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Checking In
Hi All I thought it was time to say hello. Still hanging in, but it is a struggle. The past four weeks have been so very hard. Most days I have all sorts of paperwork to keep me and my mind occupied. But at night when all is quiet, that is the really hard time. All my health issues are still on hold. I just cannot bring…
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is it back??
I cmpltd my treatment for hodgkins lymphoma around 6mnths back...done wid my pet scan after all my cycles n was clear frm all disabilities...dint get da radiation...bt nw I feel a node in my neck again..is der any possiblility dat its back...m really tensed dnt wanna go thru all dose things 1ce again :(
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Rituxan Infusion day for John....
Hi John, Even though it feels like "old hat" going in for our R infusions, I still like to wish folks "good luck" when it's their turn to go. Today is your day, so I hope all goes good and no complications arise. Rest for the next few days and take it easy. Best wishes...Sue (FNHL-grade2-stage3-typeA-diagnosed 6/10-age 61)
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Hello to all
I hope everybody is doing fine today and from now on. I went fishing yesterday and this big old rattlesnake came up next to my shoe with a frog in its mouth. It scared the heck out of me. I knew he couldn't bite me with the frog in its mouth so I reached down and grabbed it befhind the head. I took the frog out and threw…
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second half of treatment
I have Diffused Large B Cell Lymphoma in my right leg. I just had round 4 of R-Chop. Is it normal to feel so exhausted? What can I expect after 2 more treatments? Lately I do something for 10 minutes-ie dishes, get ready for the day, etc., and then my body feels exhausted and I need to rest. It's really frustrating. My…
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End of Chemo Anxiety
Hi Everyone! I went today and had my fifth chemo treatment and I'm a little worried. Near the end of my treatment my nurse came by and gave me a calendar for everything to do before my next treatment. She casually mentioned that I would have a CT scan done on March 28th and that if everything looked good, I would have my…
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Bendamustine and Rituxin?
I'm the new kid in the building but, I'm also 5 years post-chemo (r-hyper CVAD) and 5 years post-autologeous (SP?) stem cell transplant on account-a MCL. The chemo caused leakage that created peritonitis that "whacked" my kidneys. Then, there's that menigioma in my cavernous sinus but, that's a different place. Now, my…
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No Radiation - 6 Cycles R-CHOP
First and foremost, happy holidays to all! I wanted to share some information with anyone who may be diagnosed with Mediastinal Large B-Cell Lymphoma. I was diagnosed back in April and underwent 6 cycles of R-CHOP. My first medical oncologist was holding off on referring me to a radiation oncologist, up until our last…
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thank you for the concern
thaNK YOU ALL FOR THE PRAYERS THE CONCERNS, SHARING YOUR EXPEIRENCES THAT EASED MY MIND THAT SOMETHING MAY HAVE WENT WRONG WITH THE SURGERY.MY DAUGHTER COMES HOME MONDAY SHE WILL NOT GO BACK TO HER SCHOOL SHE WILL GO TO A SCHOOL WHERE SHE WILL GROUP MEETINGS THREAPY AND GET HER MEDICIN FOR MOOD SWINGS AND CRISSES PEOPLE…
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how long to stay sore
has anyone ever had a tumor removed from your groin area where the tumor was removed if anyone has how long does it take to stop hurting it is really sore and it hurts when i walk . the mass i had removed in my brest and armpit didnot hurt like this. blessings denise
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kidney c survivor-new issue
I came to this site in January by way of Kidney Cancer, but due to neck swelling/knot and pain that I have had for a while and ignored, I went last Friday and had and ultrasound of my neck. (my dr insisted) I am supposed to go this friday for the results, but because of the last ultrasound I had showing I had kidney cancer…
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test results
good afternoon everyone; todays results are FOLLICULAR NHL between stage 1 & 2.. takin weight and see direction to detemine how fast it is growin and take this time for the doc and us to research what the best clincal trial is out there that matches her cancer.. we still leaning torward TREANDA.. any one got any input on…
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bendamustin
does anyone have .expirence with bendamustin, if so please tell me how it made you feel and how was the fatigue. did it work good against the cancer. bleesings denise
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Prayer and Positive Thoughts Please!
My daughter will be having a scan on Thursday-the first one since completing radiation in August. Keep her in your prayers and thoughts!!
