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Orgovyx and Erleada
I posted in 2018; time for an update; 13+ years and moving forward! I’ve noted there’s not much discussion in the forum about two medications, Orgovyx and Erleada. I thought I’d contribute my experiences to date. Basic information: I was diagnosed with prostate cancer in 2008 at age 51 with a PSA of 6.2. After biopsy, my…
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I say they change breast cancer awareness month
To breast cancer/prostate cancer awareness month I mean, why not they have the most common one for women breats cancer we have the most common one for men and get nothing …why not join teams? I mean they have a whole month of October for breast cancer and nothing for prostate cancer I don’t know how to start a movement but…
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Biopsy Now or Later
Today, I had a confusing conversation with my urologist. After receiving a PSA result of 10.1, I underwent an MRI and CT scan, which identified two contained lesions. Despite these findings, the urologist suggested waiting a few months before repeating the PSA test. When I did, my PSA level had dropped to 8.4. The…
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Shrinking Balls Post Radiation Treatment?
I've noticed that my testicles seem to have shrinked in size following CK treatment 2 years ago. This hasn't affected my sexual performance (no ED) but there has been a reduction in ejaculate (which was anticipated). There are some articles on the Net that state that radiation can somehow cause shrinkage in penile length…
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40s, aggressive cancer
I'm trying to be a caregiver for my partner who was diagnosed with aggressive prostate cancer in his 40s (high genetic risk). RP was 10 months ago. PSA started riding steeply, so he's now in Week 3 of 8 for RT, going to start ADT soon. Pre-RP scores were Grade 5, Gleason 9 (4+5). Downgraded to 7 at biopsy, but both the…
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ADT Questions
My husband's oncologist wants to put him on Lupron shots (6 month extended release) plus Zytiga daily and that means also prednisone. His PSMA pet scan is this week, but regardless of the results this is the protocol they want to start with. History is recurrent Pca following hemi ablation HIFU 12 years ago. MRI now shows…
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Time from diagnosis to treatment
I think this is getting a little ridiculous five years ago first time round I was diagnosed on December 7. I did not start my therapy until the following July 7 seven months now five years later I have a final appointment with the surgeon at UCLA next tuesday and then I’ll make my decision. This will be six months since i…
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Just received my Prostate Cancer diagnosis
I'm 63 years old and in otherwise excellent health. High PSA prompted a Prostate Biopsy procedure. 3.2 on 1/15/2019 3.6 on 10/14/2022 6.8 on 4/30/2024 5.0 on 5/234/2024 (check on reading from 4/30/24) Did Biopsy on 6/24/24, 14 cores, 2 of the 14 cores showed problems. Below are the summaries: PROSTATE, RIGHT BASE, BIOPSY…
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Appointment next week for results of biopsy of prostate
I'm anxiously waiting for the results of the biopsy done for my dad who is facing prostate cancer. He's in his 70s but extremely active, probably the healthiest person in my family. This is quite unreal. I've offered to be there during this appointment and I'm trying to read as much as possible to be able to ask informed…
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Prostate Health Index
Haven't been here for several months so maybe this is an old topic. My friend has a PSA of 4 - got there slowly over many years. He's now 80. His Dr. told him his PHI indicates he has a 50% chance of having (or getting cancer) and is going to do a biopsy to sort out what, if anything, needs to be done. On my cancer journey…
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Prostate Cancer
Hi had Turp surgery last Friday. Met with Dr Tuesday to take out catheter ...said i have cancer....Gleason 6, tumor occupies less then 10% of prostate tissue....Very shocked... I am 51, fit, work out alot, no history, eat well....... Some emotions here . he said active surveillance. said PSA 3 months (last year was 1.4)…
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Post TURP
Hi, Thanks for allowing me to join the group. I'm 76 and diagnosed with a Gleason 10 and PSA of 51. Comorbidities are COPD and CHD. My first treatment was 10 rad treatments, palliative, followed by daily Erleada and Orgovyx. What can I expect with that regimen?
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PSA Levels Reduced With Intensive Lifestyle Changes - Ornish Study
I was poking through the forums and noticed that Dean Ornish's studies on prostate cancer were not mentioned on these boards, which seems remarkable to me given that he reversed or halted prostate cancer in a group of 44 men. The study was published in the Journal of Urology, Vol. 174, 1065–1070, September 2005. You can…
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New diagnosis and treatment options
Hi, I’m a caregiver to a loved one newly diagnosed with prostate cancer. We’re still learning and have really valued this discussion board- thank you all. My loved one is 73 years old, active and generally healthy (but does have heart disease well managed) and his PCP told him 6 years ago not to get PSA anymore. This year…
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Gleeson Score
From my MRI, it was disclosed that I had two lesions. Lesion 1 - PI-RADS Assessment Category: 4 and lesion 2- PI-RADS Assessment Category: 3. To determine the Gleeson score, are the two category scores added together?
