Serous Uterine Cancer and Severe Small Fiber Neuropathy - New Member

Kamea Bay

Hello everyone. My name is Debi and I just found this site last night   Stayed up half the night reading posts. I wish i had known this site existed a year ago. I sure could have used some guidance and still need do.

Here's my (long) story:

First I'd like to say I live in a very small down about 45 min south of Atlanta. I use dr's 10 miles away in another city that has that has a clinic recently bought by Emory. We also have a lot of dr's in our medical park and a state of the art Medical Center.

I had problems for a few years with irregular and very heavy periods. My gyn of over 20 years would do a biopsy every year or two to make sure it wasn't cancer. At the end of 2011 I told her I could not take it anymore and needed to know what my options were. She said hysterectomy or uterine ablation. Since I felt I was close to menopause I decided to have the ablation which was done in Nov 2011. By that time my gyn was no longer doing surgery so I had to use a new dr. That surgeon said the ablation went great and everthing looked good. About 8 months after that I started bleeding really bad at work. Saw my dr the next day and she did vaginal ultrasound. The ablation did not take at the top of my uterus and I had 5 pockets of blood that had finally found a way through all the scarring. My sweet gyn and I talked about an hour that day and both decided I needed the hysterectomy. She said let them take it all out...don't give them a reason to have to go back in. We talked about the surgeon I wanted to use and that was that......decided to go to another surgeon and never gave a thought to telling my long time gyn that I had changed surgeons. The short of it is she had called the original dr we had picked and they decided I would need a D&C first because she really thought it was cancer but didn't tell me that. The dr I picked got her records but evidently didn't READ them because it also said in there that her suggestion was a D&C first to see what was going on. The surgeon I had picked just scheduled my surgery....did the surgery on Oct 22, 2012, sat on the side of my bed and said everything looked good....the only thing he mentioned was that I had the biggest ovaries he had ever seen   Then a few weeks later he was calling me and my husband into his office to tell me I had Serous Uterine cancer and he knew so little about it he had to researched it before calling me in. He said it was rare and aggressive. He was sending me to Dr Spann at Emory in Atl. Dr Spann is a oncologist gyn. I saw him once and he said go back to LaGrange, let them do the chemo (no radiation needed per him) and then come back to me and I'll decide if I need to go back in and look at your lymph nodes. The onco in LaGrange said no problem.....3 rounds of carbo/taxol and you'll be good to go. Of course I was going through this in a dazed state and just followed orders as dr's gave them to me. Before my 3rd round of chemo and due to some numbness I was having he lowered the taxol from 330 mg to 300 mg. He also added 3 more rounds for a total of six. My carbo amount was 600 mg throughout all 6 rounds. Chemo ended on March 27, 2013. The onco told me that if I went back to Dr Spann and he wanted to go back in I needed to run in the other direction. He said he was the only one I needed to see for cancer checks and that he would know before anyone if it came back due to CA125. I disregarded his info knowing from what I had read that if I didn't have an onco/gyn that I would need 2 dr's going forward. So I went back to my trusted gyn and that's when I and she found out that I got confused and should have had a D&C prior to hysterectomy. That way they could have done all the stuff they do and check when they know it's cancer. I could have kicked myself in the butt. By that time I could barely walk and was going from dr to dr trying to find out what was wrong with me.....the wrong being small fiber neuropathy. I am now seeing a new onco that works directly with my gyn and they have been great and very supportive. Since I tend to brush things off I realized I was having some issues that may or may not be related to the SFN. When I went to Martie, my gyn, last week she listened and immediately scheduled me for a CT scan this Monday. She said she didn't want to worry me but we had to be vigilant in watching for this to recur.

