-
Search people in my situation
Hi,everybody I have endometrial cancer for a year.Right away, the doctors said that it is a stage 4 because it is metastasized on the peritoneum. After chemotherapy( 6 rounds cisplatine /doxoburine/endoxan), the surgeon tried to operate me but too difficult. Carcinose péritonéal is in my diaphragm and intestin. Currently I…
-
NED dancing with someone else... but not me
So months later, those suspicious areas that were there in October are still there, along with a few more. Everything is still very small and contained within the lymph nodes. Apparently, the lymph nodes are still not enlarged, but the two that showed hypermetabolic activity in October are showing more hypermetabolic…
-
Hormone Therapy
Another 3 months already! And this time, it is NED. Yayyyyyyyyyy I went off the Megace due to side effects, but remain on the Tamoxifen. My doc says to stay the course for now. But... (nothing is ever a slam-dunk), I have developed a cyst behind my knee that is causing the whole leg, from the groin to the middle of the…
-
Weight Gain
Hi all, I looked and didn't really find any big conversations about weight gain. Is anyone willing to share with me if after frontline treatment you have found yourself gaining weight? For reasons you know of or unexplained? What did you do about it- ie eat less, exercise, whatever? Did anyone experience eating well,…
-
Still Good News on Reoccurrence of UPSC
Hi Ladies: I still have good news regarding the reoccurrence of my cancer from October. MY CA level is now at 65 down from 134 back in October and November. I also had an ultrasound the very end of January and that was much improved over what it was in October so for now I still do not need to have chemo. I am taking it…
-
Another Method of Hyperthermia
During my research I found a number of different ways that heat is being investigated to treat cancer. This link was one of the more interesting. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3720579/ Download the video file on the site for an easy-to-understand explanation. It's fascinating.
-
CA-125 levels
This is something I've wanted to ask about for a while, but was too superstitious to put my concerns out there until I had results from a CT scan and heard from both of my oncologists that I should not be worried. My CA-125 levels have been quite high since before my hysterectomy. I'm still too superstitious to put the…
-
CheeseQueen checking inn
It appears I'm trouble forming my words. I'm in the hospital being investigated a possible TIA. Good news CT scan clear. MRI in the morning. My cancer hospital but I'll just have to deal. Hope don't screw up my port. Keep you posted. Chemo-the gift the keeps on giving. No chemo for me tomorrow.
-
Another Quick Update on my Mom 02/15/17
Merry Christmas and a Happy New Year everyone! It's been so busy for me and I haven't had much time to post anything on the forums. I do sometimes check the boards occasionally but just haven't had the energy to post. Just wanted to give you all an update on my mom's status. She's halfway through her chemo treatments and…
-
Herceptin vs Perjeta vs Kadcyla
Has anyone tried Herceptin, Perjeta or Kadcyla? My mother has uterine serous. She has been tested to be HER2 positive on Foundation 1. Considering options beyond CarboTaxolAvastin.
-
May drop Taxol from Carbo/Taxol combo starting #4
My medical oncologist finally opened up to me this past treatment #3 of 6. There has been this aurora of vagueness from my doctor about the side affects I have been experiencing to the point of frustration. I finally told her that the neuropathy in my fingers, feet, toes, and trunk neuropathy as well is more than I am…
-
Hives - from Taxol??
Eight days after my first infusion of carboplatin and taxol I have developed hives on my thighs ankles and now my arms. It itches a little and last night and this morning I took a Benadryl. I figured that since they dose you with Benadryl before they give the "high test" it would be OK. Now I see from the Taxol disclosure…
-
Are there any survivors from stage IIIB endometrioid endometrial adenocarcinoma grade 3 out there?
