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First Radiation
I had my first radiation treatment for the tumor between my spine and Vena Cava. 17 more to go. It was not nearly as hard as the radiation to my neck because I wasn't in a mask that was attached. I figured I would have the same type of lower body form that I had during pelvic radiation four years go. But no, this one…
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Recurrence and travel plans
I posted last week about my recurrence. Now I have a few more details. In addition to the two lymph nodes that were removed that were cancer, more lymph nodes in my groin and elsewhere in my abdomen and an area in my omentum were suspicious. Although they previously found both carcinosarcoma and papillary serous it turns…
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Waiting for lymph node report after hysterectomy
I had hysterectomy Wednesday. Recovery so far a breeze. Surgery confirmed grade and type 1 endometrial cancer. the bad news was in surgery determined more than 50% invasion into myometrium. That put me in higher risk group for spread to lymph nodes. Waiting on that result causing great anxiety. Dr. said only 6-10% chance…
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Anyone Else Have Random Pain -- Or Should I Be Worried?
Hi Ladies. I am 3 months out from my last chemo and was declared NED status mid-January of this year. (I was diagnosed stage 3a, grade 3 in May of last year- went thru chemo/radiation/chemo). The past week or so I've been feeling EXTREMELY fatigued. My legs shake with effort just to walk across a room. I'm constantly…
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One more with recurrence
I had two lymph nodes removed on Friday. I didn't think I would get results right away but the Dr. was able to get the preliminary pathology. He told me there were cancer cells (carcinosarcoma/MMMT cells as before). My appointment with Dr. is 3/29. Tomorrow I'll call to set up scan. My head is spinning. I've read a lot…
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Another update
Today was supposed to be labs, dr.'s visit and infusion. CT scan results were not what any,one wanted. The tumor that sits between my spine and vena cave grew this time. It has grown partially into both. My oncologist is hesitant about continuing on Keytruda because this is the second tumor that has grown. We talked about…
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Biopsy results are back
Got off the plane this morning to find a voice mail from my Onco's office to call them back for results from the lymph node biopsy done on Friday. The biopsy does show that the lymph node contains UPSC. Not sure what next steps are other than meeting with the ONCO on Friday to discuss what next steps may be. ACK!!! Damn…
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Radiation extreme nausea
hello everyone, my mom is uterine Carcinosarcoma stage 3c2 and started pelvic radiation a little over a week ago. Chemo was nearly a breeze for her but radiation has been really rough. She threw up the first few days and still has terrible constant nausea. They have her on zofran and compazine or something but it hasn't…
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New Diagnosed, Stage IV - Need Answers
I am a newly dx 65 year old with Uterine Stage IVb cancer. I am looking for any input and suggestions you may have as a start down this road. My story, 6 years ago, I was dx with Stage 1 uterine cancer, low grade which was found on a nodule after having a complete hysterectomy. No chemo give, just follow up with Oncologist…
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Récurrence, need of your opinion
Hello I have stade4 endometrial adenocarcinoma. After a recurrence or cancer has been? In abdomen ? What was your treatment?your story with récurrences?
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My New Oncologist (maybe)
We are supposed to be moving to Colorado, though my husband hasn't received an official notification of the assignment. I have an appointment in Denver in April, and was wondering if anyone has met with Dr. Corr at University of Colorado Hospital?
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new here
Hello everyone. I have been lurking for awhile. I will share my story with you. I was diagnosed on 1/16/17, and had robotic hysterectomy BSO full pelvic, paraaortic dissection with 28 nodes removed. Surgical pathology is stage 2, grade 2 all nodes negative. single focus on LVI. I am 51. Recommendation is for pelvic…
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Mullerian Adenosarcoma - just diagnosed
I had a D&C a couple weeks ago to take care of some polyps. Today I met with my Doc because he wanted me to come in to discuss the pathology report and he told me I have mullerian adenosarcoma. He scheduled an appointment with an oncologist for next Wednesday to discuss options, prognosis, etc. I'm 37 years old and I'm…
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Why PET scans?