My symptoms are: Severe fatigue, bloating and full feeling all the time, pain like cramps that come and go where my uterus use to be, lower back pain and pain between my shoulder blades. I'm currently on 1800 mg of gabapentin and 60 mg of cymbalta for treatment of the SFN. It helps some but not much. I'm also taking vicodin 1/2 a pill every 3 hours and I add 1/2 a xanax when the pain is unbearable. I have a good day every week or 2 but many days spent in bed or in the recliner. I have a long journey to go with this and am using a neuro. My gyn and new onco would like for me to go to Emory Neuro in Atl but with the pain I am in and traveling makes it worse I have decided not to go at this time. When my local neuro has nothing more to offer I'll have to make a decision at that time. I'm home 99% of the time because I am unable to walk very far. The SFN started in my feet but is not in my hands, legs and arms. I don't regret getting the chemo because this Serous is nothing to mess around with. I just wish I had known this could happen. I was in the dark. After my dx for SFN I went and visited my wonderful chemo nurses...they all said I was on a high dose of chemo and they were not surprised I had developed this. Bless them.....there were 6 chemo chairs and 3 nurses.....we all became great friends and I still visit them to this day even though I don't see that dr anymore  

The original onco just wrote off my SFN and said it would go away. When I got my skin punch biopsy report I took it to him and he just shook his head. Oh well.....you live and you learn right ?

Through all of this I have kept my sense of humor and have only had a few meltdowns. I have a wonderful family that consists of 12 immediate members and lots of extended family. I can no long take care of my house and they are so good to me and my husband. Bless him too.....this all happened so dang fast it's like we have not come up for air yet.

I know this is very, very long but I had to tell my whole story. I would like to know if my chemo treatments were 'high' doses ? I'm thinking 330 mg of taxol is high and probably the cumlative dose and type 2 diabetes is what has caused this awful SFN. At least it's what all the dr's think caused it.

Thank you all very much and I hope to be a productive part of this group. Between the chemo brain and the drugs I'm on now I hope this made some sense

Debi

 

 

 

 

txtrisha55

Welcome and sorry you have

Welcome and sorry you have gone through so much. This is a great site and I feel that it helps a lot. The women know what a person is talking about as far as the chemo treatment and radation but each person is different as each cancer is different even though it is the same type. I . Was stage 3c grade 3 carcinoma sarcoma (MMMT). Diagnose on 1April 2011. Surgery full hysterectomy with 10 no did es removed. It was in 1node. Six r poo und of carbo/taxol and no radiation. I did have a d&c before surgey because mr gyn dr thought it was nothing as I had gone througha d&c in 2004 and found nothing. Hopefully one of the other ladies came offer wisdom for some of the things you are going through. I will be praying for you . Trish

NoTimeForCancer

Welcome and sorry you had to find us

Debi,

I am sorry to hear you are having so many problems.  I understand you love your gyn, I love mine too, she saved my life with a few little words, "Let's find out what's going on".  As soon as they found out it was cancer I was turned over to a gyn/onc and his team who specializes in these below the belt cancers.  Just under two years of diagnosis I finally got to see my gyn again and I hugged her and she hugged me. 

I would recommend you consider asking your gyn for the name of THE doctor that can help you sort this all out.  Someone who will stop, look at your records, reports, treatment, and help you now. 

I am sorry I don't have any experience with SFN, but some of the other women may be able to help there. 

Hugs

 

Kamea Bay

txtrisha55 said:

Welcome and sorry you have

Welcome and sorry you have gone through so much. This is a great site and I feel that it helps a lot. The women know what a person is talking about as far as the chemo treatment and radation but each person is different as each cancer is different even though it is the same type. I . Was stage 3c grade 3 carcinoma sarcoma (MMMT). Diagnose on 1April 2011. Surgery full hysterectomy with 10 no did es removed. It was in 1node. Six r poo und of carbo/taxol and no radiation. I did have a d&c before surgey because mr gyn dr thought it was nothing as I had gone througha d&c in 2004 and found nothing. Hopefully one of the other ladies came offer wisdom for some of the things you are going through. I will be praying for you . Trish

Thank you Trish for responding

You know I've been dealing with this so long and not having anyone to ask if I was doing it all right...or to the best of my ability. My sweet gyn said the 1st onco had just "set me adrift with no life preserver". It's her understanding that your onco is to follow any issues that arise from the chemo but he just brushed me off.

