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Prostate Cancer

Rising PSA after 12 years post surgery
Had robotic surgery at Cleveland Clinic in 2010. Gleason 3+3. Nerve sparing surgery and results indicated cancer was contained. PSA undetectable for 12 years. 2023 measured .04. 2024 measures .08. MD says to watch and wait. Don't understand why after 12 years suddenly rising.
Lymphedema after surgery
I have been reading about all the side effects of incontinence and ED after RALP but not much about swelling in legs after a RALP with lymph node dissection. My background: Age: turning 71 in Sept, My RALP Surgery scheduled mid August, nerve sparring estimated 100% one side 75% other side Biopsy early Feb. 24, 5 Gleason 6…
Don't see the point
Stage 4 PC.Starting Chemo. Told I will be on Testosterone inhibition for the rest of my life.No sex,no passion,no energy,no muscle mass just a blob. I am 73 but was hoping for another relationship before I die but would not put this on anyone else. Not sure I see the point in living liked this. All that I am will be gone .…
My Journey begins - Navigating with Prostate Cancer
My first PSA test was at age 51 and was only taken as I was applying for life insurance. This was in 2014 and my PSA was 3.0 My next PSA was taken a month ago in November 2023 during a normal physical at the age of 59. This PSA test came back as 64 (not 6.4 but 64). I was referred to Urologist and they performed a DRE…
when to start ADT along with SBRT
Hi, due to scheduling delays I won't be able to start SBRT (cyberknife) for my Gleason 4+3 multi-focal PC until September. My PSA jumped in October last year from 2.7 to 4.6 in 16 months time. I did not get a biopsy until April which shows two localized tumors about 1 cm each. 70 percent gleason pattern 4. I would like to…
Statistics of PCa left untreated?
I've had no trouble finding statistics on survivability of various levels of PCa after treatment. They'll typically show percentages for 10 and 15 years. What I haven't seen is the equivalent stats for the various levels of PCa when left untreated. Or even statistics of various levels of untreated PCa metastasizing over 10…
15 months post robotic prostatectomy and no erections
Hi, just looking for a bit of encouragement and to see how others may have done when erections post prostatectomy continue to be absent. I had surgery 15 months ago and my surgeon expected all nerves had been spared. I have been using a pump daily and did regiments of first tadalafil and then sildenafil. Both were maximum…
Update
I decided to start a new thread. I finally have some answers on treatment plan. cT3a, cN1, cM0, PSA: 29, Grade Group: 5 is the staging. It also says stage 4a. So, i take it these numbers are not good but it is regional. Pelvic lymph node involved. We are doing brachytherapy followed by 5 weeks of external beam radiation.…
Flowmax (Tamsulosin)
I'm currently taking 0.4 mg of Tamsulosin every 12 hours prescribed by my surgeon that performed a Focal IRE Nanoknife ablation 3 weeks ago. He wants me to do this for a month then cut back to once daily after that. I'm still peeing a bit of blood at onset of urine stream, but otherwise doing well during the day. At night…
Here's my story
I'm 61. I was on active surveillance for two years. When my 3+4 turned to 4+3 and my PSA went to 10, they told me I was no longer a candidate for active surveillance. I had a prostatectomy in early March. I wore Depends for at least six weeks, most of the time with a pad inside the Depends and sometime even with toilet…
Waiting on first PSA after salvage surgery
everybody knows my story. I just want to thank everybody here for the support… I will be finding out today. I got to admit him I’m a bit nervous… otherwise things have been going so so incontinence is pretty rough during the dayb... so I’m also been dealing with a month-long UTI looks like I got some type of restriction…
Prostatectomy with an AUS (artificial urinary sphincter) in place
I have been diagnosed with prostate cancer. I will likely need radical prostatectomy surgery in the near future. I have an AUS (artificial urinary sphincter) already in place. Have any of you had this surgery with an AUS? Might such surgery result in damage to the AUS or its control reservoir, which is located in the…
Post radical prostatectomy sex.
Six weeks ago, I had a radical prostatectomy due to prostate cancer. After my resent doctor's appointment (over the phone) he gave me the green light to have sex. My question is, what will it be like? Will having an orgasm be painful? Will getting and maintaining an erection be a problem? What consideration should I bestow…
Diagnosed with grade 2 PC psa 2.7 Gleason 3+4
Hi updating and confirming PC, 7 out of 13 samples positive . Unfortunately looks like PC on both sides maybe ruling out any focal treatments. Today I start doctor visits for my treat options …My main concern are the LUTS that I am experiencing, LUTS similar to BPH.( tho my prostate is only 21cc and is small according to…
Prostate Cancer confirmed 2 years ago - is it normal to wait for cancer to spread?
Over two years ago I was diagnosed with prostate cancer with samples being tested and coming back positive. Since then my doctor is monitoring my PSA levels which seem sporatic … one day I will have an 8 and then upon retesting it drops down to a 4 …. overall my PSA has been slowly increasing but ignoring the sporatic…
