-
Gastroenteritis after radiation.
I know this is a generic term, but did anyone else here experience long-term gastroenteritis after radiation? I had a serious problem during the treatment and have had issues on and off for the whole year and a half since. At first it was loose bowels but afterwards it became strictures and inflammation for months at a…
-
In the recurrence club now
My CT scan this week (done in response to a spike in my CA-125) showed multiple nodules in both lungs and a mass on the outside of my colon. My medical oncologist is calling it a systemic recurrence and says that there's now no chance of a cure or long-term NED. I'm having a biopsy this week for genomic testing; that…
-
New Here-tough decision brachytherapy or full pelvic
I was diagnosed with Grade 2 endometrial cancer and had a complete hysterectomy in Dec. After the surgery they staged it as IIIC1. I had 1 lymph node out of 8 positive (they removed the one during surgery) they said the tumor invades to the connective tissue of the cervix but does not extend beyond uterus. I have had 2…
-
Breast Issue
I went for a screening mammo early July and they called me back for 3D imaging. This happened once before in 2015 and then they did u/s also. In 2015, the radiologist felt that nodules, cysts and calcifications seen were not concerning. Today's imaging and u/s different story. Many more calcifications grouped in right…
-
Possible Screening Test for Endometrial Cancer
This could be a game changer. http://www.huffingtonpost.com/entry/mayo-investigator-is-developing-a-screening-test-for_us_59528e4fe4b0c85b96c65d0f?ncid=engmodushpmg00000003
-
Improved UPSC Outcome with Treatment of Mast Cell Activation Syndrome
I want to share this case study - Improved Metastatic Uterine Papillary Serous Cancer Outcome with Treatment of Mast Cell Activation Syndrome. You can read the study at this link - http://imaging.ubmmedica.com/all/editorial/cancernetwork/pdfs/2014-02-afrin.pdf My mother was diagnosed with stage IIIC2 UPSC in June of 2014.…
-
New to site-Possible Uterine Cancer Questions for Members
Hi everyone, I am happy I found this site. I am still in the diagnostic stages to determine if I have any cancer of the uterus, but it has been a long few months and would love your advice! I am 46, I think still premenopausal, though could be fully (was always bad at keeping track), and though my last pap smear was…
-
discouraging appointment
Feeling very discouraged. Went to 6 weeks post chemo appt. The point, as I understand it, is for the oncologist to see how we are doing. So a friend went along. I said I was feeling well but had questions. In the course of conversation he said WHEN it comes back. . . not if. Granted I have stage 4B. Also I have to take…
-
Continuing Good news from update from reoccurrence from Oct. of 2016
Hi Ladies: I wanted to update everyone from my reoccurrence of UPSC from last October of 2016. I had a CA 125 blood test done on Monday, July 31st which showed my level to be 19 which is in the normal range. In May it was 26. This is very good news for me and I am very happy about this. I had a 3 month visit with my…
-
Sick Of Being Sick, Tired Of The New Normal
This is my first time posting on the boards but I have been here for about 6 months, getting encouragement and strength from all of you. I finally had to post though, I was diagnosed in March with stage 4 grade 3 Uterine Carcinosarcoma (MMMT). I have been dealing pretty well until recently. I just finished my 4th Chemo…
-
work problems
There is not much I can do about this to really change my situation. At least not as soon as I would want to. There is something I just wanted to get out there, So as most of you know, when I was going through chemo treatments last Augast I took 3 months off work and then went back to work. I wasnt in the best spot to…
-
Brachytherapy
I had a complete hysterectomy two weeks ago for endometrial cancer it was a grade one stage to it was more than halfway through the lining and started to get to the top of the cervix The recommendation from the oncologist and from the tumor board is 25 external beam radiation treatments followed by three Brachtherapy.…
-
feeling extremely anxious
Hi. I have been diagnosed with stage III grade 3 endometrial cancer. Luckily it did not get into the lymph nodes. there was another tiny tumor outside on the lining from one of the fallopian tubes that was bent down. It was removed entirely. I need to have radiation and chemo. I go this Friday to set it all up. It is all I…
-
Tests between treatments
Hi , my mom just finished 3 rounds of chemo her first week of radiation and dr want her do the investigation test on next week , I wonder what will include in this test ( blood test , pap , ct...ect) ? I hope I can receive your feedback as soon as possible . Thank you.