I have read so many different things about pathology reports on Type, Grade and Stage of the cancer. Can be quite confusing. All my report gave was histologic grade of G2. They said the tumor was small which was good but this stuff is so aggressive it scares me.

Thank you again for the reply. I look forward to getting to know the people on this site. Everyone seems so sweet and caring.

Debi

 

 

Kamea Bay

NoTimeForCancer said:

Welcome and sorry you had to find us

Debi,

I am sorry to hear you are having so many problems.  I understand you love your gyn, I love mine too, she saved my life with a few little words, "Let's find out what's going on".  As soon as they found out it was cancer I was turned over to a gyn/onc and his team who specializes in these below the belt cancers.  Just under two years of diagnosis I finally got to see my gyn again and I hugged her and she hugged me. 

I would recommend you consider asking your gyn for the name of THE doctor that can help you sort this all out.  Someone who will stop, look at your records, reports, treatment, and help you now. 

I am sorry I don't have any experience with SFN, but some of the other women may be able to help there. 

Hugs

 

Nice to meet you

That's the reason I changed onco's in Dec. My gyn and the new onco work together which is something my 1st onco refused to do. I didn't know that until my gyn told me. Seems to be a lot of politics going on in the medical field too..not just Washington DC

When I went to the new onco in Dec he noted that my chart from the other dr stated I was BRCA 1 positive...after calling Myriad they found out I had never been tested. Why in the world would that dr 'choice' this as part of my file ? Because per my PCP, this dr is pretty illiterate where the computer is concerned.....jeez. The new onco has tested me for some other 'symdrom' but it was negative.

I have my CT scan of the abdomin tomorrow so maybe I'll know if there's anything going on by the end of the week. It it's all ok I'll chalk all the symtoms up to SFN.

Thanks much for replying.....nice to be on a site where people understand what I'm talking about

Debi

 

 

Alexandra

Welcome to CSN Debi

To answer the question about your chemo, it was high-dose in a sense that it was given every 3 weeks as opposed to low-dose every week.

Recommended Taxol dosage for injections every 21 days is 175mg/m²

330 mg Taxol would be normal for a woman 5'6" weighing 170 lbs.

Maximum Carboplatin Dose (mg) = target AUC (mg·min/mL) x (150 mL/min) = 4 x 150 = 600 mg

Use calculator http://www.halls.md/body-surface-area/bsa.htm to enter your age, height and weight to see if your numbers match up with what you received. 6-8 rounds are considered normal practice.

Peripheral neuropathy and fatigue are unfortunate but very common side effects of Taxol. Usually once you are in remission oncologists do not deal with it and refer patients to GP's. Chemo-induced peripheral neuropathy usually spreads in sock and glove pattern and could range from "pins and needles" sensation to numbness to pain. It may go away on its own or not. You mentioned that you were diagnosed with SFN (small fiber peripheral neuropathy). Chemo does not cause SFN, diabetes could.

You are taking a very high dose of Gabapentin, which could be adding to your feeling tired. Cymbalta and Vicodin could cause constipation and nausea, which in turn could account for you feeling full and bloated.

Abdominal / pelvic pain and cramps could be result of adhesions or gas.

Back pain could be caused by a number of factors unrelated to cancer and chemo. Weight gain or inactivity could be a contributing factor. I recommend getting a bone scan.

Your surgeon commented on the large size of your ovaries. Did he remove the ovaries and fallopian tubes during hysterectomy? Is your CA125 being monitored on a regular basis?

I hope your CT scan goes well tomorrow and confirms that you don't have any active disease.

Good luck to you!!!

trustingHim

New member with Uterine Serous Cancer

In response to Debi, I am so sorry about what you've been going through with the doctors you've seen. I hope that you are getting the correct treatment that you need by now.  I feel so blessed that I live in a big city and can get good medical care.

