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Uterine/Endometrial Cancer

Started radiation
My insurance reversed their denial so I started pelvic radiation! I have had seven treatments and now I turn to you gals to ask..... did anyone have a terrible metallic taste in your mouth that will not go away? What about a feeling of pulling below the navel, especially upon standing? Doctor said it could be muscle…
Results from Surgery
I had my surgery on 4/6. I was in the hospital 6 days and am just finally now feeling like returning to the land of the living and writing about what happened. My GYN/onc. got in there and immediately checked the type of cancer I had with a biopsy, and sure enough, it was a return of my UPSC which I had 7 years ago. It was…
I need a shoulder to cry on...
I am feeling down and need to vent .. i finished my last chemo session and had a severe allergic reaction to the carboplatin. The nurses maxed me out on steroids, benadryl and something else to try to get the swelling down so I could breathe. They neglected to stop the carboplatin until the doctor suggested it ( and it was…
Inspirational song
On this sunny but cool spring morning I want to share this video. Marian had Stage 3 breast cancer and was treated about the same time as me. The banjo player in the band is my friend and my PCP Mindy. Marian wrote this song "Red Devil" about her experience with chemotherapy. She hopes this video is shared with friends…
Reflection on the year.
One year ago this week, I was in the doctors office getting a biopsy. I cant remember the day but it wasnt long after my biopsy, maybe even a few days, that I got a phone call telling me I had cancer and that I needed to get into see the doctor as soon as possible. I didnt want to have to tell my boss yet, so i even tried…
GYN/onc. appointment today
I had my GYN/onc. appointment today and got scheduled for surgery this Thursday. The PET scan showed a 5 x 6 cm. mass on one side of the ascending colon and a 2 x 3 cm. mass on the other side of it. My GYN/onc. really isn't sure what it is, but he's fairly certain it's cancer because of the rate at which it grew and…
Germany changes course...
Hi Ladies! Well, I am just home from my third trip to Germany (yes, Chris and I are at the same clinic, have the same doctors...). Only this time, for me, everything changed almost as soon as I got off the plane. Dr. Herzog decided that my treatment plan needed to switch to transarterial chemoembolization to be done by Dr.…
Recurrence - And the treatment plan is....
My husband and I meet with the oncologist this afternoon. The pathology shows that the cancer is more like UPSC and not breast cancer (I was diagnosed with Stage II IDC in June 2015 followed by StageIIIC1 USPC in Sept 2015). I will have a PET scan on Tuesday morning to see the scan show activity anywhere else. Provided…
Surgery completed - node removed
First - thank you ladies for all your words of encouragement and support the laSt few days. This means more than I can adequately express with mere words. Surgery wwas done and this afternoon about 1:30 and the para aortic retroperitoneal lymph node was successfully removed!! It will now be sent off for pathology and to…
Speaking of hope
i have been saying lately that there is always hope. I proved that to myself today. Ok, I have stage IV metistatic Serous Papillary Endometrial Andocarcinoma cancer and have been on this roller coaster for over four and a half years now. Two weeks ago at my doctor's appointment, my oncologist tells me that the…
2nd Whole Body Hyperthermia
Hallo! Well, I had my second WBH treatment on Friday. All went well. One possible side effect they tell you about is a mild sunburn-like rash. Some other patients had told me about this, saying that it usually didn't occur the first time, but often did the second. Sure enough, when I woke up this time, I was still lying on…
Can you help me?
Currently I have carboplatin and taxol to reduce tumors. My oncologist said it's the last chance to have surgery. I wanted to know who had carboplatin and taxol with good result to reduce endometrial adenocarcinoma? In case the surgery is impossible can you tell me what treatment is possible to prevent cancer from growing…
PET scan results - 9 months NED!
I received the results of my PET scan late yesterday and I am still NED - hooray! That makes 9 months since the end of frontline treatment for uterine carcinosarcoma (MMMT), stage 1b, grade 3. The mass that they found in my chest during the last scan is still there but it hasn't changed at all - same size, same metabolism…
PET scan results
Hello everyone. I am new to the site. Hope you are all doing well. Does anyone know what this mean? We got this on a PET scan result after receiving a one-year treatment of chemeotherapy, radiotherapy and brachytherapy. "There is morpho-metabolic resolution of the solid lesion in the uterine cervix". Also, do you know what…
Good News on CA 125 level and update
Hi Ladies: I wanted to let you know that I spoke wtih my oncologist's office this morning. MY CA level is now down to 42 (I went for the blood test on Tuesday, March 28th) so it has dropped 23 points from last month where in February it was at 65. As of now, the normal range is up to 35 so I am only a few points above the…
