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How many radiation sessions did you get?
It's funny. From everything I've seen, everyone gets 25 radiation treatments. My 25th time will be this Thursday. Now my radiologist is telling me that my treatment was, "25 then reevaluate." Meaning he wants to tack on "2 or 3" more sessions. I think the term "reevaluate" means to check to see if the patient still has…
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Preventing damage from pelvic radiation?
I will soon be having pelvic radiation treatment following surgery to treat a recurrence to two lymph nodes (right pelvic wall and right groin). I previously had brachytherapy as well as chemo as part of frontline treatment. I was wondering if anyone has suggestions to prevent complications or damage, especially to the…
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UPDATE ON MY MOM
Hello - It has been a while since my last update about...about 2 months ago. In this time, my mom's new oncologist performed many tests to determine the right course of treatment for her. About a month ago, she began doxorubicin and has been tolerating the chemo pretty well. She is now 2 cycles in, and she will have a scan…
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Uterine Ablation led to Cancer - CANNOT GET TREATMENT
Hi - I am a 38 year old woman with a clean bill of health my entire life up until July 2016. I had a uterine ablation as per my doctor's suggestion to accompany a tubal (there was no medical reason for an ablation to be performed, he said it would help lighten period). I agreed without batting an eye as he's been my trust…
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Uterine Cancer stage 3B , clear cell treatments
My mom has Uterine Cancer 3B , clear cell but after surgery , doctor told my mom will have 3 rounds of chemo and 6 radiation. I search on this forum and knowing that most of people ( even stage 1 ) have 4-6 or more rounds and I don't know why my mom only has 3 , is it good sign or bad sign ?
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New help needed
Hello, I was recently (10 days) ago diagnosed with grade 1 uterine cancer. I have only had a PAP and entromedtrial biopsy And ultrasound which showed thicking of entrometris My ob/gyn has referred me to a gyno ocnologist I see next week, plus I have also made arrangements for a 2nd opinion at CTCA in June. Here is my…
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Please share your symptoms before diagnosed , any association with cervical cancer?
Hello, I am 35 years old and mother of 2. In 2014 (3 years ago) i was diagnosed with carcinoma in situ and a cone biopsy was done. Pap smear have been done since with no bad results. I just went to the dr to have my pap done and waiting on results. I am writing bc i am concerned... since the surgery in 2014 i really have…
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New Appointment - This Tuesday
Hello everyone - Thank you again for your comments regarding my mom's uterine cancer. On Friday, the doctor who took on her case, called to tell her tumor board met, and they believe there are spots on her lungs a liver. His plan was to obtain pathology reports from her other oncologist and run additional testing that had…
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One year ago today
One year ago today I had my surgery. I'm trying to wrap my head around everything that's happened since then. I've learned a lot about myself. I would not have made it without the help of many people, including the smart, caring women on this board. Thank you all!!!!! Thanks to gabapentin, my neuropathy is sort of under…
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Bowel problems
Well after talking to my oncologist about my continuing constipation, I finally convinced him that I should see a gastroenterologist to be on the safe side and also for help to resolve some of my problem. So I saw one and he said we should do a colonoscopy. I had one last Friday, but it was incomplete. The doctor could…
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Happier Times - Share Vacation Tips
I plan to talk to my doctor soon about his future treatment recommendations. I am hoping to get a reprieve from chemo at some point this summer and I want to find a destination for me and my husband to enjoy. I hope this would be the beginning of a period for me to learn what my new normal is going to be. In the past,…
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Waiting and Worried
Yesterday I had an extremely painful saline infused u/s. The gyn found a polyp and took a sample to send out for testing (results take a week to come back). As a breast cancer survivor (celebrated 2 years in January, lumpectomy and 35 treatments of radiation) and someone who has had gynecological issues for at least 6…
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Re-Ported Yesterday
I got my second port put in yesterday, just about 7 years from the time I had my first inserted. The interventional radiologist decided to put it in the opposite side from the first one. Now, I'll have less problems with the seatbelt as a passenger but more as a driver. Last time, I tried the sheepskin-covered seatbelt…
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Bleeding
Does anyone ever have bleeding like menstruation during chemotherapy?
