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Need advice for my mom
Hello, My mom is going through chemo for stage 2 fallopian cancer and is having a really hard time with the treatment. She is sick for at least 5 days, she can't keep anything down and she is either completely constipated or has diarrhea. She is also having incredibly painful abdominal cramps. We have told all of this to…
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Seeking experience with Gemzar
I am a stage IIIC UPSC patient of about 9 months. First six months it was determined I am platinum resistant after receiving standard protocol of carbo-taxol and subsequently diagnosed as "recurrent" disease with spread to perioneum and abdomen areas. I have been on doxil + avastin for the past three months but the…
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Research study on UPSC
I have been continuing to read about uterine papillary serous cancer and found this research study helpful in understanding what my prognosis is based on my stage. Of course, this is statistics and I am well aware that remaining disease free is a matter of chance. Nevertheless, the article gave me some hope for my future.…
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Gynecological Oncologist Recommendations/Military Insurance questions?
Can anyone recommend a good gynecological oncologist in the Colorado Springs/Denver area that takes Tricare Standard/Prime? I have an appointment on Wednesday with my gyn/oncologist, we are moving in May, but I may be going to C. Springs earlier from Florida for treatment purposes. Does anyone know if my doctor can do a…
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I have been matched with a clinical trial...
I received a phone call yesterday stating that there is a clinical trial that I match with. They are calling my doctor, and requesting the pathology report. It would be a phase II or phase III trial with immunotherapy. I was wondering if people have had a complete response with immunotherapy. I am stable right now. Thanks,…
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Third Occurance
Third occurance Hi - just joined today. Found out my uterine cancer is back after 5 years of no issues. 2010 discovered the cancer after D/C for bleeding so had a TAH - doctor said no worries, they got it all. One year later, bleeding started again and tests showed positive so had radiation - internal and external. Thought…
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New here - Depot Lupron and still have thick endometrium?
Hi all, I'm new here and need some help if possible. Here's the story - I am 46 and have struggled with severe endometriosis, PCOS, and infertility. I have been on Depot lupron for 4 years and have lately been having bleeding and discharge. I did a hystosonogram and they found a polyp. Went to a new Dr to schedule the…
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Signing Off for a Few Days
To all you lovely ladies... I'm going to be off the board for several days as I venture across the Atlantic and get myself settled into my new treatment routine. I take with me all of your wonderful wishes, love, prayers and hopes for success. Those alone will give me wings across the ocean. I will try to post here during…
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Brain inflammation
Has anyone had or heard of brain inflammation from using Avastin?
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Question???
Has anyone else had this happen to them? This was infusion day for me and I had labs, doctor's visit and my infusion. And all went well. All done... the nurse deaccessed my port, complete with the smelly stuff that is supposed to Close up the port. she put a bandaids on it and I left. As I was walking down the hall I felt…
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Stopping avastin for 2 months
I need to have surgery..torn rotator cuff from a fall 3 weeks ago and oncologist says i have to stop avastin 4 weeks before and 4 weeks after surgery. i am scared about stopping. I've boon on avastin almost 2 years and it has controlled my serous carcinoma. however in the last few months one implant has grown a little and…
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Janae update
Hi, just wanted to let every one know how things are going. I feel like my neropathy in my fingers is a little better. Its not all gone but i dont seem to notice it as much. MY toes are a little better too but not as much as my fingers. My toes bothered me the most before. I notice the neropathy in my toes the most while i…
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Waiting for biopsy
I am 47 years old and waiting to have a endometrial biopsy (D&C with myosure). I went three months last summer with no period, thought I was beginning perimenopause. I saw a gyn at the time but my hormone levels were all normal with no explanation. Once my periods returned, they were heavy and much longer than I had ever…
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primary serous peritoneal carcinoma
Hello Fellow Warriors! I had surgery February 9th - removal of 9.5 x 7 x 3 cm tumor on the omentum. When I saw the color photo of my doctor, Dr. Chen-Chi Hou and Dr. Yen-Yin Chiang I was floored - it was a huge thing - the omentum and the bulbulous, nutriton sucking, hemorraghing alien! The photo brought to mind my photos…
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rethinking cancer center/Taussig Institute @ Cleveland Clinic
I am in counseling w/ a social worker at a satellite branch of Cleveland Clinic.. This began while I was in treatment at the main campus for "pelvic floor dyfunction" physical therapy. I was first seen by a urologist there. Yesterday I had a session and discussed my upcoming appt. to review biopsy reports and also to…