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Understanding Test Results
I'm 81 y/o. In July, my PSA level was 10.l, and further imaging tests indicated some cancer cells in my prostate. The urologist suggested I wait for another PSA test. It is the weekend, and I just got my PSA test results. PSA Total is 8.8, PSA Free is 1.7 and PSA % Free is 19. Before writing, I Googled to understand the…
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New member question
Hi. I'm newly diagnosed. Just hD my biopsy after mri revealed possible lesion. I'm only reading tge test results so I have not talked to my doc yet but looking for some help on what to expect. Some of the samples came back with Acinar Adenocarcinoma. Gleason score of 7. Any idea what treatment I'd usually recommended?…
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New member
Hello everyone, glad to be able to join the group. Brief history, 70 year old, just had robotic RP, biopsy of 12 cores showed 5 have gleason score of 6, and 3 with score of 7. Today is my 4th day after RP, and pathology reported I have Extraprostatic extension of neoplasm is present. Which I understand that the cance has…
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Question about ART
He Everyone, one week post RP, pathology report shows lymph nodes and margins negative, however, have Extraprostatic extension of neoplasm is present. My question is, having PSA in 3 months, and wondering if anyone went ahead and had ART (or anything else done) prior to the 3 month psa, and if that is even possible? Any…
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September 2024 PSA
Well, it has been around 6.5 years since my RALP. My latest (09/03/2024) PSA results: <0.1ng/ml. To best of my knowledge that is still undetectable. I get tested once a year. I will be 74 years old this month. This is a journey for us. I am still continent. I still enjoy trying to catch my wife every once in a while, but…
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After Lupron and Radiation
I need help recovering strength and energy after completion of radiation and Lupron (2 x 3 months). I don't lnow where to turn. My Urologost is no help. He says his only concern is keeping my PSA down. Can anyone give me suggestions? Thank you.
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Work up complete - headed for surgery
I had a PSA done in June which was 15 (outpatient Quest lab drawn on a Friday, sample run on Monday in a different state. I followed up at a close by regional cancer center who repeated the test 1 month later (24) - different lab in house. MRI, followed by fusion biopsy - showed 2 lesions 1.9 CM ( rt. peripheral) and 0.7…
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Prostate, need to get Biopsy.
47 year old. PSA kept rising, highest 3. MRI (2 lesions), it doing well mentally, planning a transperneal Biopsy: CLINICAL INDICATION: Prostate screen, PSA > 3, post repeat (PSA, DRE, benign workup) Encounter for screening for malignant neoplasm of prostate Z12.5; TECHNIQUE: Using a body phased array coil small…
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Post catheter Urine stream slowing
On Monday my catheter came out and my urine stream seemed stronger than before but not because of any enlarged prostate issues previously. I had always for the last 15 years just had a slow stream. So initially I was wow this is great. Now over the last three days my urine stream is slowing down again and the last time it…
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Interpreting Surgical Pathology Report
I have my follow surgery discussion with my surgeon 9/4. He did call me after he got the report and said he had good news , clean margins, clean lymph nodes, etc…everything looked good. But I want to make sure I can ask proper questions regarding my report. My initial Gleason score in February was 3+4+7, intermediate…
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Treatment advice
I'm I 58 year old male healthy, non smoker no drugs in very good shape on active surveillance for 1 year. My PSA has been stable for last 9 months at 6.0. Original Biopsy (1year ago) I had 3 cores 3+3 and grade 1. Recent Biopsy I had 5 cores 3 at 3+3 and 2 at 3+4. I'm seeking treatment advice from anyone who would like to…
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Proton Treatment
I have been on this site previously. Been on AS for 3 years. Continuing growth in positive cores and appearance of 3+4 in two cores are moving me to treatment. I am committing to Proton believe the following Cost is much higher than SBRT/IBRT Curative power for PCA is equal to other radiation types and RP Lower secondary…
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Biochemical reoccurrence
Underwent a prostatectomy on 9/7/2022, pathology showed: adenocarcinoma, Gleason 7 (4+3); focal extraprostatic extension present (right anterior, right lateral), positive margin (left apical), involves 6-10% of prostate; 0/10 right pelvic, 0/5 left pelvic LNs involved; pT3aN0Mx. PSA on first test was .07, second test 3…
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Cancer Journey
First of all thank you to everyone here that shares their experience and expertise. I have learned so much from this forum. Like many wives of husbands diagnosed with prostate cancer we become their biggest advocates and cheerleaders. Here is our ongoing story which started 13 years ago. My husband was diagnosed with…
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Proton vs Photon therapy
Results of my biopsy show out of 12 location I have two with 4+3 Gleason and I with 3+4. I am 76 years old and in good shape otherwise. Have talked with Proton Therapy center in Knoxville and would prefer this treatment but my Humana Advantage plan will probably not cover the cost. Now setting up an appt with Photon…