First Radiation
I had my first radiation treatment for the tumor between my spine and Vena Cava. 17 more to go. It was not nearly as hard as the radiation to my neck because I wasn't in a mask that was attached. I figured I would have the same type of lower body form that I had during pelvic radiation four years go. But no, this one…
Recurrence and travel plans
I posted last week about my recurrence. Now I have a few more details. In addition to the two lymph nodes that were removed that were cancer, more lymph nodes in my groin and elsewhere in my abdomen and an area in my omentum were suspicious. Although they previously found both carcinosarcoma and papillary serous it turns…
Waiting for lymph node report after hysterectomy
I had hysterectomy Wednesday. Recovery so far a breeze. Surgery confirmed grade and type 1 endometrial cancer. the bad news was in surgery determined more than 50% invasion into myometrium. That put me in higher risk group for spread to lymph nodes. Waiting on that result causing great anxiety. Dr. said only 6-10% chance…
Anyone Else Have Random Pain -- Or Should I Be Worried?
Hi Ladies. I am 3 months out from my last chemo and was declared NED status mid-January of this year. (I was diagnosed stage 3a, grade 3 in May of last year- went thru chemo/radiation/chemo). The past week or so I've been feeling EXTREMELY fatigued. My legs shake with effort just to walk across a room. I'm constantly…
One more with recurrence
I had two lymph nodes removed on Friday. I didn't think I would get results right away but the Dr. was able to get the preliminary pathology. He told me there were cancer cells (carcinosarcoma/MMMT cells as before). My appointment with Dr. is 3/29. Tomorrow I'll call to set up scan. My head is spinning. I've read a lot…
Another update
Today was supposed to be labs, dr.'s visit and infusion. CT scan results were not what any,one wanted. The tumor that sits between my spine and vena cave grew this time. It has grown partially into both. My oncologist is hesitant about continuing on Keytruda because this is the second tumor that has grown. We talked about…
Biopsy results are back
Got off the plane this morning to find a voice mail from my Onco's office to call them back for results from the lymph node biopsy done on Friday. The biopsy does show that the lymph node contains UPSC. Not sure what next steps are other than meeting with the ONCO on Friday to discuss what next steps may be. ACK!!! Damn…
Radiation extreme nausea
hello everyone, my mom is uterine Carcinosarcoma stage 3c2 and started pelvic radiation a little over a week ago. Chemo was nearly a breeze for her but radiation has been really rough. She threw up the first few days and still has terrible constant nausea. They have her on zofran and compazine or something but it hasn't…
New Diagnosed, Stage IV - Need Answers
I am a newly dx 65 year old with Uterine Stage IVb cancer. I am looking for any input and suggestions you may have as a start down this road. My story, 6 years ago, I was dx with Stage 1 uterine cancer, low grade which was found on a nodule after having a complete hysterectomy. No chemo give, just follow up with Oncologist…
Récurrence, need of your opinion
Hello I have stade4 endometrial adenocarcinoma. After a recurrence or cancer has been? In abdomen ? What was your treatment?your story with récurrences?
My New Oncologist (maybe)
We are supposed to be moving to Colorado, though my husband hasn't received an official notification of the assignment. I have an appointment in Denver in April, and was wondering if anyone has met with Dr. Corr at University of Colorado Hospital?
new here
Hello everyone. I have been lurking for awhile. I will share my story with you. I was diagnosed on 1/16/17, and had robotic hysterectomy BSO full pelvic, paraaortic dissection with 28 nodes removed. Surgical pathology is stage 2, grade 2 all nodes negative. single focus on LVI. I am 51. Recommendation is for pelvic…
Mullerian Adenosarcoma - just diagnosed
I had a D&C a couple weeks ago to take care of some polyps. Today I met with my Doc because he wanted me to come in to discuss the pathology report and he told me I have mullerian adenosarcoma. He scheduled an appointment with an oncologist for next Wednesday to discuss options, prognosis, etc. I'm 37 years old and I'm…
Why PET scans?
I am due for my first mid-treatment CT scan on April 10. Yesterday, I told my doctor I wanted a PET/CT. He said it was not medically necessary from his standpoint. But he said if I was sure my insurance did not place limits on lifetime PETs he would code the script to get the PET/CT OK'd. In my heart, I know the reason I…
Biopsy results came in today
Results of second biopsy came in. They say still complex hyperplasia but they didn't find cancer from the D&C samples. I am glad. But feel sad that others here hear worse news. I keep you ladies in my thought and heart and prayers, especially late at night when insomnia kicks in. I will have a full hysterectomy in the…

Uterine/Endometrial Cancer

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