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What Stage?
Hi Guys, First post and new here, This is my story....I am 50 and had a UTI which kncocked me for six and but after antibiotics it improved but i still felt something wasnt right so after a few weeks I managed to see the doctor and get a DRE which he said he felt something abnormal and with a high PSA level of 11, he told…
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Incontinence
My surgery was 9,30.2019 with Dr. Patel in Orlando. My Gleason scors was 8 with a 9 after biopsy. Ninety one days later I had my Gallbladder out on New Year's eve. I wil be 78 next month. I also have peripheral nerve problems. My PSA is undetectable since surgery. Will my continence come back over time. Most of my posts…
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side effects data
Where is the best place to find current side effect data on the different ADT treatments , SBRT radiation and bracytherapy? I am 84, Gleason 8 and need to decide on ADT followed by SBRT
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Orgovyx vs Lupron
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Tests for spread
What tests are performed to determine if cancer has left the prostate? Is it PET scan? Would that be done if Gleason is 6?
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Active Surveilance update 2021
Prior discussions the new guy - a candidate 26 Oct 2016 first contact 30 Oct 2016 initial resistance 9 Nov 2016 Primary tabs 1.5T vs 3 T mp-MRI rationale 4 Dec 2016 Update (2018) 28 Aug 2018 I got an insured 3T mpMRI in 2016. It came out PIRADS 3 (original scale, version 1). I could not get a fusion biopsy. I waited for a…
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my 3 options for treatment
Hi, I am new to this forum and appreciate all of the advice and wisdom of the threads I have been reading. 62 year old in good health. Latest PSA in 9/2020 is 8.3. One year previous was 7.0. Primary care physician was concerned with velocity of results over time. No other urinary symptoms of concern. Had MRI (negative) and…
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ED after nerve sparing prostatectomy
https://link.broadcaster3.medpagetoday.com/click/24053431.10339/aHR0cHM6Ly93d3cubWVkcGFnZXRvZGF5LmNvbS9oZW1hdG9sb2d5b25jb2xvZ3kvcHJvc3RhdGVjYW5jZXIvOTI5MTA_eGlkPW5sX2NvdmlkdXBkYXRlXzIwMjEtMDYtMDQmZXVuPWcxMjQzMjUyZDBy/5b203761576f2c6597129e73Ba15a8322 To all new prospective RP patients, please read this report before you…
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Radiation Side Effects
I'm curious to hear experiences of people who have had radiation at a younger age that are now older. How side effects of radiation may have progressed over time. I have the impression that 10 - 20 years later more complications occur.
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Prostatic artery embolization
I have been on active surveilence for 4 years for Gleason 6 PCa. All tests so far, 5 biopsys, 2 3T MRIs, 2 Oncotype DX tests and numerous PSA's all indicate that there is little chance of more serious cancer. HOWEVER, I do suffer from fairly serious BPH symptoms which affect my quality of life. I started a new medication…
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Quality of Life vs Quantity of Life
Though my question is more general, as in the subject line, I see that you guys appreciate a personal sharing, so here goes. After years of a rising PSA, when it reached around 9 in Dec. 2019, a urologist insisted that I get a biopsy (though no doctor had ever told me before that to get one, which is a different story).…
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APIFINY blood test , another new diagnostic test for prostate cancer
....good for those on Active Surveillance , or for those with high PSA or family history of prostate cancer. http://armune.com/apifiny-prostate-cancer-test/patients/patient-faqs/ http://armune.com/apifiny-prostate-cancer-test/physicians/
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Just got my biopsy results .. now what?
