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Prostate Cancer

Casodex no longer working
I posted previously about Casodex not working any more. My PSA is 60 but I have no symptoms. I cannot take drugs like Lupron and my urologist thinks that increasing the Casodex to 100mg could cause serious side effects. I cannot afford zyrtiga or xandi since there is no free healthcare where I live. I'm wondering what I…
New to This
Good Afternoon All! I am new to this forum but it appears that i will need alot of information from everyone. My husband has not "officially" been diagnosed yet, but with a PSA of 47 and growths felt on both sides of the prostate gland during the DRE the doctor is pretty certain. What really frustrates and scares me is…
Hip joint pain on ADT
I have develpoed severe hip joint pain while on intermittent Firmagon (since 2017) for advanced PC after RP (2016) and SR (2017) failed. This pain could of course be metastatic disease, old age issues, etc but I have read with interest that some people (both male and female) report joint problems while on ADT. Have any of…
Joining the Club with high initial PSA
Hello All: Best Wishes to Everyone for a better 2021 !! My own new year is beginning with the life changing news that we all have had. All indications at this point are that 2021 will be more challenging for me. Perhaps much more! All was going well until the first week of December, when I began having mild symptoms of, I…
Question about retrograde ejaculation after prostatectomy
I have just been scheduled for a robotic prostatectomy. I was told by my urologist that some men may have retrograde ejaculations (where the semen backflows into the bladder) after they resume sexual activity. Have any of you had this issue? Is it only occasionally, or is it every time you ejaculate? Does it hurt? Does it…
LFT for advanced PCa
My GP has ordered yet another blood panel for me because for the last two tests my AST levels have been higher than normal. I think he thinks I either drink too much or am a drunk! I had a total of four glasses of wine in the last six weeks in between tests. The AST still went up a couple of points. Does anyone out there…
Proton Therapy
I've been undergoing Proton Beam Theraphy at MD Anderson in Houston, TX and have 6 treatments left. I'm wanting to find out what kind of side effect (if any) I might incounter down the road, 6 months, one year, 2 years, ect?
New Prostrate Diagnosis
Husband will be 87 in June. Has gelason 9 with bone involvement. What is the out look for him.
Low But Stubborn PSA Numbers
I was diagnosed with prostate cancer (PCa) in June 2013. I had no symptoms prior to the diagnosis, but a routine blood test revealed a high PSA of 12.7. The DRE was negative. A transurethral biopsy revealed cancer in 7 of 21 cores. The biopsy was staged T2c, Gleason 7, but a second opinion classified one Gleason 7 core to…
Follow-up
Well, I had my follow-up over the phone for my prostate results with a NP at Levine Cancer Institute. PSA was undetectable which I posted on this site when I got it. She asked me how was my flow? I said fine. She asked was I continent? I said I was (no thins, pads, or diapers) at this time. Then, we talked a little and she…
Cyberknife providers
I was diagnosed with PCa in April 2015 at Johns Hopkins, with a Gleason score of 3+4=7 involving 40% of one core out of 15. I chose not to do RP or radiation, in favor of another provider doing Focal Laser Ablation , and was treated in November 2015, December 2017 and June 2019 using this modality. Each time the Gleason…
Cystitis blood in urine
Any thoughts on new research on cystitis and blood in urine, made worse by any type of exercise. Had imrt prostate radiation a year ago, did hyperbaric oxygen without fixing hematuria and going on 6 months. Urologist says to giv more time but want to keep exploring as I am missing exercise and want to see of other things…
ED after RP
I thought I might get some advice after my RP on the 17th of December of last year. I am now almost 2 1/2 months post-surgery and I have gained almost complete urinary continence. I am wearing a pad to work but just for back up. I am going without a pad on weekends just to "test the waters" (pun intended). I have gotten a…
Recent results of prostatectomy, with detectable PSA
4 months after my prostate surgery, i had a PSA of 0.14.. My gleason score was 9...They now want me to do hormone and radiation and stay on the hormone trt. for 18 months to 3 years.. I am very woried about the side effects of hormone trt... I just turned 78 yrs. old.. Thanks Arnold
New Member, Pre-Treatment
Hello all. A brief background: my PSA started climbing from around 2.0, three years ago, to 4.7 now. I've had two 12-core biopsies, about a year apart. I wanted to try active surveillance and supplements. The first showed 5% cancer in one core. The second showed 5% cancer in one core and 20% in another. Both Gleason 3+3.…