I am due for my first mid-treatment CT scan on April 10. Yesterday, I told my doctor I wanted a PET/CT. He said it was not medically necessary from his standpoint. But he said if I was sure my insurance did not place limits on lifetime PETs he would code the script to get the PET/CT OK'd. In my heart, I know the reason I…
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Biopsy results came in today
Results of second biopsy came in. They say still complex hyperplasia but they didn't find cancer from the D&C samples. I am glad. But feel sad that others here hear worse news. I keep you ladies in my thought and heart and prayers, especially late at night when insomnia kicks in. I will have a full hysterectomy in the…
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Metformin - My 78 year old mother's journey
In the beginning of January 2016 my mother was diagnosed with high grade Serous, endometrial uterine cancer. No metastases were found by scans at this time. Surgery for a full Hysterectomy was scheduled for the middle of March 2016. A bone and CT scan just prior to surgery, revealed the cancer had metastasized to 2…
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Biopsy result wait time
I am aware that biopsy results take time. Some are quick but mine seem to take a long time. I know my first round went to three labs and then came back asking for more samples. I'm in that second round of waiting again, they have been sent out from local lab to somewhere else. It seems to me the longer they take the worse…
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Thinking ahead for 2d opinion at Fox Chase
On April 10 I will have imaging at the halfway point of my treatment for recurrent endometrial adenocarcinoma. I have not been able to maintain the Carboplatin/Taxol regimen for various reasons. I've had two Carboplatin and three Taxol so far. I hope to convince my oncologist to do a PET/CT instead of CT alone. I am…
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Scan? Irm? Pet scan?
Hello Is your scan and irm true? I did a lot of scan and irm with good results but during surgery the surgeon found the disease spread
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Information on Uterine/Endometrial Cancer
I was trying to do some reasearch on USPC recurrenece before I meet with my GNY ONCO today and found that a research library that I use for tax also has a research library for medical. I subscribed as a patient for 7 days and have found some great information. Nothing earth shattering or really all that new but lots of…
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and now...enter breast cancer
On my last CT, the eagle eyes at Roswell in Buffalo, NY, discovered that "something looked different in my left breast". It has been known that I have PET scan activity "in the mammary chain from metastisized uterine cancer". But low and behold, this small mass was found right next to a uterine metz mass turns out to be a…
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New to the Network --- Have a Question
Hi lovely ladies. New to the boards. Brief history on me: I was diagnosed with Stage 3A grade 3 uterine cancer last May. End of Feb (week after my 42nd birthday), I started bleeding profusely. 26 clothes changes in 3 days. I basically would bleed out every time I stood up. Insurance finally kicked in on March 1st and after…
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Hello. Just diagnosed with UPSC.
Hello, I am 62 and was just diagnosed with UPSC last week. This Thursday I am scheduled to have a PET scan to determine if the cancer has spread outside my uterus and what stage the cancer is in. Then the following day (3/17/17) I have my 2nd meeting with the oncologist to discuss the results of the scan & possibly get a…
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Staging uterine Carcinoma
Staging uterine carcinoma - UpToDate 3/17/17, 10:06 AM https://www.uptodate.com/contents/image/print?imageKey=ONC/51307&topicKey=ONC/16721&source=see_link Page 1 of 2 Official reprint from UpToDate www.uptodate.com ©2017 UpToDate ® ® Staging uterine carcinoma* (TNM and International Federation of Gynecology and Obstetrics…
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Fertility-preserving options for endometrial adenocarcinoma in 36 year old
I was diagnosed this week with endometrial adenocarcinoma, figo grade 1, arising in a background of endometrial intraepithelial neoplasia (atypical hyperplasia) from D&C. I am 36 and got married 6 months ago and have been trying to get pregnant; neither of us have ever had children and I've never been pregnant. My BMI is…
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Post Whole Body Hyperthermia
Thought I'd post an update. The WBH went well. Basically I stripped down and climbed into a unit that looked something like a cross between a waterbed and a tanning booth. At first it felt pleasantly warm as they hooked up the various sensors, but the longer I lay there, the happier I was to be put out. And I went out…
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Adjuvant treatment of high-risk endometrial cancers
Adjuvant treatment of high-risk endometrial cancers - UpToDate 3/17/17, 10:04 AM https://www.uptodate.com/contents/adjuvant-treatment-of-high-risk-endometrial-cancers/print?source=see_link Page 1 of 12 Official reprint from UpToDate www.uptodate.com ©2017 UpToDate The content on the UpToDate website is not intended nor…
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Approach to Adjuvant Treatment of Endometrial Cancer
Approach to adjuvant treatment of endometrial cancer - UpToDate 3/17/17, 10:03 AM https://www.uptodate.com/contents/approach-to-adjuvant-treatment-of-endometrial-cancer/print?source=see_link Page 1 of 11 Official reprint from UpToDate www.uptodate.com ©2017 UpToDate The content on the UpToDate website is not intended nor…
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Scanner perfect... Miracle? 16/03 news about irm
Hi, I have adénocarcinoma endometrial with metastasis in abdomen.i had 3 rounds of carboplatine and taxotere and i had à scan. Scan is perfect. No evidence of metastasis in the abdomen. I am very surprise. My doctor give me a irm to confirm. Did anyone here have metastases that disappeared with chemotherapy?( Just 3…
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Mom diagnosed with UPSC
Hello everyone, I have been a passive follower of this forum for about 3 months now. I have decided to post about my mother's fight against the disease. A little bit about myself and my family. I was born and raised in India and I am currently in the US doing my Pediatrics residency training. I will be graduating this year…