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really sore
well i had the surgery today other than been sore it went well,they used dermabond instead of stitchs which made the incision burn for a while. they forgot my antibiotics i will have to call tomorrow and remind them,i still have to wait for 2 weeks before i know anything. i talked to a lawyer today he told me at the…
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surgery
the body did'nt take the surgery it is this monday denise
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large t cell non hodgkins lymphoma
Hey everyone, I was writing in regards about my father. He was recently diagnosed with large t cell non hodgkins lymphoma. The doctors first thought it was large b and now they comfirmed it is the t. He has stage two. Some lumps in his neck and some in his armpit. Hopefully, he starts his chemo monday. I know this is rare…
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stringatoxin
has anyone heard of "stringatoxin" I just heard of it today and I dont find it on the internet,, Is it that new.. or do i have the wrong name.. I m told its being used on lymphomia at James cancer center as we speak.. thanks caregiver1829..
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Denise BMB
Hi Denise, I don't know what state you live in, or what time your scheduled for your BMB, but just wanted you to know I'm thinking about you out here on the West coast. It's 8:50 a.m my time and I'm keeping you in my prayers. Good luck and let us know how it went when you feel up to it. Love and best wishes...Sue
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sugeryr
hi everyonr i hope everyones good but with whats going on with my 14 year old daughter i feel like just giving up blessings denise
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Hello, Mantel cell patient.
I was diagnosed the 3rd of January with stage 2 Mantel Cell. I had 3 lymph nodes removed just before Christmas. Colonoscopy and Bone Marrow came in clean. The Pet Scan showed more affected Lymph nodes in the same right groin area. I started treatment on January 24th. Rituxin, Velcade, and Cladribine. Second round starts…
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Sue
my daughter took a drug that could have killed her, now she does'nt want to come home she says she will kill herself, she has never treated me like this i see her at 300 in the afternoon her dad sees her in the evening i knew he would be mad when i made him pay child support 6 months ago but i neveer expected anything like…
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Stem Cell Treatment for Diffuse B Cell Lymphone Patient Over Age 70
My father isn't responding to his treatment for diffuse large B cell lymphoma that is present in his bone marrow. I was wondering if anyone knows of a facility / doctor that will perform stem cell treatment on an otherwise healthy male over age 70. If so, please advise!!! Thank you, and best wishes to everyone.
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Jimwins ?????
Hey Jim, Where is you be at????? You didn't steal all those recipes and publish a best seller book then move to a remote island somewhere did you? LOL........ We miss Ya'. John
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Could I have lymphoma? Help please.
My names Katelyn. I'm 15 years old and I have a hard swollen lymph node on the side of my neck. I had a ct scan done about a week ago but it was inconclusive. Tomorrow I go for a FNA biopsy. Are the results from those accurate? What I really want to know is if I may have cancer. I'm scared to death here. I had a…
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Anaplastic T cell Large Lymphoma - anyone have this?
Our son was dx in Oct 2011 with ALCL. In treatment yet but we've insisted on modifying it due to the toxic effects. Also doing alternative supplements and he's doing well. We think oncologist is overtreating him. Surgery got 99% of the cancer but they try to get every last cell. We believe a strong immune system and…
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What items make you feel better?
Hi, I'm a cancer survivor who is working to help other patients/survivors. Thinking about your treatments and side effects, physically, mentally, etc. What type of items could someone give you to help make you more comfortable. Example: I had dry mouth and nausea - fruit flavored hard candy helped. Reading helped me pass…
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progressed
Him everyone sorry i havent been on for a while but i have been busy with my daughter. has anyone ever there onc to tell them the cancer has progressed and if so what does it mean?
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So Sad
All my dear friends My wonderful Mom has left me. She was peaceful in her last days and hours. She chose Valentines Day for her final day. I think it was her way of telling me to remember her LOVE always. I am so sad, but have the love of my wonderful family around me. Thank you all for the support and love you shared with…
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Maggie from Donna
Hi Maggie and anyone else interested in learning about SIBO. In answer to your question re: how in the world did I get Small Intestine Bacterial Overgrowth or SIBO: Way back in December of 2010 after chemo, I had two upper respiratory infections in a row, treated with antibiotics. From the antibiotics I got a terrible…