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Thankfully Still NED
I went in this afternoon for my quarterly checkup and thankfully, all is still clear. These quarterly exams are sure nerve wracking but necessary. I asked about another scan since it's been a year since my last chemo but my PA said unless there's some kind of symptom, they just don't do them routinely anymore. So....as…
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Happy New Year
Wish for the new year, that the powers that be find a cure for this disease and that all the ladies get to be NED forever. Trish
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I do have some "temporary" good news from my oncologist visit on 12/27
Hi Ladies: I wanted to update you ladies on my oncologist visit on Tuesday. My CA level went down to 63 down from 134 in Sept. I was "shocked" the level came down so much. I was on Tamoxifen for 8 days so I am wondering if it has something to do with my level. I had to discontinue this drug because it caused burning in my…
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Thankful to find you!
I have searched off and on for over 3 years for a group of women like myself who are experiencing serous carcinoma . every board i saw was from 2011, 2013 that I gave up until yesterday when a dear friend suggested i try again,and here you all are! I was diagnosed in May, 2013 and have been under some treatment ever since-…
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my journey
Hello there. I have been following this forum for a few months now, and finally managed to set up an account (due to internet safety controls at work, confirmation emails kept getting rejected). I have learned so much from all your postings, and I am grateful for the support and hope it offers those that are sharing in…
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Change in treatment plan carcinosarcoma MMMT
Interesting development here. While external radiation to follow chemo had been discussed since my staging (3c2) after surgery, my doctors are now re-evaluating that. This morning I talked with the radiation oncologist I had consulted with back in October. Right now, he says that the most recent studies and research do not…
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Wondering....
I know she is not on the Uterine board, but she posted a lot. I knew Wholfmeister went into Hospice. Does anyone know how she is? I missed a lot while having my own "mini-meltdown". I saw that she last posted on Nov. 17th. Thanks all, Debrajo
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Cancer really sucks.
I really hate this disease. Dec 11, a good friend at work was in the hospital, some posted that she had Pneumonia. Dec 13, I see her at work again and I recognized the hair cut. When we talked she explained that it was not pneumonia but stage 4 Lung Cancer. She had already started treatment and had her first chemo, she…
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Carcinose péritonéale
Hello I am looking to talk with women who have endometrial cancer that is spread to the peritoneum. (abdomen) I have peritoneal carcinosis, with nodules on the intestines and on the diaphragm. I hope the chemo will help me.
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Playing the waiting game
Labs, Doctor's appointmen, and Keytruda infusion yesterday. Mostly everything went well. My oncologist went over the CT scan in detail showing me the pictures. Not much different from what my GP had to say last week, Only the tumor in my neck is growing. He says that happens with immunotherapy, where most will stop growing…
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Last chemo - not done yet - some good news though
I had what's supposed to be my last chemo treatment on Thursday. (I still feel like putting "last" in quotation marks because I can't believe it really will be the last.) It went well and I got to ring the bell. The nurses at my infusion center kind of made a fuss over me and gave me a teddy bear as a gift. The less good…
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lesions
Has anyone had a breakout of lesions as a recurrence? My mom has some lesions on her ankle,arms and back and it's making me afraid. I'm going to call her doctor to make sure it has nothing to do with her UPSC.
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Re: Meeting with Oncologist on Tuesday, December 27th
Hi Ladies: I wanted to update all of you ladies on the Tamoxifen. I stopped taking Tamoxifen on Sunday, December 11th as I was on this medicine for 8 days. It caused BURNING pain in my eyes and pains in my head so I stopped taking it. I immediately called my oncologist on Monday morning, December 12th and mentioned this to…
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update for a bronscosopy
Hi, now that they found breast cancer in the lymph node above my ear I have to get a advanced diagnostic broncosopy on Friday. It is called Super D. Has anyone had this done? It is done in 3 D and there is a person there that can tell what kind of cancer it is while I am still on the table.. They test it at the time I am…
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Todays another day
In march I was diagnosed with uterine cancer. Grade 1 stage 1a. Had a di-vinci total hysto with no followup care require other than to see my normal gyno every 6 months for first year. My first 6 month check appeared to have been well and good (no pap smear or anything, she just took a look inside to make sure I was healed…
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Adénocarcinome endometriale stage4
Hello everyone I am really allergic to taxol then I will give taxotere. Does anyone know the taxotere? For my history with cancer I have an endometrial adenocarcinoma. I have Stage 4 because the cancer is spread to my abdomen and diaphragme. The surgery is not possible in totaly and i am very afraid. Scuse for my english i…
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Fatigue
I had my 5th round of Carbo/Taxol about a week ago, the 2nd chemo since finishing radiation (28 external & 3 brachy). I am finally dealing with the fatigue that everyone has warned me about since beginning chemo. I went out on Saturday but since then have been more and more tired, to the point that I get winded walking…
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Merry Christmas! Happy Holidays!
