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Home from appointment
Hello Dearhearts I am now back home. Today was difficult again. Mini meltdown. I am really ready for some peaceful moments. I am set to get my transfusions on Friday starting at 8 am. They are not keeping me overnight. I am feeling a little scared about that, but it is what it is. The onc visit did not turn out well. I…
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Falling down and apart
Hello Dearhearts I am really having a hard time. Both physically and mentally. I still have not received the transfusions. I will be typed and crossed tomorrow after my onc appointment. It seems that I am always having the miscommunications between docs. It took till today for the onc to return the calls to the pcp. He…
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Good morning to all
Hello, I'm new to this forum and I see that the human power is greater than anything else. First of all excuse me for my English :) I'm writing so that I can get some answers to my concerns. My father in law was diagnosed with Primary Adrenal NHL with no adrenal insufficiency. A very rare case with so few incidents…
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Me and the Mouse
Hi All, Just want to let you all know that Hubby and I are taking a quick trip out of town. My daughter, son in law and the grands have planned a trip to Disneyland. They are driving there tomorrow. The kids have NO idea that they are going. They are spending the night tonight at the beach and then telling the kids that…
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Anyone hear from Maggie?
During her move I hope she didn't put her computer in the microwave ;) . Just thinking about you, Maggie. Jim
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1st day of harsh chemo...Denise
Hi Denise, Just wanted to drop you a note and say I'm thinking of you today. This being the first day of your 3 harsh chemo treatments, I'd imagine all you will want to do is rest and stay peaceful. I hope you are feeling ok and not too wiped out, or sick. The next 3 days will go fast and then you can rest on Wednesday and…
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Denise...Rituxan today...
Hi Denise, I just wanted to let you know I'm thinking good positive thoughts with your Rituxan today. I hope everything is going good with no problems. It took 7 hours on my first day of chemo because they had to set the Rituxan drip to a slow rate. Seems like that first day went on forever. Now it only takes 3 hours or…
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How did things go Aaron?
Hi Aaron, Thinking of you! How did things go for you today? Do you they check your blood counts every treatment? Hopefully you were well enough and didn't have to skip. My went well again. My oldest son is here visiting me from out of town, so he came with and we had a nice visit. I think it was helpful for him to see what…
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More news :(
Hello Dearhearts As promised, this is my after the doc visit update. Well my bone marrow has not come back to life. Major bummer. So the doc is now in the process of settting up an admit to the hospital so that I can receive the needed transfusions. It will have to be an overnight stay. I so had hoped that my blood counts…
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Positive thoughts for my niece
My niece, Tosha (35 yrs old) discovered a lump in one of her breasts. It has since decreased in size but she has an appointment to have it checked out today. So, just asking for your positive thoughts and prayers for her. Thanks my friends, Jim
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John..are you done with the R now?
Hi John, I couldn't remember if this week was your "final" week or not for the Rituxan maint. I hope all is going good and if you ARE done, then "YIPPEE". My "done" date is Feb 14th...again on Valentines Day this year. This will make the 3rd year I've had to be at the cancer clinic getting an infusion on Valentines…
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Friday update
Hello Dearhearts, Here is the lastest news. I am feeling like the pain is under control, still have it, and the occasional break through pain but it is managed well with this new pain dosage. I think I am headed in the right direction with the pain. I even have times when I take a little less pain meds. Hooray.. I am…
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Post-Hodgins Annual Check-Ups: What Tests Should Be Performed
It's been 30 years since diagnosis of Hodgkins Stage IIa at age 19. Treated at MSK with Radiation and Chemo (not MOPP, the other one). Had CABG 10 years ago as by-product of radiation. I get follow-ups by both an Oncologist (annual) and Cardiologist (semi-annual). Both request blood work, Oncologist also has me do a annual…
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Round 5 done
Hi all! Had my two days of infusions- all went well. Home resting and being spoiled by my daughter and husband. And of course Max my dog. :) Will have final round in October.( Getting bendamustine/ofatumumab miracle mix) Just found out yesterday that I will have maintenance - One full day of Ofatumumab infusion every other…
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Maggie moving
Hello to my family, I will be moving Tuesday, Sept 4 to a smaller house. I have been so busy packing and throwing things out. I am moving close to where i live now. There are so many of you struggling. It makes me very sad I will not be able to keep in touch with all of you. Especially, the ones that need my support,…
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Here I am
Hi All Thanks for asking about me. I'm not lost or missing, just feeling down and so very tired. The pain is still with me, but mostly managed with the meds. The doc gave me another pain med to take for break through pain. I feel like all I do is take pain meds, then take other meds for the side effects of the pain meds…
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Relapsed NHL-Rituxan Maintenance or Stem Cell?