just got my results 14 samples, 2 were 3+4 and 3 were 3+3. Ranged from 5% involved to 15%. 1mm to 3mm. recommendation is robotic surgery, dr Patel , Florida Hospital within 6 months. He has performed more than 11,000 over 15 years. with high success rate of minimal side effacts and fast recovery. Was considering radiation…
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6.4 years
I had my annual PSA check today, nearly six and a half years following RP (DaVinci). 'Undetectable.' I went into surgery told that it was Stage I disease, but the gland pathology showed Stage II, as well as 'chronically inflammed tissue.' I believe I had prostatitis for 30 years, and the surgeon said that it was wholly…
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Elevated PSA follow up
Hello again: I still need some wisdom and guidance with respect to addressing my re-occuring cancer. I have been told that I definatly have cancer again?? I have a really big concern. That is, where is it in my body and why do my Dr's. want to attack the prostate bed only. If it's not there they have only added to my…
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Consultation
Hello to everyone I think it was on this forum that I read not too long ago about an expert doctor who gives a second opinion consultation by sending him one's records without having to make a personal visit to his clinic. Does anyone here know about this and can repost the information? Thank you very much and best of…
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Our situation
Hello, New here. My dad had been experiencing mild to moderate back pain for around 3 months. Since he hadnt been to the doctor in over 40 years, he was waiting for it to go away. Finally, the pain became so severe, he agreed to go to the urgent care. Days later he got an mri where they called an hour later urgently…
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Tough decisions
June 2019 I had triple by pass surgery.In February of 2021 I was diagnosed with Prostate cancer with a PSA of 6.23. Gleason score of 9 4+5=9.Fisrt urlogist from M Fairview at the U of M told me I should have surgery.He said no radiation and no chemo "yet".He didn't explain any options in depth at all.When I asked him about…
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Medicare coverage for second pathologist's opinion
I just checked my Medicare online account and the billing for a second opinion of my confirmatory biopsy slides by Johns Hopkins was denied by Medicare. Is this normal/usual? If their analysis overrules the first pathologist's report, $250 is money well spent. In either case, I can afford it and value the second opinion.…
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Possibly going back on ADT
Hi, My husband only had a 3 month break from his lupron/zytiga (after being on it a year plus radiation for gleason 9 metasis to lymphnodes) and today we learned he may have to go back on. Basically his testosterone went back to normal (484) too quickly and with that,the psa went from undetectable to 0.3. He is still…
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Diagnosed
I had a biopsy Monday and was told today that I have PC. However Dr said if I have to have PC its the best I could hope for. 2 samples out of 12 showed PC and 1 was a very low count. PSA was 6.5. I'm a somewhat healthy 67. Somewhat anxious personality. Dr is suggesting RALP and I want to be aggressive to get rid of PC if…
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PSA level 38-44 after 10 yrs watchful waiting
Diagnosed in July 2011. Chose watchful waiting which was the right choice for me as it is now April 2021 (i'm now 65yo) and my only symptoms have been BPH type symptoms. Recent PSA test shows PSA level at 38 (down from 44 due to using Finasteride, Urologist thinks). Finasteride can apparently shrink enlarged prostate a bit…
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CHOICES!!
So many choices available. Looking for feedback. 71 y/o/ man Pros removed 2015. PSA 23. Gleason 7 . Some lymph removed too. All good for about 3 years. PSA started to slowly climb. As of 2021, it was .975 Received hormone shot April 2021, latest PSA .027 I have narrowed it down to Xray, Proton therapy or "watch and wait".…
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Introduction
Hi all, Yesterday I got my prostate cancer diagnosis. Gleason score 3+4 I'm not too freaked out by it since I have had kidney cancer before. Anyway, I'll update my profile and spend some time reading all of your stories and I will probably have some questions in the future. Steve.
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Prostate removed -gleason 9- mestastasized to bone- to begin radiation
Hello, My husband has had his prostate removed but upon the 7 week blood test it had mestastasized to 2 locations in the bone. He has been diagnosed with an agressive form of prostate cancer and has been placed on the generic of Zytiga, is taking hormone shots & is to begin radiation for the 2 locations in the bone next…
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Husband newly diagnosed- we are so scared
So our journey has begun.. my husband had PSA of 12.3 on physical this year that led us to the Urologist then to biopsy.. he is a T1c with Gleason 7 and has one area that was 4+3=7 so was told he is unfavorable intermediate. His prolaris was 4.5 so Dr said his cancer is acting like an 8 or 9. We have decided to have the…
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Finding a surgeon who has done A LOT of robotic prostatectomies.
I am new to this group. After an elevated PSA, I had a biopsy done in November and was diagnosed with a very small volume of Gleason 7 (4+3) PC. My Dr. counseled Active Surveillance. But after feeling like I was living with a bomb in me I went for a second opinion. Second Dr. suggested an MRI which found two Lesions, one…
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Surgical Clips
Just wondering, what your folks opinions are on surgical clips being left in your body for life after lymph node dissection? I realise they are inert. Anybody had any problems with this?
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Incontinence & TUIBNC
I had my prostate removed 8 years ago. My PSA started to increase immediately after surgery so I went through radiation. To my knowledge I have been cancer free since the radiation. I had not struggled with incontinence but started having issues the last year with weak stream and dribbling. My Urologist wanted to do a…
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Best Course of Action
PSA levels slowly rising, still slightly below the BCR level three years after RALP, blood work has been every six months since the surgery. What should happen next, if it rises over the .2 level? Watchful waiting? Radiation? Or some type of ADT? Or a combination of the latter two? I'm a month away from 75, HBP, high…