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Uterine/Endometrial Cancer

7 Years NED UPSC
Annual visit went well. Another year cancer free. God is good
Mass Found Needing Immediate Surgery (6.5 yr. survivor)
I did a hemoccult test a few weeks ago, and my doctor's office called me to tell me that 1 of the 3 smears I'd done showed bleeding. They set me up for a colonoscopy and an endoscopy a week ago Wed. No cancer was found inside the areas the gastroenterologist checked. However, he told me he'd found something he'd never seen…
Genomic Testing Results and Treatment for Recurrence
Had my follow up appointment with the GYN Onco yesterday. She also had the results from Foundation One (genomic testing). The testing shows that my tumor has 7 genomic mutations:PIK3CA, NOTCH3, PPP2R1a, SRC, TP53, Microsatellite status, and a low tumor burden. There are 2 therapies are associated with potential (potential…
Good news from "Across the Pond"
Hi Ladies! I am literallly in Germany as I am posting this. I have had a great week this time. First I was advised by my oncologist that my lab tests came back good, and my cancer marker was down 50%. Yay!!! They warned me that there may be no visible shrinkage on the MRI (they do a new one before every embolization)…
Ok, I'm definitley in this sorority now
Hi All, CheeseQueen here and here is my story so far: Post-menopausal for 20 years, had early menopause at age 39 (don't be deceived by my profile picture, that was in 1976!). In January, started having bleeding. Had been to gyno in November, no problems. * 1/5/16 Gyno retired in December, had to see colllegue in practice…
My doctor is retiring :(
Hi ladies, I really value any and all opinions in this matter. My oncologist, who I've been with for 10 years now, is retiring due to her husband having an illness which she needs to devote her time to. I'm so happy that she has made this difficult decision and is now free to take care of her husband....who deserves…
Update on hormone therapy
I am just checking in to report that the therapy is still holding the cancer at bay, This time around, I am only taking Tamoxifen, and we have seen no channge in 4 months. I am surprised and ecstatic! I have had troubles with my leg, which turns out to be lymphedema caused by surgery, and another cyst and henia in the…
Just another update
i finished 18 radiation treatments to the tumor between my spine and Vena Cava. It seems like everything went well it is causing a lot of nausea and fatigue but otherwise not bad. Good news is that the radiologist reaaly felt that the pain I had in my SI joint of my right hip was tumor relate. He feels that the tumor is…
Finished Treatment
Well I'm all done with UPSC treatment, CA125 normal, but it's always been normal. Waiting for PET CT in the next week or two. Last November, during treatment, when I went to the ER for intestinal issues, a couple of nodules where found in my lung, along with a PE. Hopefully the PE is gone and the nodules are just nodules.…
Questions I should be asking
I've been reading a lot of threads and there is so much information and knowledge. Currently NED, diagnosed with adenocarcinoma 111C2. I went for my first oncology appt in March, I did my labs oncologist said everything looked great, well before that I did see my doctor that did the brachytherapy and a few days later I…
My CT showed thickening, vaginal cuff. Has anyone had this?
I'm new here and scared. I had endometrial cancer, stage 1b, grade 3 in the fall of 2013. I had brachytherapy. My CA-125 went up 14 points so my oncologist ordered a CT scan. It showed "increased asymmetric soft tissue density at the left vaginal cuff concerning for possible local recurrence" Have any of you had a…
Pelvic Floor Physical Therapy
So, dear sisters, I want to open a new topic for discussion. After religiously using the vaginal dilator (I was using the cool water cones) since October after my last radiation therapy, I felt I wasn't making any progress and actually was feeling some pain. So I decided to consult with a nurse practioner I found in a web…
New here
Hello. My name is Kathy. I was dx. With Uterine cancer in Sept. 2014. Had no symptoms- or so I thought. Went to a walk in medical for what I thought was a UTI. The doctor thought I might have appendicitis and sent me for CT and the road to finding the cancer began. Thank Hod she took the time. I had complete hysterectomy…
Decision
As you know I recently found out I have a recurrence (I was originally diagnosed with carcinosarcoma and serous cancer in Nov. 2015). I had my appointment with a gyn onc at Dana Farber (the same one who did my hysterectomy). I brought with me the results of the PET scan I had. The PET scan bore out what the previous CT…
And yet another pathology report
So... some of you may remember than when I was trying to make a decision regarding radiation, I got a third opinion from a panel who also did a second opinion on my pathology. That pathologist was not totally onboard with the original carcinosarcoma diagnosis and categorized it as serous carcinoma. Well, after my…
Started radiation