Hi, I am glad I have finally found this Forum, after months of exhausting and useless researches. I am from Italy and, as far as I know, there is nothing similar in Italian. But it’s very important to get advice and support from other women with your own experience: all of you, ladies, are really great! I apologize for…
-
Gut bateria and immunotherapy Response Article
Interesting Article - can the bacteria in your gut affect whether you respond to cancer immunotherapy? http://www.businessinsider.com/link-between-microbiome-cancer-immunotherapy-skin-cancer-2017-2
-
My question
Hi everyone, I am new here but I have been reading and reading. I hsve nothing but admiraation for the members of this group and hope you cna help me figure out what to do. To mke a long and rather unremakable story short, I started habing a little spotting around Labor Day and was diagnosed with UPSC last December. I had…
-
Interesting article on gut flora
-
Serous uterine spread to lungs, bones and adrenal glands
Hi, 2013 Feb mom was diagnosed with serous uterine cancer in her womb. Surgery, chemo, radiation. Fast forward Jan 2017, she has just found out serous ca is back this time in lungs, bones and adrenal glands. Understand not curable, but is there anyone here with similar experience who can share experience/information on…
-
preliminary vs. final results
I called the gyn. office last Friday. Lab tech said only pre-lim results were back, but dr. was not in office to review. She also said I wouldn't want the pre=lim anyway, but would want to wait for the final results. (D&C on Valentines Day, removal of polyps and endometrial samples) On other occasions, when things were…
-
Daylady checking in - Cancer Across the Pond
Hi Ladies! Just thought I would check in and let you know I am back from Germany from the first of what is probably going to be many visits this year. I was at the Herzog Cancer Clinic outside Frankfurt Germany. In three weeks I did whole body hyperthermia, local hyperthermia, daily vitamin and enzyme infusions, low dose…
-
Are Your Ferritin Levels Too HIgh? Is IP-6 a Solution?
As if we don't have enough concerns, found out a few months ago a blood test showed that my ferritin levels were way too high. High iron is never a good condition for cancer patients for, as we know, cancer likes iron just as it does sugar. My levels had been normal before two blood transfusions that I needed at the very…
-
Frequent bladder infections after radiation
Ever since completing my radiation therapy (both external and internal) I have been plagued with constant UTIs. Anyone else have this problem. The contant burning is really annoying. I compleyed therapy in October. Enough already !
-
I'm back and hoping for help please :(
When I first posted (1/7/17) I was given the common sense response to wait and see what the results were before asking questions. Well, the tests are stretching out and I still have no concrete results. So please, can you humor me and tell me your thoughts? (which I know are not medical opinions, just personal…
-
2 primarys diagnosed-uterine and fallopian
Hi I am here fighting for my mother Ellen who was diagnosed with Uterine and Fallopian cancer in 2015. She had 3 roulds of carbo/taxel. The cancer is recurrent and her docs cannot offer her any more help. I am searching for clinical trials and I just wanted to know if may anyone has heard of a trial covering 2 primaries. I…
-
Doxil Question?
I'm on single agent doxil now. I have had 5 infusions, and my disease is "stable". My CA-125 was "stable", but decreased from the high 180. My symptoms are non-existent. I have a small nodule on my rib that has decreased in size, so that it's no longer visible (the area where the tumor is tender, but no different than the…
-
It was worth it
Today was lab, doctor visit, and infusion day. Except for a new phlebotomist who had a lot of trouble accessing my port, it was a really good day. The tumor in my neck has shrunk down to almost nothing, so the horror of wearing the mask and being pinned down on a board for radiation was worth it. My CA125 level dropped…
-
cT Scan Results and Need some help...
I am posting here as this board is more active. I got mixed news regarding Doxil-- my disease is stable. But I cannot remain on Doxil forever. We are military and moving (probably D.C.), and so I am looking for a clinical trial. Does anyone know where to start? We will find out for sure in March where we are going. Do I…
-
New Here
Hi all~ I am new here and I am hoping you can share some of your experiences with me. I recently started spotting , in late Oct., after 17 months cycle free. I did some research and learned this condition is not normal and requires being seen asap. I saw my family doc on Nov. 7th where it was discovered that he has been…
-
Moffitt patients and experiences?
I posted this interest (twice!) under the recent Opdivo stream but thought I would pull it out as a separate discussion for those of us in Florida using Moffitt. I too saw Dr Chon for a second opinion last November and plan to continue to use Moffitt for consults since I am a Floridian. After carbo/taxol did not work for…
-
Private Message Spam
Hello everyone, Thank you to all of you who have alerted us to the PM spamming from earlier today. I apologize for the inconvenience. While we do have securities in place, we are not always able to catch all spam, and we are trying to figure out how this one got around our system. If you received a message from jegac1…
-
Pain after chemo
I'm a little over a month out from my last chemo treatment. For the past couple of weeks I've had intense pain in my legs and abdomen at night and early in the morning. It seems to be a combination of leg pain and constipation; the pain moves around and comes and goes. Once I'm able to clear my bowels in the morning it…