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Lisha (forme) - How ya doing?
Hi Lisha, Just wanted to check in on you. You doing okay? Looks like Isaac was kind to the Keys. I would have sent you some of Beth's (dixiegirl) King Ranch Chicken but my brother in law ate it all ;) . Just thinking about you and sending you warm hugs, Jim
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Pet Scan
Well another Pet Scan today, hope that activity in my hip is behaving, promised my wife I would not plant my vegetable garden this year until I get a clean bill of health! So here's to the vegetable garden going in this year lol!!!!
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TORTURE
King ranch chicken would have been AWESOME, but I guess I'll choke down a turkey sandwich... booooo
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BIG HUGS FOR LISHA !!!!!
Lisha, We will all be there with you tomorrow in the operating room. BIG,BIG HUGS. John
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A Must read
A man in my cancer support group gave me this book this morning at church. I think it is amazing. Outsmart your Cancer By Tanya Harter Pierce
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nhl bcell with marrow bone involvement
Diagonized with bcell NHL with bone marrow involement. Also orbital mass behind left eye which was removed. Had 3 treaments of RCHOP, Rituxan and Restulan (sp?) was told no cancer detected. On 2nd visit was told could not rule out bone marrow as would have to have another bone biospy, but said blood work was very good so…
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this is a full-time job
re-scheduled! and probably not for the last time. treatment #2 has been rescheduled to sept. 4, as my neutrophil level is really low and they want to give me extra time to recuperate before blasting me with more R-CHOP. funny, i feel fine, more energy than at any time during this previous cycle. went out shopping yesterday…
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overwhemed
Guys I have hit my limit. I just want to cry. I don't know what to do, other than crawl in bed and pull the covers over my head and stay there forever. I am so tired of this. I don't want to make any decisions. I don't want to do anything. The depression is winning right now. Trying to stay positive is getting harder…
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T-Cell Lymphoblastic Lymphoma in an 'old lady'
Hi Just joined this site in search of someone like me. I was diagnosed with Stage 4 T-cell Lymphoblastic Lymphoma last fall. I've been through my 6-month induction treatments and now have about 16 more months of maintenance treatments to complete. As I understand it, this 'version' of cancer typically hits young men - not…
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Follicular Lymphoma Very Alone Deciding First Treatment
Hey, everyone! I am very scared and very alone. Thanks for all your eye-opening comments. I've been on Watch and Wait for about 2 years. Now The tumors have grown and my oncologists, first and second opinions, agreed to start me up on treatment Treanda+Rituxin has been recomended by one and CHOP+Rituxin the other who has…
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Hey Sharlene
How are you, I know infusion 3 is today and I just wanted you to know I'm thinking of you. They bumped me back 5 days on my treatment so you and I are within a day on our treatment schedules now. I hope all is well with you and your family, keep me posted. Aaron
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finished testing
i finished testing monday and tuesday the only one i cleared for was the denisti have a couple of teeth i need pulled, which i will have done at home. i have my calendar for the transplant 9-1 retuxan 9-7 line placed 9-8 retuxan 9-9 fludarbine and cytoxin the same for the next two days then rest a couple of days and i get…
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Off topic - prayers needed --- Update!
Hello Dearhearts I hope you don't mind me asking for your help. I know that I ask a lot from you all. But, really could use some prayers and positive energy right now. Many of you know that we have a business in Key West, Fl. We have been trying to sell it for the last few years and just recently may have a potential buyer…
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FNHL strategy to deal with symptoms.
After being tired and fatigued for 3 years I finally elected to have a periaortal lymph node extracted for biopsy. DX was follicular lymphoma. It also showed up in my bone marrow which put me at stage 4. Since I had no large tumors in my PET scan, we elected Rituxan mono therapy as a starter and to "save the big guns for…
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Friday update
Hello Dearhearts Just wanted to give a brief update. I seem to be holding steady right now. The pain is mostly under control. I believe that we finally found the right dosage of pain meds. I have small bits of time when the pain becomes worse. It seems to be close to the time for my next dose, so I just take it a little…
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2 Cycle coming Up...what Should i expect?