My insurance reversed their denial so I started pelvic radiation! I have had seven treatments and now I turn to you gals to ask..... did anyone have a terrible metallic taste in your mouth that will not go away? What about a feeling of pulling below the navel, especially upon standing? Doctor said it could be muscle…
Results from Surgery
I had my surgery on 4/6. I was in the hospital 6 days and am just finally now feeling like returning to the land of the living and writing about what happened. My GYN/onc. got in there and immediately checked the type of cancer I had with a biopsy, and sure enough, it was a return of my UPSC which I had 7 years ago. It was…
I need a shoulder to cry on...
I am feeling down and need to vent .. i finished my last chemo session and had a severe allergic reaction to the carboplatin. The nurses maxed me out on steroids, benadryl and something else to try to get the swelling down so I could breathe. They neglected to stop the carboplatin until the doctor suggested it ( and it was…
Inspirational song
On this sunny but cool spring morning I want to share this video. Marian had Stage 3 breast cancer and was treated about the same time as me. The banjo player in the band is my friend and my PCP Mindy. Marian wrote this song "Red Devil" about her experience with chemotherapy. She hopes this video is shared with friends…
Reflection on the year.
One year ago this week, I was in the doctors office getting a biopsy. I cant remember the day but it wasnt long after my biopsy, maybe even a few days, that I got a phone call telling me I had cancer and that I needed to get into see the doctor as soon as possible. I didnt want to have to tell my boss yet, so i even tried…
GYN/onc. appointment today
I had my GYN/onc. appointment today and got scheduled for surgery this Thursday. The PET scan showed a 5 x 6 cm. mass on one side of the ascending colon and a 2 x 3 cm. mass on the other side of it. My GYN/onc. really isn't sure what it is, but he's fairly certain it's cancer because of the rate at which it grew and…
Germany changes course...
Hi Ladies! Well, I am just home from my third trip to Germany (yes, Chris and I are at the same clinic, have the same doctors...). Only this time, for me, everything changed almost as soon as I got off the plane. Dr. Herzog decided that my treatment plan needed to switch to transarterial chemoembolization to be done by Dr.…
Recurrence - And the treatment plan is....
My husband and I meet with the oncologist this afternoon. The pathology shows that the cancer is more like UPSC and not breast cancer (I was diagnosed with Stage II IDC in June 2015 followed by StageIIIC1 USPC in Sept 2015). I will have a PET scan on Tuesday morning to see the scan show activity anywhere else. Provided…
Surgery completed - node removed
First - thank you ladies for all your words of encouragement and support the laSt few days. This means more than I can adequately express with mere words. Surgery wwas done and this afternoon about 1:30 and the para aortic retroperitoneal lymph node was successfully removed!! It will now be sent off for pathology and to…
Speaking of hope
i have been saying lately that there is always hope. I proved that to myself today. Ok, I have stage IV metistatic Serous Papillary Endometrial Andocarcinoma cancer and have been on this roller coaster for over four and a half years now. Two weeks ago at my doctor's appointment, my oncologist tells me that the…
2nd Whole Body Hyperthermia
Hallo! Well, I had my second WBH treatment on Friday. All went well. One possible side effect they tell you about is a mild sunburn-like rash. Some other patients had told me about this, saying that it usually didn't occur the first time, but often did the second. Sure enough, when I woke up this time, I was still lying on…
Can you help me?
Currently I have carboplatin and taxol to reduce tumors. My oncologist said it's the last chance to have surgery. I wanted to know who had carboplatin and taxol with good result to reduce endometrial adenocarcinoma? In case the surgery is impossible can you tell me what treatment is possible to prevent cancer from growing…
PET scan results - 9 months NED!
I received the results of my PET scan late yesterday and I am still NED - hooray! That makes 9 months since the end of frontline treatment for uterine carcinosarcoma (MMMT), stage 1b, grade 3. The mass that they found in my chest during the last scan is still there but it hasn't changed at all - same size, same metabolism…
PET scan results
Hello everyone. I am new to the site. Hope you are all doing well. Does anyone know what this mean? We got this on a PET scan result after receiving a one-year treatment of chemeotherapy, radiotherapy and brachytherapy. "There is morpho-metabolic resolution of the solid lesion in the uterine cervix". Also, do you know what…
Good News on CA 125 level and update
Hi Ladies: I wanted to let you know that I spoke wtih my oncologist's office this morning. MY CA level is now down to 42 (I went for the blood test on Tuesday, March 28th) so it has dropped 23 points from last month where in February it was at 65. As of now, the normal range is up to 35 so I am only a few points above the…

Uterine/Endometrial Cancer

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