Please remember that these discussion boards are a public forum, which means open to the public (i.e. non-CSN members) and the content can be found via internet search engines. Members are strongly advised not to share personal identifiers such as real names, email address, telephone number, street address, etc. This information can be used to identify you and link you to the content you provide. Other areas of CSN are restricted to members only and cannot be found by search engines.

Prostate Cancer

Salvage surgery path report update
Things are going as planned I am leaking a bit, but not a big deal. Waited for The doctor to call me to go over the report. He told me the report was good margins were clear cancer was embedded in the prostate. But my curiosity got the better of me and I looked at the report. Was not happy that he only took out one lymph…
Lupron - living with the side effects
I am 76 and underwent 28 radiation treatments last summer - after starting on Lupron androgen deprivation therapy. I have had two (6 month) Lupron shots with the third (and last) scheduled for early April this year. My urologist and radiation oncologist both felt I was too old for surgery and that the radiation/ADT was the…
psa 4 months after radiation and 6 months into Orgovyx
Had PSA last Thursday to see progress of treatment and appears to have went well. PSA <.006. I finish my 6 months of HT via Orgovyx on Friday and then wait and see if anything comes back. HT was not horrible . Some side effects but nothing life altering. Thanking God for my progress.
Salvage update
well, they said surgery went extremely well a little under three hours. They actually were able to spare the nerves. Will go home tomorrow. I already did some walking and now dinner is coming. Thanks for all the support. I will be in touch.
Psa test freq following RT
I just finished post-RP salvage RT in January. My first PSA was about 3 weeks ago at 0.13 vs. 0.20 when RT was started. Post RP pathology rated me at a 3+4 Gleason with a few mm of positive margin and some perineural invasion. They have me scheduled for next psa in 6 months on basis that post RT the PSA should move real…
Stage 4 confusion about treatment/results
I am a little confused about treatment and what they can and can't do. Starting out it was made clear Stage 4 Prostate Cancer is not curable, but I could live for some number of years with it depending on how I respond to treatment. I accepted that but the more I learn the less I understand. My chemo if successful is…
The Juice
I'm sure most or all of you have learned of OJ Simpson's passing yesterday. What you may not know is that the cancer that took him was PCa.
O.J.
All personal opinions about the man aside, do we know his PSA at diagnosis? Is there any other relevant information?
Incontinence, Pads & Underwear
Hi, I had a radical prostatectomy about 3 weeks ago. I'm leaking some urine when I cough, sneeze and sometimes with standing up. Not major. I'm currently using Depend Incontinence Guards (diapers) with a pad. What I'm wondering is if anyone has suggestions for regular underwear that works well with pads. I've always worn…
Looking for success stories
Unfortunately, like most discussion boards, I find the majority of posts here are about the problems we are all having and about looking for answers to resolve those problems. It's perfectly natural. We are all looking for answers, myself included. Once people feel their problems have been solved, they stop coming to the…
Two year Hormone treatment
Do most high risk stage 3, Gleason 9 prostate cancer patients start long term hormone theropy right after radiation treatments?
robotic surgery for prostate cancer
I had the robotic laparoscopic removal of my prostate in 2010 and it went fantastic. I was 58 years old and some doctors had recommended radiation but on a second opinion, they said I was too young for radiation when I was done everything worked. No ED no incontinence. No bowel problems 10 years later, it has come back a…
prostate cancer recurrence
10 years after prostatectomy the psa has gone from 0 to 0.4 (from 0.2 to 0.4 in last 6 months). The pet/ct test was negative. To be safe my urologist feels I should get radiation in the area where prostate was removed. He does caution about quality of life issues after the treatment. I am athletically active at 75. I am…
Decision time following decipher
I was Dx with high grade prostate cancer 01/05/24. I had one of twelve biopsied sections showing 2% with a 4+4, leading to a Gleason 8. I'm 53, single, 3 kids. My PSA started at 7.4 in November of 2023 and is now 10.4. My PMSA shows no spread, fully contained, as of February 2024. I just got my Decipher test back and it…
Whole Body PET CT scan vs. PSMA PET scan
I asked my urologist to write a script for a PSMA PET scan. Which he said he did. I went for the scan, but upon viewing the results it was listed as Whole Body PET CT scan using F-18 FDG radiotracer. After reading a bit, sounds like I should of had 68GA-PSMA-11 radiotracer? I'm trying to be absolutely certain of no…
D day is coming ..
