Please remember that these discussion boards are a public forum, which means open to the public (i.e. non-CSN members) and the content can be found via internet search engines. Members are strongly advised not to share personal identifiers such as real names, email address, telephone number, street address, etc. This information can be used to identify you and link you to the content you provide. Other areas of CSN are restricted to members only and cannot be found by search engines.

Prostate Cancer

Unnerved by my recent prostate diagnosis
Recently, I had a general physical that included a PSA test. At 81, I thought it was not recommended to include it in the blood test. The results came back with a PSA level of 10.1 I made an appointment with my urologist, who recommended a sonogram, MRI, and CT scan. The results showed two lesions (PI-RADS Assessment…
New to this group
I have been under observation for years and now after my 3rd biopsy, I have been given the choice of surgery or radiation. I chose surgery as if I have returned cancer I can turn to radiation. There is no shame in saying that I am scared for the surgery, but more about after the surgery and how to deal with what needs to…
MRI results
just saw results on my husbands patient portal. Not really sure what they mean. Also didn’t know if I should’ve put this on my original topic , so I just started a new topic, hope that’s ok. FINDINGS: There is mild hypertrophy of the central gland with a total gland volume of 21 cc. The prostate gland measures 4.0 x 2.9 x…
Just diagnosed looking for advice and your experience
Offically diagnosed with prostate cancer 6/21/24. PSA is 15.25 (up from 2.8 six months ago). PI-RADS 5 score from MRI. Biopsy score was Gleason 8 (4+4), Grade 4. 12 of 16 cores involved. Cribiform pattern present. Yes to Extraprostatic extension and Perineural Invasion. PMSA PET scan is being scheduled. Have met with…
High Gleason/low PSA
hi, I just had a biopsy. All 12 samples have an “aggressive” cancer cell sampling. My Gleason score is 9, but my PSA is only 4.4. When I search for information on low PSA and high Gleason I’m reading that this combination has a much higher mortality rate. Does anyone on here have a similar profile? I’m sorta lost…thanks Jim
Rising PSA
My psa has been rising since 2012. Had several biopsies! The last one on 1/4/19 with 20 cores taken with no cancer! DRE was good but do have enlarged prostrate! No infection. The urologist had me come in once a year for psa check! On 2/17/23 my psa was 11.6. On 2/8/24 my psa was 13.56. Was checked again on 7/10/24 and it…
Advice
Advice: 63-year-old asymptomatic patient. I was given the following three options for localized prostate cancer. 1.Laparoscopic prostatectomy preserving left side nerves 2. Radiation 3. Active Surveillance HISTORY: 11-09-2018 PSA 3.9 05-15-2024 PSA 7.8 05-19-2024 Biopsy: 6 cores, 3 from the left side (chronic prostatitis),…
Salvage surgery update
thanks for everybodies support. I had salvage surgery done on April 1 roughly 3 1/2 months ago so here’s my story. I’m doing very well right now probably better than expected. My PSA is below 0.015 undetectable which is great hopefully, I’ll stay that way. only issue I had I had an ongoing UTI for about six weeks it kind…
Just test AI personal healthcare agent for cancer
Just tested an AI personal healthcare agent being built by this startup team from Harvard and its super cool. They've been working with cancer patients for the last year and its clear from their product features that this is built specifically for cancer patients on treatments. It allows you to input all your medications…
5 treatments verses long course of radiation treament
Hi My oncologist recommended a 5 session course of treatment rather than the extended version. Any comments re the pros and cons thanks
8 weeks out from surgery
Had Robotic Prostatectomy 8 weeks ago. Desided on surgery as the best option for longevity. Im 63 years old and my cancer was both types one being more aggressive. Pet/Ct showed no cancer outside of the prostate. Biopsy after surgery confirmed clear margins and contained within prostate. PSA check showed 0.04 which doctors…
Gastroenterologist specializing in radiation enteritis/proctitis treatments
My husband recently completed RT for a biochemical recurrence of prostate cancer. He had a tough time getting through the radiation treatments due to enteritis and then proctitis that required treatments with oral steroids and a brief pause in his treatments. He was able to complete his treatments about 10 days ago but is…
Newly Diagnosed Very high PSA
My husband was recently diagnosed. Very health, fit 65 year old. Went in for a physical because he never goes to the doctor and they ordered a blood panel. Doctors office called him and told him his PSA was 44.74 and they referred him to a urologist. Since then he has had an MRI which showed 2 lesions rated PIRAD 4 Biopsy…
How likely is radiation n a one and done proceedue
Thank you all for your help. I am trying to find out how likely radiation would be in my case and in general is a one and done procedure with no reoccurrence . I am told I am a favorable intermediate case with: 76 years old in good health PSA 5.6 Decipher 4.0 Slowly rising PSA over time Biopsy: Three sites out of 14 with…
Is an MRI necessary before radiation treatment