After surgery
I had my prostate removed on May 16th a week later I had the Catherine out. I think I'm having a real problem with urinary control I'm doing the exercises which I know I should have started before surgery probably at least a month before surgery but didn't because I really didn't understand them. I think I'm gaining a…
Newly diagnosed
4 year ago my husbands PSA started to go up..He's 69..From June of 2020 to November it went from7.6 to 11.3..Dr didn't order a biopsy. Finally in 2023 they did a biopsy..said there was no cancer. Recently his PSA hit 15.8. My husband was having trouble urinating and up all night. He asked his Dr about having an Aquablation…
Robotic surgery problems arising from internal abdominal scar tissue
I have a recent diagnosis of prostate cancer, psa 5.74, Gleason 4+3=7, 2.2 cm in size, located in lower right half of prostate. Cribriform glands present, nerves not involved. I am 73 years old, active and otherwise healthy. Doctors have ruled out HIFU treatment, due to no safe margins near rectum. Options are proton beam…
very high PSA after major peripheral artery disease surgery for legs
Hi, I'm a 75 year old man. A week ago I had major surgery: A femoral endarterectomy for PAD. When I was discharged I was scheduled for my check up with my internist. I mistakenly asked for a PSA test. Since I'd been through so much I believe I should have waited. My PSA came out at 9.00. But on the other hand, I had a lot…
Input on Orgovyx + Zytiga
Hi All....I'm looking for info and advise from folks that have used Orgovyx + Zytiga. I'm probably going to be on it for about 48 weeks or so in the near term...as I await other treatments... Thank you, BD
Husband has Prostate cancer and other symptoms
Hi all. My husband was diagnosed with PC two years ago with a gleason score 6 and PSA of 4.6. He is on active survelliance. He's only had 1 bisopsy done blind, no MRI. Could his cancer have metastasized with these numbers? His PSA is now at 5.7 and the Dr's aren't worried. But he's lost 25 pounds in the last 6 months, has…
How is the Gleason score summed?
Hi everyone. I just received a diagnosis of prostate cancer and have a question about how the Gleason score is summed up. Is it the score of your worst biopsy core or the sum of ALL of your cancer-positive cores? For example, in my case I have 3 positive cores. 3 + 3 3 + 4 4 + 3 Would my overall Gleason score be 4 + 3 or 3…
Primary Treatment Focal IRE Nanoknife Procedure completed
Well, I finally had it done yesterday at Fox Chase Cancer Center. It was stressful making this decision, 6 months of wavering on what to do first. I'm glad it is done. Anxiety level has lessened from having made the decision and to have gone forward. I am feeling a bit beat up today. My voice is weak I think mostly due to…
Frequency of Biopsies
Two years ago, I had an MRI fusion biopsy which was positive for cancer, gleason of 7 (3+4) which was sent away for DNA testing which showed the cancer was slow growing. My PSA is 6.5. My doctor wants to do another biopsy. My question is: how often should I be getting an MRI fusion biopsy? When I had my first fusion…
What do you think about my case? Better to remove the prostate now or wait?
52 years old man. MRI PiRads 4 (10x11 mm pseudonodular lesion with ill-defined margins in Peripherical zone) Lesion located in the posterolateral segment of the lower third of the left peripheral lobe. PSA 5.33 ng/ml. Systematic biopsy and targeted (total 14 samples). 5 samples targeted to lession index (3 positives & 2…
Husband was misdiagnosed
My husband is 53, urologist diagnosed him in January with bph and borderline low testosterone. Started him on testosterone injections every two weeks until May when she said he needed to stop because he could have prostate cancer, and that the testosterone will fuel the cancer. she wanted to do a biopsy immediately. We…
Post MRI report seems bad.
Had my first MRI after PSA jumped from 3.1 on April 2021 to 13.6 on Feb 2024 then a week later to 15.6. Was tested for possible infection but came back negative so the MRI was scheduled. The Report Impression: Highly suspicious lesion of the anterior right apex as above marked for possible fusion biopsy. The lesion…
Biopsy results
My husband is 68 PSA 4 last January retest 90days 4.2 retest 90days 5.2 biopsy digital exams clear until last results firm i know the results are not good.. the urologist is scheduled to call us tomorrow I read that with the higher Gleason/grades the prostate quits putting out the PSA higher numbers.. I am thinking scans…
Gleason 8 and Proton Therapy vs Surgery
Hi there. I was diagnosed with Prostate Cancer on the right side. This was following an MRI on 23 Feb and a Biopsy on 28 March. Had bone scan and PET PSMA scans on 18 and 24 April 2024. Met with a Urologist and two different Radiation Oncologists since then. Biopsy result was 6 of 13 samples were positive for…
Orchiectomy vs. Hormonal Therapy
My father has advanced prostate cancer with a PSA of 160 with cancer spreading throughout his bones. He is currently on a lot of pain medication and weakening rapidly. His new urologist is recommending orchiectomy even though my father has been getting Lupron injections for 18 months. I asked my father's oncologist and he…

Prostate Cancer

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