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Broken machine!!!!!!
GRRR. Up early drive to cancer center for radiation. Took the horrible little pill for anxiety an hour before treatment. Went to the changing room to find two other ladies already waiting. The machine was broken. Soon a theripist came in to tell us a gain that the machine wasn't working. They couldn't get the water that…
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Daylady - More news...
Hi Ladies, well while I was in Germany Dr. Herzog pushed and pushed to get Kaiser to do tumor testing that I had not been able to convince anyone to do. Yesterday I got the results and found out that I tested positive for 3 of the 4 markers (Progesterone, Estrogen, and HER2). This basically triples my treatment options. In…
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Checkin in and a tiny vent
Hey folks, I think the last time I posted I was pretty distraught. My first cisplatin infusion was a demoralizing experience. Combined with daily radiation, I was pretty fed up with life. The second infusion of cisplatin was easier. I don't know if it's because I was vigilant about taking my meds around the clock rather…
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Question....
I am over six years out of all treatment. With Taxol/Carbo I lost all my hair. Grew back to a respectable length in six months. Flash forward five years, Im losing all my hair again. Anyone ever hear of this? What do I do? Dr.s can't find a thing wrong with me...no "pattern baldness" on either side of my families. Thanks,…
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Positive pelvic washing
I am a 63 year old woman who had sudden vaginal bleeding after going through menopause over 20 years ago. I had a complete hysterectomy (ovaries, fallopian tubes, cervix) earlier this month for endometrium cancer (adenocarcinoma). The doctor said the pathology report was "good", ie., stage 1, grade 1, myometrial invasion <…
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How many treatment?
I am worried about how much chemotherapy treatment can receive for endometrial cancer? I know that we can user cisplatine, doxo, endoxan, taxol and carboplatine. But after.... ???? When cancer is metastasized, we can not receive these treatments all the time? There is no alternative?
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Three years post treatment from UPSC
I have somewhat moved away from checking this site as much as I used to. Yesterday I had my six month checkup marking three years from the end of my treatment. I was diagnosed in June 2013 and after surgery staged at a Stage 3, 3B or C I'm not sure which. I had eighteen chemos and 4 internal radiation treatments. The…
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Radiation on my neck
i saw the radiaction oncologist today and will be starting radiation on Monday. They did both the consultation and planning session both today so we wouldn't have to drive back another time this week. Looks like it will be for 15 times. They made me a mask to wear to keep head in one place and did a CT scan so they can…
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Sad News of Passing of Maggie (MacCallum) Known as Maggie Mac
Hi Ladies: I have some very sad news to mention to you ladies on the uterine cancer board. Maggie Mac as she is known her last name is MacCallum passed away from UPSC Stage 4 on Sunday, January 15th. She did write a number of posts on the uterine board under Maggie Mac. I have been in contact with her by telephone only…
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Naturopathic Doctor advice needed
Hello all, my mom was diagnosed stage 3C2 in September and she just finished her 5/6 chemo sessions, internal radiation to come in February. As we near the end of her treatment, I really want to stay 2 steps ahead of this cancer. We've been good about her diet and exercise but I'd like to get in touch with a naturopathic…
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Hormone therapy update
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Newbie questions
Hi all, I'm 56 and had an endometrial biopsy on Thursday due to 6mm endometrium, nodular lesion (17mm x 20mm x 9mm) and postmenopausal bleeding (1 week that seemed like a normal period about a month ago after 2.5 years of no bleeding). I believe that my gyncologist used the Pipelle (suction) tool, but was so nervous that I…
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Sad News of Passing of Maggie (MacCallum) Known as Maggie Mac
Hi Ladies: I have some very sad news to mention to you ladies on the uterine cancer board. Maggie Mac as she is known her last name is MacCallum passed away from UPSC Stage 4 on Sunday, January 15th. She did write a number of posts on the uterine board under Maggie Mac. I have been in contact with her by telephone only…
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Liver Issues with Paclitaxel (Taxol)?
