Aaron, how's this cycle treating you?

ThisisLife
ThisisLife Member Posts: 101 Member
in Lymphoma (Hodgkin and Non-Hodgkin) #1
Hey Aaron,

Thinking about you and wondering how you're doing this cycle? Well, I hope.

Comments

  • Aaron
    Aaron Member Posts: 237
    #2
    Other than living in a
    Other than living in a bubble it hasn't been too bad. At this point after first infusion my mouth was in horrible shape and this time it's not as bad. The fatigue is a bit more present but bearable. At this point I'm just trying to not get any infections and get my Onc to give me some thing to get my counts up to a less dangerous range. How are you doing? I hope well.
  • Max Former Hodgkins Stage 3
    Max Former Hodgkins Stage 3 Member Posts: 3,818 Member
    #3
    Aaron said:

    Other than living in a
    Other than living in a bubble it hasn't been too bad. At this point after first infusion my mouth was in horrible shape and this time it's not as bad. The fatigue is a bit more present but bearable. At this point I'm just trying to not get any infections and get my Onc to give me some thing to get my counts up to a less dangerous range. How are you doing? I hope well.

    Neulasta

    Aaron,

    I still do not understand the issue with neulasta. Has your doc explained it any better ?

    max
  • ThisisLife
    ThisisLife Member Posts: 101 Member
    #4
    Aaron said:

    Other than living in a
    Other than living in a bubble it hasn't been too bad. At this point after first infusion my mouth was in horrible shape and this time it's not as bad. The fatigue is a bit more present but bearable. At this point I'm just trying to not get any infections and get my Onc to give me some thing to get my counts up to a less dangerous range. How are you doing? I hope well.

    Good news about the mouth
    That's great news that you're not having such bad mouth issues! Sorry to hear that you are battling the whole low count thing though. I wonder why they don't want to give you anything to boost them.

    I am doing very well thank you. Day 3-5 had me feeling weak and a bit fatigued if I tried to do anything (i.e. grocery shop). But when I hit day 7, it was like someone flipped the switch. I am sleeping right through the night which is a blessing! I went to see my doctor and got something to help me sleep for the first week of the next round. I can get a reasonably decent deep breath these day and there is a definite decrease in the size of my lymph nodes under my armpits! And, I have an appetite these days!!! That's been missing for a while now. Actually, I'm feeling pretty darn good. I have to go for bloodwork tomorrow so that they can check my counts before round 2 on Thursday. Now I'm just getting myself psyched up for Round 2.
    Hope your counts come up soon!
  • Aaron
    Aaron Member Posts: 237
    #5
    ThisisLife said:

    Good news about the mouth
    That's great news that you're not having such bad mouth issues! Sorry to hear that you are battling the whole low count thing though. I wonder why they don't want to give you anything to boost them.

    I am doing very well thank you. Day 3-5 had me feeling weak and a bit fatigued if I tried to do anything (i.e. grocery shop). But when I hit day 7, it was like someone flipped the switch. I am sleeping right through the night which is a blessing! I went to see my doctor and got something to help me sleep for the first week of the next round. I can get a reasonably decent deep breath these day and there is a definite decrease in the size of my lymph nodes under my armpits! And, I have an appetite these days!!! That's been missing for a while now. Actually, I'm feeling pretty darn good. I have to go for bloodwork tomorrow so that they can check my counts before round 2 on Thursday. Now I'm just getting myself psyched up for Round 2.
    Hope your counts come up soon!

    Still waiting on an
    Still waiting on an explanation, hopefully I'll get one soon.
  • Aaron
    Aaron Member Posts: 237
    #6
    Aaron said:

    Still waiting on an
    Still waiting on an explanation, hopefully I'll get one soon.

    Hi sharlene
    Hey, I know today's round 2 for you. Just wanted to wish you the best of luck for a speedy and simple one. Don't forget your ice chips ;). Aaron
  • ThisisLife
    ThisisLife Member Posts: 101 Member
    #7
    Aaron said:

    Hi sharlene
    Hey, I know today's round 2 for you. Just wanted to wish you the best of luck for a speedy and simple one. Don't forget your ice chips ;). Aaron

    Leaving in 1/2 Hour
    Good morning Aaron,
    I'm leaving in about 1/2 hour. Went yesterday for me pre-infusion vampire draw and found out that the have changed the protocol. I only need to go for a blood test at the beginning of each cycle, so every other time! I'll take it!
    How are you feeling today? How long do you need to stay "quarantined"? The whole cycle?
  • Aaron
    Aaron Member Posts: 237
    #8
    ThisisLife said:

    Leaving in 1/2 Hour
    Good morning Aaron,
    I'm leaving in about 1/2 hour. Went yesterday for me pre-infusion vampire draw and found out that the have changed the protocol. I only need to go for a blood test at the beginning of each cycle, so every other time! I'll take it!
    How are you feeling today? How long do you need to stay "quarantined"? The whole cycle?

    My doc said I can go out to
    My doc said I can go out to the store or the park with kit if I want but I should wear a mask. I'll find out next Thursday if my counts have come up or if I'll needs shot from time to time. I must say it seems odd to me that they only want to check your counts once a month. For me it's worth it to know where I stand blood count wise as much as possible. Hope the day goes well for you. Aaron
  • po18guy
    po18guy Member Posts: 1,508 Member
    #9
    Aaron said:

    My doc said I can go out to
    My doc said I can go out to the store or the park with kit if I want but I should wear a mask. I'll find out next Thursday if my counts have come up or if I'll needs shot from time to time. I must say it seems odd to me that they only want to check your counts once a month. For me it's worth it to know where I stand blood count wise as much as possible. Hope the day goes well for you. Aaron

    Gloves or frequent hand-washing
    In addition to a mask, think about wearing gloves, and always having a bottle or two of hand sanitizer with you. I keep small bottles in jacket pockets and car glove box. If I don't have any, I wash my hands much more frequently. In public restrooms, I dispense some paper towel first, then wash hands, then use that bit of towel to dispense more towel (avoiding touching usually wet handle or lever) the handle to dry my hands, and shut the water off. The point is to avoid physical contact with anything that infection-carrying hands have touched. Its a bit of a change, but it has worked for me. In public, when someone is coughing or sneezing, I detour around them, or leave the area. Kids with runny noses? Yikes! Sadly, the enemy is unseen at this time, so a little paranoia is warranted. Has doctor prescribed the usual anti-biotics, anti-virals and anti-fungal drugs? I was a walking pharmacy when receiving chemo. I still use the alcohol solution after almost four years, since no one can say just how well my immune system is working. What we know for sure is that it was compromised when all of this showed up. All the best,

    Jim

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