Please remember that these discussion boards are a public forum, which means open to the public (i.e. non-CSN members) and the content can be found via internet search engines. Members are strongly advised not to share personal identifiers such as real names, email address, telephone number, street address, etc. This information can be used to identify you and link you to the content you provide. Other areas of CSN are restricted to members only and cannot be found by search engines.

Prostate Cancer

Diagnosed with prostate cancer
I am a 54 yr old whom was diagnosed with PC on November 3,2020. With a GS OF 3+3 and 3+7 8 out of 12 . this all started with my psa level 4.7 back in October 2019. My Uriology told me I had and infection (UTI) prescribed me medication, retested psa was normal . But I remember having some leakage after urinating. So fast…
Cancer resources in Houston Texas that can help pay the bill.
I now live in Houston Texas .I'm having a difficult time with my insurance company whic is based out of nyc. There is no specialist or Uriologist within 100k miles . If anyone can give me some advice or information it would gre be appreciated...
Newly Diagnosed with Prostate Cancer 10-29-2020
I am 53 and I was diagnosed with PC on 10-29-2020. I have a Gleason Score 3 + 4 = 7. 12 samples were collected and 5 came back positive. I need information on what treatment I should choose. Bone Scan negative and CT scan negative. PSA 9.20 09/22/2020 PSA 2.55 11/26/2018 PSA 2.63 03/15/2017 PSA 1.92 02/18/2016 PSA 1.56…
Casodex no longer working
I have been taking Casodex 50 mg for nine years. I take it for two months and then stop for three months. My PSA has been between2 and now 50. It now is not working so good can I take something instead of Casodex. I think the cancer is still within prostrate gland and has not spread
University of Utah Huntsman Institute TAK-700 Clinical trial
Well, maybe some good news. My oncologist called and after consulting with her partner, she said I am such low volume spread that it may not yet be time for chemo and that lupron and casodex may be enough now. She is also going to refer me to The Huntsman Cancer Institute at the University of Utah for a clinical trial of a…
.
Great news today. The best since February. I am celebrating. Moderna's vaccine is 90 percent effective. The other vaccine making companies are using the same ingredients. Stay safe for the next few months.
heart failure and inconinence
I'm not sure if I posted this question on this site or not. I belong to several incontinece sites, and sometimes forgot what I have posted where. My question relates to incontinence and heart disease. I had a total prostatectomy/bladder diverticulotomy almost 3 1/2 years ago. I struggled with some incontinence issues prior…
Tizanidine (Zanaflex)
Hi Everyone, Anybody ever use Tizanidine (Zanaflex)? I wanted something to help me relax at night (bone scan coming up!), but not sure if it would cause urinary problems – such as becoming unable to pee. I left a message with my urologist. Waiting to hear back from his office. I don’t want to find out the hard way.
Finally Decided To Take Care of it.
Hello All, Just wanted to inform the forum that I finally decided to do RP on September 24, 2020. Prior to surgery, biopsy showed 6 out of 12 cores positive with 3+3 Gleson 6. After RP pathology showed 2 3+4 Gleson 7. The hardest part after RP was dealing with the cath for 7 days. After Cath was removed, I was prescribed…
Prostate Cancer Treatment Timeframe
Hi, My Dad was diagnosed with prostate cancer in early Sept. Gleason 7 4+3 Just got results from follow up CT Scan findings were possible Lytic lesions in pelvis. Whole body bone scan showed nothing. His urologist is highly recommended and has years of experience treating prostate cancer. Now urologist wants a bone biopsy…
What to do
I was diagnosed with Prostate Cancer in 2014. I had the robotic surgery and PSA continued to creep upward. I then had the Radiation treatment in 2016. Have had a PSA test every 6 months since then. Each time, it climbs at least .1%. I was told to move test to every 3 months and PSA climbed .3%. At this time it is .9. My…
Distance
How do you guys deal with when the person you love most in this world is sick and they start to pull away in different ways and start putting you at a distance?
Slight rise in PSA numbers
Good afternoon, I was diagnosed 5/2006 with prostate cancer with a PSA of 22. Pca was scored 4+3 Gleason scale. Cancer had escaped the capsule. No invasion into seminal. Decided to go with radiation treatment (43), afterwards a regiment of Eligard injections every 6 months and a daily bicalutamide tablet. After 3 years, I…
84 month check up
was diagnosed with prostate cancer in november 2011 gleason 9 had radiation and hormone treatments since then my psa has gradually risen to now being 2.49 <0.05 0.31 0.63 0.79 1.00 5/23/13 to 2/3 15 1.36 1.89 1.52 1.62 1.88 1.90 2.49 from 12/1 15 to 10/1/2018 how concerned should I be