Thank you all for your responses. If I get treatment it will most likely be radiation. I have not had an MRI and my date to start radiation treatment to soon approaching. Prior to radiation treatment should I have had a MRI or is a MRI performed during treatment on the table so none is required before hand . Also, if there…
reoccurrence rate radiation
Hi all, From the data available the charts show a 10% chance of reoccuancd with radiation and ADT, and 20 percent without ADT in eight years. These seem awfully high. Am I missing some thing. Anyone know the reocurance rate for surgery as well.. ADT is a no go for me. Thank you.
Looking for input about reoccurrence rates between radiation and surgery
First post. Recently diagnosed with PC. I am a 76 years old in good health otherwise. Results of testing: I am told I am in the intermediate favorable group with a 5.6 Gleason and 4-0 decipher. My PET scan shows no margin involvement. I am trying to get a handle on the reocurance rate between the two options surged or…
Appointment next week for results of biopsy of prostate
I'm anxiously waiting for the results of the biopsy done for my dad who is facing prostate cancer. He's in his 70s but extremely active, probably the healthiest person in my family. This is quite unreal. I've offered to be there during this appointment and I'm trying to read as much as possible to be able to ask informed…
Incontinence products guidance
I am a few days away from getting my post-surgery catheter removed. I haven’t been able to find any good comprehensive guidance or reviews of incontinence products - diapers, pads, etc. I was hoping to get feedback on brands that fit better, or are more leakproof, or just what to look for. Guidance on dressing and…
Just received my Prostate Cancer diagnosis
I'm 63 years old and in otherwise excellent health. High PSA prompted a Prostate Biopsy procedure. 3.2 on 1/15/2019 3.6 on 10/14/2022 6.8 on 4/30/2024 5.0 on 5/234/2024 (check on reading from 4/30/24) Did Biopsy on 6/24/24, 14 cores, 2 of the 14 cores showed problems. Below are the summaries: PROSTATE, RIGHT BASE, BIOPSY…
Rising PSA after 12 years post surgery
Had robotic surgery at Cleveland Clinic in 2010. Gleason 3+3. Nerve sparing surgery and results indicated cancer was contained. PSA undetectable for 12 years. 2023 measured .04. 2024 measures .08. MD says to watch and wait. Don't understand why after 12 years suddenly rising.
Lymphedema after surgery
I have been reading about all the side effects of incontinence and ED after RALP but not much about swelling in legs after a RALP with lymph node dissection. My background: Age: turning 71 in Sept, My RALP Surgery scheduled mid August, nerve sparring estimated 100% one side 75% other side Biopsy early Feb. 24, 5 Gleason 6…
Don't see the point
Stage 4 PC.Starting Chemo. Told I will be on Testosterone inhibition for the rest of my life.No sex,no passion,no energy,no muscle mass just a blob. I am 73 but was hoping for another relationship before I die but would not put this on anyone else. Not sure I see the point in living liked this. All that I am will be gone .…
My Journey begins - Navigating with Prostate Cancer
My first PSA test was at age 51 and was only taken as I was applying for life insurance. This was in 2014 and my PSA was 3.0 My next PSA was taken a month ago in November 2023 during a normal physical at the age of 59. This PSA test came back as 64 (not 6.4 but 64). I was referred to Urologist and they performed a DRE…
when to start ADT along with SBRT
Hi, due to scheduling delays I won't be able to start SBRT (cyberknife) for my Gleason 4+3 multi-focal PC until September. My PSA jumped in October last year from 2.7 to 4.6 in 16 months time. I did not get a biopsy until April which shows two localized tumors about 1 cm each. 70 percent gleason pattern 4. I would like to…
Statistics of PCa left untreated?
I've had no trouble finding statistics on survivability of various levels of PCa after treatment. They'll typically show percentages for 10 and 15 years. What I haven't seen is the equivalent stats for the various levels of PCa when left untreated. Or even statistics of various levels of untreated PCa metastasizing over 10…
15 months post robotic prostatectomy and no erections
Hi, just looking for a bit of encouragement and to see how others may have done when erections post prostatectomy continue to be absent. I had surgery 15 months ago and my surgeon expected all nerves had been spared. I have been using a pump daily and did regiments of first tadalafil and then sildenafil. Both were maximum…
Update
I decided to start a new thread. I finally have some answers on treatment plan. cT3a, cN1, cM0, PSA: 29, Grade Group: 5 is the staging. It also says stage 4a. So, i take it these numbers are not good but it is regional. Pelvic lymph node involved. We are doing brachytherapy followed by 5 weeks of external beam radiation.…
Flowmax (Tamsulosin)
I'm currently taking 0.4 mg of Tamsulosin every 12 hours prescribed by my surgeon that performed a Focal IRE Nanoknife ablation 3 weeks ago. He wants me to do this for a month then cut back to once daily after that. I'm still peeing a bit of blood at onset of urine stream, but otherwise doing well during the day. At night…
Here's my story
I'm 61. I was on active surveillance for two years. When my 3+4 turned to 4+3 and my PSA went to 10, they told me I was no longer a candidate for active surveillance. I had a prostatectomy in early March. I wore Depends for at least six weeks, most of the time with a pad inside the Depends and sometime even with toilet…

Prostate Cancer

Discussion List

Discussion Boards