Here is my story: In Dec 2013, I started having light vaginal bleeding. I know two others who had that also and they didn't have cancer. I did not know that vaginal bleeding post-menopausal is a sign of endometrial cancer. My GYN had just retired and I needed a new doctor so I began my search. I found a good group and got an appointment for March 18. I had a vaginal ultrasound on April 3 which indicated a problem and had a biopsy that same day. I received the diagnosis of endometrial adenocarcinoma, endometroid type, figo grade 1 on April 8th. I was referred to an GYN/Oncology surgeon and got an appointment for April 11.  I had a total hyserectomy and removal of 23 lymph nodes on April 30. The tumor was small, did not penetrate the endometrial wall and the nodes were all clear. It wasn't until this second path report came back that it was diagnosed as USPC as my subject above indicates.  It is a Stage IA but a Grade 3/3. I was misdiagnosed!  If my doctor had known what he was dealing with, he would have done a "wash" during my surgery which is when saline is put in the abdominal cavity and then sucked out -  both good and bad cells. This would possibly have indicated that it had spread but it's not always definitive.  But it would have been helpful.  I was given three choices: go back in and do a wash, observe or have chemo. I chose chemo.

I had a port-a-cath inserted on June 9 and started chemo on June 18.  This serous cancer mimics ovarian cancer so it is very aggressive.  I have 4 cycles with 3 weeks in a cycle for a total of 12 infusions. I go once a week.  The first week of each cycle I receive Carboplatin and Pacilitaxel and the 2nd and 3rd week just the Paciltaxel. I've finished my first cycle and have had minimal side effects. The biggest one is fatigue but not to the point that I can't function. Anti-nausea medication is given also at each infusion so I'm thankful for that.  I hate to vomit! 

Emotionally, in the beginning, it was very hard. I felt like I was given a death sentence.  I started thinking about writing letters to my husband, children and grandchildren.  I had started an inventory a while ago so my family would know what was important to me and they could decide what to do with my "things". I stared adding to my list immediately! I'm a praying woman so that helps a lot. I have a very supportive husband, family and friends. I was diagnosed early so my doctor is very encouraging and a very compassionate man. I have moments of fear rise up but I'm doing OK.

I know this is lengthy and each case is unique but I think relating our experiences can be helpful to us all. This is an uncommon cancer so I look forward to hearing your stories.

trustingHim

 

NoTimeForCancer

trustingHim said:

New member with Uterine Serous Cancer

In response to Debi, I am so sorry about what you've been going through with the doctors you've seen. I hope that you are getting the correct treatment that you need by now.  I feel so blessed that I live in a big city and can get good medical care.

Here is my story: In Dec 2013, I started having light vaginal bleeding. I know two others who had that also and they didn't have cancer. I did not know that vaginal bleeding post-menopausal is a sign of endometrial cancer. My GYN had just retired and I needed a new doctor so I began my search. I found a good group and got an appointment for March 18. I had a vaginal ultrasound on April 3 which indicated a problem and had a biopsy that same day. I received the diagnosis of endometrial adenocarcinoma, endometroid type, figo grade 1 on April 8th. I was referred to an GYN/Oncology surgeon and got an appointment for April 11.  I had a total hyserectomy and removal of 23 lymph nodes on April 30. The tumor was small, did not penetrate the endometrial wall and the nodes were all clear. It wasn't until this second path report came back that it was diagnosed as USPC as my subject above indicates.  It is a Stage IA but a Grade 3/3. I was misdiagnosed!  If my doctor had known what he was dealing with, he would have done a "wash" during my surgery which is when saline is put in the abdominal cavity and then sucked out -  both good and bad cells. This would possibly have indicated that it had spread but it's not always definitive.  But it would have been helpful.  I was given three choices: go back in and do a wash, observe or have chemo. I chose chemo.

