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Hi Everyone
This is my first post. I joined the website in April 2012; So I figured it was time to share my story. I have read many posts and want to thank everyone here. Many of my questions have already been answered. I'm now 49, and I was diagnosed with Stage III Mantle Cell Lymphoma in early February 2012. January 26, 2012, I had…
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Worst day(s) during cycle
Hey everybody, just curious what everyone's worst days were as far as fatigue and malaise during their cycles? Today has been a doozy, I don't remember ever being so devoid of energy ever before. I sure hope it improves.
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So tell me, I'm curious
So I read today while I was in the chair that ANC between 500 and 1000 is moderate neutropenia. My count was 500 on the nose and the Onc went ahead with treatment. She does not want to give me a shot to up my white cell count so I'm a bit nervious about my infection risk. So the question is have any of you gone on with…
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scan came back great
my scan results came back no lymphoma and no cancer
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Hello and brief update
Hello Dearhearts I am missing you all so much. Lots of trouble with the focus of my vision. I assume it's the many many drugs they have me on. It does make it hard to type and to read. But I have been trying to read a little. I am awaiting another ct scan, hopefully for this week. The pain is beyond anything I have ever…
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R-Chop - the results are in...
Hello... My husband was diagnosed with CLL (age 40) in October 2011 which transformed into Large Diffuse B Cell Lymphoma in February of this year. He has completed 6 rounds of R-Chop at the end of June. He tolerated treatment very well and was feeling pretty good until recently when he says his head feels weird. He just…
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Round 2
Here we go my friends, infusion # 2 is underway. Hopefully this one won't take 10 hours. Hope everyone is doing ok today.
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Ready to go...
Hi guys, Just a quick note to tell you I'll be on vacation starting tomorrow...be back home on the 19th... then R infusion on Tues the 21st. I'll have my lap top with me, so I'll check in on you all...maybe not post a lot, but still be close by. I'm ready for some R&R, fishing and a few "cold ones" now and then. :) Not a…
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New thread for DaddysGirl/fathers SCT discussion
I started this new discussion for DaddysGirl. The old thread was getting too hard to pull up. Here is her last post concerning her father. Love...Sue (FNHL-2-3a-6/10) July 3, 2012 - 1:25pm DaddysGirl... going to keep it short I going to keep it short I appreciate all the messages above VERY VERY much and all the thoughts…
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2nd cycle
I am wondering if everyone's side effects generally stayed the same with each treatment?? I am really hoping so but not getting my hopes up. I had my 2nd cycle today and have started prednisone again....arghhhh I hate that stuff
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Lymph nodes are uncomfortable
Hi, I'm just on day 5 after my first round of chemo and my axillary lymph nodes are achy. I'm also getting weird twinges in other areas where there are lymph nodes. Has anyone else experienced this? I'm telling myself that this is the chemo on attack! I hope I'm right! My lymph nodes also go tender when I had alcohol.…
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results of scan
today i got the resuts of my scan the tumors have shrunk but nomission the only option i have now is the allo transplant because my bone marrow is destroyfd and i can have no more chemo im sorry i dont get on much anymore but i stay so depressed i hope everyone is ok i am losing my fairh on top of everything else my…
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Hi, I'm new here. . .
Hi everyone, Aaron invited me over from another board that we post on. He said that you were a great bunch of people. I'm 54, and was diagnosed at the end of June with NSHL-IIIA(S). I'm doing six cycles of ABVD. Had the first one today and it went very well. Now just trying to drink lots and stay on top of the meds.…
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I am looking for someone who has had Angioimmunoblastic T cell lymphoma with a relapse after stem ce
Hello all, I am new to this site. A very good friend of mine has had a relapse of angioimmunoblastic T cell lymphoma after stem cell transplant. He has asked me to find anyone who has had a second transplant and survived. He is recieving RBC's, has liver and spleen involvement. The plan is to start Gemzar and one other…
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Diffused Large B Cell Lymphoma stage 3e Newbie....need some insight...thank you.
