First, thank you for your expressions of support in my last very long post.
I talked with my reg doc this afternoon. This is what I now know and what will happen next.
The scan showed a large pocket of fluid in the area of the most pain. It may or may not be infection brewing. My white count is not to low, just somewhat.
The doc explained that during the surgery the onc had to rip apart numerous adhesions. From many previous surgeries. So, that by it's self can cause a ton of extra pain. The area is super raw and inflamed. Okay. Why didn't anyone care to share this with me before???
My doc is concerned about my other blood levels. Very low iron, due to blood loss from surgery and still very dehydrated. Not a great combination.
He wants to make sure that I try to maintain my nutritional intake and that I keep the pain under really good management. Both seem almost impossible to do. I suppose the pain control will be some easier to handle. But trying to eat is not so easy. I have been trying to have very small amounts of jello, yogurt, toast etc. throughout the day. So far this seems to help a little. Plus I have now doubled the dose of the dilaudid pain med. This also helps a little. So maybe all these baby steps are moving me in the right direction.
He also had a talk with the elusive onc!. She wants to see me next week to make sure that the pocket of fluid has not become an infection. She told him to tell me to call and set up an appointment. Why the hell couldn't she call me or her nurse call me. What a bunch of baloney!
He expects that this pain may be around for at least another month or so. I told him that I can hardly do this now, how am I going to keep going for weeks. One day at a time and his support and help with the cancer center might make it doable. That was his thoughts on getting through this.
I am really not sure that food alone can bring up my levels, so he did mention that I can get additional i.v. fluids and transfusions if really needed. The fluids only help in the short term, I know, but maybe it's just the little extra that I need. Same for the transfusions. Although they can create additional problems, so for now I'll try to eat a bit better, rest a lot more and take as much pain meds as needed to bring me to a painfree state.
So that is where I am heading into the weekend. Hopefully all will work out. My doc did say to NOT let the cancer center get to me, he said we will deal with that nonsense later. Lets focus just on you and your comfort and needs.
So that is what I plan to do. Day by day, hour by hour.
Thank you all for sticking by me, this has been beyond crazy time. Thank you thank you.
Super (((hugs))) to each one of you. You all so deserve so much more.
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