Complications for RALP surgeon
My RALP surgery is schedule for a little less than 4 weeks away. I have been told that there are two complications that he is expecting. 1. My prostate is stuck to my rectum. He said that it will be a very delicate process to seperate them. 2. My bladder is somewhat smaller than normal and the neck of the bladder is…
Diagnosed with PIRADS 4 - Need Help Finding the Best Care
Hi Everyone - I am 59 1/2 and diagnosed with PC on 10/20/20. Biopsies showed involvement in 1 of 12 core samples. Gleason at that time was 3+3=6. MRI scheduled and completed 10 days ago. Got the results of the MRI on last Sunday (a week ago) and left to decipher all the medical jargon. Finally spoke with my doctor on…
I'm frustrated
Okay .. I had a physical 2nd week in Jan. I asked my family Doc to do a PSA - FREE PSA, as I wanted to know that I was still in range of what 'was' .... He called me back - Your PSA went from 10.1 - to 14.7. Your Free PSA went from 8.9 to 1.7. He refered me back to my Urologyst who told me - "... nothing to worry about you…
After Proton treatments for Prostate Cancer
Sorry if this sounds like a dumb question and yes I did a lot of research before choosing Proton Therapy for my prostate cancer. After my threatment this moring I had my weekly visit with the doctor. I asked the doctor what exactly is this treatment doing to my prostate and how do the treatment kill the cancer. In the 30…
Unfavorable 4+3
So my husband has prostate cancer. Recently had a appt with Pulmonologist Internist due to coughing up some blood- this Was recommended by our surgeon. Chest X Rays were good- no cancer there orresdon for further testing. Said he had some bronchitis and was most likely irritate. Supposed to have nuclear bone scan and MRI…
Elevated Triglycerides
PCa almost three years ago via RALP. No issues. Semi-annual PSA's have shown PSA as virtually undetectable. Recently saw my GP about a non-PCa issue. He made, what I thought to be an unrelated question about me having an endoscopy and then ordered more blood work stating my triglyceride levels had gone way up since my last…
RALP recovery
My surgery is scheduled for 03/17/21. What items would you suggest I have at home to help with recovery/comfort/etc.?
When to be concerned about numbers rising
i had a prostate cacncer diagnosis a couple of years ago - had it removed. number went down than came back up - had 47 bouts of radiation. numbers have been less than 0.03 for the last three tests. due to covide its been a little while since i had a test - just had one and it is less than 0.1. i know that is a low nubmer…
Picking Surgeons
What is the best way to research Surgeons? Anyone recently get prostate surgery at CTCA Philly?
PSA Test 02/21
Just thought you folks would like to know. I have had my 6th PSA test since having my RP (3/2018): Results: <0.1ng/ml. Smile, I am.
Is It Inflammation or Metastasis
i'm starting to get a bit frightened. as some of you know, i had my 1st. PSA blood test after having HDR treatment. my treatment was done on jan 9th and 23rd of 2020. during july, i was sched to have my first check-up, but because of COVID-19, my RO said i could wait another 6 mths. well, this past january 21st. was six…
After surgery / radiation - how to make it better
its been about 2 years since my diagnosis - and as i mentioned in a previous post - i had robotic surgury to remove the prostate and some radiation. the little guy is still not cooperating - i cannot get a full enough erection needed for coitis and i continue to pee all over myself. 1) even with a pad i always lead on the…
Cialis and Sex During Radiation Treatment
Hello, I'm currently undergoing Proton Radiation Therapy treatments for prostate cancer and I'm wondering if it's okay to take Cialis and have sex during treatments. Thanks for your help.
Post-Radical Prostatectomy Side effects
I am now 6 weeks post-radical prostatectomy and I am doing remarkably well. Favorable pathology report finding the cancer contained with no sign of margin involvement. Will have ultra-sensative PSA blood test in a couple of weeks to confirm. I have lost about 15 lbs and I am only mildly incontinent. I leak when lifting…
PSA Level Post HDR Brachytherapy
this past december, i turned 47. in feb. 2019, i was diagnosed with GS 4+3=7 PCa. in july of that year, i was treated with 6 months of casodex 50mg. until january of 2020. on january 9th and 23rd, i received HDR brachytherapy. at diagnosis, my PSA was 11.9, later that year, after going a few weeks without casodex, my PSA…

Prostate Cancer

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