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50 Hours Out of Surgery
I started my procedure at 7:15 Tuesday morning. When I looked at the clock in recovery it was 3 pm. I had a DaVinci XII robotic assisted radical prostatectomy. Before the surgeon had the opportunity to visit, I made two laps around the unit with the assistance of a walker and a kind nurse holding my robe closed. While my…
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PET CT SCAN REPORT
Here are some statements from my report. Comments?? There is a physiologic distribution of activity in the brain. If further evaluation of the brain is clinically indicated, PET CT is limited and MRI is the recommended modality. The SUV max in the right parotid gland is 40.02. The SUV max in the mediastinal blood is…
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Cyberknife: Is it worth choosing a doctor who uses Cyberknife
From what I have read Cyberknife often results in better treatment. Would you limit your search to doctors who uses it? Thank you
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So, so many questions and worries.
First time visitor, first time posting… A bit about my story first. I was diagnosed on 9/28/23 when I was 48 years old. Gleason 9, CHEK2 mutation. Had the prostectomy in November of '23. Prior to the surgery I was having lots of low back and lower body pains and fatigue. Post surgery those pains and fatigue were absent…
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Less than 24 hours post Surgery
Wheeled down to operating room at 7:30am yesterday for a Single Port, Nerve Sparring and ligament sparring (non cutting of ligament connected to bladder) Robotic Laparoscopic Prostatectomy. Completed at 1:30pm and sent to recovery and discharged home at 5:00pm. Doctor talked to wife afterwards and she recalled him…
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Pain in finger joints - Side effect of Orgovyx
Has anyone had this side effect. And does anyone know how to make it better? I've read that it could be caused by interactions with vitamins and supplements.
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Upcoming Appointment - Nervous
So this is my first time posting. Since the first call from my doctor on July 9th telling me I had an elevated 5.02 PSA I have been worried. I finally have my appointment with the urologist tomorrow and I am thinking I'll be having a DRE and may be referred for a biopsy based on my numbers and what I've read online (I know…
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Passing gas after surgery
Still trying to pass gas. Usually it was not an issue before surgery in the morning on my side very easily. Can you lay on your side after surgery I heard you needed to stay on back. Just out of surgery day and half.
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My story and looking for questions in preparation for surgeon consultation
My doctor has been monitoring my PSA for several years, thankfully. The last several years PSA readings have been relatively stable 3.096, 3.166, 4.231 , 3.826, … then 5.4. The reading of 3.86 was accompanied by a free PSA % of 13. And the free PSA % was the first alert that I need further examination. So off to the…
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SBRT side effect?
I had SBRT Cybeknife treatment in late December 2023. In the 2 - 3 weeks after treatment the only side effect that I experienced was a change in bathroom routine. I felt a pressure (need) to empty my bowels when there really wasn't anything there to get rid of. When there was something to get rid of the pressure would…
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I have m1a in the lung nodes.want to do a RP
Just diagnosed. I want to remove the prostrate!! 12 samples. 3 cancerous 3+ 4 =7. One a 9 very aggressive. Seems better than all 12 cancerous. No bone met or organ met. I am in great health, was. Feel good. Will they let me remove it? if not why not!! They already decide my fate? I do not understand this. I understand if…
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Diagnosed this year but having problems with
I have been diagnosed with Metastatic Prostate Cancer Stage 4 B. I was having no issues and one day hurt my back. They scanned my back and noticed something in my pelvis. Three months later after testing everything finally got a diagnosis. I am currently getting darolutamide and relugolix. The had started me on Chemo,…
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What to expect with no treatment
Hi all. I have a biopsy coming up but, unlike most, I'm not interested in finding out what kind of treatment I may qualify for (frankly, they all sound absolutely terrible) but, rather, how much time I have left. All my friends have already passed on so it's pretty much just me alone at this point so no real desire to put…
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why not ldr brachytherapy?
It seems ldr internal brachytherapy are not very popular nowadays. But on paper, it makes great sense: the radiation seeds inserted directly into prostate, therefore, it should not affect organs and tissues next to the prostate. The treatment is convenient comparing to others, for it only require one time, painless…
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Advice for Pt3b N1
Hello all, I am so grateful to have found a community during this time. This is all very new and scary for us. My dad had a radical prostatectomy, and we are scheduled to have a radiation appointment in a week. He has pt3b (cancer in one seminal vesicle) and in one of the ten lymph nodes. His PSA levels are good as of now,…
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Question About Scans and Low PSA
My question is are results from the use of C11 Pet scans with low PSA values determined simply by a matter of probability with high GL being the greater probability? I noticed Dr Eugene Kwon reporting C11 Choline Pet scan results on patients having a PSA of 0. How do you determine when to use these types of scans -…
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New here
I’m new here and I need little bit help with my questions, I’m finished the second therapy 2 months ago and now I recovery from hormone therapy after radiation, I have a lot questions but my poor English is no let me to say everything but I think I need psychiatric help
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Does the Severity of My Cancer Affect the Worth of My Story?
