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anyone hear from NCEllen?
I remember she feared a recurrence. Anyone know anything?
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activated charcoal
hello i would like to see if anyone had heard about benefits of activated charcoal to lessen chemo side effects. friend of mine who worked at onco instritute in Moscow told me that they had huge study on that topic years ago, that patients who took activated charcial few days - to a week prior to chemo had less side…
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Fragmin and hives
Well after my 5th dose of fragmin (to prevent blood clots) I've developed hives. Really? Can't seem to catch a break.
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Flaxseed
I just bought smoe flaxssed today and was wondering if it is safe to use. I heard this has a laxative effect and wonder if I should take this as I have had a bowel resection. I read it has great health benefits and wonder if you ladies take it. I bought whole seed and will gring them up and start slow with some oatmeal.…
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Can it be ovarian cancer?
My mom's first oncologist have told us based on the biopsy that she has a breast cancer that has metastasized to her backbone where she had surgery 3 weeks ago to remove part of the tumor. The biopsy results of the tissues removed from her back revealed that she may have breast , lung or bone cancer. She went to see…
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Help Dealing with Nausea, Muscle Aches, Etc
Hi All, I am new to the discussion board, after having been recently diagnosed with ovarian cancer stage 1C clear cell. I underwent surgery on 2/3/11 to remove the cancer along with a full hysterectomy, removal of lymph nodes and debulking procedure. The only cancer found was in the left ovary thank heavens. Last Friday…
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Has anyone's CA 125 fluctuated while on Avastin and Cytoxan?
I know CA 125 is not a reliable tumor marker test to begin with. I had it measured today after 3 full treatments of Avastin and Cytoxan. While it didn't go up much, it did rise a little, but is still well below the normal limit of 35. Has anyone else been on Avastin and Cytoxan (the oral pill) and had the CA 125 actually…
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Heard some good things about Hexalan pill chemotherapy for ovarian cancer
On another discussion group (by telephone), several ladies were on Hexalan, a chemotherapy pill, for ovarian cancer. Has anyone here used this particular chemotherapy? And, if you have, was it successful? I know the ladies on this discussion group, several of them were without evidence of disease for a year. Any…
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For anyone near the US/Canada border interested in a clinical trial with IV Vitamin C infusions
I have no idea whether or not there is any cost associated with this trial, but for those who are not in remission, and would be interested in Vit C infusions, but have been deterred by the cost, I found a clinical trial at Jewish General Hospital in Montreal, Canada that is recruiting patients. Here is the criteria:…
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question for Carolenk
Hi Carol, My sister in law just called me about a class she attended and the women claims she cured her husband of advanced brain cancer using Frankincense Essential Oil. She also went on to state that Sloan Kettering is using it in their therapy. (They are???? I haven't heard about it.) Anyway, I know you are very…
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Toenails and Taxol...these are a few of my favorite things
Today was my 9th infusion of Taxol maintenance. Prior to that, I had six months of Taxol and Carbo, so I have been on Taxol (same dose) for a long time (14 months). I have been fortunate to tolerate it so well. Very little neuropathy, which is normally the big bug-a-boo. I have recently noticed that two of my toenails are…
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Feeling DOWN :(
I'm having a really horrible time of it at the moment :( My husband, who is really a good man, has been very miserable and short tempered for the past few weeks, i have to tread on eggshells around him which is quite stressful. When i ask what's the matter he says things like 'it's been a tough 9 months' (since my dx) and…
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Blood test for Ferritin level
My Ferritin level in my blood was above normal. Normal is 13.0 - 150.0, mine is 342.8. My doctor told me cancer caused inflammation in my body and this is why ferritin level went up and theres nothing we can do about it! But I read online: high level of ferritin in blood can damage organs like liver and heart!? ( does…
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I hate this disease
I am having platelet problems with gemzar and was researching old posts. I have been on the board for a while and came across so many posts from those who didn't make it. I found myself crying. These ladies were the best of the best and so helpful to all of us. It distresses me that there are so many new members and so few…
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12 year survivor
I just recently celebrated my twelve year cancer free anniversary from stage 3C ovca and wanted to share with all of you. There are longterm survivors, not without side effects, but survivors nontheless. I think of all of you fighting for your lives and remember being there, and want you to know you are never forgotten. I…
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what does the doctor really mean?
