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No Chemo This Week
I flunked my lab tests this week. Wed. of last week, my platelets were extremely low, at 26,000. They were supposed to be 142,000 or above. I got checked again on Friday because I was scheduled to have an epidural steroid shot for my herniated disk and back pain on Monday. They'd only come up to 30,000 by then, so I was…
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Immunotherapy
I am on my second recurrence of endometrial cancer. Had a hysterectomy in October 2015. Grade 2, no penetration of endometrial wall. They told me I would not die from this. Starting having symptoms in March of 2016. Biopsy showed tumor in pelvis and perhaps lymph nodes. Local metastisis. 6 rounds of carbo and paxil.…
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Stage 4 Uterine cancer
I knew I had stage 4 uterine cancer but did not know it was type B. I looked up the stats and the 5 year survival rate is 15 percent. That is really hard to accept. I am looking for survivor stories. I looked and found some but they go back to 2010 etc. I feel very discouraged. Also I am having a bit of trouble navigating…
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] a few question about follow up care.
I have some things I need to talk about. So I went and saw my primary doctor about two weeks ago. I talked to her about about my joint pain in my knees that was started about two weeks after my first chemo treatment. She asked me where It was hurting on my knee and in her office i was feeling that it was on the top of my…
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Update on my Mom's Chemo IV Complication (so frustrating!)
Just wanted to give everyone who has been with me during my mom's uterine cancer treatment an update. My mom finally completed her extremely prolonged radiation treatment (prolonged because they decided at the last minute to split up her lower and upper pelvic radiation treatments and radiate each area separately.) So…
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Opdivo / Metforim
Hello All, I haven't been actively posting but read this forum daily to keep up-to-date on everyone and their treatment / health. I want to update you on my current treatment, as I'm a bit of an experiment in the making. First, I was diagnosed in Fall of 2015 w stage 3c2 endometrial adenocarcinoma. I had a radical…
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Hormone therapy for stage 1b?
Hi, I am new here. About two weeks ago, I was diagnosed with stage 1 endometrial adenocarcinoma after a biopsy. My MRI showed myometrium invasion less than 50% so that puts me at stage 1b. my oncologist started me on hormone therapy (160mg megace) prior to the MRI, and she warned me that if the scan shows greater than 1A,…
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Atrial Septal Defect
Hey all- quick update. I have been suffering from extreme fatigue, palpitations and PVC's, feeling faint if overheated while walking, short of breath, hearing my heart beating in my ears especially at night etc. etc. My 1/2 sister had cancer treatment that damaged her heart and I was really afraid this had happened to me.…
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I see surgeon Today
Hello I see surgeon Today,He wants to try to operate but he says it will be difficult. Not sure of him.he want to try beaucoup it's only solution for remission. But i am very afraid because oncologist said that if surgery is not possible.. The another treatment are limited and not very Good.... I can't have chemo i had…
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Cancer Geonome Resource
I found this link today and thought it might be useful to some. Unfortunately it doesn't specify uterine cancer - I looked under ovarian instead - but found it to be a good lay-person's explanation of what geonomic testing is used for. I'm awaiting my own Foundation One results but wasn't quite able to put the pieces…
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Baby steps back to normal life
Yesterday I got my car running again--it hadn't been driven since last fall, while I was in treatment. I've been relying on rides from my dad for too long (though it gave us lots of time together, which we both enjoyed). I'm back up to full speed at work and have a full head of curly hair, ready for my first haircut.…
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A Major Vent!
So, I went to my regular 6 month visit with my gyn/onc today. I really like this woman and she did a great job with my surgery. However, I'm a little concerned with what happened today. She had her fellow and a medical student with her and actually the fellow did my exam. We talked about my problem with ongoing urinary…
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Supplements , please help me
My mom had uterine cancer 3B and after first round of chemo , the doctor in Vietnam where my mom met to take care of her allergic ( side effect of chemo ) said better not to use any supplements but my mom always feel tired , she ate a lot of fishes , fruits ( mostly soursop , I don't know does it good for her or not ) ,…
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Interesting article on Keytruda
http://wapo.st/2r2aDab?tid=ss_mail&utm_term=.1e6a7085365c This came across my feed yesterday. Though the case history is not about endometrial cancer, it is mentioned in the article.
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Who knows hormone therapy?
I looked at my analyzes. There is written Re +++ 80% and RP ++ 60%. (Estrogens and progesterone) I am not a doctor but I think that my cancer is dependent hormone Do you know if your cancer is dependent hormone? What can hormone therapy help? To hormone therapy? Thank you for your help.
