-
Missing items from RALP Discharge Summary
I thought I would offer these notes and tips that seemed to be missing from my discharge instructions, to those that come after me: + Days 1-3 + + Waking up in the recovery room ……. I awoke without fanfare, flashing lights or sirens. For this I thanked my lucky stars without complaint. Everything else, come what may. + +…
-
MRI with or without contrast
Hi, I am already one year in active surveillance but I have decide to treat this year with focal therapy. Before starting the treatment, I had an MRI done yesterday but it was without contrast. Should I request another one with contrast before starting a treatment? Thanks, Fred
-
PSA after surgery interesting
From John Hopkins Study Explores AccuPSA Test During one study, Dr. Partin and his colleagues examined blood samples from 31 patients whose PSA level had been undetectable for at least five years after radical prostatectomy. All these patients had PSA levels less than 0.1 ng/ml after surgery. However, one third of them…
-
Anyone have experience with urologist in Colorado Springs?
trying to confirm my surgeon’s experience.
-
15 Years Post RP Detectable PSA
Submitted to a radical prostectomy in June 2009 after an initial PSA of 16.9 and a confirming biopsy. Total time lapse from detection to removal was less than 120 days. My PSA screening occurred regularly for several years post surgery and each result was undetectable - until now. I'm an older veteran and have recently…
-
Post RARP cath removal incontinence
Good evening to all. I had my DaVinci RARP at Advent Celebration and had a great experience. Stage pT3b involved 11 - 20% of gland. Negative surgical margins. 3 lymph nodes negative for malignancy. Cath removed yesterday, and now I have very little control - very incontinent, especially with 6 - 8 8ounce glasses a day. I…
-
New to hear and have alt of concerns
ADENOCARCINOMA; Gleason Score 7(4 + 3); Grade Grcup 3: 15% of the needle core tissue involved by tumor: 1/ of 1 core involved. (Confirmed by PIN4 IHC-G) | Benign seminal vesicle/ejaculatory duct tissue. ADENOCARCINOMA: Gleason Score 9(4 + 5); Grade Grcup 5: 90% of the needle core tissue involved by tumor; 1 of 1 core…
-
Starting PT pre Prostate Surgery - not what I expected
My Dr suggested that I do some pre-surgery PT to help shorten the incontinence period after surgery, and then continue with therapy aftwwards. Going into PT I thought I was going to get tips on how to do Kegel excersises properly. But instead the focus was on strengenthing the Pelvic Floor. The therapist first checked my…
-
biochemical recurrence
I just joined and was wondering Is there already a discussion of this? My husband had stage 4 prostate cancer but radiation and Hormone T has resulted in a five year remission with undetectable PSA. In the last six months PSA is up several times and is going for PSMA-Pet in three weeks and I'm wondering what all this…
-
Radiation therapy
Now have PC and plan to take radiation therapy, but have heard of incontinense with radiation when I thought it was more of an issue with removal. Anyone have experience or comments
-
How long to worry about clots and strictures
If I have surgery, how long are blood clots and possible contractures a thing to look out for? Do people still have to pass daily thin catheters through to keep things open for a period of time? I'm wondering if it is advisable to travel overseas within three months of surgery, if all goes well. I know it depends on how…
-
Advanced Cancer and waiting...
I've been watching my score go up this year (surgery early 2010 and salvage late 2015). My PSA is now .310 up from a .207 in March and .210 in July...I continue with a good and mostly plant base diet, which I believe has helped me over the years (outcome could have been aggressive but it hasn’t to date). Some days I hate…
-
scientific American Article
-
Just had MRI
Hello everyone, just had MRI because my PSA was 14. I have 3 lesions: 1.6 × 0.8 x 1.4 cm lesion left anterior transition zone at the mid gland (ROI #1). PI-RADS 5: Very high (clinically significant cancer is highly likely to be present) 1.9 x 0.9 x 2.5 cm lesion right posterolateral peripheral zone at the gland base and…
-
Tumor Size Question
My MRI results from last October (below) mention lesion in right mid gland with a measurement of 1.9 x 1.0 x .09 cm. I'm assuming this is the size of my tumor? Is this a length / width / and height measurement of the tumor? If so, is that considered a smaller or larger tumor? Can anyone help me understand this better?…
-
Delay times between MRI and Biopsy?