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Doctor won't give straight answer about diagnosis
I have been going back and forth to doctor's for months now. It all started with a trip to my family doctor to have my thyroid checked. 4 or 5 appointments later, they sent me for ultrasounds. I had a cyst on my ovary so they referred me to my gyno. First appointment was the pap, then she scheduled the biopsy. She redid…
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Treatment ??? Afraid
Hello fighting sisters I will soon do my exams to know what will follow for my treatment. I am very afraid because I can be offered surgery but this is difficult in my case, but also the only solution to get rid of cancer. Or else I will have other treatments ... But I do not know what. I already had a lot of chemotherapy.…
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How much neuropathy is tolerable?
For those undergoing or who underwent chemo treatment with agents that list neuropathy as a possible or likely side effect, I am curious how extensive was the effect you experienced. Also, did it cause you to withdraw from treatment with that agent or did you persevere? If you continued, what has been the permanent damage…
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Update - Continued Good News regarding Reoccurrence
Hi Ladies: Just wanted to let all of you Ladies know that my CA 125 level is now down to 26 which is within the "NORMAL" range. I am really very happy about this number as it is Normal finally after several months of the level being elevated. Also, I had an ultrasound done last week and there is a small amount of fluid…
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CA 19-9... UPSC?
My mother has UPSC recurrence metastasized to the lung, bones, adrenal glands and peritoneum. She has been through 5 cycles of platinum (Carbo, Taxol, Avastin). Although her CA-125 marker is now within normal range, but CA19-9 is increasing. To be factual: the CA19-9 increased after the first cycle to peak at 2900,…
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Trivial - socks
I know this is a trivial subject - but maybe a small break from the life altering things that we face is OK. Do you wear socks when you go for your internal exam? With all the other parts of me that are "in his face" - I hate to put my feet there too. But is it just as silly to have nothing on but socks? What am I trying…
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7 Years NED UPSC
Annual visit went well. Another year cancer free. God is good
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Mass Found Needing Immediate Surgery (6.5 yr. survivor)
I did a hemoccult test a few weeks ago, and my doctor's office called me to tell me that 1 of the 3 smears I'd done showed bleeding. They set me up for a colonoscopy and an endoscopy a week ago Wed. No cancer was found inside the areas the gastroenterologist checked. However, he told me he'd found something he'd never seen…
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Genomic Testing Results and Treatment for Recurrence
Had my follow up appointment with the GYN Onco yesterday. She also had the results from Foundation One (genomic testing). The testing shows that my tumor has 7 genomic mutations:PIK3CA, NOTCH3, PPP2R1a, SRC, TP53, Microsatellite status, and a low tumor burden. There are 2 therapies are associated with potential (potential…
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Good news from "Across the Pond"
Hi Ladies! I am literallly in Germany as I am posting this. I have had a great week this time. First I was advised by my oncologist that my lab tests came back good, and my cancer marker was down 50%. Yay!!! They warned me that there may be no visible shrinkage on the MRI (they do a new one before every embolization)…
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Ok, I'm definitley in this sorority now
Hi All, CheeseQueen here and here is my story so far: Post-menopausal for 20 years, had early menopause at age 39 (don't be deceived by my profile picture, that was in 1976!). In January, started having bleeding. Had been to gyno in November, no problems. * 1/5/16 Gyno retired in December, had to see colllegue in practice…
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My doctor is retiring :(
Hi ladies, I really value any and all opinions in this matter. My oncologist, who I've been with for 10 years now, is retiring due to her husband having an illness which she needs to devote her time to. I'm so happy that she has made this difficult decision and is now free to take care of her husband....who deserves…
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Update on hormone therapy
I am just checking in to report that the therapy is still holding the cancer at bay, This time around, I am only taking Tamoxifen, and we have seen no channge in 4 months. I am surprised and ecstatic! I have had troubles with my leg, which turns out to be lymphedema caused by surgery, and another cyst and henia in the…
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Just another update
i finished 18 radiation treatments to the tumor between my spine and Vena Cava. It seems like everything went well it is causing a lot of nausea and fatigue but otherwise not bad. Good news is that the radiologist reaaly felt that the pain I had in my SI joint of my right hip was tumor relate. He feels that the tumor is…
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Finished Treatment
Well I'm all done with UPSC treatment, CA125 normal, but it's always been normal. Waiting for PET CT in the next week or two. Last November, during treatment, when I went to the ER for intestinal issues, a couple of nodules where found in my lung, along with a PE. Hopefully the PE is gone and the nodules are just nodules.…
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Questions I should be asking
I've been reading a lot of threads and there is so much information and knowledge. Currently NED, diagnosed with adenocarcinoma 111C2. I went for my first oncology appt in March, I did my labs oncologist said everything looked great, well before that I did see my doctor that did the brachytherapy and a few days later I…