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I don't know if I'm allowed to post, waiting for biopsy and scared
a little info: my name is Julie and I'm almost 40 years old. 3 beautiful daughters, all cesarean, happily newlywed in October 2016. in May of 2015, I went to my gyn for standard pap/pelvic. Came back abnormal so I underwent a colposcopy and biopsy of the cervix after finding atypical glandular cells. Got phone call a few…
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Cancer Across the Pond...con't
Hi Ladies! Well I have just returned from my third cycle of transarterial chemoembolization in Germany. After almost no good news in nearly a year, the last two months have felt good. Last month, before doing cycle #2 they did an MRI and could see shrinkage from cycle #1. This time they could see continued shrinkage and…
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Do you know topotecan ?
Do you know topotecan for adénocarcinoma endometrial ?
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Thanks to Dr. Reed
Dr Reed was born in my town and through her advocacy saved lives of women by fighting against the use of morcellators for laparoscopic uterine removals. May she rest in peace.…
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Newbie Caregiver Questions
I am caring for my best friend who has just been diagnosed with uterine cancer. She was scheduled for a hysterectomy on Wednesday, but today received a phone call that her blood showed antibodies in it. What does that mean? The lab person told her she needs another blood test, but is that a repeat test or a new one? And…
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Just another update
Today was labs, Dr.s visit, and infusion day. I had a Ct scan last Wednesday and after 10 radiation treatments to my neck and 18 to a tumor between my spine and Vena Cava artery, both of those rumors have shrunk and everything else is stable. I will get to continue on Keytruda because it seems to still be working. There is…
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New to Forum
I am joining for any advice for my mothers treatment. My moms name is Cheryl and I am her daughter, Tia. She was diagnosed with Stage 3B Uterine cancer in August of 2015. They started with a hysterectomy and removed 4-5 lymph nodes. Afterwards she did a sandwich of a total of 12 Taxol/Carbo treatments and 6 weeks of…
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Hello
I was diagnosed with endometrial cancer and had a hysterectomy in late February. I'm still recovering from the surgery, which I guess can take some time. My cancer was stage 1, and after the surgery my doctor said there was no need for further treatment. He plans to follow me for only one year. I know I am very lucky. Some…
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Chemo or No Chemo ?
Hi ~ First of all I have to say please forgive for my bad english ( I'm vietnamese - chinese ) My mom was diagnosed with uterine cancer stage 3 , no lymph nodes affected . She had a total hysterectomy and this sunday she will have her first chemo round ( 3 rounds and 6 radiations ) Yesterday mom read a article about how…
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UPSC - Avastin for maintenance program despite some CA markers?
Ladies, I hope you're keeping well. Mum (stage iv recurrence of UPSC) will complete her 6th cycle of Taxol, Carboplatin, Avastin soon. Her CA-125 was normal but her last CA19-9 reading was 1700 (having reduced from 2800). She has some neuropathy kicking in, though it improves by third week after chemo. Onco is suggesting…
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Afraid
Soon, I have my scanner and an irm to see if the chemotherapy has been effective.I am very afraid. I cry a lot and I'm afraid to die I have a tumor in luterus and also several in the abdomen.stage4 I am afraid of my future I am very bad
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How many radiation sessions did you get?
It's funny. From everything I've seen, everyone gets 25 radiation treatments. My 25th time will be this Thursday. Now my radiologist is telling me that my treatment was, "25 then reevaluate." Meaning he wants to tack on "2 or 3" more sessions. I think the term "reevaluate" means to check to see if the patient still has…
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Preventing damage from pelvic radiation?
I will soon be having pelvic radiation treatment following surgery to treat a recurrence to two lymph nodes (right pelvic wall and right groin). I previously had brachytherapy as well as chemo as part of frontline treatment. I was wondering if anyone has suggestions to prevent complications or damage, especially to the…
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UPDATE ON MY MOM
Hello - It has been a while since my last update about...about 2 months ago. In this time, my mom's new oncologist performed many tests to determine the right course of treatment for her. About a month ago, she began doxorubicin and has been tolerating the chemo pretty well. She is now 2 cycles in, and she will have a scan…
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Uterine Ablation led to Cancer - CANNOT GET TREATMENT
Hi - I am a 38 year old woman with a clean bill of health my entire life up until July 2016. I had a uterine ablation as per my doctor's suggestion to accompany a tubal (there was no medical reason for an ablation to be performed, he said it would help lighten period). I agreed without batting an eye as he's been my trust…