I had a port-a-cath inserted on June 9 and started chemo on June 18.  This serous cancer mimics ovarian cancer so it is very aggressive.  I have 4 cycles with 3 weeks in a cycle for a total of 12 infusions. I go once a week.  The first week of each cycle I receive Carboplatin and Pacilitaxel and the 2nd and 3rd week just the Paciltaxel. I've finished my first cycle and have had minimal side effects. The biggest one is fatigue but not to the point that I can't function. Anti-nausea medication is given also at each infusion so I'm thankful for that.  I hate to vomit! 

Emotionally, in the beginning, it was very hard. I felt like I was given a death sentence.  I started thinking about writing letters to my husband, children and grandchildren.  I had started an inventory a while ago so my family would know what was important to me and they could decide what to do with my "things". I stared adding to my list immediately! I'm a praying woman so that helps a lot. I have a very supportive husband, family and friends. I was diagnosed early so my doctor is very encouraging and a very compassionate man. I have moments of fear rise up but I'm doing OK.

I know this is lengthy and each case is unique but I think relating our experiences can be helpful to us all. This is an uncommon cancer so I look forward to hearing your stories.

trustingHim

 

Welcome, I am sorry you have

Welcome, I am sorry you have had to find us but there are wonderful women here and you can ask them anything.  They inspire and comfort as friends across the electronic lines of our lives. 

cheerful

trustingHim said:

New member with Uterine Serous Cancer

In response to Debi, I am so sorry about what you've been going through with the doctors you've seen. I hope that you are getting the correct treatment that you need by now.  I feel so blessed that I live in a big city and can get good medical care.

Here is my story: In Dec 2013, I started having light vaginal bleeding. I know two others who had that also and they didn't have cancer. I did not know that vaginal bleeding post-menopausal is a sign of endometrial cancer. My GYN had just retired and I needed a new doctor so I began my search. I found a good group and got an appointment for March 18. I had a vaginal ultrasound on April 3 which indicated a problem and had a biopsy that same day. I received the diagnosis of endometrial adenocarcinoma, endometroid type, figo grade 1 on April 8th. I was referred to an GYN/Oncology surgeon and got an appointment for April 11.  I had a total hyserectomy and removal of 23 lymph nodes on April 30. The tumor was small, did not penetrate the endometrial wall and the nodes were all clear. It wasn't until this second path report came back that it was diagnosed as USPC as my subject above indicates.  It is a Stage IA but a Grade 3/3. I was misdiagnosed!  If my doctor had known what he was dealing with, he would have done a "wash" during my surgery which is when saline is put in the abdominal cavity and then sucked out -  both good and bad cells. This would possibly have indicated that it had spread but it's not always definitive.  But it would have been helpful.  I was given three choices: go back in and do a wash, observe or have chemo. I chose chemo.

I had a port-a-cath inserted on June 9 and started chemo on June 18.  This serous cancer mimics ovarian cancer so it is very aggressive.  I have 4 cycles with 3 weeks in a cycle for a total of 12 infusions. I go once a week.  The first week of each cycle I receive Carboplatin and Pacilitaxel and the 2nd and 3rd week just the Paciltaxel. I've finished my first cycle and have had minimal side effects. The biggest one is fatigue but not to the point that I can't function. Anti-nausea medication is given also at each infusion so I'm thankful for that.  I hate to vomit! 

Emotionally, in the beginning, it was very hard. I felt like I was given a death sentence.  I started thinking about writing letters to my husband, children and grandchildren.  I had started an inventory a while ago so my family would know what was important to me and they could decide what to do with my "things". I stared adding to my list immediately! I'm a praying woman so that helps a lot. I have a very supportive husband, family and friends. I was diagnosed early so my doctor is very encouraging and a very compassionate man. I have moments of fear rise up but I'm doing OK.