I recently was diagnosed with a relapse of NHL (diffuse large B-cell/aggressive). 4 years ago I was treated with R-CHOP and now they are giving me DHAP since I had a bad experience w/ RICE. After two treatments-I am presently in total remission My primary oncoligist (the Dr. who treated me 4 years ago) has recommended that…
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hey everyone
I just wanted to say that I really enjoy this group. I'm glad to meet and talk to others who have been in the same boat as me. Thank you all once again
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Swollen tonsil
I just had a tonsillectomy today. I had a swollen tonsil for about eight months. Well thats when I first noticed it. It never hurt me until recently. It was causing me some neck pain and pressure. The left one started to get bigger also but they were not the same size. I finally went to see the ENT this month and he looked…
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consent form signed
i signed the consent form thursday i had some teeth pulled today to make sure they didnt get infected my mouth is really sore, tommrow i have an infusion of retuxab. i go back home untill the7th when i have the cath placed i really feel good about this like its the miricle ive been praying for. blessings denise
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Lisha (forme) - How ya doing?
Hi Lisha, Just wanted to check in on you. You doing okay? Looks like Isaac was kind to the Keys. I would have sent you some of Beth's (dixiegirl) King Ranch Chicken but my brother in law ate it all ;) . Just thinking about you and sending you warm hugs, Jim
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Pet Scan
Well another Pet Scan today, hope that activity in my hip is behaving, promised my wife I would not plant my vegetable garden this year until I get a clean bill of health! So here's to the vegetable garden going in this year lol!!!!
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TORTURE
King ranch chicken would have been AWESOME, but I guess I'll choke down a turkey sandwich... booooo
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BIG HUGS FOR LISHA !!!!!
Lisha, We will all be there with you tomorrow in the operating room. BIG,BIG HUGS. John
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A Must read
A man in my cancer support group gave me this book this morning at church. I think it is amazing. Outsmart your Cancer By Tanya Harter Pierce
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nhl bcell with marrow bone involvement
Diagonized with bcell NHL with bone marrow involement. Also orbital mass behind left eye which was removed. Had 3 treaments of RCHOP, Rituxan and Restulan (sp?) was told no cancer detected. On 2nd visit was told could not rule out bone marrow as would have to have another bone biospy, but said blood work was very good so…
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this is a full-time job
re-scheduled! and probably not for the last time. treatment #2 has been rescheduled to sept. 4, as my neutrophil level is really low and they want to give me extra time to recuperate before blasting me with more R-CHOP. funny, i feel fine, more energy than at any time during this previous cycle. went out shopping yesterday…
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overwhemed
Guys I have hit my limit. I just want to cry. I don't know what to do, other than crawl in bed and pull the covers over my head and stay there forever. I am so tired of this. I don't want to make any decisions. I don't want to do anything. The depression is winning right now. Trying to stay positive is getting harder…
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T-Cell Lymphoblastic Lymphoma in an 'old lady'
Hi Just joined this site in search of someone like me. I was diagnosed with Stage 4 T-cell Lymphoblastic Lymphoma last fall. I've been through my 6-month induction treatments and now have about 16 more months of maintenance treatments to complete. As I understand it, this 'version' of cancer typically hits young men - not…
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Follicular Lymphoma Very Alone Deciding First Treatment
Hey, everyone! I am very scared and very alone. Thanks for all your eye-opening comments. I've been on Watch and Wait for about 2 years. Now The tumors have grown and my oncologists, first and second opinions, agreed to start me up on treatment Treanda+Rituxin has been recomended by one and CHOP+Rituxin the other who has…