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Prostate Cancer

Husband newly diagnosed- we are so scared
So our journey has begun.. my husband had PSA of 12.3 on physical this year that led us to the Urologist then to biopsy.. he is a T1c with Gleason 7 and has one area that was 4+3=7 so was told he is unfavorable intermediate. His prolaris was 4.5 so Dr said his cancer is acting like an 8 or 9. We have decided to have the…
Finding a surgeon who has done A LOT of robotic prostatectomies.
I am new to this group. After an elevated PSA, I had a biopsy done in November and was diagnosed with a very small volume of Gleason 7 (4+3) PC. My Dr. counseled Active Surveillance. But after feeling like I was living with a bomb in me I went for a second opinion. Second Dr. suggested an MRI which found two Lesions, one…
Surgical Clips
Just wondering, what your folks opinions are on surgical clips being left in your body for life after lymph node dissection? I realise they are inert. Anybody had any problems with this?
Incontinence & TUIBNC
I had my prostate removed 8 years ago. My PSA started to increase immediately after surgery so I went through radiation. To my knowledge I have been cancer free since the radiation. I had not struggled with incontinence but started having issues the last year with weak stream and dribbling. My Urologist wanted to do a…
Best Course of Action
PSA levels slowly rising, still slightly below the BCR level three years after RALP, blood work has been every six months since the surgery. What should happen next, if it rises over the .2 level? Watchful waiting? Radiation? Or some type of ADT? Or a combination of the latter two? I'm a month away from 75, HBP, high…
PSA Nadir of 0.3 1year after Radiation on Jan 2017 and last reading of 2.3 in March of 2021
Cannabis Oil to treat Advance Prostate Cancer
I was diagnosed with advance PCa back in May of 2016 and had the RALP done on August 18, 2016. My pathology report pre operative showed a Gleason score of 4+3 and PSA at 25.8 with seminal vesicle involvement. Also, pre operative, my bone and ct scan were negative. After surgery, my PSA was at 0.1, and with eight(8) lymph…
Long standing incontinence and impotence
I was a 52 year old healthy individual and had a robotic prostatectomy in July of 2015, Gleason 6 PSA 24. After the surgery, I was completely impotent and almost completely incontinent. I have been through two years of pelvic floor physical therapy, Viagra, Cialis, Trimix for the ED, and Vesicare, Ditropan and Detrol for…
15.5 years post-RRP: To be (concerned) or Not to be
Morning gents! RRP with Dr Alan Partin (Johns Hopkins) in August 2005. Post-surgery gleason 3+4, T2c tumor, Margins clear. Unremarkable side effects, save for gradually worsened leaking which was helped with a mesh sling in 2006 and then an AUS device in 2017 (which gave me a decidedly fresh outlook on life!). No issues…
Plans for Prostate removal
I was diagnosed in September with PC. 10 out of 12 core samples are positive for cancer. Gleason 3+4=7. I have opted for the Robotic Surgery. I was wondering if anybody here has had the same procedure and can offer some insight on what I can expect. What are do's & don'ts on preparing for the surgery? Appreciate any and…
PSA Levels
Hello, I have a brother who has just found out his PSA is 4.1. Dr. has suggested a wait and see for a month. At what point did your Drs. urge further investigation? Is 4.1 considered high, normal high? I would appreciate any information you might share. Thanks, Marcia
Stage 4
Hi. I am new here.I just found out last month that I am stage 4 with distant spread. 1 spot in ribs. 1in chest and 1 in spine. Also 8 areas in pelvic region. Psa was 64 and gleason of 8. 12 core samples show 9 cores of 8. Doctor gave me 2 weeks ago my first 3 month injection of lupron. I am to start…
Results from my Seventh Prostate Biopsy
Last Friday I had biopsy number seven as part of my twelve years in Johns Hopkins’ Active Surveillance program. This biopsy was different, as I requested the imaging be done in real time using the ExactVu micro-ultrasound. After nine previous MRI’s with gadolinium contrast, I didn’t want any more of those chemicals. The…
Time from MRI to Fusion Biopsy
Dear All, I am a 55 year old man whose PSA went from 0.9 ng/ml to 2.8 ng/ml in a year Primary Care suggested follow-up PSA in 6 months which then was 4.1 ng/ml with Free PSA 0.8 ng/ml (2.0%). Urologist couldn't see me until December 23rd. Where he noted a subtle difference in prostate testure on DRE. He schedule a TRUS…
Casodex no longer working
I posted previously about Casodex not working any more. My PSA is 60 but I have no symptoms. I cannot take drugs like Lupron and my urologist thinks that increasing the Casodex to 100mg could cause serious side effects. I cannot afford zyrtiga or xandi since there is no free healthcare where I live. I'm wondering what I…
New to This