Penile atrophy due to Androgen Deprivation Therapy
Hello Friends, I am 52-year-old man. I was put in ADT for 1.5 years. During that period, I was not sexually active. Now I am five months off the ADT and my testosterone level has returned. However, I have noticed that my penis is 1.5” shorter. I was wondering if it will grow back to it's original size. Can Penis extender…
hyperbaric oxygen therapy for post radiation therapy??
PSA 1550
My husband was diagnosed about 8 months ago with stage IV prostate cancer. He was having typical prostate symptoms but we were stunned at how far along the disease had progressed. PSA was 1550, gleason score of 9, mets to bone, lymph nodes and lung. He's responded very well to hormone therapy and his PSA has come down…
ED getting worse after a good start
Hey guys I had my prostate removed (robotic surgery) on last Jul 6th. Nerve bundles were spared. Right after the surgery i suffered from urinary incontinence, but after 2 months the leakages get more rare. As for ED I remember that after 2 or 3 weeks i started to take a daily Cialis 5mg dose and started also to have…
PSA of 0.10 after Radiation and Chemo
I had 44 radiation treatments and five chemos, with one to go. I was wondering if my PSA being down from 16.62 to 0.10 is a good sign. Thanks in advance for any information you can provide.
Bone pain
What can I do at home for bone pain that comes from prostate cancer? My husband is going through radiation, and hormone treatment. He's on Ibuprofen and Acetametafin for pain and he is still in pain. What can I do to offer him some relief?He says that the radiation offers him some pain relief but by the time he gets home…
Sudden severe illness as recurrent Stage 2 PC becomes Stage 4 Small Cell Carcinoma
My father is an otherwise healthy 72 yo who has recurrent PCa after radiation. As recently as August he seemed fine. Also in August, his PSA levels were low, and imaging showed the cancer in a local lymph node was shrinking. Then he began having back pain, which he beleived to be a strain but was acutually from a mass…
PCa with bone met? can somebody please help/advice
I am 56 yeras and had a PSA of 5.1 (30. may) took MRI on 11. august and TRUSP on 17. august with 4 samples taken (from suspecsious area). I live in Norway. Unfortunately, I am realizing now that I have had almost all of the PCa symtomps starting 2019 without taking any actions. For making the long history short here is…
PSA Testing | Rising, concern?
hi there board members. I wanted to just quickly pop on here and hopefully get some news and or recommendations. we all know how hard it is when your mind is constantly racing and looking for answers and even harder when its a loved one. I've been on this board before but can not seem to remember my username and nor…
AUS800 Doctors in Phoenix Area
I live in the Phoenix area. I am 71. My AUS800 is getting close to replacement time. The leaking is getting worse as the months go by. Just wondering if anyone has used a doctor in the Phoenix area who redid their AUS and they are very happy with the results. I use an urology clinic and in the clinic there is Dr. Simoncini…
Some questions nine months after Dx
Hello: I am new to this forum, so I apologize in advance if I don't follow all the protocols. I had my first biopsy last November, and I was diagnosed with PCa as a result of that test (specific results listed below). I have decided on AS (for now), and it is almost time for my second biopsy. This time, my doc wants me to…
Recent Cyberknife Treatment
Looking for personal side effect experience using cyberknife for prostate treatment. Thank you!
Anyone know if megadosing vitamin C is good of bad for PCa?
Megadosing vitamin D is suposed to be good for immunity and reducing PCa. Vitamin C is supposed to be good for immunity but do not know if good or bad for PCa. TIA
treatments for advanced prostate cancer-spread to lymph nodes
I would be grateful for members willing to share their experiences of effectiveness/safety of treatments for Stage 4 PC, especially with Lutetium-177 therapy treatments......
elevated psa
I maybe premature on joining this site. I have had psa checks for the last nine years. The psa has steadily gone up and I have had two biopsies with no signs of cancer and the dre is negative for lumps. The first biopsy was 12 cores and the second was 18 core all negative. The last mri showed a lesion and the pirad scale…
Prostate Cancer with Bone Met
Hi Everyone, My name is Charlie and I was diagnosed with Prostate Cancer with Bone Metasisis in Feb 2017 PSA @ 153 Gleason 6. Has six doses of Taxotere Chemo along with a six month Lupron Shot. PSA went down to 23. Began a regimen of ZYTIGA which lasted about 15 months along with Lupron. PSA rose to 53 and was switched to…

Prostate Cancer

Discussion List

Discussion Boards