I know this is lengthy and each case is unique but I think relating our experiences can be helpful to us all. This is an uncommon cancer so I look forward to hearing your stories.

trustingHim

 

Hi TrustingHim:

 

     I just read your post and wanted to respond to it.  I too, was diagnosed over 3 years ago in Feb. of 2011 with UPSC. My cancer was 5 centimeters and did not penetrate the uterine wall.  I had bleeding for about 6 months when I had my surgery and my gyn did some tests on me, but nothing came back conclusive so I pushed for the surgery.  So glad I did!  My GYN did my surgery and did not sample any lymph nodes nor did I have my omentum removed.  He then introduced me to an oncologist who he knew well right after I had my surgery 2 days later, and then I made an appt. to see the oncologist the end of Feb which is when I found out I had UPSC.  

     My oncologist recommened very aggressive treatment of 6 cycles of carboplatin and taxol and 3 rounds of brachytherapy which I went through.  I made out well going through chemo, although after my 5th treatment I had to get a Neulasta shot and a blood transfusion because my platelets were so low, but the shot and the transfusion helped me out a lot, and I felt so renewed and regenerated after I had that treatment.  The hardest part for me was losing all my hair after the first chemo treatment, but I figured it was temporary and would grow back which it has.  My hair used to be very thick and I had a long bob, now I have a shorter bob, and I don't have to get my hair cut as often as I did before which is good so I do save money on my hair appts. I used to go every other month for a haircut, now it is every 3 months, and I do get a bang cut every month as my side bangs grow in quickly.

   I never got staged from the UPSC, but my oncologist is thinking it is Stage 1.  I have had a number of CT scans, and so far all along, they have showed NO evidence of disease, and I just met my 3 year mark in February of this year, and the first 2 years are the most critical of UPSC reoccurring, and so far so good.  I do know a women that has Stage 3 of our cancer and she said her oncologist said to her that after 3 years, and UPSC does not reoccur within the first 3 years, then your chances of UPSC are very good about 80% of it not coming back so that was really good to hear.   I am still diligent and watchful though of what I eat and changed my eating habits for the better once I was diagnosed with this cancer.  

  UPSC is a very scary diagnosis and I have to admit also that I was really scared when my oncologist first mentioned to me that patients with All stages of UPSC have passed away, and I asked my radiologist if anyone in stage 1 ever died from it, and he said a woman he treated did not have chemo initially, her cancer came back on her, then she went through chemo after it reoccurred, and she passed away after about 3 years.  I know I did not want to take that chance there is about a 43% chance of it coming back if you do not have chemo and so I decided to go through chemo and it is very doable and especially after my oncologist recommended aggressive treatment.  I always felt I made the right decision to have the chemo and had no doubts of getting it done I figured it would greatly increase my chances of living and going on with my life.  Your very wise also to have the chemo treatments also and I wish you all the best going through your chemo treatments.   I know that chemo is usually recommended for all stages of UPSC since it is such a rare and aggressive cancer. 

  I feel very fortunate and blessed so far that UPSC has not come back on me.  I have done everything I can to eat healthier.  I did lose about 20 lbs or more when I went through chemo.  I could not eat for a few days after chemo though and after about 6 days my appetite returned.  I went through my brachytherapy treatments after my 6 rounds of chemo.  I started chemo in April of 2011 and was finished with the chemo the end of August of 2011, and finished with the brachytherapy treatments the middle of October of 2011 and I then went back to see the radiologist in November of 2011.  I had to see the oncologist 3 times in 2012, and since then it has been twice a year.  I have 2 more years still to get through this.  

    I also have a very supportive husband, family and great friends and they were all pulling for me going through the treatments.  My Mom who was in her late 80s at the time, and just turned 91 felt so bad for me that I had to go through chemo and she knows how much I had to go through.  My Mom was there for me for most of my treatments and my son who was in high school at the time, was also there for me during a couple of my chemo treatments.  My Mom was diagnosed with early breast cancer which she survived back in 1973 and did not have to go through any follow-up treatments and I am very grateful she is still living and here for me.