Good Afternoon All! I am new to this forum but it appears that i will need alot of information from everyone. My husband has not "officially" been diagnosed yet, but with a PSA of 47 and growths felt on both sides of the prostate gland during the DRE the doctor is pretty certain. What really frustrates and scares me is…
Hip joint pain on ADT
I have develpoed severe hip joint pain while on intermittent Firmagon (since 2017) for advanced PC after RP (2016) and SR (2017) failed. This pain could of course be metastatic disease, old age issues, etc but I have read with interest that some people (both male and female) report joint problems while on ADT. Have any of…
Joining the Club with high initial PSA
Hello All: Best Wishes to Everyone for a better 2021 !! My own new year is beginning with the life changing news that we all have had. All indications at this point are that 2021 will be more challenging for me. Perhaps much more! All was going well until the first week of December, when I began having mild symptoms of, I…
Question about retrograde ejaculation after prostatectomy
I have just been scheduled for a robotic prostatectomy. I was told by my urologist that some men may have retrograde ejaculations (where the semen backflows into the bladder) after they resume sexual activity. Have any of you had this issue? Is it only occasionally, or is it every time you ejaculate? Does it hurt? Does it…
LFT for advanced PCa
My GP has ordered yet another blood panel for me because for the last two tests my AST levels have been higher than normal. I think he thinks I either drink too much or am a drunk! I had a total of four glasses of wine in the last six weeks in between tests. The AST still went up a couple of points. Does anyone out there…
Proton Therapy
I've been undergoing Proton Beam Theraphy at MD Anderson in Houston, TX and have 6 treatments left. I'm wanting to find out what kind of side effect (if any) I might incounter down the road, 6 months, one year, 2 years, ect?
New Prostrate Diagnosis
Husband will be 87 in June. Has gelason 9 with bone involvement. What is the out look for him.
Low But Stubborn PSA Numbers
I was diagnosed with prostate cancer (PCa) in June 2013. I had no symptoms prior to the diagnosis, but a routine blood test revealed a high PSA of 12.7. The DRE was negative. A transurethral biopsy revealed cancer in 7 of 21 cores. The biopsy was staged T2c, Gleason 7, but a second opinion classified one Gleason 7 core to…
Follow-up
Well, I had my follow-up over the phone for my prostate results with a NP at Levine Cancer Institute. PSA was undetectable which I posted on this site when I got it. She asked me how was my flow? I said fine. She asked was I continent? I said I was (no thins, pads, or diapers) at this time. Then, we talked a little and she…
Cyberknife providers
I was diagnosed with PCa in April 2015 at Johns Hopkins, with a Gleason score of 3+4=7 involving 40% of one core out of 15. I chose not to do RP or radiation, in favor of another provider doing Focal Laser Ablation , and was treated in November 2015, December 2017 and June 2019 using this modality. Each time the Gleason…
Cystitis blood in urine
Any thoughts on new research on cystitis and blood in urine, made worse by any type of exercise. Had imrt prostate radiation a year ago, did hyperbaric oxygen without fixing hematuria and going on 6 months. Urologist says to giv more time but want to keep exploring as I am missing exercise and want to see of other things…
ED after RP
I thought I might get some advice after my RP on the 17th of December of last year. I am now almost 2 1/2 months post-surgery and I have gained almost complete urinary continence. I am wearing a pad to work but just for back up. I am going without a pad on weekends just to "test the waters" (pun intended). I have gotten a…
Recent results of prostatectomy, with detectable PSA
4 months after my prostate surgery, i had a PSA of 0.14.. My gleason score was 9...They now want me to do hormone and radiation and stay on the hormone trt. for 18 months to 3 years.. I am very woried about the side effects of hormone trt... I just turned 78 yrs. old.. Thanks Arnold
New Member, Pre-Treatment
Hello all. A brief background: my PSA started climbing from around 2.0, three years ago, to 4.7 now. I've had two 12-core biopsies, about a year apart. I wanted to try active surveillance and supplements. The first showed 5% cancer in one core. The second showed 5% cancer in one core and 20% in another. Both Gleason 3+3.…
Complications for RALP surgeon
My RALP surgery is schedule for a little less than 4 weeks away. I have been told that there are two complications that he is expecting. 1. My prostate is stuck to my rectum. He said that it will be a very delicate process to seperate them. 2. My bladder is somewhat smaller than normal and the neck of the bladder is…

Prostate Cancer

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