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For anyone near the US/Canada border interested in a clinical trial with IV Vitamin C infusions
I have no idea whether or not there is any cost associated with this trial, but for those who are not in remission, and would be interested in Vit C infusions, but have been deterred by the cost, I found a clinical trial at Jewish General Hospital in Montreal, Canada that is recruiting patients. Here is the criteria:…
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question for Carolenk
Hi Carol, My sister in law just called me about a class she attended and the women claims she cured her husband of advanced brain cancer using Frankincense Essential Oil. She also went on to state that Sloan Kettering is using it in their therapy. (They are???? I haven't heard about it.) Anyway, I know you are very…
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Toenails and Taxol...these are a few of my favorite things
Today was my 9th infusion of Taxol maintenance. Prior to that, I had six months of Taxol and Carbo, so I have been on Taxol (same dose) for a long time (14 months). I have been fortunate to tolerate it so well. Very little neuropathy, which is normally the big bug-a-boo. I have recently noticed that two of my toenails are…
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Feeling DOWN :(
I'm having a really horrible time of it at the moment :( My husband, who is really a good man, has been very miserable and short tempered for the past few weeks, i have to tread on eggshells around him which is quite stressful. When i ask what's the matter he says things like 'it's been a tough 9 months' (since my dx) and…
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Blood test for Ferritin level
My Ferritin level in my blood was above normal. Normal is 13.0 - 150.0, mine is 342.8. My doctor told me cancer caused inflammation in my body and this is why ferritin level went up and theres nothing we can do about it! But I read online: high level of ferritin in blood can damage organs like liver and heart!? ( does…
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I hate this disease
I am having platelet problems with gemzar and was researching old posts. I have been on the board for a while and came across so many posts from those who didn't make it. I found myself crying. These ladies were the best of the best and so helpful to all of us. It distresses me that there are so many new members and so few…
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12 year survivor
I just recently celebrated my twelve year cancer free anniversary from stage 3C ovca and wanted to share with all of you. There are longterm survivors, not without side effects, but survivors nontheless. I think of all of you fighting for your lives and remember being there, and want you to know you are never forgotten. I…
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what does the doctor really mean?
I don't get it. Our friend Gerri, has finally been dianosed. After a couple months of saying peritoneal cancer, her debulking surgery and labs confirmed stage 4 ovarian. Gerri has lost 40 pounds since she first starting feeling "off" in November. The tumor was fast growing. It was not seen on any scan in December and by…
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What does ascites pain feel like?
I don't know if I have it but I've been off chemo for a long time now and I have terrible pain in my midsection right above the belt line and below. It's been almost a week now. I have gas and a bit of constipation too. Could this be ascites? I don't know what it feels like as I don't think I had it before. Thanks, Kate…
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Hiccups after chemo
Does anyone notice that they have "attacks of hiccups" after chemo? I do. I am especially interested in hearing from people with PPC or stage 3-4 OC. Just wondering if this is common or just me...I can't find any information on the Internet about the phenomenon. thanks, Carolen
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Problems posting on discussion board
I just wonder if I should stop trying to post or if nobody is meant to read my postings--I have had several disappear and I lack the motivation to re-post. Could it be a problem with AOL? thanks, Carolen
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Question for Linda (clamryn) Not sure if I got it right, sorry
Hi Linda, I read your note to Nancy I have a question for you. I, too, am on Avastin and what I'd like to know is what blood thinner are you on? Is it Coumadin? I was on Coumadin previously and since I've been on Avastin, the dr. told me I had to go on Fragmin, an injectable blood thinner. Have you experienced any problems…
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Getting back into life
I started feeling sick around this time last year. I was sick all through February, went to the doctor on 2/26 and finally received my diagnosis on 3/16. After that the time was filled with doctors appointments, treatments and feeling sick (you know the drill). I feel like I really missed nine months of last year. I missed…
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cause of rising liver levels
I just got off the phone with my oncologist. There was a big discussion about my scan and other doctors were asked to look at it. It appears I developed blood clots in the vessles leading into my liver. The cause of this is the Avastin. I will be starting on a blood thinner. It is uncertain if I will be receiving Avastin…
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Lurker Finished Last Chemo Today
My name is Renee and today I'm NED. In Dec., 2009, I was diagnosed with stage IIIC ovarian cancer after my hysterectomy. I finished my first 6 rounds of carbo/taxol in June, 2010, and today I finished maintenance taxol! I want to thank you all for all the help you've given me. I searched topics when I had questions and…
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Is Chemo work for you?What kind of chemo you are on and number of cycle. Your side effects and CA125
Hello my dear teal sisters! Lets share some informaition about treatments. So fare I am on my third chemo line treatments with my 2C ovarian cancer after second reccurency, February 14 was 4 years of my journey. I hade carbo/taxoter and hertheptin -my initial chemo, March-julay 2007, than carbo/gemzar January-june…
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So hard to hear her cry
I just got off the phone with my Mom and she was crying her eyes out. It breaks my heart. She was saying she is tired of being tired and not feeling well all the time. She has felt terrible for the last year. She was been doing non stop since June 22nd. She did carbo/taxil for 7 treatments, every three weeks and now she is…
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Interesting article in today's Oncology STAT on IP chemo & dense dose regime
Ovarian Cancer—New Thinking on Old Regimens 2011 Feb 23, Nelson Teng Nelson Teng, MD, PhD, is Director of Gynecologic Oncology and Associate Professor of Obstetrics and Gynecology at Stanford University School of Medicine. Dr. Teng is also Program Director for the Stanford/UCSF Gynecologic Oncology Fellowship Program in…
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My Mom just had a "septum" port inserted yesterday.