Hello Everyone, Well, i am on My Second week of My first Cycle. So far so good. In The first few days i had no taste and dried mouth. I am having flu like symptoms like runny nose , sneezing And occasitional cough. No fever though. Is that normal? Day 6 And 7 after the prednisone, i felt that i got ran over by a truck. My…
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Vibration / tingling in legs.
My husband finished treatment on May 31st ( 3 rounds of R-CHOP and 20 radiation treatments to his neck). He recently had a normal CT scan and his doctor said he was in "complete remission". Now, he says he has a strange feeling in both legs. He describes it as a vibration or buzzing from his thighs down. He said its not…
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Pet scan in the morning
I am scheduled for a pet scan in the a.m. With high hopes it will come back clean. Dr says that even though he expects a clean scan he wants to continue with my last three cycles. I am wondering if I will have this anxiety for the rest of my life wondering if the cancer is still there or if it has come back??? I am…
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allo transplant
has anyone ever had a transplant with an unrelated doner if so how was your transplant vh were you sick or did you how did you feel did you get gvhd bleddings denise
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Eustachian tube problems
Anyone else have problems with their estuation tubes due to lymphoma or radiation therapy. There was a tumor or node that grew next to mine on the left side that closed the “E” tube and cause fluid build up in the ear. I had radiation to destroy the tumor and the radiation worked and fluid disappeared, but since than, my…
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Question for Vinny
Hey Vinny, You posted in my previous post that you still have an uptake of 2.5 in your hip. I was just curious if you had radiation? If you had radiation, was the uptake still 2.5 after the rads or was there a recurrence? If it was still 2.5 after the radiation what did the doctor recommend that you do next? Just wondering…
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Sue, thinking of you
Hi Sue, Just want to say that I will be thinking of you tomorrow and wishing you a very easy day. It seems like just a short time ago that you were starting the rituxin every other month. Now you are getting so close to the finish line. If my math is correct, after tomorrow you will only have three more infusions and then…
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nerves
I go see onc tomorrow to see if r is working. I am scared this time. I don't think it's working. I hate being this nervous.
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Anyone ever had follicular lymphoma?
I had a lump removed from the left side of my neck a few weeks ago and they diagnosed it as follicuar lymphoma. I am trying to sort out which doctor to go with in the Indianapolis,IN area. Wondering if I should have a bone marrow sample taken, I am very overwhelmed at this point. If anyone has some advice I would…
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Living in Fear
I finished my chemo in early May and then had a pet scan which showed a small residual mass with an SUV of 3. I was sent back to the specialist to see if he thought I needed a SCT and he told me that the metabolic activity could be caused by the chemo or scar tissue. So, he recommended that I have radiation. This was…
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dear jump
Did you have the allo or auto transplant? Blessings, Denise .
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testing starts
testing starts next week monday and tuesday, then i see the onc again on september6 and the next day i have the cathater placed and admitted to the hospital to start the transplant i will have chemo for 4 days rest a couple of days and then get the new stem cells i havent found out yet what will be done about the platelets…
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Thinking of you
Hello Dearhearts I am sure you all are sleeping peacefully in your warm comfy beds, just not me. I have so much trouble sleeping right now, I am beyond tired. Even nightowls need some sleep... I have been thinking of you and how special each one of you truly are. I wanted to just let you know that. I hope that everyone has…
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John Private message
Dear John, did you get my response via private message. I never responded before to a private message. Let Me know. Love Maggie
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onc appointment update
Hello Dearhearts I am home from my onc appointment with both positive news and not so positive news. First, the onc does not believe that I have an abscess. Hooray! I did not think so either, but given all the pain, who knew. She explained that the pocket of fluid is not totally abnormal. She said that it was such a big…