News!

Hi Everyone,
Well went to my oncologist today and got my test results. No amyloidosis! Thank God for that! But lots of information today. I'm a bit overwhelmed.

However, my hemolglobin is a bit low and several nodes are up. The biggie is the bone marrow though. I went from 10% to 50% infiltration. So needless to say treatment is starting tomorrow. I am very fortunate that my doctors knew to do another BMB and caught this before it progressed any further. I'm lucky not to have more symptoms than I do.

So it will be Benemustine for 6 months.

Good wishes and prayers are always welcome! :)

Hugs to all. My daughter gave me a necklace that says blessings on it today. It has an instruction card that says to remember all the good in your life. What a beautiful thought. Am I am truly blessed with great family, great doctors and great support. (That's your part) So thanks everyone.

Love ya,
Donna

Comments

  • jimwins
    jimwins Member Posts: 2,107
    Hugs :)
    Hi Donna!

    Thanks for sharing and the great attitude too :).

    Big hugs and positive thoughts for you that
    you breeze through the treatments.

    Please keep us posted and you know we're here for you.

    Here's a warm and fuzzy hug.

    Jim
  • allmost60
    allmost60 Member Posts: 3,178
    Treatment
    Hi Donna,
    I'm glad your treatment will start right away and hopefully now be able to put this darn cancer in check, once and for all. Now, do you have to stay at the hospital for this treatment, or is it the kind where you get an infusion and then go home afterwards? Please let us know how it goes for you and of course you have tons of good wishes, prayers,hugs and love coming your way! Take care and know we are here for you. Love...Sue
    (FNHL-2-3A-6/10)
  • vinny59
    vinny59 Member Posts: 1,032
    keep it up!
    hey Donna, awesome attitude, always wishing you well! PS your daughters a smart girl!!! Vinny
  • miss maggie
    miss maggie Member Posts: 929
    BMB
    Dear Donna,

    As I said before, you are being looked after by great doctors. Yes, your family is
    such a blessing. What would any of us do, if not for them.

    Benemustine is suppose to be a great chemo treatmet with less side effects.

    I send my love and prayers, along with my blessings. Love Maggie
  • anliperez915
    anliperez915 Member Posts: 770
    Hi Donna
    Hi Donna,
    I'm really glad that the doctors are starting treatment, I will be praying that everything goes well for you! It's hard not to feel overwhelmed many mixed emotions running wild through your head but try to stay calm (I know easier said than done), got to have faith that everything will be fine.
    Take care of yourself and sending you positive thoughts and (((Hugs)))

    Sincerely,
    Liz
  • scuttlebug11
    scuttlebug11 Member Posts: 175

    Hi Donna
    Hi Donna,
    I'm really glad that the doctors are starting treatment, I will be praying that everything goes well for you! It's hard not to feel overwhelmed many mixed emotions running wild through your head but try to stay calm (I know easier said than done), got to have faith that everything will be fine.
    Take care of yourself and sending you positive thoughts and (((Hugs)))

    Sincerely,
    Liz

    hi -donna
    your news is great and your necklace souds buatiful good luck on your chemo prayers and blessins to you. denise
  • Avantgardener
    Avantgardener Member Posts: 32 Member
    Positive attitude
    So glad your doctors (and you) are on top of this - here's to a very speedy and BORING treatment with no drama and all the very best results!
    I do love boring, these days...
    :)
  • onlytoday
    onlytoday Member Posts: 609 Member

    Positive attitude
    So glad your doctors (and you) are on top of this - here's to a very speedy and BORING treatment with no drama and all the very best results!
    I do love boring, these days...
    :)

    Thank you All!
    Thank you guys! I can feel the hugs, support, prayers and loving good wishes coming from all of you.
    It means the world to me!

    If you notice,it is 2:45 am. Up with terrible acid reflux and nausea and a slight rash. Sitting up for 45 minutes- getting better-it'll pass. Took some "meds". Ahhhh the like of a patient. May God grant me peace!

    Jim- Boo is my new favorite!!

    Hugs to everybody,

    Donna