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disordered proliferative endometrium w/ metaplastic change
Had my post op visit today following D&C on 2-14-17. Last week I had spoken w/ the nurse midwife on the phone and she indicated that the results showed something, and that the doctor would discuss what my next options would be. When I asked if there were any further tests she said no, it would be surgical. I then told her…
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Search people in my situation
Hi,everybody I have endometrial cancer for a year.Right away, the doctors said that it is a stage 4 because it is metastasized on the peritoneum. After chemotherapy( 6 rounds cisplatine /doxoburine/endoxan), the surgeon tried to operate me but too difficult. Carcinose péritonéal is in my diaphragm and intestin. Currently I…
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NED dancing with someone else... but not me
So months later, those suspicious areas that were there in October are still there, along with a few more. Everything is still very small and contained within the lymph nodes. Apparently, the lymph nodes are still not enlarged, but the two that showed hypermetabolic activity in October are showing more hypermetabolic…
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Hormone Therapy
Another 3 months already! And this time, it is NED. Yayyyyyyyyyy I went off the Megace due to side effects, but remain on the Tamoxifen. My doc says to stay the course for now. But... (nothing is ever a slam-dunk), I have developed a cyst behind my knee that is causing the whole leg, from the groin to the middle of the…
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Weight Gain
Hi all, I looked and didn't really find any big conversations about weight gain. Is anyone willing to share with me if after frontline treatment you have found yourself gaining weight? For reasons you know of or unexplained? What did you do about it- ie eat less, exercise, whatever? Did anyone experience eating well,…
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Still Good News on Reoccurrence of UPSC
Hi Ladies: I still have good news regarding the reoccurrence of my cancer from October. MY CA level is now at 65 down from 134 back in October and November. I also had an ultrasound the very end of January and that was much improved over what it was in October so for now I still do not need to have chemo. I am taking it…
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Another Method of Hyperthermia
During my research I found a number of different ways that heat is being investigated to treat cancer. This link was one of the more interesting. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3720579/ Download the video file on the site for an easy-to-understand explanation. It's fascinating.
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CA-125 levels
This is something I've wanted to ask about for a while, but was too superstitious to put my concerns out there until I had results from a CT scan and heard from both of my oncologists that I should not be worried. My CA-125 levels have been quite high since before my hysterectomy. I'm still too superstitious to put the…
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CheeseQueen checking inn
It appears I'm trouble forming my words. I'm in the hospital being investigated a possible TIA. Good news CT scan clear. MRI in the morning. My cancer hospital but I'll just have to deal. Hope don't screw up my port. Keep you posted. Chemo-the gift the keeps on giving. No chemo for me tomorrow.
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Another Quick Update on my Mom 02/15/17
Merry Christmas and a Happy New Year everyone! It's been so busy for me and I haven't had much time to post anything on the forums. I do sometimes check the boards occasionally but just haven't had the energy to post. Just wanted to give you all an update on my mom's status. She's halfway through her chemo treatments and…
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Herceptin vs Perjeta vs Kadcyla
Has anyone tried Herceptin, Perjeta or Kadcyla? My mother has uterine serous. She has been tested to be HER2 positive on Foundation 1. Considering options beyond CarboTaxolAvastin.
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May drop Taxol from Carbo/Taxol combo starting #4
My medical oncologist finally opened up to me this past treatment #3 of 6. There has been this aurora of vagueness from my doctor about the side affects I have been experiencing to the point of frustration. I finally told her that the neuropathy in my fingers, feet, toes, and trunk neuropathy as well is more than I am…
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Hives - from Taxol??
Eight days after my first infusion of carboplatin and taxol I have developed hives on my thighs ankles and now my arms. It itches a little and last night and this morning I took a Benadryl. I figured that since they dose you with Benadryl before they give the "high test" it would be OK. Now I see from the Taxol disclosure…
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Are there any survivors from stage IIIB endometrioid endometrial adenocarcinoma grade 3 out there?
Hi, I am glad I have finally found this Forum, after months of exhausting and useless researches. I am from Italy and, as far as I know, there is nothing similar in Italian. But it’s very important to get advice and support from other women with your own experience: all of you, ladies, are really great! I apologize for…
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Gut bateria and immunotherapy Response Article
Interesting Article - can the bacteria in your gut affect whether you respond to cancer immunotherapy? http://www.businessinsider.com/link-between-microbiome-cancer-immunotherapy-skin-cancer-2017-2