I'm new here, saying hello

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I will preface this with the statement that I am not officially diagnosed. But I wanted to share my story, and ask for support. I am a week out from turning 49. I have regular cycles every 28days give or take a few days. I don't have any of the high risk factors, not overweight, not post menopause, no smoking, no drug therapy treatments. About 6 months ago my bleeding increased in intensity. I was fed up with it. I get horrible hemiplegic migraines, and estrogen swings are a big trigger. So my friend and family said, just go get an ablation or hysterectomy. I went to my private MD to get a referral. What I expected was a 10 min appointment, Grew. She started asking questions and my answers were red flags for here. Heavy bleeding, clots, gushing spillover on the bathroom floor, pain sometimes causing me to pass out.chills, sweats, night time sweats, bladder, bowel changes.  Clear fluid discharge. And bleeding after intercourse. My doctor has been treating me for three years. I guess I thought all women experienced what I did. For three years my Ferritin stores have been so low, 20's. I was so proud to finally get to 32! Chronic fatigue has been on my charts for years. 

My doctor sent me right over for an ultrasound. Results, a cyst or something on my back top outer wall of uterus, lots of white lines, (tech. Mentioned andeomyosis) and couldn't find either ovary??? Um, did they go on vacation? and a thickened endometrial lining. A week later I see a new Gyno. She made out three different things going on with me. She asked for permission to do an internal check and a pipeline biopsy. I cried at the pain in the manual hand exam. The pipeline biopsy literally had me in birth pain screams and tears. I blead in bed and cramped for 3 days bed ridden. It took took weeks for results.

They used two labs. There was complex hyperplasia and cribiform patterned glands in the scant tissue samples. They want a D and C done before they label it cancerous. At my follow up appointment my doctor explained more. I had cervical stenosis and she could barely dialate me to 3. She was not able to get fully to the top of my uterus where it hurt intensely. I now am in the waiting 2 weeks for the outpatient D and C. This will be on the 13th of March. The wait is so hard. She is requesting an ultrasound tech to guide the process. I asked if she could just take the uterus out and be done with it. I've had troubles since the day I started at 13 years. She looked at me seriously and said most likely a Gyno oncologist would be the next step after biopsey comes back.  My birthday next week, and the procedure. I want to move forward. I am dreading my period which should start any day now. Thanks for listening, I don't feel so alone.

Rubyshoes...

 

 

 

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Comments

  • TeddyandBears_Mom
    TeddyandBears_Mom Member Posts: 1,814 Member
    edited March 2017 #2
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    Rubyshoes, Welcome to our

    Rubyshoes, Welcome to our board. The waiting is the hardest part and I hope you get your results back quickly after your D&C. It is good that you will be referred to a GYN Oncologist if surgery is needed. They have at least 4 more years of training if indeed you have cancer. This is a very scary process. Just know that you are not alone. There are many of us on this board here to support you and answer any questions to the best of our ability.

    Please come back and let us know how you are doing. Or, just come back to vent if needed.

    Love and Hugs,

    Cindi

  • cindy0519
    cindy0519 Member Posts: 173
    edited March 2017 #3
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    Welcome

    Welcome to the place nobody want to place nobody wants to have to be.  Everyone here is amazling supportive and the information shared will of great interest and even comfort.  Waiting is indeed the worst part and is emotionally draining but you will make it through it.  Lots of support here to help ease your mind, calm your anxieity, and answer your questions (when possible). 

  • Lou Ann M
    Lou Ann M Member Posts: 996 Member
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    Welcome

    to the club no one wants to belong to.  You definitely have found a good place.  The ladies here re very knowledgeable, considerat, and compassionate.  Yes, waiting is one of the hardest parts of this.  Hopefully your wait will end up being good news,  if not, treatment is out there and it is getting better all the time.  As hard as it is don't get to consumed with worry.  Hugs and prayers, Lou Ann

  • Kvdyson
    Kvdyson Member Posts: 790 Member
    edited March 2017 #5
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    Rubyshoes, I'm so sorry to

    Rubyshoes, I'm so sorry to read your story. Mine was very similar. The D&C should give your medical team the information they need to help you move forward. I know that it's easy for me to say but please try not to stress too much about what may come in the future. Many things besides cancer cause those symptoms. If it does end up being cancer, know that you are not alone and that we will do our best to help support you. Hang in there! Kim 