   The women on this uterine board are great so if you have any concerns, we are always here.  I wish you all the best in going through your journey.  I hope in 3 years you are still cancer free and without evidence of disease and can make it to the 5 year mark and that is what I am hoping for as well to continue to remain with NO evidence of disease. So far, I am more than half way there.  

   You probably could change your eating habits and that is what I feel has helped me.  I don't eat much meat anymore, I gave up a lot of the foods I had been eating before like hot dogs, pork roll sandwiches, steak sandwiches, hamburgers although I have them on an occasional basis, tonight I had turkey burgers which are much less fattening than regular burgers.  The American Cancer Society also has said to limit french fries and potato chips and potato chips I used to really enjoy them, but I have cut back tremendously on them and rarely have french fries.

 

Cheerful

a/k/a Jane

 

 

 

 

Abbycat2

A full plate

Debi, I am sorry that you had to find us here, but believe me this is a great site for information and support.  As you know, UPSC is a grade 3 cancer, but do you know what stage cancer you were diagnosed with? I was diagnosed with stage 3A UPSC and completed chemo March, 2014. I am currently NED.  If you have not done so already, I recommend that you get all your pertinent records, especially the operative report and pathology report. Are you being followed by a gynecologic oncologist? These docs are the experts on our rare cancer. I am not familiar with the type of neuropathy you have.  I had 6 cycles of carbo/taxol and both drugs can cause neuropathy. I now have it in my feet. How much chemo you receive is determined by your overall health and weight. Some women can't receive the maximum dosage due to other health issues. You are fortunate to have access to docs in Atlanta if you eventually decide to go there for treatment. I live in a small community in Florida and Moffitt Cancer Center is a 3 hour trip to the west coast! I went there for a second opinion.

Best Wishes,

Cathy

 

Taffy22

Uterine Serous Carcinoma

My mom was diagnosed with USC 2 years ago. It has come back twice in her chest wall, she was on ixabipalone last year and it worked well for her so they decided since it had been over a year since she had it they would try it again, both times with AVastin .Her CA 125 has gone from 212 to 157 to 137 so far. She has her monthly blood work again next week, hoping its good news. I wish they could fine something that would get rid of it once and for all !!! I am thinking about having her see a natural path to help keep her healthy , she is 78 years old and in really good shape other than this. Joined this site to hopefully hear of new treatments out there if there are any, she is going to Yale and is happy with them so far. I know they are doing some studies but nothing new yet. 

Hybridspirits

Taffy22 said:

Uterine Serous Carcinoma

My mom was diagnosed with USC 2 years ago. It has come back twice in her chest wall, she was on ixabipalone last year and it worked well for her so they decided since it had been over a year since she had it they would try it again, both times with AVastin .Her CA 125 has gone from 212 to 157 to 137 so far. She has her monthly blood work again next week, hoping its good news. I wish they could fine something that would get rid of it once and for all !!! I am thinking about having her see a natural path to help keep her healthy , she is 78 years old and in really good shape other than this. Joined this site to hopefully hear of new treatments out there if there are any, she is going to Yale and is happy with them so far. I know they are doing some studies but nothing new yet. 

Naturopath

I am sorry that you Mom has to go thruogh her treatment a few times but glad she has found a treatment that looks to be working.  Going to a naturopath is a great idea as I have been working with one as well.  I did find that there are a number of naturopaths that specialize in Oncology and if you are going to Yale i am thinking you are in Ct.  google naturopath and oncology and i belive there is one in Southern Ct as I am in Ct as well

the Naturopath approach is to get your body in the best shape to defent against future cancer cells. Our body is designed to do that and with cancer our immune system didn't protect us as it should.    i have found all the changes i have done per this approach has more than made me feel better.  i am not going to the naturopath to cure any cancer but to be part of my team,  i call it my integrative team I put together myself.  At my last oncology appt I shared the blood results with my oncologist and she was thrilled I was working on my T-Cells as she feels as well that is the heart of our immune system.

let me know if you have any questions,  regards.  Sharon