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Radiation doctor really cares.
Here is my update. Ever since I ended treatments I have been having off and on thoughts about my cancer comming back. Some days I would feel calm and at peace other days I would worry at times. I would think about changing doctors because none of my doctors would suggest a cat scan. I never changed and kepped praying to…
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caught a cold
Hi, Its been a while since i have nneded to post for me. Ive been getting on with my life. Slowly but surely finding recovery. I even had forgotten that my pot needed flused every so often. Thanks to you guys i remembered to do it last week. Things werent perfect but i felt i was having a lot of good days. I caught a cold…
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Christmas and Cancer
Ladies, I know many of you use integrative medicine in your treatment protocol. I thought this would be interesting to everyone if you are not aware of it. As most of us know, three wise men from the east travelled to visit the baby Jesus and presented three gifts to honor his birth. The gifts were gold, frankincense and…
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Getting Involved with Research Advocacy (GYN) Chat
Posting in case anyone is interested in participating. I am going to try to join... Join patient advocates, survivors, gyn/onc’s and more for GYN cancer chat #gyncsm Wed 12/14 9pmET http://buff.ly/2hd2g7V pic.twitter.com/OYyXBVxlwT
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vaginal mucositis Radiation postponed
Just me again, I was to complete my final brachy therapy which by the way has been the easiest process during this journey and was excited to put that behind me with only 3 chemos left (Maybe). Well, the doc was preparing me when she took a look see first and said I had vaginal mucosa on the one side of my vagina and…
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December is Chemoversary Month
Happy chemoversary to TeddyandBearsMom, EZLiving66 and any other ladies who have reason to celebrate this December. No matter what happens in the future, I am grateful for all of the experiences this past year has brought. I feel lucky and blessed and hope that next year at this time, we can all celebrate another 365 days…
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I wonder if anybody else is doing this?
This past year I've been going through my "things" and giving them away. This summer, I never even got out my summer clothes. I bought two pair of peddle pushers in a couple of sizes smaller and had about a dozen tops and I just wore them over and over. I cleaned out my christmas decorations last christmas and gave the…
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Surgery on lung
Hello Ladies, My surgery went fine,my thoracic surgeons, Dr. Baker/Dr.Levy had to remove 1/2 my middle lobe on my right side. It is highly suspicious for UPSC. I will know more in about week.Please pray for recovery and guidance of the doctor and treatment for it. Any suggestions are welcomed....
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Recurrence in the liver
Hi, I have not posted that often here but often check in and read a lot as this board is a wonderful source of encouragement and information. So in about a month it will be one year since the end of my treatment for stage IVB grade 3 USPC. Saw my gyn/oncologist for a three month check up at the beginning of November. The…
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Neuroendocrine Carcinoma - Help!
Hello, I had my post-op today and it wasn't pretty, but could have been worse. My cancer is mixed: 60% 'garden variety' endometrial cancer, and 40% neuroendocrine. The later is super worrisome. Per the onc, "we really don't know much about what works with this because we see it so infrequently. We treat it with cisplatin…
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An immunotherapy cautionary tale
I thought this was an interesting article, since immunotherapy is the "new" thing. It brings up many points that we should be asking our doctors about when immunotherapy is recommended. http://www.msn.com/en-us/news/technology/immune-system-unleashed-by-cancer-therapies-can-attack-organs/ar-AAl72FJ?li=BBnbcA1
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uterine papillary serous carcinoma
i joined the group a bit ago. just wanted to kind of say hi in a new thread. my mom was diagnosed in 8/ 2012 with uterine papillary serous carcinoma. very surreal, and ~even though we are hopeful, still scary. 1st time around she had a total hysterectomy 6 rounds of chemo, and radiation. she is currently in recurrance. has…
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Another newbie
Hi Everyone, I had a full hysterectomy on Oct. 31 after Biospy showed cancer in the uterus. During surgery, they also found cancer on one of my ovarise. My doctor stated she got out all the cancer she could see, but need to go through chemo to make sure it is not in any cells. She also stated the cancer i had was very…
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Newbie waiting on results
I am so glad I found this forum. By way of background, I am a 55 (soon to be 56) year old mom of 3 that has been up and down in the menopausal department. My fsh has risen from 46 two years ago to 50 last year to 55 just this past November. I have a history of fibroids big time (and about 10 years ago had to had some…
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Newbie - lots of questions
I'm pretty wordy when typing - so I could type for an hour or more and go into great detail on so many things - but I'll save you from that and try to summarize. Had biopsy on 11/30. Dr. called on 12/2 to say it was cancer and would refer me to gyn/oncologist for CT scan and treatment. Gyn/onc called on 12/5 to schedule…
