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anyone have any suggestions re: how to reverse residual neuropathy?
sisters, i have some residual neuropathy on my finger tips, toes and balls of my feet. it's not terrible, but i'd just as soon not have it. tips don't have to be scientific, anecdotal would be great too. i posted this question on the uterine site as well, since i have upsc. thanx and sisterhood, maggie
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I don't want to seem like I am a whimp
I don't want to seem like I am nothing but a whimp but it is almost a week since 2nd chemo treatment and I feel like crap. I am still having the fatigue and bone pain. My throat hurts and fills like there is a lump when I swallow. I told my boss yesturday that I will not be able to return to work until I am done with the…
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Just killing time
Well girls, I'm all checked in, having arrived at 5:45 AM, and have already slipped into my haute couture gown. The surgery itself is still an hour+ away, and that's if they aren't running behind. I decided against wearing my alternative hair into surgery, so today is a landmark event - the first time my naked head has…
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War
I am 34 years old. I was just diagnosed with small cell carcinoma of the hypercalcemic type. I had an ovary the size of a grapefruit. Thankfully it had not spread. A PET scan showed the rest of the body clear. With chemo, we are taking a preemptive strike at any free floating spores. Lol, to say the least these past few…
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Question about Ports
I have a question regarding ports and having a mammogram done. I'm for my annual mammogram in a couple of months. I have a port and I guess I'm a little concerned to know if anything happens to the port once they compress the machine for a mammogram. I'm still undergoing chemotherapy and wouldn't want the port to get…
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Treatment number 3 tomorrow.
I can't believe how fast those 3 weeks between treatments are passing by. I'll be half finished tomorrow. So far only minimal side effects. I feel so blessed when I read about the horrible side effects so many of you ladies are experiencing. Of course, I realize that chemo is culmative, and they most likely will become…
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Dairy products and OVCA
I keep reading so much stuff about dairy products and ovca, has any one else any updated news on this subject? Is it good or bad for you? Love to you all Oska.
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last minute thoughts, pre-hernia surgery
I can't believe I waited until the 11th hour to address these issues, but I decided to call the surgeon this AM and ask (1) if he could take my port out, since I will already be there and under the anesthetic, and (2) can I leave my wig on during surgery. I fessed up the fact that I wore it thru my trigger thumb repair, my…
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Dr. Oz
is doing another show on ovca and has teamed up the Nocc. More derails on the inspire board,,,val
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OVCA awareness month in Sept.
Don't forget to polish your toe nails teal for the month of Sept. You can also get some Teal Toes cards that have the symptoms of ovarian cancer on the back of the card. The cards are free go to Teal Toes.org. Click on spread the word then click on contact page. Then list your name address so they can send you the cards.…
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Carlene..good luck`
on your surgery Monday. Hope you have a quick recovery and are back here where you are needed.. God bless my friend...val
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OMG
8 day since my last chemo (it was my 2nd chemo)I am still having bone pain. This sucks lol I am taking ibuprofan every six hours, tramadole two times a day, and oxycone at night to try and help me sleep. Called my doctors office today to see if there is anything else I could be doing I missed my blood draw today because I…
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I'm dancing with NED
I'm walking on sunshine , wooah I'm walking on sunshine, woooah I'm walking on sunshine, woooah Because I am NED, oh Alright now Because I am NED, oh Alright now and dont it feel good!! Ok so serioulsly, I got my ct scan back and the Dr. said the scan looked good. At first I thought she said my skin looked good and I said…
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Procrastination
Tomorrow I go in for my fourth chemo round. My mother will be with me. I should be in bed, but I am procrastinating. I will kick myself for this with the 6 am wake up call. Lol, at least I have managed to figure out how to manage my bald head. The hair kept growing in unevenly, so I...um...asked some bald men how they…
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Lisa13Q's tribute to her mom....
