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Osteosarcoma
Hello, my name is Neysi Salazar i am from Nicaragua, my best friend has cancer, he was diagnosed 3 years ago, the drs cut out his left leg now he has methatasis is his right lung... his family is really poor and he need treatmeant, i am writting here cause i really need u to help me... pls answer me... u can call me at…
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metal rod in femor
has anyone had to have a titanium rod inserted in femor bome after having a liposarcoma removed and radiation therapy? my daughter has been advised to have this procedure done. i have yet to find anyone else that has had this done because the rads made her bone brittle and dr. says she could shatter her leg in several…
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mandy's surgery
mandy had the surgery to have the titanium rod inserted into her femor bone the 27th. it is to reinforce the bone because of the intense radiation therapy she received after the liposarcoma was removed last year. she had a cold that day so the anethesiologist would not give her a general and opted for an epideral instead,…
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surgery 10-27
my daughter had a liposarcoma removed 9-2003 now will be having a titanium rod and pins inserted into femor bone that was weakened by 35 weeks radiation. the surgery is scheduled 10-27.keep her in your thoughts please. dyana
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Support Group in Alabama
Fellow survivers here who live in or near Alabama, who would like to start a support group in North Alabama Please email me at krp@hiwaay.net My name is Kevin.
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ex abusing 3 yr old w brain cancer
I need your help. I have a three year old son with brain cancer (clear cell sarcoma) and a family law judge that has given his abusive father unsupervised visitation with him in the hospital which resulted in the father emotionally the child during visits. The judge has confirmed that the father has engaged in domestic…
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Ewing's sarcoma recurrence
Is anyone out there that has had Ewing's and has had it come back? I had chemo to shrink the mass I had on my scapula. Then I had surgery. After surgery, I had chemo once again. Finally, I had a stem cell transplant. I went for my first checkup after the stem cell transplant and found out that the cancer is back. I don't…
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Recovering patient-Would love to talk
I was diagnosed in september of 2000 and just recently finished my treatments. I had a ewing sarcoma and because this is so rare I have never met or spoke to anyone who had the same problem.But I would love to share my story and hear yours.
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sarcs
Have just had my second surgery for liposarc. 7 years apart. Would like to know also about that mailing list. Feel so alone. Not many people can relate to this wonderful, rare world of liposarcomas. Am I the only one?
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Radiology results
Hi, I have a sister who went in for a transvaginal ultrasound thinking she had fibroids. The doctor wasn't there to read the radiology report so the nurse did and it said that leoimyosarcoma was one of the things it could be. My sis was so shocked that she didn't comprehend the rest of the choices. She did ask if fibroids…
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soft tissue sarcoma
Hello All, I am 12 1/2 years out from my original diagnosis at the age of 30. I have had 10 abdominal surguries, 3 different courses of chemo, 2 different courses of radiation therapy and 5 recurrences. I am 7 weeks out from my last surgery and doing well. When I was originally diagnosed, my expected survival was less than…
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sarcoma of the groin
My father is 73 years old and had his tumor removed-also having to remove some organs to clean it all out-he is three month after surgery and having a very hard time recovering-he has anemia and he is also lives with only one kidney- Has anyone had the same experience and can tell me how long before he will feel better? He…
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MRI & CT SCAN-CLEAR!!!
my daughter's 2nd scan since surgery 9-23-2003 is clear and shows NED. thank god. hopefully the cancer will never come back but you always live with the fear. she is 25 and has liposarcoma.
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sarcoma & lymphedema
i am so sorry to hear about your nephew. be strong, miracles do happen. i will pray for him and your family. keep faith, doctors are guided by god with their knowledge and will protect him whatever happens. dyana
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Endometrial Stromal Sarcoma
My entire families life has changed very rapidly lately. My grandmother developed flu like symptoms in Jan. we finally got her to agree to go to the Dr in mid Feb. We were rushed to the emergency room to what seems is now a roller coaster ride (A VERY BAD ONE). They ran tests and the next day came in and said that she had…
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sarcoma
Does anyone have any idea why my daughter still has n/v 5 mo.'s after chemo & 12 wks after radiation? She has a couple small metastatic sarcomas in her lungs which were just found. Does sarcoma itself cause n/v?
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Moms dealing with child's cancer
Hello everyone,my son was diagnoised with cancer @age 18 mos. He is now 9 and a 7 year survivor of Rhabdomyoscarcoma. I would like to hear your stories and how your children are doing. Joey is now grasping the meaning of what actually happened to him and asking questions, boy does that bring up the old well of pain in…
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uterine sarcoma
I need some wisdom, my physicians informed me two days ago that I will need radical surgery, that may include removing my bladder. I am in shock and just don't know what to do. Has anyone any guidance for me. cathy
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Rhabdomyoscarcoma
Hi my son is now a 4 year survivor of this cancer. He is 6 years old. In another year he will be DONE with CT scans and blood work etc., he will be considered CURED!!! Although this makes me happy beyond words, it is scary not to have that Ct. to be a watch dog. Anyone else out there feel the same? Lisa
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going back to school
I am now in remission after 10 years of cancer battles. I am looking forward to a new future but because of limitations due to surgeries I can not return to my old line of work. I am now going back to school through the DES vocational rehab program. I think this is more scary than the surgery! I am very worried about being…
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Alternative Treatment
I have lost my father and brother to cancer. Now my brother's youngest son (20) has been diagnosed with sarcoma -- the same kind that killed his father. He is interested in alternative treatments in a clinic in Mexico. Has anyone had any experiences with Dr. Rogers and his clinic in Matamoras?
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abdominal fibrosarcoma
My mother was just diagnosed with abdominal fibrosarcoma. It is stage IV. I'm scared. My mom is only 60 years old. This is all I think about. I have been with my Mom every step of the way from the surgery to her first oncology appointment. But I am burning out. I am finding it difficult to remain "strong". Any suggestions?
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survivorship
I am 4 1/2 years recovering from surgical resection of a liposarcoma. I still feel troubled by thoughts of having cancer and possible recurrences. Does anyone have any suggestions for moving beyond these feelings?
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Help eliminate cancer
I am looking for people in the Los Angeles area interested in supporting ACS in a Relay for Life event. I am a recent survivor looking for others to join me in the fight. email me at CelebrateLife@sbcglobal.net
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Ewings Sarcoma
Hello my name is Jason. I was only 14 when I found out that I had cancer. I thought that I was really different because I was so young and didn't know what to expect from chemo. I didn't even know what chemo was or for that matter what cancer was. I was scared but all of my doctors talked about the light at the ended of…
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new to this
My husband was recently diagnosed with a sarcoma which he has had removed from his knee. He is a lumpy guy, which comes from his father who has also been lumpy and never had cancer. My question is how do you find out which lumps may be bad. The doctor says just to watch in case any get bigger. Otherwise, they have not…
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Hello
MY NAME IS RENEE I WAS DIAGNOSED WITH CANCER IN JANUARY OF 1998. I HAD ABDOMINAL SURGEORY IN DECEMBER OF 1997. I WENT THROUGH 6 ROUNDS OF CHEMO THERAPY AND 2 WEEKS OF RADIATION. RECENTLY I HAD TO HAVE LUNG SURGEORY BECAUSE THE CANCER RETURNED. I AM DOING OK NOW AND I'M GETTING THROUGH ONE DAY AT A TIME. SIGNED, RENEE
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hello
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