Hello every one! My name is Andy and i recently been diagnosed with Diffused Large B Cell Lymphoma stage 3e. First, let me give you a little history. On January 31, 2012 i had total knee replacement. Up to this date, my knee is not quite rite. Anyway, in March i was having some stomach problems since i had divericulitis…
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Pet CT Scan
I had my Pet CT Scan done yesterday, Monday July 30 in the afternoon. I was informed the results would be in the next day Tuesday. I find this very interesting. Why do some patients have to wait so long for their results of a scan? I am seeing my oncologist Monday August 6. Will I call today Tuesday, or tomorrow Wednesday?…
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Talked to Lisha ....
Hi guys, Lisha called me last night and said to tell all of you "Hi". She's had a lot of pain since surgery, but is taking pain meds that are helping. She's sleeping quite a bit, but to be expected. She said she's moving around slowly...even goes up and down the stairs from her bedroom. Wednesday she goes to the…
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GREAT NEWS
Just left the Bone Marrow Transplant Clinic and I had to share my great news with everyone. My immune system is 95% resotored!!!! I will no longer have to live life with the transplant precaustions in two weeks. The masks are gone!!! I have been officially released from the translplant unit and am now back with my regular…
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Second Opinion
Tomorrow I am going to get a second opinion from another Oncologist. I am 4 months into ABVD chemo bi monthly for stage 4 Hodgkin Lymphoma . I have a lot of questions for this doctor. I have no idea what to expect. Has anyone else done this? Any specific questions I should ask? -Emilie
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still cant get over my mum being gone..
its been just over 9 months since my mum died infront of me in the ICU and i still find it difficult to grasp and get the last week of her life out of my head. my mum went through a bone narrow transplant 6months before she left. she pretty mich got everything you can get from having a transplant and she soldiered through…
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Welcome AngeH
AngeH is new and posted in a few places already. To simplify, I posted this topic to welcome her. I sent her a private message as well... Her Bio/Profile: AngeH Below is paste of one of her posts: ========================================= Hi!! I'm new here too! I just found this site while doing a search for more…
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Hodgkins first day of stem cell harvest.
Yeap today was the first day of my stem cell harvesting. It went pretty well. They hooked me up to a machine for about 4 hours to try and extract my good stem cells from my blood. They will call me later to give me my counts. Then they will let me know if I need to return to have it done again. I hear most likely I will…
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Just talked to Lisha's husband...
Hi guys, I called Lisha's home at 1:00 today(Pacific time) and talked to her husband Keith. Lisha is home...released from the hospital yesterday. Keith said she has been sleeping and he hasn't been able to get her to stay awake for any length of time. His words..quote.."not good". I told him the group was concerned and…
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lisha
I am getting very concerned. Has anyone heard from her or keith? I keep checking and don't see anything new. I didn't want to say this but after being so scared, I would be having a mental breakdown even with the great news. I a very worried about her guys.
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How many we're diagnose with Lymphoma shortly after
Flu Shot?
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City of Hope conducts first-in-world clinical trial of T cell therapy for non-Hodgkin’s lymphoma
For those of you who have T Cell http://www.cityofhope.org/about/publications/news/Pages/city-of-hope-conducts-first-in-world-clinical-trial-of-t-cell-therapy-for-non-hodgkins-lymphoma.aspx
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Sharing an article
I received an email today from a friend who referred me to this article. Though it may be geared for the "newbie" to cancer, I think it has insights/thoughts worth sharing for all of us here. I think most of us will identify with his words. He was diagnosed with Leukemia at age 27 and wrote this piece from "the other side…
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changed mind
i have decided not to have the bone marrow transplant, i feel there are to many risk i can gethost versus graft disese the graft may not take i could get an infection and i have been told it will be an infection that i will die from and you can get host versus graft disease up to two years up to two years after its done i…
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The chair
Well I go for my first rituxan treatment this morning. I am hoping that I don't have any nasty side effects since it's the first time in 15 months. I will check in later. Have a good day although it's starting good..it's rainimg...yahoo!!!
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Feeling a bit scared
My husband has CLL with transformation to Large B Cell Lymphoma. He finished his 6th round of R-CHOP June 25th and goes in tomorrow for PET scan and bone marrow. We are afraid it has not worked. He can feel a couple of swollen lymph nodes in his neck which I assume is the CLL. Does anyone know if the lymphoma makes your…