Got to admit, starting to get nervous if I come out of this with having no detectable cancer it’ll be a miracle. I don’t think I’ve heard anybody on this board have a reoccurrence that is Gleason eight crib form and get treated nine months later like I said it’ll be a miracle, but Monday, April 1 I will be having salvage…
Second Biopsy results
Last November at 67 after an MRI my first fusion biopsy was done transrectally at local hospital. It indicated (as far as I could figure) a single tumor residing in the right side of my prostate. I had a NM bone scan in January which did not show any bony metastases. Also a Prolaris test which indicated for single modal…
Advisable prostate cancer treatment for 87 year old?
I am 87 years old with with high grade organ confined prostate adenocarcinoma . T2b Gleason 4+5 PSA 11.63 Biopsy results 12 cores 7 with Gleason 4+5 ranging from 50 to 100% of the respective core involved with malignancy, 1 core Gleason 4+4, 3 cores with Gleason 4+3, and 1 core with Gleason 3+4 CT and Bone scan both do not…
49 and on active surveillance
Ok so last February I went for a physical and had low T. I was recommended to go to a urologist for TRT. While there my urologist was concerned about my 2.09 PSA. He did a DRE and felt a small spot. Subsequent MRI was inconclusive so I had a biopsy in June . The results came back with slow growing Gleason 6 and my doctor…
Brachytherapy
I have recently been diagnosed with locally advanced prostate cancer. Gleason 9 stage 4a. My cancer has spread outside my prostate to a very enlarged lymph node in my pelvic region. I’m currently taking Orgovyx +Abiraterone and my Radiologist is recommending IMRT. Ive been doing research that suggests brachytherapy…
Early in my journey, question
So I’m 53. A year and a half ago my PSA was 1.91 and a few weeks ago it was 2.74 and my PSA percentage was 30%. My urologist has me scheduled to get another PSA next week. And if concerning he will order an MRI. in your opinion, aren’t my numbers encouraging with having 30%?? I’m still scared to death.
Robotic Prostatectomy - How Long Afterwards to Resume Activities?
I'm almost certainly going to be having the procedure soon (see my recent thread) but wanted to ask specifically about how long it generally takes to resume various activities. I work from home so I would think that would be ideal for getting back to work as quickly as possible. For those with sedentary jobs, how long was…
here again
So I have been a member on this site since 2006 when I had my first cancer ( head and neck) and then again with my second cancer 2012 ( NHL ) . This site has so many insightful people and I'm looking for an answer on my most recent PSA results. I'm turning 65 in July. My PSA has been rising from a 1.03 just two years ago,…
PSA After SBRT
After initial diagnosis my doctor recommended CyberKnife (SBRT). Prior to treatment my last PSA was 6.7. It is now 10 weeks after treatment and my PSA has dropped to 2.1. The radiologist had sketched out a graph of PSA gradually dropping after treatment so I didn't expect it to immediately drop down to 0.0 but wondered…
Need advice
I am 71 years old. For the last 3 years my PSA fluctuates between 3.8 and 5. Last PSA was 4.9 in January 2024. On February 28 had mpMRI. The results are: IMPRESSION: Prostate hyperplasia PIRADS 2 - Low (clinically significant cancer is unlikely to be present). Nonspecific bilateral external iliac adenopathy (1.0 cm short…
Thoughts on Muse or Penile Injection
I was diagnosed with prostate cancer in the summer of 2022 at the age of 62 not because of symptoms but a doubling in PSA over a year. At the time of diagnosis I had a PSA of 3.8. Biopsy results came back with Gleason scores of 4+4 on both sides and scans showed a slightly enlarged prostate and a lesion with a PIRAD of 5…
Incontinence fix – ATOMS, AUS or AdVance?
After my RP in 2015 and follow-up salvage RT in early 2016, I gradually became dry and life was sweet. A few years ago, due to complacency I began to slacken off with Kegels and became used to the idea of wearing a shield during the day while still being dry overnight. A little over a year ago, I hurt my back and it is if…
Artificial sphincter
Hi. I had a prostatectomy in 2020. Earlier this year I had the Proact balloons for incontinence put in and it was a disaster. It took 4 months of poor Healthcare and pain before I got them removed. I'm currently going through 6 pads a day and use a clamp at times. Now I'm looking at getting the artificial sphincter. I…
Am I a candidate for SBRT?
Hello. I am 68 with a recent biopsy detecting 5 samples (out of 12 total) showing Gleason of 6 and 1 sample showing 7 (3+4). My Urologist's referral was to a specialist within the same system that performs IBRT and that treatment is scheduled to start next month. However, on line researching suggests to me that I might be…
Am I wrong in my wishful thinking.
Hello everyone. I’am 70 from Southern Ca. For years my PSA was stable at 1.9, then in Nov 21, it jumped to 3.0 (had Covid in Sept and studies indicated could cause increase). Retested Jan 22, fell to 2.7, retested July 22, fell to 2.4 (thought out of the woods) then when my regular Nov 22 test it rose to 4.0, then down to…

Prostate Cancer

Discussion List

Discussion Boards