-
Hey everybody
A week ago last Friday, just after my docs determined that I'd had some small strokes, probably caused by the cancer, I was checked into the hospital, where I proceeded to have a larger (still not massive one). Left hand and left side of mouth were partially paralyzed. I'm in a great rehab unit and have got back much of…
-
Bowel obstruction
Hello Ladies: Has anyone had or know of someone with bowel obstruction due too tumor pressing on small bowel. Any options lefT. Currently receiving nutrients intraveneosly. If able to eat after a few days surgery and/ or chemo might be an option Your feedback is greatly appreciated
-
Fun cancer camp my kids went to
Last year while I was doing chemo treatments I found a camp for kids that have parents who have cancer. It was too late for my kids to go last year but my two kiddos just got back from a 6 day camp called camp kesam. This camp is run by college students all over the country. Most states are included. There is two in utah…
-
Constant Annoying Odor/Smell - Is It Just Me?
I was diagnosed with USPC the end of April, 2010. I was scheduled for the hysterectory & removal of everything, including the malignant lymph nodes. When I woke up out of surgery, I realized there was this nauseating sweet odor, I just couldn't get rid of. I told my doctor about it but he had never heard of such a thing.…
-
My rant of the day
My rant of the day. I had a CT scan scheduled for 9 this morning. Drank my delicious smoothie at 7 and 8. Filled out the regular paper work and at 9 the receptionist came over to say that they were having a problem with the machine and it would be a few minutes. 20 minutes later the tech comes out to say that They have…
-
Fear
Has any one else had rather severe pain beneath their ribs and shoulder blade? Sometimes my whole chest seems like it tight binding around it. Sometime just a jabbing pain, sometimes dull. First thought it was heartburn. My oncologist ordered a CT scan to make sure my wayward tumors haven't gone looking for a new home…
-
Feeling paralyzed... new member
Hello All! I'm a new member. I was diagnosed with "stage Ia" in Oct. 2016 but opted for preogesterone treatment to try to preserve fertility. Didn't work... I had a D&C in June 2017 and there is myometrial superficial invasion, FIGO 2. I'm so scared. Can't function. Pending hysterectomy and staging. I don't even know what…
-
What an astronomic increase in my CA-125 before surgery
I'm now going thru chemo for my UPSC. I'm getting Carboplatin and Gemzar on week 1, Gemzar alone on week 2, then a week off in week 3, although I have labs all three weeks. I'm also seeing the PA every week this first month, then we'll see how often I need to do it after this first round of chemo. At this past Wednesday's…
-
Another Newbie...
I'm 32 recently diagnosed with endometrial cancer, my oncologist gyn labeled it as Grade 1A. They started me on hormones as I do not have children and would like to so they are trying to give me that chance. I have had PCOS for about 10 years now which is already an infertility issue and would like to know if anyone here…
-
CT Results
So i just started my 10 day Alaskan cruise. But can't help be worried about my CT scan results and increasing pelvic pain. Results said: Pelvis: There is new pelvic ascites which is small volume. No pelvic adenopathy is present Reproductive organs : Status post hysterectomy. There is dirty fat stranding in the cul-de-sac…
-
Flood of clear fluid
I found this wonderful support system and have a question that I cannot find an answer to. I am hoping someone might be able to give me some insight. I am 56 years old and went through menopause late at the age of 54. About 3 months ago I had some vaginal bleeding and didn't think anything of it until I had my physical…
-
Emotional support - Mother diagnosed with Endometrial Serous Carcinoma
Im scared for my mother and Im trying hard to be strong for her, but I'am really loosing it here. She originally went for a biopsy back in May due to a Polyp and past pre-menopausal bleeding, she had them before but they were beningn, and the first doctor told her it was just Endometrial Adenocarcinoma, assuring her that…
-
Advice required
Hi all, This is my first time posting here and just looking for some advice. I'm a 51 year old with a history of fibroids. I went to my GYN two weeks ago as I'd had two months of heaving bleeding and clotting and severe cramps. She said I had a fleshy mass coming out of my cervix and sent me for an ultrasound. I went for…
-
Possible Screening
-
Hair growing back...but
I apologize ahead of time because this seems very minor, but I am sure many of you had this issue. My mom is stage 1, grade 3 serous. She just finished her 6 months of chemo and radiation. Her hair is starting to grow back but her scalp is scaly looking. She can't affored to go the dermatologist so I'm just asking here…
-
Fear of occurence has turned into immobility
I am a three-year survivor (oh, how I hate that term) of stage 3 uterine cancer. I was having every three-month check-ups. Then it was every 4 months and quickly became "make an appointment for 6 months." I was always compliant, but that 6 months ended in March, and here it is the end of June, and I can't bring myself to…