67 y/o male, PSA 6.7ng/ml, recently discovered on blood test. I'm getting healthcare thru VA, who also outsources to local hospital because they have the latest and greatest in MRI/Biopsy abilities. I just had my MRI on 4/21/24 which indicated 19mm lesion and a smaller area of abnormality as well. A targeted biopsy was…
-
Horseback riding
I have been trail riding for over 25 years. are there any other riders out there who can tell me if I will be able to ride again?
-
Biopsy is done. 26 cores extracted. All benign. What is the next step?
I posted earlier with my data below: "I am 68. I live in Southern California. I have Medicare and medigap insurance. In early 2022, my PSA was 3.9. By November 2023 it went up to 5.3. My PCP gave me referral for a urologist who asked me to do a 3 Tesla MRI, and a urine test. My MRI shows my prostate size: 47cc PSA density:…
-
Focal Cryo Therapy for initial treatment
After months of indecision, I just sent a note to my doctor at Fox Chase to ask him to schedule me for focal cryotherapy procedure. So far, it seems for primary treatments of Pca, focal treatments are typically only applicable to some men who qualify with in-gland non metastasized low to intermediate grade cancer. The…
-
off Orgovyx
I took my last Orgovyx pill last Saturday the 20th. As of last night the 25th I am already feeling a little regaining of energy and some strength. I did 60 pushups in a row and 2 weeks ago barely did 30. I have not been doing them daily just as a test. Also, only 12 hot flashes since yesterday morning. It appears once you…
-
Help with mri report
Hi, I was diagnosed in January with Gleason 3+3 (no MRI prior to biopsy). PSA was 4.5 last week. I had an MRI today and just received the results below. Multiple prostate lesions as above. PI-Rads v2.1 score: Pirads 5 - Very high (clinically significant cancer is highly likely to be present) Narrative MRI of prostate with…
-
4 weeks post RALP and total incontinence during the day
Ok, so I know we are lucky, my husband is back to light golfing (not using the driver until this week) active, and feels great except for the constant incontinence during the daytime hours. Unless he is lying down sleeping or lying on the couch he is leaking continuously all day going through maybe 10 pads. Is this…
-
Catheter removal
so anyway, I went to my general practitioner to have the catheter removed. He pulled out all the saline in the balloon, and then literally grabbed it and yanked it out. I have to admit it really hurt about the last inch at the tip of my penis and now it has been two weeks and the tip of my penis inside still hurts about an…
-
EBRT after prostate removal
-
Searching for Treatment Feedback / Supplements
Hello I am age 51 (in great shape aside from this) recently diagnosed PCA and biopsy showed combination of 3+4 and 4+3 Gleason so definitely intermediate risk. PET scan on 4/19/24 showed cancer is on left side of prostate only has not spread. No symptons aside from PSA level 4.3 and get up pee 1 or twice at night. I am…
-
wondering about finasteride
Hi all! I'm new to the board as I have been recently diagnosed with a gleason score of 3+3=6. I feel very blessed that it is such a low grade, and at this point have decided on active surveillance. My doctor also put me on Finasteride. I didn't think much of it at the time, but after doing some research, I'm questioning if…
-
Surgery or radiation therapy
I have listened to and read quite a bit. I am trying to decide between surgery and a radiation plan. My cancer is considered treatable by my Dr’s. Any opinions on this broad question between the two? Thank you.
-
Pluvicto
I just finished first of six Pluvicto treatments. Out of isolation and haven't noticed any real bad side effects (yet). I recently finished a clinical study with Xtandi and a part inhibitor. PSA was 115 at beginning, went down ton3.2 then trended upwards. Doctor immediately got me on Pluvicto so we'll see how it goes. I…
-
Upcoming robotic RP - Dr. Vipul Patel - need post op ideas on supplies
On May 5th I have an RP scheduled w Dr. Vipul Patel. Been watching it for 4 years after it hit 5 ng/ml. Hovered around 7, then rose to 15. 4KPSA 50.1 MRI guided biopsy 6/10 cores positive. I worked in a hospital lab for 25 years and used to batch run PSAs years ago and would get that result and think "that poor SOB" - and…
-
PC health cost
so I just had Salvage surgery and PSMA scans and biopsies and the whole 9 yards.. surgery was one night in the hospital at UCLA the whole thing was $59,000. PS MA scan back in July $46,000 biopsy $17,000 MRI $12,000 every video visit I had with all the different doctors no more than twelve minutes six hundred to a thousand…