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Hello, Mantel cell patient.
I was diagnosed the 3rd of January with stage 2 Mantel Cell. I had 3 lymph nodes removed just before Christmas. Colonoscopy and Bone Marrow came in clean. The Pet Scan showed more affected Lymph nodes in the same right groin area. I started treatment on January 24th. Rituxin, Velcade, and Cladribine. Second round starts…
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Sue
my daughter took a drug that could have killed her, now she does'nt want to come home she says she will kill herself, she has never treated me like this i see her at 300 in the afternoon her dad sees her in the evening i knew he would be mad when i made him pay child support 6 months ago but i neveer expected anything like…
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Stem Cell Treatment for Diffuse B Cell Lymphone Patient Over Age 70
My father isn't responding to his treatment for diffuse large B cell lymphoma that is present in his bone marrow. I was wondering if anyone knows of a facility / doctor that will perform stem cell treatment on an otherwise healthy male over age 70. If so, please advise!!! Thank you, and best wishes to everyone.
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Jimwins ?????
Hey Jim, Where is you be at????? You didn't steal all those recipes and publish a best seller book then move to a remote island somewhere did you? LOL........ We miss Ya'. John
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Could I have lymphoma? Help please.
My names Katelyn. I'm 15 years old and I have a hard swollen lymph node on the side of my neck. I had a ct scan done about a week ago but it was inconclusive. Tomorrow I go for a FNA biopsy. Are the results from those accurate? What I really want to know is if I may have cancer. I'm scared to death here. I had a…
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Anaplastic T cell Large Lymphoma - anyone have this?
Our son was dx in Oct 2011 with ALCL. In treatment yet but we've insisted on modifying it due to the toxic effects. Also doing alternative supplements and he's doing well. We think oncologist is overtreating him. Surgery got 99% of the cancer but they try to get every last cell. We believe a strong immune system and…
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What items make you feel better?
Hi, I'm a cancer survivor who is working to help other patients/survivors. Thinking about your treatments and side effects, physically, mentally, etc. What type of items could someone give you to help make you more comfortable. Example: I had dry mouth and nausea - fruit flavored hard candy helped. Reading helped me pass…
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progressed
Him everyone sorry i havent been on for a while but i have been busy with my daughter. has anyone ever there onc to tell them the cancer has progressed and if so what does it mean?
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So Sad
All my dear friends My wonderful Mom has left me. She was peaceful in her last days and hours. She chose Valentines Day for her final day. I think it was her way of telling me to remember her LOVE always. I am so sad, but have the love of my wonderful family around me. Thank you all for the support and love you shared with…
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Maggie from Donna
Hi Maggie and anyone else interested in learning about SIBO. In answer to your question re: how in the world did I get Small Intestine Bacterial Overgrowth or SIBO: Way back in December of 2010 after chemo, I had two upper respiratory infections in a row, treated with antibiotics. From the antibiotics I got a terrible…
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progressed
hi everyone, sorry i have'nt been on for a while, but have been busy with my daughter.Has anyone ever been told thier cancer has progressed and if so what does it mean.
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Clinical Trial for NHL
I read today that they are in there third clinical trial for a vaccine for NHL. They are about to go to the FDA. I went on NHL clinial trials. Sounds very promisiing. Thank you God for great research doctors!!! If anyone can add to this please do. Love Joanie
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Hodgkin Lymphoma with spinal compression
I have been diagnosed with Hodgkin Lymphoma with spinal compression. I'm looking for someone else who is also going through this.
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Itchy Rash
Hey all, I am 7 months out from my last chemo for non-Hodgkins lymphoma. About a month ago I developed itchy rash on my arms and legs that has recently spread to my body. Also, severe dry itchy lips. I have explained this multiple times to my oncologist and recieve no answers. MD is not really concerned but it has become…
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Stem Cell Transplant Jewish Hopsital in Cincinnati?
Just out of curiosity has anyone had a stem cell transplant at the Jewish Hospital in Cincinnati, OH? My mother has just gone through her first of two rounds of ICE chemo there and will be having a transplant done there as well. So far they have a good track record and the staff has been great. Just interested to hear…
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Question about swollen nodes!