My second chemo session was canceled last week after my blood work showed elevated liver function values (AST and ALT). Blood test for hepatitis is negative and ultrasound of the liver is negative for mestastasis (in chemo for metastasis to lungs after 5 years in remission with high-dose progesterone). This week's blood…
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Fitbit challange
hi everyone, i was reading the weight gain post and several ladies were saying they use Fitbit. I also am using Fitbit program with some other ladies that are going through uterine cancer post surgery or treatment. If you want to join us and motive each other add your email so we can add each other. my email is…
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Re: Cancer Blood Level still lower
Hi Ladies: I wanted to update you on my appt today with my oncologist regarding the reoccurrence of UPSC I have been diagnosed with since October of 2016. My latest CA 125 number is now down to 49. It started at 134 so the number is down over 85 points! It was 63 in December. This is a significant drop and really good news…
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Help
Who has an endometrial adenocarcinoma with metastasis in peritoneum (peritoneal)? Can you help me?
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Diagnosed with MMMT - uterine carcinosarcoma... NEED HELP WITH TREATMENT OPTIONS!
My mom was recently diagnosed with a malignant mixed mellurian tumor (MMMT; carcinosarcoma) in the uterine wall. It was found when the tumor was removed after a laparoscopic hysterectomy. It was determined to be a low stage (because it was confined) but a high grade (because of the size). She underwent radiation every day…
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What is a proper UPSC CT scan schedule?
I was diagnosed with UPSC in Feb. 2011. After surgery, I was staged as stage 1B grade 2/3 (on the new FIGO charts stage 1A grade 2/3). I just finished 6 rounds of chemo and I am currently doing brachytherapy radiation. I have not had a CT since I was orginally diagnosed. I thought that I would have a CT scan after…
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Sad news
This tuesday my mum passed away after fighting for 3 years with cancer. Unfortunately she suffered a lot in the last few months. She was an amazing women, mother, wife and grandmother. She spent so much time praying to God that eventhough she suffered from cancer but please do not let any more people suffer! I hope she is…
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Newly Diagnosed as Stage 4
Severe abdominal pain sent me to emergency room on 11/19/16. CT showed some " spots" on liver. Biopsy indicated cancer and was told it was ovarin and had sigmoid colon perforation. Had radical hysterehysterectomy and bowel resection on 12/13/16. After surgery was told cancer was actually uterine. Sent home and appointment…
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Ugh.
My ca-125 came back stable, but elevated. I had my fourth dose of Doxil today. My doctor was surprised, but not alarmed. I have been battling a minor cold, I have bad sinuses too. I have no baseline number. i will get a Ct scan soon. How long until the results? What chemo is next? Is stable still "good"?
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Uterine Carcinosarcoma Survivors
Hi there, I decided to make a new thread as the old one was getting longer. My name is Ashleig I talked to several other women out there who had the same thing my mother was diagnosed and I just wanted to give a little update. My mother's surgery was in November and I had said it would be December and was terrified because…
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Just blowin' smoke?
I think I hinted (or maybe more than hinted) at my lack of trust in the medical community, with a long history of reasons. Question: Are my docs just blowing smoke? I had my first appointment yesterday with the onc. The way everything went and the things that were said, you'd think I was just having some gastro issues and…
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TinyHouse update
I wanted to start a thread for myself so those who found me in the "constipation" discussion could find me. Don't want my life to be categorized under constipation! ;) . My second Chemo round was last Tuesday 1/10/17. Good news and bad news. Bad news first-I am apparently allergic to Pepcid. The only time I have been…
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Great biopsy results
Ladies, Just wanted to let you know that I got my biopsy results and everything is normal. "Inactive endometrium" whatever that means, was the result. Bottom line: No cancer and I couldn't be happier. We are just taking a wait and see position as to any new bleeding. If I am still having issues, they will do the…
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New Immunotherapy Article
http://blog.dana-farber.org/insight/2017/01/experts-forecast-cancer-research-and-treatment-advances-in-2017/
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BC BRADY
Hello Where is BC BRADY?
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Adénocarcinome endometriale stage4 with nodules in peritoneum
Hello My name is sandrine. i am french. i am 40 I have a adénocarcinoma endometrial stage4 because i have tumor on peritoneum. I had surgery but failed because the tumor was too large. So I had chemotherapy to decrease the lesions.( cisplatine, adriamycine and endoxan) It's very difficult but after 6 cures, The surgeon…
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synchronous cancers
I had surgery last July for two cancers and they were a very rare pair. I had squamous cell cervical and endometrial(uterine adenocarcinoma) at the same time. Pathology kept thinking they made a mistake because they did so many biopsies prior to rushing me into surgery for what they thought was the "real" cancer.…