To All of my wonderful partners on this board...... MERRY CHRISTMAS! I hope we all find 2017 will bring us much happiness, joy and a sense of peace. Thanks to everyone for the support, love, guidance, friendship and understanding that only we can provide to each other. I'm grateful for each of you. Love and Hugs, Cindi
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Update from Lou Ann
December 3rd was my 8th infusion of Keytruda. That is still going well with almost no side effects. I still have some side effects left over from the chemo,. My Neuropathy is still there and bothers me a lot at night. My oncologist said that he does not believe that it will get better because of all the Taxol that I have…
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Allergie reaction
Who has an allergic reaction to taxol? My first chemo with taxol I made uneasiness and fall of tension
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6 Month CT Scan Results
Went for my first 6 month CT scan after frontline yesterday and got the dreaded call this morning - there is a 4 mm mass in my chest. Going for a PET scan next Wednesday, 12/14 to find out more. This is the pits but there is nothing I can do about it at this moment so I'll do my best to let my doctor worry about it while I…
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Daylady headed to Germany
Hi Ladies! I apologize for not checking in more often, but I wanted to at least check in and update you as I don't think I have seen this approach on the Board before. After my CT Scan in Aug. it was discovered I had a small spot on my liver. My oncologist wanted to start Topotecan but after two cycles it was clear it was…
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Second Opinions Are Critical - Even on a Pathology Report
A week ago today, I met with my oncologist to review the path report from my November 28 radical hysterectomy. At that time I was told I had mixed Grade 3 undifferentiated and neuroendocrine cancers. I posted about the neuroendocrine part the same day but, like me, virtually no one had heard about it as it only occurs in…
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Genetic Testing - Repeated???
Has anyone had genetic testing repeated? I had BRCA1 & 2 testing done when I was diagnosed with Breast Cancer in June 2015. They also did an expanded panel for gene mutations that they really don't know much about yet. All of this came back clear. When I was diagnosed with UPSC in Sept 2014 I also had a test performed for…
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Papillary serous adenocarcinoma (HELP! I'm new)
hello everybody! after hours of roaming the internet trying to figure out what the hell to do about this, I actually found you all to be the best reading I've come across. my mother has a recurrence of this awful cancer after about 18 months post hysterectomy, chemo & radiatioN. she's not convinced that chemo is the best…
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Radiation doctor really cares.
Here is my update. Ever since I ended treatments I have been having off and on thoughts about my cancer comming back. Some days I would feel calm and at peace other days I would worry at times. I would think about changing doctors because none of my doctors would suggest a cat scan. I never changed and kepped praying to…
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caught a cold
Hi, Its been a while since i have nneded to post for me. Ive been getting on with my life. Slowly but surely finding recovery. I even had forgotten that my pot needed flused every so often. Thanks to you guys i remembered to do it last week. Things werent perfect but i felt i was having a lot of good days. I caught a cold…
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Christmas and Cancer
Ladies, I know many of you use integrative medicine in your treatment protocol. I thought this would be interesting to everyone if you are not aware of it. As most of us know, three wise men from the east travelled to visit the baby Jesus and presented three gifts to honor his birth. The gifts were gold, frankincense and…
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Getting Involved with Research Advocacy (GYN) Chat
Posting in case anyone is interested in participating. I am going to try to join... Join patient advocates, survivors, gyn/onc’s and more for GYN cancer chat #gyncsm Wed 12/14 9pmET http://buff.ly/2hd2g7V pic.twitter.com/OYyXBVxlwT
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vaginal mucositis Radiation postponed
Just me again, I was to complete my final brachy therapy which by the way has been the easiest process during this journey and was excited to put that behind me with only 3 chemos left (Maybe). Well, the doc was preparing me when she took a look see first and said I had vaginal mucosa on the one side of my vagina and…