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Update after failed Carbo/Taxol
Hello Ladies, I dont know if any of you remember reading my posts about my sister. In a nutshell....a year ago she found out she had Uterine cancer. (she's 46). They did a total hysterectomy, removed some nodes for testing and did a wash. They staged her at 1A because it had not gone more than 30% into the uterine wall.…
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WBC Count Low - Chemo Delayed
On my 1st chemo 3 weeks ago my WBC count was good so my dr did not give me the Neulasta Patch, however yesterday it was low so she is delaying chemo for 1 week and then also giving me the Neulasta Patch before I go home then. I asked her why I couldn't still get the chemo and the patch yesterday, she said I will be exposed…
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Positive News
This board has been a lifeline for me - which doesn't stop me from flipping out every second. My oncologist has the personality of a rock and I haven't gotten as much infomation out of her, but did have a long talk today with her fellow, which some of you may find useful. She told me that (1) they rarely-to-never see lung…
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Maybe a recurrence
Hi, Has anyone else in this group had a recurrence to the lungs? My CA 125 has been going up for the last 4 months and has now doubled from 49 to 99 and they found 4 nodules in both lungs on my last cat scan the end of Sept. I see the Dr. on Tues but I want to know if it is my lungs do I still keep my wonderful Dr. or do I…
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Re: Second Update on Reoccurrence
Hi Ladies: I saw my oncologist this morning. Rather than trying chemo right now, my oncologist recommended he wants me to take medication called Tamoxifen. It is also used to help with breast cancer as well and is used to treat uterine or endometrial cancer which I have. Anyway, he said the medication works for 1 out of 3…
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Chemo Port Questions
Are there any chemo ports that do not have any acivity restrictions after being put in or that I can recover from in a weekend? If I miss any more work or end up on limited duty, I'll lose my job and medical insurance... Thanx!
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Bleeding
My ill uterus has not been removed. I have light bleeding a little pink. Who knows that?
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Chemo and Blood Clot
Anyone here ever get a blood clot during chemo. I did and I'm not even finished with round 2. I had no idea blood clots could be a side affect. The ironic thing is I went ER for intestinal issues. Kudos to the ER Dr. Anyway, I now need 2 injections of blood thinners a day through chemo.
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new and waiting. anxiety off the charts
Last may I began having vaginal itching and had slight bleeding. Went to nurse practitioner. Had abrasions and cervicitis due to vaginal atrophy. I'm 58 btw. Postmenopausal 2 years. Performed tvu but due to a very large fibroid that I've had for 20+ years (measured 14 x 14 x 11 on tvu) it was impossible to see lining…
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taking dexamethasone steroid before chemo (carbo/taxol)?
Hello I was wondering if everyone/anyone who has had carbo/taxol was required to take dexamethasone (steroid) before each treatment? I had a reaction to the steroid when they gave it to me with the cisplatin, (they said it was for my chronic nauseau) and my heart almost exploded out of my chest...I refused to take it…
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Immunotherapy
I was just put on the megace and tamoxifen regimen. In one week, the intense pain in my pelvis and radiating out to my legs, affecting my walking and sleeping, is all but gone. I am really surprised, and super glad I went to Boston for that second opinion. He saved me from repeating the taxol carboplatin that would have…
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too much vitimin D for a long time
I went and saw my family doctor on wed. It was a follow up appointment about my vitiman D defitiency. She showed me my new levels which i had done a few days earlier. The levels had gone up. Not way up but i was glad they went up. I was taking 5000 ui which i though i would take until my levels were up. I asked her how…
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Lymph Nodes and Chemo?
Hello good friends, I'm having surgery in 6 days and had my pre-op today. As usual, my oncologist failed to develop different scenarios ("we won't know until we get in there"), so I don't know what to expect. I'm having a total hyster (ovaries et al), pelvic & para-aortic lymphadenopathy and possible omentecomy. I have…
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Pain, abdominal ache, bloating etc. etc.
Hi all, I need to pick your brains. I have been having pain like a period coming on- that's the best I can describe it. My abdomen is tender aching and distended, it feels like I have overies that are aching, low back ache and unexplained weight gain. This is all very alarming since I have nothing in there and that is…
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Happy Thanksgiving and a little blessing to share...
Hello Ladies! First Happy Thanksgiving!! I am currently surrounded by my three married kids and seven grandchildren and it is chaos central, but truly wonderful. Since I last checked in with the dire prognosis from my gyn/onc, my naturopathic oncologist has weighed in ("He is not a psychic! Those are just statistics!! You…