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I'm new here, saying hello
I will preface this with the statement that I am not officially diagnosed. But I wanted to share my story, and ask for support. I am a week out from turning 49. I have regular cycles every 28days give or take a few days. I don't have any of the high risk factors, not overweight, not post menopause, no smoking, no drug…
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waiting for results -question
Hi all, I'm waiting for results of my hysteroscopy and d&c from last Wednesday. It's making me a bit crazy! I have a question though. If there is no cancer, should I ask for a referral to a surgeon anyway? I feel like this scare is enough for me to go get the hysterectomy I've been avoiding for 15 years. I have severe…
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Biopsy results are back
Got off the plane this morning to find a voice mail from ommmy Onco's office to call them for results. The biopsy does show that the lymph node contains UPSC. Not sure what next steps are other than meeting with the ONCO on Friday to discuss what next steps may be. ACK!!! Damn cancer...
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Clear cell endometrial cancer found during hysterectomy
Hi everyone. So glad to have found this forum. I just turned 46 and had a complete abdominal hysterectomy two week ago today, to remove a large benign tumor and a fibroid. Unfortunately, some very rare clear cell endometrial cancer was found. The surgeon explained that she removed everything that she saw, and did some…
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Waiting for Whole Body Hyperthermia
Greetings from Germany. Well! I've been here a week and today I will be getting whole body hyperthermia. Up to this point, my treatment has consisted of local hyperthermia every day, targeted at the areas where lymph nodes lit up on my scan Along with infusions of vitamins C, Bs and other supplements to strengthen my…
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waiting for results -question
Hi all, I'm waiting for results of my hysteroscopy and d&c from last Wednesday. It's making me a bit crazy! I have a question though. If there is no cancer, should I ask for a referral to a surgeon anyway? I feel like this scare is enough for me to go get the hysterectomy I've been avoiding for 15 years. I have severe…
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FYI
For the last week or two I have been finding post from a group called Cancer Tudor on my,Facebook page. The have been posting advertisements for hyperthermic treatments available in the USA. I have no idea of the reliability of these adds or these places, but did think it was interesting.
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Lymph node biopsy and recurrence
At my 3-month checkup I told my oncologist about a lymph node in my groin that felt swollen. He examined it and told me I need to have it biopsied. The biopsy will be done in 2 weeks (3/17). Has anyone had a similar experience? I'm just trying to steel myself for what's coming. Any possibility this can be lymphedema from…
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Namedropper
I don't know how I missed your earlier post. And I did not see it on the breast cancer board, either. I'm so sorry to hear you are now facing Stage 4 breast cancer. I am a healthy survivor of both. I assume you have had your scan now. I'll be on the look out for you on both boards. Suzanne
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My dance with NED may be over too
I am undergoing some pre-surgical testing for a reconstruction procedure (DEIP) for my left breast as the surgery is currently scheduled for April 26, 2017. I had an abdominal CT angiography a couple weeks ago to ensure that the vessels needed for the DEIP procedure are healthy and to determine exactly where they are.…
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Diet during treatment?
Ladies, would you care to share what dietary intake you have found useful to you while undergoing treatment? Be it to keep up protein levels or blood count?
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CA125 Question
What is a good CA125 number? Does the CA125 ever go to zero, or does everyone have some kind of number, preferably, very low? Thank you and peace and healing to all!
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Abnormal u/s and hysteroscopy biopsy today-
Hi everyone, I had an u/s this morning and hysteroscopy this afternoon. U/s: * lining 12 mm * Small cystic spaces in hetero lining * multiple cysts on left ovary - ?endometriomas * can't find right ovary * ?adenomyosis Histoscopy * d&c * removed polyp * sent to pathology * was painful even though I had conscious sedation…
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New Endometrioid Adenocarcinoma dx 12/20/2016
Hi, I am 55 years old and had surgery on Jan 10, 2017 for a hysterectomy including cervix, tubes, and ovaries. The initial in office biopsy before surgery showed class 2. Surgical pathology confimed class 2. Other signficant findings were 2 tumors less than 2 cms in size, one at the top and one near the cervix. The report…
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Need advice for my mom
Hello, My mom is going through chemo for stage 2 fallopian cancer and is having a really hard time with the treatment. She is sick for at least 5 days, she can't keep anything down and she is either completely constipated or has diarrhea. She is also having incredibly painful abdominal cramps. We have told all of this to…
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Seeking experience with Gemzar
I am a stage IIIC UPSC patient of about 9 months. First six months it was determined I am platinum resistant after receiving standard protocol of carbo-taxol and subsequently diagnosed as "recurrent" disease with spread to perioneum and abdomen areas. I have been on doxil + avastin for the past three months but the…
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Research study on UPSC
I have been continuing to read about uterine papillary serous cancer and found this research study helpful in understanding what my prognosis is based on my stage. Of course, this is statistics and I am well aware that remaining disease free is a matter of chance. Nevertheless, the article gave me some hope for my future.…
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Gynecological Oncologist Recommendations/Military Insurance questions?