I am a prostate cancer survivor. Although I didn't have symptoms, I caught it early and have been sharing my story to encourage others to get tested. Recently, I've been asked by hospitals and cancer support organizations to share my experience more frequently. However, someone close to me mentioned that my cancer wasn't…
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Weight gain
Is it normal to gain weight after Prostate surgery RALP? I haven't gained a ton but Have gained like 15 lbs. The bad part I watch what I eat and drink. I am limited in my exercise due to 4 back surgeries and both shoulders having had surgery.
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New here with some questions
I’m posting with regard to my husband’s situation. His PSA level came in at 5.5. He doesn’t remember if he ever had a test before, so not sure how long it’s been high. Our PCP referred him to a urologist who recommended an MRI. The results showed PI-RADS level four. Doctor said he could wait six months and have PSA levels…
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Help! Proton Beam Therapy vs Surgery?
Hello! I am new to this group and new to the family of brothers with a prostate cancer diagnosis. I have read through many of your questions and answers and appreciate the support you have given each other. I can really use some help with deciding on surgery or radiation treatment for my prostate cancer. I am 55 years old…
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Brachytherapy tomorrow
I have the HDR Brachytherapy tomorrow. I am a little nervous for at least the surgery part of this. I am not sure what side effects I should be expecting with the radiation. They prescribed me a couple a bunch of urinary type meds. I am expecting to come home tomorrow evening. Thus definitely doesn't sound like fun
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Eligard (How Long)
Hello this is my first time using this forum. I was diagnosed with agressive prostate cancer two years ago. Gleason 9-10. PSA was 9.0 . After surgery to remove prostate, my PSA was down to 0.65 (scans showed a bit of cancer spread to surgical area lymph nodes) I started on Eligard, did radiation therapy and my hospital…
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BPH symptoms while on ADT
Hey guys, Im 73 YO, diagnosed with PC 11/23, prostate measures a whopping 88cc, PIRAD5, Gleason 4+3, T3N1M0. 3 of 12 cores positive grades1-3 with grade 3 being 4+3 with pattern 4 @65% of tissue. Currently on ADT/ FIRMAGON for 1 month then another late January then 3 month ELIGARD injection. My question is I am expecting…
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How long should eligard shots continue
Finished radiation 10/1/2023. Radiologist on April 2024 said I was cancer free and PSA was .014. Urologist las been continuing shots every 3 months since October. Received one today and found out he's scheduled me for 4 more. Is this necessary? Side effects awful.
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Salvage radiation after surgery, when to start?
The standard salvation treatments started when PSA reached 0.2 after surgery but I have read that some cancer centers started treatments when PSA reached 0.1. There is a fear of early treatments as they may caused more harm than good as the prostate is no longer there to shielded other organs. I have recently read the…
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Constipation months after prostate surgery
Out of the blue and six months after Radical Prostatectomy, I'm having an uncomfortable/painful episode of constipation that I've not experienced before. Cannot trace it to anything. My surgeon's nurse has recommended over-the-counter laxative. I'm doing that, but a bit concerned. If anyone's had a similar experience,…
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Age 76, PSA level 86
Hi All, recently I tested PSA level 86 after I did my CECT abdomen and Pelvis done due to swelling near waist area. "Moderate right hydronephrosis is seen caused by extraluminal compression of enlarged lymph nodes at iliae vessels crossing". Any one has had similar findings before they got diagnosed with Prostate cancer?…
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Prostrate cancer PSA
I am a 60 year old man that has had his prostrate removed Sept 2021. I had a PSA of 36 with a Gleason score of 6. Stage 2 because of the high PSA but also BPH I had been on active surv since 2013 PSA of 2 . In 2013 I had my first biopsy were one needle out of 12 cores showed Gleason score 6 on 5 % on the needle but spend 3…
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Possible bounce back?
hey everyone, I had permanent seed brachytherapy July 2023 for 3+4 Gleason. Pre treatment PSA numbers 9.5 to 9.7. Feb and March 2024 they were 0.8 both times, last week/August 2024: 2.1. I’ll get another test in a couple weeks prior to my 1year checkup. My understanding is that 2.0 increase or three successive increases…