The Cancer Survivors Network (CSN) is a peer support community for cancer patients, survivors, caregivers, families, and friends! CSN is a safe place to connect with others who share your interests and experiences.

Waiting for Whole Body Hyperthermia

Editgrl
Editgrl CSN Member Posts: 903 Member
in Uterine/Endometrial Cancer #1

Greetings from Germany. Well! I've been here a week and today I will be getting whole body hyperthermia. Up to this point, my treatment has consisted of local hyperthermia every day, targeted at the areas where lymph nodes lit up on my scan Along with infusions of vitamins C, Bs and other supplements  to strengthen my immune system. I also get massages twice a week and have an exercise session scheduled twice a week. immediately on arrival I was whisked to the lab for bloodwork, had an ekg and was checked for lung function. After Dr. Herzog reviewed all of my information I was qualified for whole body hyperthermia in conjunction with low dose chemo consisting of carboplatin and cytoxan. One interesting note... while my scan report indicated hypermetabolic activity within my right supreclavicular lymph node, the scan image showed it was my LEFT node.

While the local hyperthermia takes an hour, the whole body hyperthermia process will take about 4 hours. I will be sedated for it. My body will be heated to just over 107 degrees. Just before that temperature is reached, the chemo will be administered. My body will stay at that temp for about an hour, then will be allowed to cool down. During the process i will also be receiving 4-6 liters if I've fluids to keep me hydrated.

i'm a little apprehensive but frankly, the early morning enema I had to endure is probably the worst part of the process. Not the best way to start the morning lol!

Helen (daylady) and I did get to spend some time together which was wonderful. She will be returning just before I leave.  I definitely feel that my treatment is being customized specifically for my situation. i asked about the side effects from the chemo and they should be minimal. They doubt that I will lose my hair. 

So I am off for some blood work. Will report post whole body experience.

 

 

 

 

Like Care

Comments

  • derMaus
    derMaus CSN Member Posts: 558 Member
    edited March 2017 #2
    So glad to see this post -

    So glad to see this post - been wondering each day how it's going for you. Good luck with the whole-body process! We're all cheering for you.

    Like Care
  • ConnieSW
    ConnieSW CSN Member Posts: 1,688 Member
    edited March 2017 #3
    Great to hear from you.

    Thanks for the report.  You've been in my thoughts.  

    Like Care
  • CheeseQueen57
    CheeseQueen57 CSN Member Posts: 933 Member
    #4
    Prayers With You

    I was just thinking of you last evening. Good luck!  Great news about the hair!

    Like Care
  • TeddyandBears_Mom
    TeddyandBears_Mom CSN Member Posts: 1,814 Member
    edited March 2017 #5
    So good to hear from you

    So good to hear from you Chris.  Glad you and Helen were able to meet. It sounds like you are doing well with the treatments so far. You know we are all hugging you and sending loads of love and support from this side of the world.

    Take care and thanks for keeping us informed as you move through this.

    Love and Hugs,

    Cindi

    Like Care
  • Kvdyson
    Kvdyson CSN Member Posts: 790 Member
    edited March 2017 #6
    Wow, Chris, thank you for

    Wow, Chris, thank you for this update. It is wonderful to hear from you and to learn about the treatments. It sounds so very hopeful. Can't wait to hear how the whole body hyperthermia treatment went! 

    Like Care
  • Nellasing
    Nellasing CSN Member Posts: 528 Member
    #7
    Chris so good to hear from you!

    That is so very interesting!!!  I can't wait to hear even more as you go along.  You and Helen are pioneers for us and we are cheering you on and sending love and prayers for your safe return!  So glad you got to spend some time together (((HUGS)))

    Like Care
  • cindy0519
    cindy0519 CSN Member Posts: 173
    edited March 2017 #8
    Thanks for updating

    Im so glad you are posting about your  experience. This is of great interest to me as I await the results of a biopsy of a paraerotic lymph that will mean I too am no longer NED. 

    Thinking of you - wishing you fantastic and lasting results!

    Like Care
  • janaes
    janaes CSN Member Posts: 799 Member
    #9
    Hey Chris it is good to here

    Hey Chris it is good to here from you.  Thanks for the update.

    Like Care
  • Soup52
    Soup52 CSN Member Posts: 908 Member
    #10
    Wonderful to hear from you!

    Wonderful to hear from you!

    Like Care
  • Lou Ann M
    Lou Ann M CSN Member Posts: 996 Member
    #11
    So good to heard from you.

    So good to heard from you.  Glad things are going well.

    Hugs and prayers, Lou Ann

    Like Care
  • beccabtown
    beccabtown CSN Member Posts: 234
    edited March 2017 #12
    Thanks for your update

    Chris, it's so good to hear from you and learn a bit about your treatment. I hope the full-body hyperthermia went well. Best wishes for the rest of your time there.

    Like Care
  • Kaleena
    Kaleena CSN Member Posts: 2,088 Member
    edited March 2017 #13
    Thanks for checking in!

    Chris:

    So sweet of you to check in from Germany!  I am glad you were able to meet up with Helen.   

    Hugs!

    Kathy

    Like Care
  • rcdeman
    rcdeman CSN Member Posts: 263 Member
    #14
    I read your updated post

    I read your updated post before this one, so I know things went as well as could be expected. Glad you are updating us one step at a time. This is such good information for us all, and your experience is definitely helpful. I'm also happy that you got to be Helen and that she is going well.

    Love,

    Rebecca

    Like Care

Discussion Boards