BP readings to prove my BP was under control with meds he would fax pre op and tell them to go ahead.
That was Tue just gone, Called pre-op and they said I'd been green lighted so it was in for booking. I called the theatre booking dept and spoke to a woman who actually had my notes in front of her.. She said she was unsure what to do.. The notes specified that the consulant I had seen had requested it was her that operated on me, and that it was marked as urgent.
However.. she didnt have any 'lists' until Middle of May available!
So the clerk decided to override the request of that consultant performing the op and to prioritise me being seen within a month. So I now have a male gynacologist performing the operation on 1st April.
Have I done the right thing pushing for a sooner operation?
Certainly the thought of waiting until May is a nightmare.. I can't go on with having 3 periods a month! my skin is like a teenager with acne and my moods .. well I cry at the drop of hat.
Is there anyone that has had similar symptoms, experience.. this is driving me insane..
- All Discussion Boards
- 6 CSN Information
- 6 Welcome to CSN
- 120.8K Cancer specific
- 2.8K Anal Cancer
- 440 Bladder Cancer
- 304 Bone Cancers
- 1.6K Brain Cancer
- 28.4K Breast Cancer
- 388 Childhood Cancers
- 27.8K Colorectal Cancer
- 4.6K Esophageal Cancer
- 1.1K Gynecological Cancers (other than ovarian and uterine)
- 12.8K Head and Neck Cancer
- 6.3K Kidney Cancer
- 660 Leukemia
- 779 Liver Cancer
- 4.1K Lung Cancer
- 5K Lymphoma (Hodgkin and Non-Hodgkin)
- 233 Multiple Myeloma
- 7.1K Ovarian Cancer
- 48 Pancreatic Cancer
- 485 Peritoneal Cancer
- 5.2K Prostate Cancer
- 1.2K Rare and Other Cancers
- 531 Sarcoma
- 706 Skin Cancer
- 643 Stomach Cancer
- 190 Testicular Cancer
- 1.5K Thyroid Cancer
- 5.8K Uterine/Endometrial Cancer
- 6.3K Other Discussion Boards