Does anyone have one, and why do doctors opt for a port of that kind, as opposed to the other I have seen? I learned with a septum port the skin still has to be punctured and this bothers me because my Mom has been poked and proded enough!!!! :(
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Visualization and Prayer
Comes from Getting Well Again by George Simonton: Think of cancer as weak and disorganized crazy cells. Chemo as strong soldiers battling crazy cells. Vision it over and over again. Chemo carries the dead cancer cells out on little stretchers...... I'd like to believe that anything we do to dress ourselves in armor for the…
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Thank you all for this educational experience
I was really excited when I discovered this discussion board. I learned so much through my cancer experience, not the least of which was how to manage this disease; how to make educated decisions regarding choices that were available to me; how to be my own best advocate; as well as how to more fully appreciate my life. I…
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How often do they usually giver they PET scans
went for my 9 month check up, i asked if I could get my PET scan early, he said he usually does not order one if your ca is low, but he would get me one if i wanted it. does anyone here know how often they usually do them
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Weaving a Few Threads on a Sleepless Night
Last week, three people I know died. Sarah, a 28-year old newlywed (sarcoma); Max, my family doctor of 50 years; and Kara, a 45-year old neighbor, who accidentally drowned in her backyard pool. Kara was in her workout clothes, early AM, evidently cleaning something on the patio, and fell into the icy-cold water. Her…
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I'm new with a port and have a question
Last year I finally gave in and decided to get a port at my local hospital. For years, I didn't want one but my veins couldn't take it anymore. I like my port but have a question. Has anyone had any problems with their ports tilting, as the nurse told me, mine was "tilted". I told her that I thought it happened in January…
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1st good news to report in AGES: My CA125 dropped 200 points after 1st round of Avastin/Cytoxin!
Today I had my 3rd Avastin infusion, but don't have the results yet of the CA125 labs I had taken just prior to it. But I did get my labs taken last week just before my 2nd Avastin infusion, and my CA125 is down 200 points after the 1st round of Avastin/Cytoxin. I know that Avastin can cause your CA125 to go up and down…
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avastin & insurance bill
I just recv'd a statement from my cancer center. They bill my insurance $10,891 for a single infusion. WOW.
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Do something....what's the worst that can happen?
Dr Sabittini thinks I am more pro-active and have better computer skills than a lot of his patients. He says I underestimate my ability to advocate for myself. Maybe. But if I can do it, so can the rest of you. If your computer skiils aren't all that great, recruit someone to help you. The government website for clinical…
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Would you all be honest with me please???
Ok, you all know my mother's liver tumor grew over an inch in 2 months, over x-mas. The PARPS sis not work. She's now on 115mg of taxol every 3 weeks,,,,then off a week...she seems to be doing much better...her attitude is good.....her gas is VERY bad....she is fatigued a lot, but we are attributing that to the chemo. Now,…
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Sometimes I feel her slipping away
Over the last two weeks my mom has lost 6 lbs. She has now gone from 135 lbs to 88 lbs. The doctors say don't get caught up in the numbers such as CA 125 levels (Mom's lowest is 3,300) but it is so hard not too. The doctors changed her meds two weeks ago and other then the acid reflux medication i don't feel like they are…
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I think I am done.
Got my scan back. I guess I failed first line treatment. It is in my liver and brain. I had radiation on my brain today. Next week they decide which second line to do for the liver. Guess, I better get my house in order. I am pretty shocked, being that I thought I was doing well. Then a few days ago, my arm and leg went…