Can anyone recommend a good gynecological oncologist in the Colorado Springs/Denver area that takes Tricare Standard/Prime? I have an appointment on Wednesday with my gyn/oncologist, we are moving in May, but I may be going to C. Springs earlier from Florida for treatment purposes. Does anyone know if my doctor can do a…
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I have been matched with a clinical trial...
I received a phone call yesterday stating that there is a clinical trial that I match with. They are calling my doctor, and requesting the pathology report. It would be a phase II or phase III trial with immunotherapy. I was wondering if people have had a complete response with immunotherapy. I am stable right now. Thanks,…
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Third Occurance
Third occurance Hi - just joined today. Found out my uterine cancer is back after 5 years of no issues. 2010 discovered the cancer after D/C for bleeding so had a TAH - doctor said no worries, they got it all. One year later, bleeding started again and tests showed positive so had radiation - internal and external. Thought…
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New here - Depot Lupron and still have thick endometrium?
Hi all, I'm new here and need some help if possible. Here's the story - I am 46 and have struggled with severe endometriosis, PCOS, and infertility. I have been on Depot lupron for 4 years and have lately been having bleeding and discharge. I did a hystosonogram and they found a polyp. Went to a new Dr to schedule the…
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Signing Off for a Few Days
To all you lovely ladies... I'm going to be off the board for several days as I venture across the Atlantic and get myself settled into my new treatment routine. I take with me all of your wonderful wishes, love, prayers and hopes for success. Those alone will give me wings across the ocean. I will try to post here during…
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Brain inflammation
Has anyone had or heard of brain inflammation from using Avastin?
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Question???
Has anyone else had this happen to them? This was infusion day for me and I had labs, doctor's visit and my infusion. And all went well. All done... the nurse deaccessed my port, complete with the smelly stuff that is supposed to Close up the port. she put a bandaids on it and I left. As I was walking down the hall I felt…
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Stopping avastin for 2 months
I need to have surgery..torn rotator cuff from a fall 3 weeks ago and oncologist says i have to stop avastin 4 weeks before and 4 weeks after surgery. i am scared about stopping. I've boon on avastin almost 2 years and it has controlled my serous carcinoma. however in the last few months one implant has grown a little and…
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Janae update
Hi, just wanted to let every one know how things are going. I feel like my neropathy in my fingers is a little better. Its not all gone but i dont seem to notice it as much. MY toes are a little better too but not as much as my fingers. My toes bothered me the most before. I notice the neropathy in my toes the most while i…
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Waiting for biopsy
I am 47 years old and waiting to have a endometrial biopsy (D&C with myosure). I went three months last summer with no period, thought I was beginning perimenopause. I saw a gyn at the time but my hormone levels were all normal with no explanation. Once my periods returned, they were heavy and much longer than I had ever…
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primary serous peritoneal carcinoma
Hello Fellow Warriors! I had surgery February 9th - removal of 9.5 x 7 x 3 cm tumor on the omentum. When I saw the color photo of my doctor, Dr. Chen-Chi Hou and Dr. Yen-Yin Chiang I was floored - it was a huge thing - the omentum and the bulbulous, nutriton sucking, hemorraghing alien! The photo brought to mind my photos…
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rethinking cancer center/Taussig Institute @ Cleveland Clinic
I am in counseling w/ a social worker at a satellite branch of Cleveland Clinic.. This began while I was in treatment at the main campus for "pelvic floor dyfunction" physical therapy. I was first seen by a urologist there. Yesterday I had a session and discussed my upcoming appt. to review biopsy reports and also to…
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disordered proliferative endometrium w/ metaplastic change
Had my post op visit today following D&C on 2-14-17. Last week I had spoken w/ the nurse midwife on the phone and she indicated that the results showed something, and that the doctor would discuss what my next options would be. When I asked if there were any further tests she said no, it would be surgical. I then told her…