I don't get it. Our friend Gerri, has finally been dianosed. After a couple months of saying peritoneal cancer, her debulking surgery and labs confirmed stage 4 ovarian. Gerri has lost 40 pounds since she first starting feeling "off" in November. The tumor was fast growing. It was not seen on any scan in December and by…
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What does ascites pain feel like?
I don't know if I have it but I've been off chemo for a long time now and I have terrible pain in my midsection right above the belt line and below. It's been almost a week now. I have gas and a bit of constipation too. Could this be ascites? I don't know what it feels like as I don't think I had it before. Thanks, Kate…
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Hiccups after chemo
Does anyone notice that they have "attacks of hiccups" after chemo? I do. I am especially interested in hearing from people with PPC or stage 3-4 OC. Just wondering if this is common or just me...I can't find any information on the Internet about the phenomenon. thanks, Carolen
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Problems posting on discussion board
I just wonder if I should stop trying to post or if nobody is meant to read my postings--I have had several disappear and I lack the motivation to re-post. Could it be a problem with AOL? thanks, Carolen
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Question for Linda (clamryn) Not sure if I got it right, sorry
Hi Linda, I read your note to Nancy I have a question for you. I, too, am on Avastin and what I'd like to know is what blood thinner are you on? Is it Coumadin? I was on Coumadin previously and since I've been on Avastin, the dr. told me I had to go on Fragmin, an injectable blood thinner. Have you experienced any problems…
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Getting back into life
I started feeling sick around this time last year. I was sick all through February, went to the doctor on 2/26 and finally received my diagnosis on 3/16. After that the time was filled with doctors appointments, treatments and feeling sick (you know the drill). I feel like I really missed nine months of last year. I missed…
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cause of rising liver levels
I just got off the phone with my oncologist. There was a big discussion about my scan and other doctors were asked to look at it. It appears I developed blood clots in the vessles leading into my liver. The cause of this is the Avastin. I will be starting on a blood thinner. It is uncertain if I will be receiving Avastin…
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Lurker Finished Last Chemo Today
My name is Renee and today I'm NED. In Dec., 2009, I was diagnosed with stage IIIC ovarian cancer after my hysterectomy. I finished my first 6 rounds of carbo/taxol in June, 2010, and today I finished maintenance taxol! I want to thank you all for all the help you've given me. I searched topics when I had questions and…
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Is Chemo work for you?What kind of chemo you are on and number of cycle. Your side effects and CA125
Hello my dear teal sisters! Lets share some informaition about treatments. So fare I am on my third chemo line treatments with my 2C ovarian cancer after second reccurency, February 14 was 4 years of my journey. I hade carbo/taxoter and hertheptin -my initial chemo, March-julay 2007, than carbo/gemzar January-june…
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So hard to hear her cry
I just got off the phone with my Mom and she was crying her eyes out. It breaks my heart. She was saying she is tired of being tired and not feeling well all the time. She has felt terrible for the last year. She was been doing non stop since June 22nd. She did carbo/taxil for 7 treatments, every three weeks and now she is…
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Interesting article in today's Oncology STAT on IP chemo & dense dose regime
Ovarian Cancer—New Thinking on Old Regimens 2011 Feb 23, Nelson Teng Nelson Teng, MD, PhD, is Director of Gynecologic Oncology and Associate Professor of Obstetrics and Gynecology at Stanford University School of Medicine. Dr. Teng is also Program Director for the Stanford/UCSF Gynecologic Oncology Fellowship Program in…
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My Mom just had a "septum" port inserted yesterday.
Does anyone have one, and why do doctors opt for a port of that kind, as opposed to the other I have seen? I learned with a septum port the skin still has to be punctured and this bothers me because my Mom has been poked and proded enough!!!! :(
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Visualization and Prayer
Comes from Getting Well Again by George Simonton: Think of cancer as weak and disorganized crazy cells. Chemo as strong soldiers battling crazy cells. Vision it over and over again. Chemo carries the dead cancer cells out on little stretchers...... I'd like to believe that anything we do to dress ourselves in armor for the…
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Thank you all for this educational experience
I was really excited when I discovered this discussion board. I learned so much through my cancer experience, not the least of which was how to manage this disease; how to make educated decisions regarding choices that were available to me; how to be my own best advocate; as well as how to more fully appreciate my life. I…
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How often do they usually giver they PET scans
went for my 9 month check up, i asked if I could get my PET scan early, he said he usually does not order one if your ca is low, but he would get me one if i wanted it. does anyone here know how often they usually do them