Lisa 13Q, who lost her mom in May, has made a memorial slide show and posted it on You Tube. Cut and past the link into your browser to see it. It is beautiful. http://www.youtube.com/watch?v=H2w9xG0BcCc Carlene
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Feeling sad and TWWOH
Friday we learned that my Mom's battle with ovca is nearly over. Mom will go to her forever home in 3-4 weeks. It is breaking my heart. I don't even know what to say to her other than to tell her i love her. Mom is in no physical pain but she is so sad and very frightened. I feel so terrible for her. I will miss her so…
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Etoposide with ER and PR+
My cancer is ER positive. My latest treatments of taxol and avastin are no longer working. I knew it was happening, just waiting for the numbers to reach over 100 to start a new chemo. So has anyone used etoposide? Can you use a chemo for an estrogen positive cancer along with tamoxifen or some other estrogen blocking…
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elevated OVA1 test result
Hello, my niece , who is 38 y.o having abdominal pain for few months now, she went to her obgyn and had ultrasound which showd small cyst on left ovary, based on our family history doctor sent her to have ova1 test, which came up slightly high. i believe it was 6 and 4 considered normal?? i am not very familliar with this…
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Interesting OC Vaccine trial coming up
FDA Approves Immunovaccine's Application for a Phase I/II Clinical Trial for an Ovarian Cancer Vaccine HALIFAX, NOVA SCOTIA--(Marketwire - June 20, 2011) - Immunovaccine Inc. (TSX VENTURE:IMV), announced today that the US Food and Drug Administration (FDA) reviewed and cleared its Investigational New Drug (IND) application…
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We are awesome!
This morning I handed over the quilt squares and stories to the lady who is in charge of the quilt project. She had only 13 squares before I turned in our SEVENTEEN. Yep....we make up over 50% of the quilt. I am so proud of us! She thinks the raffle tickets will be $1.00 each - 6 ofr $5.00, but that hasn't been voted on…
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Square ladies...I need your paragraphs.
If you asked to be represented in the OC quilt. I need a paragrph or two Bout you (or your mom, if she is the honoree). Linda Jonie Kathleen Leesa Lisa 13Q Meghan Mary K Did I miss anyone, Mary? My email is in my profile. If you guys have not seen the squares, check out my Facebook page, or Mary's. They are powerful and I…
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Sleep problems
Ladies Just wanted to ask if any of you have problems sleeping..... I finished chemo 8 December 2010, recently I suppose the last few months, I have been finding it increasingly difficult to get to sleep even though i'm tired. I get very fidgety and toss and turn for about an hour or so before I eventually fall asleep. Has…
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The Cancer Fighting Kitchen by Rebecca Katz
I received this book yesterday. I ordered it from Amazon. What are some of your favorite recipes? Are some of the ingredients found in health food stores? Look forward to hearing from you. Carla
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Thank Carlene for info about DPX-Survivac study
Dear Carlene, thank you for sharing that information about the FDA approve immunovaccine's application for a Phase I/II clinical trial for an ovarian cancer vaccine. You are really a good researcher and always share information with us. It's funny, no oncologists seems to share this type of information with a patient, all…
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Chemo reaction question
Hi Ladies.....My first few days after chemo i had the body aches and bone pains. Then I felt great. Now with my second chemo coming up this week i am starting to feel really crappy. Soooo fatigued, weak in the legs and arms, appetite not great and so weepy. I thought that as the first round of chemo started to leave my…
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ANYONE HAD ANY EXPERIENCE WITH HIGH DOSE IV VITAMIN C??
dear sisters, i have upse (uterine cancer) and am nearly through with chemo for a first recurrence. i've heard and read about high dose iv vitamin c, and was wondering who among you have had experience with this, or know someone who has? there are fewer treatment options for upsc, so i'm wanting to know what has worked for…
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Hi
Hello everyone......It's been awhile......about 2 months...Ive been in touch a little with Carlene and she put up a link to my tribute to my Mom (thanks Carlene since I am technologically inept).....I have to say this grief thing sucks....I miss Mom everyday.....sometimes its really bad...I got a new puppy......who knows…
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Interesting info on NSAIDs & OVCA
COX-1 eyed as target in ovarian cancer fight BY: BILL SNYDER 5/06/2005 - Blocking the COX-1 enzyme — not the more well known COX-2 — might lead to a way to prevent or treat the most common and fatal form of ovarian cancer, researchers at Vanderbilt University Medical Center reported this week. The finding, that COX-1…
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Concerned about a friend...
A lady I attend church with is having a biopsy on her voice box tomorrow. She has been hoarse for quite some time. They have already told her it doesn't look good. The reason I'm scared for her is because she also looks about 7 months pregnant. I think she's probably in her mid to late 50's would be my guess. I asked her…
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PARP Inhibitor Olaparib Delays Progression in Ovarian Cancer
PARP Inhibitor Olaparib Delays Progression in Ovarian Cancer Elsevier Global Medical News. 2011 May 18, K Wachter Maintenance therapy with the novel PARP inhibitor olaparib may fill a gap in the treatment of advanced ovarian cancer by significantly delaying progression of the disease, according to the results of a phase II…