  • Soup52
    Soup52 Member Posts: 908 Member
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    Welcome Ruby. I'm sorry you

    Welcome Ruby. I'm sorry you are going through this and yes waiting is one of the hardest things we go through. I had some similarities to you. My gynecologist couldnt even get a go sample in the office biopsy. The dand c was done and gave me my initial cancer diagnosis. I did have to wait two weeks for results. Maybe yours will come sooner, but know where I live a two week wait is not unusual. Keep us posted. We are all here for you. You are in my prayers!

  • Rubyshoes
    Rubyshoes Member Posts: 19
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    Thanks everyone. I have peace

    Thanks everyone. I have peace. Just feel like wasted time, in all the waiting.

  • CheeseQueen57
    CheeseQueen57 Member Posts: 933 Member
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    Agree

    I agree Ruby!  I don't know why they bother to do the endometrial biopsy. It hurts like hell and most times they can't get enough tissue to tell anything. I'm sure it's some man's idea of standard protocol. Good luck babe!

  • janaes
    janaes Member Posts: 799 Member
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    Rubyshoes, Im so glad you

    Rubyshoes, Im so glad you came to our board.  I am a bit younger than you at 44.  It stinks that you have to deal with this with your birthday comming up.  I hope you can still find some way to enjoy your birthday.  My symptoms did end up being cancer and they wanted me to start chemo right before my birthday.  I told them i wanted to wait a few days so i could enjoy my birthday first.  Im glad you are getting all this stuff checked out for you and I hope it turns out not to be cancer,  but know we are here for you if it is.  The waiting is so hard but sounds like you are doing it so far.  Way to go!!! 

    Janae

  • Rubyshoes
    Rubyshoes Member Posts: 19
    edited March 2017 #10
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    Thanks

    Yeah m, starting my period today and hopefully in  5 days the D&C will be over and done. I wonder if this will be one of my final periods before some intervention takes place. Maybe I will make a uterus coffee cake and serve bloody Mary drinks on my Birthday to celebrate.

     

     

  • ConnieSW
    ConnieSW Member Posts: 1,681 Member
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    Ok, Ruby

    Laughter is healing medicine.  Thanks for today's dose.

  • Rubyshoes
    Rubyshoes Member Posts: 19
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    D&C was yesterday at noon.I

    D&C was yesterday at noon.I celebrate my birthday tomorrow. This waiting is so stupid. But that is all we can do, wait and eat cake. Ill be lifting my coffee mug in prayer to ya'll...May your day have rays of hope.

  • Kestrel
    Kestrel Member Posts: 4
    edited March 2017 #13
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    Rubyshoes said:

    D&C was yesterday at noon.I

    D&C was yesterday at noon.I celebrate my birthday tomorrow. This waiting is so stupid. But that is all we can do, wait and eat cake. Ill be lifting my coffee mug in prayer to ya'll...May your day have rays of hope.

    Good luck to you Rubyshoes.

    Good luck to you Rubyshoes.  Wishing you the best!

  • Nellasing
    Nellasing Member Posts: 528 Member
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    Rubyshoes....

    waiting is hard but as someone pointed out to me, time passes anyway, we might as well pack our days full of goodness and life as we wait, plan etc. 

    Happy Happy Birthday to you- celebrate your life all that has come before and all that will come after this moment in time. 

    We all need to remember to seek out and celebrate all the great things that come into our lives every day.  We don't passively let life happen, we participate and MAKE LIFE GREAT. 

    The other day I ran across something that resonated with me- not just a cancer survivor but a cancer thriver!  Live your life daily and thrive (((HUGS)))

  • Kvdyson
    Kvdyson Member Posts: 790 Member
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    Rubyshoes said:

    D&C was yesterday at noon.I

    D&C was yesterday at noon.I celebrate my birthday tomorrow. This waiting is so stupid. But that is all we can do, wait and eat cake. Ill be lifting my coffee mug in prayer to ya'll...May your day have rays of hope.

    Happy birthday, Rubyshoes. I

    Happy birthday, Rubyshoes. I hope you get to eat all the cake you like today. You deserve it!