FOLLICULAR NON-HODGKINS LYMPHOMA (A) STAGE 3 GRADE 1.5 ..Im doing the watch and wait therapy and its been 6months so far since my diagnosis...My nodes were swollen on the left side groin and neck area. The nodes in the past week have shrunk significantly this week to the near normal size. Believe me im not complaining and…
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Treanda
can anyone tell us any stories of success on Treanda?? we re considering under going this chemo regiment,, we re waiting for biopsy to tell us exactly what disease we have to battle.. I see that the side effects are varied from person to person.. any input would be much appreciated.. thanks caregiver..
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Treanda
GOOD EVENING EVERYONE!! CAN anyone tell us good and bad results and side effects of Treanda chemo therapies.. it will help us make a decision once we find exactly what we re fighting.. please and thanks the caregiver..
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Thanks
Hello All Just want to say thank you for all the love and support you have given me. It has made my difficult days a little less so. I have been thinking of you all and wish you only great days ahead. I also posted a picture of my wonderful Mom, Alice. It's on my expression page. Lisha
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7th rituxin today
Just wondering if anyone else that is taking rituxin wakes up feeling like a truck ran over you in the night. I get up , take a hot shower and I mean hot and I am good to go. It is so good to know people understand you and don't just think you are a complainer. Sometimes I wonder is it because I am 63 and old:) or the…
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Small Intestinal Bacterial Overgrowth
Donna, I found this site. I hope this is helpful to you. Love Maggie Small Intestinal Bacterial Overgrowth (SIBO) causes, symptoms ... Small intestinal bacterial overgrowth (SIBO) has many conditions associated with it, including diabetes, scleroderma, and Crohn's disease. SIBO symptoms ...…
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New Member
Hi all, I'm very new to all of this. Just posted a blog but I'm not even sure this is the same thing. I have Stage 4 Hodgkins and, I just finished my 2nd round of chemo(ABVD) and had my 2nd neulasta shot, last Thursday and Friday. I am having terrible right shoulder pain and when the pain hits so does the vomiting. Have…
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Two types of lymphoma
My husband was just diagnosed with Stage 3 diffuse large b cell lymphoma, which the oncologist is an aggressive variety. He's had two emergency surgeries to remove tumors in his small intestines but his scan shows there is still some there plus an enlarged lymph node near his renal artery and a lesion in each lung. But…
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Retuxin side effects
I have been receiving retuxin maintainence treatments every 6 months for the last 9 years. After my last treatment in October, I developed a fever and flu type symptoms 3 weeks later. Then, my joints and muscles began to ache so bad, I had trouble walking or lifting. Next, about 4 weeks after that, my body began to…
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results for scan
i have the results of my pet scan, the node that has been on watch and wait since july 11 has went from 4.5 to 5o two more showed up in the up one is 6.1 and the,other size is 6.3 increaseed activity associatdd right inguinal node also devepoment activity to right side commoon femoral vessles. blessings denise
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Stomach pain when I eat
Hi, My name is Marian and I was diagnosed with SPMZL 2 years ago. I had a 9 pound spleen removed ,so I named it Steven cause is was bigger than either of my children at birth. I'am 58 and have been in watch and wait since. I was wondering if anyone has had portal thrombosis after thier spleen was removed. They took me off…
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compter finally burnt up
mvu vuy computer burnt up i,m sorry i have'nt wrote for so long i hope everyoneis good,i met my nen onc i have been on watch and wait since july but now youcan feel the nodule the doctor is is talking of bendanmusinand retuxub, and wvu on down the road. i feel so weak this time. blessing denise
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Second cycle
Good Morning; I start the second cylcle of treatment this morning at 0800. Blood work then Cladribine, Velcade and Rituxin. I took 20 Mg of Dexamethason a couple of hours ago. I work third shift and am at work now. It's just as well, sleep is not an option. Wikipedia on Dex says Michael Cox wrote The Meaning of Night while…
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Its been some time, but I am back.
Just before I turned 30 I was told my anaplastic t cell lymphoma has relapsed after fighting since 2008. I had much treatment ncuding an auto stem cell transplant just over a year ago. Now I am on the new sgn-35 and will be undergoing an allo stem cell transplant in just a few weeks. Just last week, I was told I have a 40%…
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BIG DAY TOMORROW
SUE, Tomorrow is a big day for you. I know you will be tired from the benedryl. Just want to let you know we are thinking about you. You will be just fine. Its a day we all have to go thru. Some every 2 months and some every 6 months. Like you were saying in a previous post we were actually getting the R all along with our…